anyone starting chemo in Nov 2005

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  • Odalys
    Odalys Member Posts: 2,103
    edited November 2009

    How is everyone doing these days?  Can't believe it's been four years since the dreaded chemo.  I thought I would never survive it.  Thanks again for being there and for your friendship.  God bless each and everyone of you and your famlies.

    Love ya!

  • AnnaM
    AnnaM Member Posts: 1,387
    edited November 2009

    So good to hear from you, Odalys.

    I am doing well. Saw BS and PS this week and no changes. Onc. wants to do all tumor markers and I've been putting it off.

    Such a busy time of year . . . blended families and all . . . not easy, you know what I mean? Mary Lou, is your kitchen gorgeous now? Margerie, how are the kids? Deb, I hope you are well. Nancy, still traveling around the country to talk about important things?

    It's raining here in Virginia today. I'm off to meet with my quilting friends.

    Love to my sisters,

    Anna

  • AnnaM
    AnnaM Member Posts: 1,387
    edited November 2009
  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited November 2009

    Happy Thanksgiving Dear Sisters!  I hope everyone is well and will enjoy the holidays, although I understand what you mean about blended families.  I'm doing dinner on Friday this year since that is when my grandson is available.  Oh well!  Anna, your grandson is so gorgeous and so big. I also see lots of changes in Mary Lou's grandkids, Daniel, and Margerie's tow heads.

    We have all been blessed with time to see these changes over the last four years.  For that I am grateful.  I just returned from celebrating my four-year chemo anniversary--two weeks in Maui where the only decisions of the day were the color of my bathing suit and where to go for dinner.  So very different from when we initially came together.  Can you see me parasailing???? Oh yea!

    I hope each of you has a bountiful Thanksgiving full of family/friends, good food, and gratitude for what's behind us!

    Love ya'

    Nancy

  • AnnaM
    AnnaM Member Posts: 1,387
    edited November 2009

    Thank you for your wishes, Nancy. I hope you and all my sisters here have a wonderful Thanksgiving. We have much to be thankful for, don't we? My little treasure is here under our roof as I write this and I couldn't be happier. What a little miracle! He calls me Mimi, and he laughs and laughs and dances everytime he hears a tune or even of one of us mentions one of his favorite songs.

    My heart is full.

    Love, Anna

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2009

    Hello dear sisters. Just want to let you know you are all in my heart and thoughts.  Hope everyone is doing well.  It's been a while since we've communicated here....sign we are all doing well and have moved on.  It seems ages ago we were all sitting on that hideous chemo reclyner.  Yuck!  Be well! 

     Love you guys.

  • AnnaM
    AnnaM Member Posts: 1,387
    edited December 2009

    The kids were supposed to arrive on Saturday morning but the snow closed our airports and their flight was cancelled so now they are scheduled to arrive tomorrow morning. I'm keeping my fingers crossed . . .

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2009

    Nancy, such beautiful words. Anna so sorry about the kids, the weather is bad for travel. Ody, glad to see you, I miss this little part of us. You're right, we have become busy again. I take my time for family now.

    I also don't mind saying this is me time. At times I believe if the phone rings one more time I will scream.  I'm now here taking care of everything alone. I've found that my limitations are worse than I would believe.

    Forgive me if I ramble, I'm just very tired and I took ativan about an hour ago. I think it is working. My neck is very stiff. And my body is sore and feels tight. The pain in my legs from the neuropathy really stinks.

    But I'm here, and I have seen 3 new grand babies born in the past three years.

    I will try to post pictures below.

    HUGS  to each of you, and have a great holiday.

  • Odalys
    Odalys Member Posts: 2,103
    edited December 2009

    Mary Lou - sorry to hear about all the pain.  I think a lot of the bone and joint pain we experience is SE from all that we've put our poor body through and from the lack of estrogen.  Are you taking an AI?  I just finished taking Femara.  My body can't take it anymore and my onc feels I've had enough and can just continue with Zoladex.  I stopped taking it on Wednesdayand also had a Zoladex shot that day.  Well, yesterday (Sunday) I was able to make a strong fist.  My knuckles are not as swollen or painful.  I'm just waiting for the same effect on my legs.  They are killing me. 

    Nancy - thanks for the beautiful card.  Hope you are doing well.

    Marge - your babies are so grown up.  They are adorable.  Are you still struggling to lose weight?

