Starting Chemo Feb 2010?

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  • mebrown
    mebrown Member Posts: 74
    edited April 2010
    Ezscriiibe Hope your are feeling better and kicking the pneumonia.
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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    Michele:  Sorry to hear about the pneumonia, and that round 3 was especially tough.  Enjoy all those doggy snuggles.  I've got one whose a real cuddler.

    Didn't want my comments about drug tolerance to be confused with drug addiction; certainly not the same thing.  Ambien can cause some really weird dreams.  My mom, who was in health care after breaking her hip, was on it and had a real doozy of a dream where she thought she was "colored" and they had given her the wrong blood transfusion.  We had a good laugh about that one.  

    Had round 4 this morning.  Jittery from the steriods, but otherwise ok.  Hang in there, all.

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  • me2u
    me2u Member Posts: 52
    edited April 2010

    Hi all, am feeling good today after a week's of my 3rd ac tx and no one's gonna spoilt it! I deserve it.

    Probably its cos I slept last night, took 1 ativan and got knocked out :) See, sleep is so important to me......arrgghhh. Just last week itself, I have lost 3 kgs and good that appetite is now back, so putting back on kgs again. Just signed up yoga lessons, hope there's enough to start a class and heard this will helps in the sleeping problems.

    Will pray for all that are having treatments this week and with no or minimal SEs ya! 

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  • teemee
    teemee Member Posts: 122
    edited April 2010

    Oh Michele, I hope you heal quickly and I'm so glad your dog is taking care of you! And retrievermom, that dream sounds hilarious. I haven't had anything like that on the Ambien, although I have been more confused about what's really happened during the day, and what I dreamed. Not sure if I really talked to someone or just dreamed I had, etc. Attributed it to chemo brain, but maybe it's those little pills.

    You women are super strong -- I hope as I get to #3 and #4 I will have the spirit you do. And yes, I know it's not all good, but really, you all continue to amaze me.

    Jessica, I'm with you--I have tx #2 next week, and I feel good good right now, I'm going to enjoy it while I can!

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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    No sleep last night from the dex, but it's finally spring here (for today, anyway), and it feels mighty good to have that 4th and final chemo round done.  When my dad died, I organized my mom's finances with online banking and such (so glad to have done it when she fell and was out of it for months last year), and this morning have to handle a dental claim for her, from 2 time zones away.  I'm glad to be able to help her, but this morning, it's just one more hassle.  Sorry, venting.  At least I haven't had insurance issues myself with all this treatment.

    Have to keep myself from shopping when I'm running on dex!

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  • kshep
    kshep Member Posts: 49
    edited April 2010

    Yes, a dex induced energy spurt has me volunteering to send out my daughters college grad announcements...what was I thinking???  Hopefully my shaking hand won't completely screw up the envelopes!

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  • Leah58
    Leah58 Member Posts: 159
    edited April 2010

    Hello, Feburary chemo sisters,

    I am hanging in there with TC round #3.  Feeling more uncomfortable symptoms with this TC round.  I am happy for Zofran and Ativan and Ambien.  Ambien can cause weird dreams but the sleep is worth it.  My husband says better living through chemistry.  

    Chicken Top Ramen and root beer will be my gourmet lunch today.  Chemo tongue and a queasy stomach does take its toll.  But it feels good to be kicking out the cancer cells. 

     I keep you all in my prayers.   Take care and best wishes with all of your health issues.  This is doable but I will be so happy when we all are recovering from our last chemo round.   Leah

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  • ariesrottie
    ariesrottie Member Posts: 260
    edited April 2010

    Hi girls!!! Guess what??? No SE this treatment... Oh boy what a difference... It only took them 2 times to figure it out... Thank God!!!! Had my Nuelasta shot today... So we will see how it goes the next couple of days... Also went for my genetic counseling. Took blood work . I will hear in 3 weeks... Keeping my fingers crossed that I am in the negative zone....The worst thing is that I gained 4 pound in 3 weeks... All I do is eat......Oh Well.

    retrievemom- Hope your #4 treatment went well for you ... You go girl.... Feel well.

    kshep- Hope you are doing better mentally and pysically.. In my thoughts and prayers...

