33 with Lupus and Breast Cancer

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Dominique
Dominique Member Posts: 7
edited June 2014 in Young With Breast Cancer

I am 33 and African American living with Lupus SLE and Breast Cancer. I started developing and menstruating at the age of 9. My periods have always been very short and painful. I gave birth at an early age ( 19 years old) . I am glad that I did because when my husband and I tried again at the age of 25 I was diagnosed with Lupus SLE and could not have children. My Lupus is pretty server , with facial and bodily rashes , extreme sensitivity to the sun,. bone and joint pain, mouth sores, migraines,lung, kidney and intestinal problems. I also have chronic low white blood cell count as well as anemia. I have been hospitalized once a year for the last 3 years due to these issues. October of 2009 I was diagnosed with Invasive Ductile Cancer in the left breast.By the time I went in to surgery the tumor doubled in size. I opted for a double mastectomy with no reconstruction. I have had 4 rounds of Adriamycin and Cytoxan one round once every 3 weeks. Now I am on my third treatment of Taxol once a week for 12 weeks. I have to take the Neupogen shots to build up my white blood cell count throughout my treatment. I am tolerating things ok,I guess. I wanted to reach out to anyone going through the same issue and hear how your treatment is going or how it went for support.

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  • sheri47
    sheri47 Member Posts: 115
    edited April 2010

    hi  i  am stage 1 c 2 cm grade 2 er pr pos her 2 neg, i also have lupus but not bad no rashes  just alot of pain, my breast cancer is also IDC left side mastectomy,  no nodes  had 4 rounds of the AC and now arimadex  i am 1 yr out now and doing well,

     im sorry you are going though this, neupogen shots are no fun,  my AC was every 2 weeks,

     glad u found this site,   sheri

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  • lexislove
    lexislove Member Posts: 2,645
    edited April 2010

    Hi Dominique.

    i was diagnosed when I was 30. I found my tumor in Jan 2007....it felt like the size of an almond. By Sep 2007....it was 8cm. It grew super fast. Crazy fast.

    I do not have lupus, but I am young with a big tumor....like you. When I first came on the boards, I could find only 1 lady like me. She is now out living her life. It's funny...today I have been answering posts all from woman with large tumors....lol. I have seen very few in the 2 years I've been here.

    I just wanted to say things get better, and I will be 3 yrs cancer free in Septemebr.

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  • Dominique
    Dominique Member Posts: 7
    edited April 2010

    Thank you for the warm welcome

    lexislove - your so right there are not that many women in their 30's reaching out on discussion boards. There are even less in my local area. I have support with my family but it almost feels like their over protective and smothering me. I appreciate their love and support all the same better to have too much love than none at all, I say!

    sheri47 - My treatment included Cytoxan ( which I was taking in small doses for Lupus ) which has put y Lupus in check for now,but my immunologist feels that I should start treatment for the Lupus again in June with Imurian.

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