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suz90
suz90 Member Posts: 7
edited June 2014 in Genetic Testing

I am brand new here although i had BC 9 yrs ago. i have never had the genetic testing. i was really afraid. but since BC i have had 2 kids and i am 45 and it's time to find out. i do not have much family history of BC - the main reason they are concerned that i am a BRCA carrier is that i was 36 and i was neg to estrogen. they throw a lot of stats at me and it's confusing. i am preparing myself. not sure what to do. i am considering having my ovaries removed but i am confused. i find out results on may 12th. i don't want to stress but hard not to.

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  • Carlatap
    Carlatap Member Posts: 96
    edited April 2010

    I know, the waiting is the worst part. I really hope you test negative. Then you can move on. Its a good sign that you haven't had BC since 2000. My 2nd time around showed up 7 years later.

    Take care,

    Carla 

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  • suz90
    suz90 Member Posts: 7
    edited April 2010

    thank you Carla!

    Suzanne

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited May 2010

    Not having any family history is a very good sign that the tests will show up negative.  I'm hoping for negative results on the 12th!  Let us know.

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  • suz90
    suz90 Member Posts: 7
    edited May 2010

    Not sure how to navigate this...i got my results for the BRCA mutation and it was negative - PHEW! but...she only tested my for 3 mutations for eastern european jews. should i also get the sequencing? it is very expensive and more stress. Genetic wants me to even though it is very unlikely they will find anything. so confused! is it enough? when is it enough? the big factor is that i had BC very early (36) and this is why she wants me to do more. otherwise not a strong family history although not much to base it on.

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  • kittycat
    kittycat Member Posts: 2,144
    edited May 2010

    I don't know about the Eastern European Jew mutations.  What's that all about?  I am not of Jewish descent that I know of.  My family is mainly from Scotland, Ireland and Wales.  My Great Grandmother had BC and she was half American Indian (Cherokee) and half caucasian.  My aunt on the other side of my family is Scottish and had BC, too.  I don't know which side my BRCA1 came from, but my sister has the same mutation.  I learned on the FORCE website that our particular mutation goes back to the Scotland area.  Both sides of our family is from that area, but my Great Grandfather on my mom's side was born in Scotland. 

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  • suz90
    suz90 Member Posts: 7
    edited May 2010

    thanks for the info. it's so confusing and involved. it looks like you have been through a lot - I hope you're doing okay? i am going to check out FORCE. you're right this disease does SUCK. best, Suzanne

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  • kittycat
    kittycat Member Posts: 2,144
    edited May 2010

    Yeah, there's a whole thread on specific BRCA mutations on FORCE.  I'm doing okay. Just trying to make it through one day at a time!  :)

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  • Mutd
    Mutd Member Posts: 148
    edited May 2010

    "a whole thread on specific BRCA mutations on FORCE" ... I used to be active there but was told by the admin of the forum to keep out. They don't want the discussion of the mutations to go too deep. It's like, if you want to know where the mutation came from or how it works, they want you to go to the certified professionals. Even something as simple as sharing the google search results may be off limits now. Sharing personal stories, that's still fine, but the discussion kind of died down now, after some folks have been warned or banned outright, and some posts about mutations deleted from the FORCE forums.

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  • kittycat
    kittycat Member Posts: 2,144
    edited May 2010

    Mutd - yes, here is the link to that thread:  http://www.facingourrisk.org/messageboard/viewforum.php?f=311

    Or if you go the message board, it's under "Post your specific mutation"  It's pretty cool because there are a few people on there that have my mutation.  Their board isn't as active as BCO, but the information is interesting for those of us that are BRCA +.

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