    Ezscriiibe_ I'm sorry that you are not feeling well, and sick on top of it... Rest....You are also in my thoughts and prayers.... Sleep it helps.

    Well good luck  girls who ever is having treatment and Se ... This to will past... I will talk to you soon.

    Donna

    swiftbird.. Hope your treatment went well for you and that there are no or little SE.

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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    Donna:  I hate the weigh-in.  I have never weighed this much, even when I was pregnant.  It's discouraging, especially since I don't feel I'm over-eating.  Denial.  Way to go on no SEs this treatment.  I was so happy to get that last Neulasta today.  Do you have much pain after from it?  Sure hope you get good results from the genetic tests.

    Leah:  I will have a root beer and think of you, but I'll skip the Ramen.  My third round wasn't so great either, but it will be behind you soon.

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  • CinD
    CinD Member Posts: 163
    edited April 2010

    Retrievermom, congratulations on finishing! 

    I had my final chemo round today, and I've been on cloud nine all afternoon!  Or maybe that's just the Dex. This was the best day of all with everything going surprisingly smoothly. I had an expander fill before chemo which didn't hurt a bit, then a good meeting with my onco and his physician's assistant. The best thing is, the nurse got the IV going with the first stick. Oh, and they gave me a cute certificate when finishing chemo today signed by all of the nurses -- very sweet! I start Tamoxifen in three weeks, and my onco said I don't have to see them for six months. I panicked a little, so he said let's make it four months instead. That should be around the time I get the implant on the mastectomy side plus get the other side lifted for symmetry. My plastic surgeon said I didn't want my new one sitting up perky with the real one swinging low, so I'll sort of have the breasts of a 20-something again. So now I wait for any last chemo side effects, but I can handle them now. And then there's the Neulasta tomorrow, but that hasn't been all that bad.  I've got the hot, flushed face from the steroids tonight, but those are helped somewhat by the medicinal ice cream I picked up on the way home.

    Donna, that's great that there were no problems with your last treatment! I'll keep my fingers crossed along with you on the genetic counseling results. 

    Leah, #3 seemed to hit me harder too. I had a couple of days that really knocked me, something that hadn't happened before, and I was generally more tired. But the third week, I felt better than I've felt since beginning chemo. Strange, eh? Hope you get over your SE's quickly.

    I'm sending good, healing thoughts out to everyone. I hope those having problems will mend quickly. You all are in my thoughts, and reading your updates really makes me feel as if we are in this together. Stay strong, which I know this group will do anyway!  Off to drink and wee.

    Cindy 

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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    Cindy:  So good to hear!  Yeah!  Symmetry sounds good.  And here's to lots of liquids and clear wee!

    Hang in there, all.  

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  • lindee629
    lindee629 Member Posts: 61
    edited April 2010

    Hey Girls!  Haven't posted in a while but wow what a difference a week makes! The bone pain has finally relented, and I was able to work a whole 40 hr week yay! My throat lump seems a little smaller, and I finally am able to taste foods. Yesterday went with my Mom, my son, sister and bro-in-law to Chili's for dinner. The food was good!!!  Although I did opt out of having a a margarita but boy I was tempted--I thought of you girls and the citrus taste thing.. Its the first time my Mom has seen me since I was diagnosed and I think she was afraid I was going to look awful and weak and debilitated. Other than the hair loss, I think I look the same, maybe a little thinner (8 lbs-- another yay!). The nice waitress was talking to me about my diagnosis and gave our table free nacho chips/dip so that was cool. I also spent part of yesterday touring West Chester U with my son for accepted student day, and other than getting the tachycardia/shortness of breath going upstairs or walking fast, I did pretty well.  Almost starting to feel "normal" again. AND I went shopping for myself Friday for the fist time since I was diagnosed. That was fun. I think I was either too depressed to shop previously or I was afraid to jinx my chances of making it through this all or something, But with 31 days to go til I get my final chemo, I think I am starting to feel encouraged. Cal30 and CinD--CONGRATULATIONS on finishing!!!!! 

