RADIATION-What to ask, what to expect

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This is my first post on this site. I recently had a lumpectomy and will be meeting with a radiation oncologist in about a week. This is my first experience with breast cancer and I do not know what questions to ask the oncologist or what to expect from the radiation. I heard about possible burning of the radiated site (I was told about Silver Sulfadiazine Cream) and about being tired from the radiation. Any other suggestions/comments would be greatly appreciated.  I'm glad I found this site so I don't have to go through this alone.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited April 2010

    http://community.breastcancer.org/forum/70/topic/749440

    Sheri If you click on this link it will take you to  April 2010 Radiation Group.

    Good Luck

    Sheila

  • desdemona222b
    desdemona222b Member Posts: 776
    edited April 2010

    Hi, Sheri -

    Be sure to follow your doctor's instructions about using creams and lotions on the radiated breast tissue rather than advice you get from various people online.  They should talk with you thoroughly about breast care during the radiation - one example that stands out in my mind is avoiding washing your breast because the skin gets so fragile toward the end, etc.  Okay to take a shower and get it wet - you just don't want to be rubbing a lot of drying soap etc or rubbing it period when the radiation treatment has been ongoing for a couple of weeks. 

    I had the same diagnosis as you and I was scared to death of the therapy, but once I got started with it, it wasn't nearly as bad as the fear itself.  It became part of my routine and I was able to keep a positive attitude about it because I kept reminding myself that this was saving my life.

    One thing you'll definitely want to do is get some cornstarch powder and some long  cotton sports bras that are about two sizes too big because you just can't wear a regular bra after awhile.  The area directly underneath your breast gets really sore, and while you don't want a bra cutting into you down there it's also really important to keep that area dry and powdered so the skin does not rub together.  I ended up with a keloid scar in that area that makes my life a misery now - it's right where the bra hits and it just keeps on growing.  I don't think this is a common thing, so don't get too nervous.  I just wanted to warn you because I definitely think I had a skin breakdown under there that I wasn't even aware of, and I was not diligent about the powder.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited April 2010

    Sheri, radiation was a piece of cake.  I just showed up every day, at the same time, and the radiation staff were so nice and friendly.  I told myself it was my little 'job'.  I really didn't have questions for the radiologist-- i listened to what he had to say and his recommendation--i have to say, he was also very nice and friendly.  i only had to do 19 sessions--3 of which were boosters.

  • SheriF
    SheriF Member Posts: 2
    edited April 2010

    Thanks for the feedback. My incision is about 3 cm long and is at 6:00, right under my breast by the bra line. I have been wearing sports bras padded with gauze to try to keep my breast supported and dry. It's taking a long time to heal and I have some blisters from all the bandaids I was putting on to keep the area dry. The skin looks rippled and dry, but I was told not to use any creams until the incision is completely healed.

    I will get the cornstarch and larger bras. Your comments were very helpful. Thank you.

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