     Anna - I hope you enjoy your family this season.  I'm sure you are going to be hugging and kissing that handsome grandson every minute you get.  enjoy!

     Happy holidays! 

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited December 2009
  • Margerie
    Margerie Member Posts: 526
    edited December 2009

    Hi checking in :)

    Since so many of us are on facebook, I don't sign in too much here... bad girl!

    Odalys- hideous recliner!!!  LOL I just figured out why I forbid my DH from getting one for our home, it is the bad memories for sure.

    I am doing a women's fitness group 3x a week, like a boot camp.  SO much stronger and fit, but still settling for fit and fat. LOL not going to get skinny for the holidays that is for sure.  Yesterday I had a piece of my mom's carrot cake for breakfast because we had just gotten home and we didn't have any eggs or milk.

    My DH told me this morning that he made a donation to bc.org.  I am so glad to be four years and counting, making each day count. 

    Wishing all of you a wonderful new year!

    XOXO

    Margerie

  • AnnaM
    AnnaM Member Posts: 1,387
    edited December 2009

    I too am wishing all of you a wonderful new year.

    Lots of love, Anna

    (Have I ever told you that blended families stink?)

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited January 2010
    Well I wrote you all a long thread and lost it. Anyway I will just say Happy New Year to you all.
  • AnnaM
    AnnaM Member Posts: 1,387
    edited February 2010
  • Odalys
    Odalys Member Posts: 2,103
    edited February 2010

    Hi Anna and everyone.  Hope y'all are having a good and safe winter.  Wink  Spring will be here soon!

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited February 2010

    Spring can't get here fast enough for me. I'm stir crazy these days. Hard to see Michael, he is over on the other side of a 5 mile long mountain. The storms keep hitting. I'm lucky to see him when I can. He is on his way home now. That's why I'm up so late.

     Seems I have lost touch here on the boards. This is our 5Th year here!!!!! And we're still hanging in there. My new normal seems almost normal ....How strange is that?

    I tend to go to facebook more now. Talking to all my friends from the past has been great. And I still have you guys there too Kiss

    Hope all are well, and maybe we will thaw out soon....

    ((((((HUGS)))))))

    Love you all my dear sisters

    ML <3

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited February 2010
    Anna, I agree .... They do stink. At times I want to move far away with just Michael and me.
  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited March 2010

    Happy March to my Sisters.  I know I am awful about checking in (and worse about Facebook, especially after the hijacking of my page.)  Hope you are all well and starting to thaw or dry out.  We're due for another rain storm starting tomorrow, but the hillsides are gloriously in color and we need the rain.  In San Francisco this week talking to the wonderful folks who make Boniva and got waterlogged.  Oh well, that's all the weather whining from So. California.

    I am constantly in awe that we are in our fifth year.  Physically, I am in the best and worst shape of my life.  Lots of bone/joint/muscle pain and I agree that it is probably Arimidex.  One more year!  My heart is still broken, but I finished a treadmill test for the first time.  I've just finished the Sr. Fitness Challenge (who's a senior?) and am swimming 4 days/week, taking dance classes, and lots of classes designed to quiet my thoughts and stretch my body.  My life is so rich and so simple these days.  I guess I'm doing more reflection as I have an oncology and cardiology meetings on Monday and that always brings these thoughts to the forefront.

    How do you access your life today.  Mary Lou, you talked about the new normal.  Is it better, worse, or just different?  Its heartening that more of the triumphs and crises in our lives have to do with children, grandchildren, spouses, etc. instead of our battle with bc.  Some of the events bring us great stress or even break our hearts (my son's divorce) but those are roads some of us have travelled before and maybe it is a little easier.  And those are balanced by all the victories or just laughter of our growing children and grandchildren.  OMG, I am a senior!

    My thoughts to our Debbie that she will find sustained good health and turn her energies to her two favorite fellas.

    Love and good health to each of my sisters. 

    Nancy

  • Odalys
    Odalys Member Posts: 2,103
    edited April 2010

    Hi sisters.

    It's been a while since we have connected.  I miss hearing from y'all.  Yes, amazing we are all on our 5th year.  I recently had a PET scan and it showed NED!  Life is good.  Hope everyone is doing well and enjoying life to the fullest.  Love all my sweet Nov'05 chemo sisters. 

    Love and hugs,

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited April 2010

    I had you all on my mind tonight.  What a wonderful note to us all Nancy. Hello Ody :-)  Yes this is year 5! Our sisterhood is still in tack, just all of us are in different directions. I'm glad that BC didn't define me. At first I wasn't really sure where I was headed. Glad you all were there to make the journey easy.