    Luckily, l really haven't has sleep issues like some of you girls.....I usually get around 6 hrs a night and am only really am bothered by a nagging cough. But I find that Benadryl does help me if I can't sleep. And right now the only pain I am experiencing is still my fingernails (but I still have them so that's good). And still no hot flashes.....no period either so I don't know what is going on there but not complaining. This is my "off" week for chemo so maybe I shouldn't get so excited about how good I'm feeling lol!  I start my Decadron tomorrow and get round # 2 of Taxol on Tuesday and hopefully it will go better SE-wise than the last one.I 

    Ezscriiibe--sorry about the pneumonia, and hoping you recover soon!

    Mo--thanx for the tickets and the card, looking forward to meeting you also! 

    Burley--Congrats on the $$$$ WOW that's awesome!

    Everyone else--Wishing you all a lovely weekend and a SE free week!!!

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  • faithfulc
    faithfulc Member Posts: 284
    edited April 2010

    CinD, Retrievermom, congratulations on finishing your chemo!  It certainly didn't feel that long ago when we were all so apprenhensive and did not know what was to come.  I'm so happy for you!!

    With 4 down, I have 2 more to go.  Last Wednesday was as routine as the previous treatments.  In fact like Leta, #4 was quite easy on me.  Had Neulasta on Friday morning.  Legs hurting just a little bit today, but by tomorrow they should be good as new.  Saturday my appetite took a hit, but seems to be bouncing back today.  

    My eyebrows are definitely thinning - will need to use the pencil tomorrow to fill in some areas before going to work.  Lower lashes are going, too.  Eyes are twitching a bit more these days, but if last treatment was any guide, by week 2 that would subside as well.

    Best of luck to those who have treatment next week!

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  • burley
    burley Member Posts: 631
    edited April 2010

    Feeling blue...tired of feeling and looking different!  Bald, with thin eyebrows and eyelashes (I had very thick eyelashes up to a couple of weeks ago.)  Oddly round and hard boobs that stick straight out from my body!  No natural sag...ugh.  It's totally obvious to me, but maybe not to others.  I need to buy some baggy shirts or something.  I guess I never realized how much my self esteem was wrapped up in how I look.  I just want to feel normal, and I know that's a long way off.  Again, makes me blue.

    This week will be #4 AC for me, then I'll start 4 rounds of Taxotere.  Hoping the side effects won't be any different or worse.  Really hoping to keep my fingernails and toenails!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    I really look like hell bald.

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  • mebrown
    mebrown Member Posts: 74
    edited April 2010

    My DH said I look like a mean biker with the cover that I wear. I must because my grandbabies wouldn't come to me until I put my wig on. lol  It was kinda funny in a way. They haven't seen me since I started chemo. We had a good visit once I put my wig on. I will be glad when my hair grows back though. The wig is itchy.

    Have round 4 of TC tomorrow. I'm not looking forward to it. I get anxious before each treatment. Must be the steriods I take the day before. I keep thinking just 3 more and I'm done.

    Hope all are doing well today. It is another beautiful day here. 

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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    Really bad night Sat. with swelling and soreness in neck and back, better yesterday, and much improved today.  That improvement is what I'm wishing for everyone here.  Just a little of the cloud lifting physically means so much mentally.

    My DH had a meeting with his boss Fri (these always seem to be arranged at tx time) and is feeling great work pressure.  DH is on soft/grant money and was reminded that he needs to find funding for himself.  This was twisted into conversation about insurance and my situation.  Gee.  What we all need, more stress.

    mebrown:  The anxiety is probably steroid-enhanced.  Breathe.  You will be done soon.  Thinking of you.

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  • copingkris
    copingkris Member Posts: 5
    edited April 2010

    Final round is Friday!!!  I think the worst part of being bald is the knowing looks and comments of well meaning strangers.  I'm comfortable in my scarves and hats....some very nice but weird lady/customer brought me her wig????  WHY???? I wouldn't bring a fake leg to an amputee???  Started Effexor...scared of it but tired of crying all the time.  Wish I was in the mood to fool around anyone else?

