Research about post-treatment side effects

New York University is conducting a new survey to uncover lingering symptoms of breast cancer treatment side effects. I thought this would be a great place to post the announcement, since us "Moving Beyond" gals are far enough out to be able to speak with real authority about lingering side-effects! The announcement is below. It only takes about 10-15 minutes and will help the medical community identify the problems we're still dealing with.

'Bout time!
Binney

Announcing a research survey

by Dr. Mei Fu

of New York University College of Nursing,

and StepUp-SpeakOut.org

Please participate!

We would value your response to the questions on our on-line survey:

Breast Cancer and Lymphedema Symptom Experience

If you are a female 21 years of age or older and have been diagnosed with and treated surgically for breast cancer, you are invited to share your experience of breast cancer in this online study.

The purpose of this study is to examine the reliability and validity of the Breast Cancer and Lymphedema Symptom Experience Index, an instrument to evaluate breast cancer survivors' symptom experience. Your valuable input will help researchers better understand women's experiences of breast cancer, including symptoms, distress, and quality of life. Ultimately, the information obtained from the study will help to gain insights into the needs of women who have survived breast cancer so that more personalized care 
can be provided.

The New York University Institutional Review Board  "IRB" (an ethical review board that monitors research involving human subjects) has approved this research study.

The study is brief and will take about 10-15 minutes of your time. You can skip any questions that you might feel uncomfortable in answering. Your participation is voluntary and anonymous. We will keep your responses confidential.

Thank you for your participation.  Your feedback will help further research on breast cancer and lymphedema symptoms in order to improve patient care.

Sincerely,  
StepUp-SpeakOut.Org Group

Sorry if the invitation sounds so formal, but part of the IRB approval is that we include this information in invitations to take the survey.

You can also get the link to the survey on the front page of the StepUp-SpeakOut.Org website.