    I'm having a hard time being a coal miners wife. I miss Michael and his job is so scary. That explosion wasn't what I needed. It was such a wake up call as to how dangerous Michael's job really is.I just seem to ramble through the day.....

    He will be home on Sunday. Looking forward to that. I'm going to see the babies today, so that will be fun.

    Hugs to you guys......And happy spring. Laughing

  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2010

    Yes, isn't spring wonderful!

    Sorry I have been such a bad stay-in-contact-person. I find myself clicking on "keep as new" but then never going back to the message because it is no longer highlighted. So I hope I haven't ignored anyone here. I think of you all often. My daughter and little treasure are coming for a week and I'm very excited. He's quite a talker now and calls himself by a name none of us has ever heard. We keep asking each other where that came from. We're having a gorgeous spring here in Northern Virginia. I spend a lot of time taking care of my parents because we got my dad to give up driving. Hard but necessary. We're scheduled to go to France mid-May and I am starting to get things ready for that. Love to all my dear sisters!

  • Odalys
    Odalys Member Posts: 2,103
    edited May 2010

    Hello sisters.  May is already here.  I can't believe it.  I had a PET scan due to back pain and am happy to report I am still NED!!! Not sure what is causing the back pain but am so glad it's not cancer that I could do the happy dance.  Doctors are looking at x-rays and MRI to better diagnose me.  Meantime, Vicodin and Soma are my new best friends.  Wishing all my beautiful chemo sisters another great month.  Love you guys. 

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited May 2010
    Happy May to you too ODY .... Are you watching DWTS this year?
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited June 2010

    Wow one month and nobody is here. Guess we are all doing fine these days. And that's a good thing. Summer is almost here.

  • Odalys
    Odalys Member Posts: 2,103
    edited June 2010

    Hi MaryLou,

    i just happened to log in and saw your post.  Yes, we watched the show this season too,  I was wondering what happened to you when I didn't see you post.  I do know we've all moved on and are trying to live life the best we can.  Five years since diagnosis.  I still can't believe it.  Happy you too are cancer free. Stay in touch.

    Love and hugs,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    Hi sisters!  I am (for the first time in a LONG time) doing really well!  I don't know that I have moved on (it's never gonna leave my mind), but I am finally able to be a wife and mommy first, cancer ADVOCATE next! I spoke at the Relay for Life and had a wonderful time doing so.  I miss you guys, and please know I think of you all the time.  I do get on facebook much more (have the app on my phone so it is much faster to do so!), so if you are on FB please say hi!  Love and prayers, Deb

  • AnnaM
    AnnaM Member Posts: 1,387
    edited June 2010

    Hi, dear sisters, how wonderful to see your posts! We are in France now and happy to be away from the heat and humidity. My daughter and grandson are coming in about three weeks and I can't wait to see them and have them under our roof again. I send you all sorts of love and good wishes, Anna

  • Margerie
    Margerie Member Posts: 526
    edited July 2010

    Anna~ did you have the Tour pass by you?  Are you still ion France?? How wonderful......  I have been bad too, but I enjoy facebook and rarely log into bc.org anymore.  I guess we are moving on.  Almost to my 5 year, DH planning a big party at a lovely hill top winery for close friends and family.  Still trying to figure out what to call it, don't want Cancer to get any billing.  Maybe a Moving Beyond party. 

    Wishing you all continued health and happiness.  Hang in there MaryLou, that must be so hard.  Are there any support groups for miner families?  I would guess it is like the military families with loved ones deployed in the mines......

    Summer came and is half gone already.  Kids are growing up fast, just got back from two weeks in Tahoe.  Launched my jewelry business.  My niece will be visiting up for a week.  Youth football starts Monday.  Life goes on!

    Much Love to you all!

    Margerie

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2010

    I have been really bad about checking in, as I stay in touch on facebook too. I was thinking today that I have just about made it to the five year mark. I was able to meet some women this year that are 20 + years dancing with NED!

    Back in 2005 we were so new to all this and now we can all give strength to those who are just now facing this long journey..

    Life has moved on for us all. And I'm so glad that we have all stuck together . I never want to lose that bond.

    Love you all..

    Here is how big Sebastian is getting.

    Photobucket

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2010

    Prayers are with you Debby.

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