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  • ginadmc
    ginadmc Member Posts: 263
    edited April 2010

    Hi All - Had my last AC Friday, yippee! Didn't feel great this weekend, fatigue and low energy but am better today. Good luck to everyone having treatments this week. Onc gave me Ambien but I haven't tried it yet. I want to get the Dex out of my system before I add another drug. Had to go slowly with the adriamycin since my vein was punctured last round. I was anxious about it but it went well. All I can think about is what I'm going to eat when my taste gets back to normal. I'm on double noodle soup and ginger ale. I agree that root beer tastes good!

    Beth - I look like hell bald, too. I still have stubble falling out and it's patchy in the back. I still have eyelashes and eyebrows and hope they hold out through my nex 4 Taxol.

    Gina

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  • riley702
    riley702 Member Posts: 1,600
    edited April 2010

    I have thrush - yuck! On the bright side, the Nystatin actually tastes good - kinda like cherry. Not sure if it really does taste good or if it's my screwed-up taste buds, but I'm happy it's not horrible tasting.

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  • Leah58
    Leah58 Member Posts: 159
    edited April 2010

    Well, we are doing this chemo thing.  We had so many unknowns going in.  I always thought that chemotherapy was one of the scariest treatments that I have ever heard of.   It certainly is full of surprises, some sort of okay, some things not good at all.   But hurray for coping medicines!   

    I am feeling sickish tonight and bald and down hearted but I just received a phone call from my son.   My 5 year old granddaughter wished me good night!!  Time to take joy in the good things.  Time for some comedy!!  I'm thinking of watching Legally Blond for the 50th time or Mama Mia and singing with ABBA with a mug of ginger ale!    Woohoo!

     Take care, February chemo sisters!

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  • writer
    writer Member Posts: 208
    edited April 2010

    I'm back after 10 days away, and boy do I have some advice-- GET AWAY for a while mid-chemo if you can. My daughter and mom and I had a wonderful trip, and even though the main goal was to look at northeast colleges for her (plus have some fun), it proved to be an amazing boon for me. I was lucky that my energy was great and I could eat and drink (taste buds aren't good, but I'm used to that). Anyway, after spending the first two months post-diagnosis thinking/worrying about cancer/surgery/treatment every 5 minutes, and once I started chemo thinking about THAT constantly, it was such a joy to get into bed at night and realized I hadn't thought about any of it for a minute. Really, if you can get away for a few days in your "good" week, and be active so you're not in your routines and are engaged doing fun things, DO IT. Such a help. Even though part of me feels like I'm headed for the firing squad tomorrow, I don't even care, because I had such a good vacation from chemo/cancer.

    Thanks for all the good wishes, and sorry to read about some of the tough SEs-- but so happy to hear of Burley's good fortune!  

    As for the sleeping, I occasionally resort to an Xanax if I think the sleep deprivation is from stress (it works) and Ambien if I don't feel stressed. They help. We need our sleep. But not for me tonight-- I'm on a dex high prepping for tx # 4 tomorrow. So I will get a lot of work done between 3 and 9 a.m.....

    Mo, we were not far from Gettysburg! What a beautiful part of the world. She was quite smitten with Dickinson, in Carlisle, and I wouldn't be at all surprised if she ends up there. Or maybe American in DC or Connecticut College. Those were her top 3.

    Beth and Burley, I feel your pain. I've been so happy that my strong brows and lashes have hung in there, and they make my baldness not so bad, but my brows are starting to thin. No one but me would notice yet, but it's happening. So very sad.

    But I met a woman on the airplane home Saturday night-- she struck up a conversation because of my baseball-hatted baldness. She started the chemo/Herceptin journey 15 months ago, and her hair was now long enough to put in a (small) ponytail! She looked great and was very positive. We shall all be there.

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  • kshep
    kshep Member Posts: 49
    edited April 2010

    Hi all!  My final round of AC resulted in one of the toughest rounds of SE for me yet. Kind of a nasty fairwell to the "Red Devil". The onc keeps telling me how easy Taxol is going to be after the AC. I want to be encouraged that progress is occurring but I actually asked my DH Sunday night if this would all be worth it in the end. I hate feeling like I am failing at the mental fight right now.

    Is Taxol easier???

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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    Writer:  Glad to hear you had such a good trip.  What fun!  And don't we all need a break, if we can get it.  I've been wanting to get to Utah's red rocks lately, but my DH is mired in work.  Thinking of you as you head to tx#4 and hoping the se's will be minimal.  And good luck on the college choice.

    More fatigue now.  Hoping the next couple of weeks I'll get boosted back a ways before heading into rads.  My son's coming home for the summer, and tho I know he's not happy about that, it will be wonderful for me to have him here.

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  • swiftbird
    swiftbird Member Posts: 177
    edited April 2010

    writer, wow thanks for the positive story. I think you're right about taking a break. On my good week (which is prolly really 10 days), I am running around, eating and working. My DH likes to try to warn me, but I won't have it - sooo appreciate feeling *normal*  Am in midst of SEs now from last thursday. ugh. I'm halfway through and was starting to feel like this is taking forever. Maybe I'll get my DH to take me somewhere special this weekend and get out of dodge for a break too!

     kshep, I am on taxotere (close to taxol) and carboplatin. I sure complain a lot but it's been easier than I thought, tolerance wise. Not fun, mind you, but tolerable so far.  I'm doing 6 rounds. Am half way through. Just getting a litle tired of being tired, but it's not debilitating ~ I am working full time (take 2 days off around my infusion time, but that's it). 

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  • swiftbird
    swiftbird Member Posts: 177
    edited April 2010
    And clinging onto some eyebrows, eyelashes and some hair... barely Cool
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  • leta17
    leta17 Member Posts: 120
    edited April 2010

    Hi ladies, I haven't posted in a while, been a bit obsessed with other, non-medical issues these last couple of weeks!  It felt good to dive into other 'life' issues, made me feel more like myself!! 

    Congrats to CinD, retrievermom and Cal30 for finishing!!!  Yeah, I hope that you are on the upswing of any SE's from your last tx's and feeling good all around!

    I am starting to see the end of this as well, #5 is this Thursday and I am a little anxious/nervous about it but then only 3 more weeks till my last one!!!  Ah...the weather turning nice has helped tremendously on my mental health, instead of resting inside, there have been days I could rest outside:)

    My SE's were minimal with #4, the eye twitching went away and I haven't had that since #3??  I have slight numbness in my fingertips at times, which is new.  My brows do seem a little thinner and lower lashes as well.  Sleep, like many of you mention is tough for me as well, when I feel exhausted I take a benedryl, but mostly I j go with little sleep.  I also think I 'babble' more than usual, could that be a side affect??  I've had friends point out that they have never heard me talk so much, and we laugh, who knows it might be part of chemobrain. lol

    Faithfulc - good to hear your #4 TC went well for you too!!  We are getting there:)

    We are all getting there and what great spirits you all are!!!  Thank you for sharing, my thoughts and prayers are with you all!!!  Be strong and be well!!

    Leta

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  • ariesrottie
    ariesrottie Member Posts: 260
    edited April 2010

    Hey Girls! Feeling a little vertigo today... Sunday, and Monday bone pain... Feeling the effects of the Nulasta shot.... Even today I feel a little bone pain. Last night had to take a pain pill, and I haven't taken a pill since 2 days post op..... I am gaining weight like there isnt going to be food left in the universe... I need to eat everything.. Don't know how I will lose it all.. OH well, Got my wig washed and cut today... Another 60 dollars.... At least it looks nice.... Next time I will do it myself......Waiting for my Brca test results,.... and PRAYING.

    copingkris- Hugs to you... To me being bald is the worst.

    Riley702- I'm sorry for the thrush..... Hope it passes quick.

    Writer- Good luck on you treatment... In  my thoughts and prayers. I'm glad you enjoyed your trip....

    Ginadmc- Yeah for your last AC. Hope you are feeling better today.

    Kshep-{{{HUGS}}}} My heart goes out to you.... I didn't have a good treatment until tx#3. They finally got it right... I do have SE now like bone pain... But this will pass.... Strength to you....

    Leta--- In my thoughts and prayers too...

    To everyone else hope SE are little.... Courage and strength,

    Donna.

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  • lindee629
    lindee629 Member Posts: 61
    edited April 2010

    Had round 2 of my Taxol yesterday and I feel great, I've been awake since 2am (thanks Dex) but other than that i dont even feel like I just had chemo. No nausea, vomiting, bone pain (as of yet), fatigue (other than due to lack of sleep), my appetite is good, food tastes good, my PICC line worked like a charm. Even my fingernail pain stopped 3 days ago so yesterday prior to chemo i stopped at the nail salon and had my fake nails refilled. I noticed some slight discoloration at the base of 3 nails--the ones that were hurting--but I had them polished with a light color so I can try to keep an eye on them.  i'm kinda waiting for the bone pain that I had with my first Taxol to kick in now but so far I've been fine. I even asked the onc if I could forego the Neulasta shot this time around since my WBC count was 17.1, but he would rather I continue with it so I don't have some kind of rebound effect, so I had that shot today.  Took my Claritin (the real stuff) so hopefully I wont feel too bad. Got my fingers (and their fake nails!) crossed.  

    OK now the bad news. While at the onc office yesterday, the doc wanted to do a physical exam, check my lymph nodes and stuff since its been over 2 months on chemo. Well, he found a lump on my OTHER breast.  WTF???!!!!  After 10 weeks of chemo coursing thru my body--killing hair cells, ruining my nails, screwing up my appetite, making me sick, tired, constipated, putting me into chemopause, I have ANOTHER lump??  I had my mammogram in Nov that was neg in that breast; I had a bilat MRI in mid-Dec that showed no disease in that breast; I had 2 exams, the last on Feb 2, and no lump was detected by either physician. So now I need an ultrasound, and then I get to see the surgeon again and decide what we are going to do, maybe an aspiration. This SUCKS!!!  I had May 11 in my mind as my "freedom day", the day I am finished with chemo, and yeah I still need 6 wks of radiation but that should be a breeze compared to chemo, but now what am i going to need?  Another lumpectomy? maybe a mastectomy this time? More chemo??  I don't want to do this again!!!!  And if this IS cancer, its a damn fast growing one, so that certainly doesn't bode well for me. Well, if I need a lumpectomy, then I guess I can hold off on my future plan of reconstruction surgery on the current breast which is an entire cup size smaller than the other one. Maybe they will both end up as an A-cup, well at least they might match size-wise, although I guess that would be the least of my worries.  I just can't believe this is happening.....since the doctor pointed it out, even I can feel the lump. It feels like a cord or something,I dont think its like the spiculated mass I had in my other breast (that was too close to my chest wall to be felt anyway)..this is more like a long, thin, THING. Goddammit. 

    Anyway, back to the Taxol. For you girls going to start (kshep and ginadmc) I thought it was way better than the A/C I had previously.  Only real SE was the bone pain, which was kinda bad, but maybe that will be better this time around. All I can say is right now  I feel great, other than the lack of sleep which could be the steroids as well as worry on my part I guess.

    Retrievermom--congrats on finishing!!!   I missed the fact that you did so, sorry!!!!

    Writer--welcome back, glad you got away and enjoyed yourself.  How were your SE's while you were gone, were you able to get around OK? I did a one day college tour with my son, and still get quite winded and tachycardic esp when going up steps or any kind of incline. Anyway it sounds like you had a wonderful time, you deserve it!!

    Girls, wishing all a lessened SE day and an easy chemo day coming up...sorry I am rambling and long-winded, must be the Dex.  Take care all!!

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  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    Lindee:  AAAGH!  How discouraging and frightening.  It seems never-ending.

    Bone pain today, I'm assuming from the neulasta.  Hoping I'm on the down side of the SE's from this last round. I had a real melt-down last night emotionally, then woke up to the extreme pelvic pain.  Still able to go to work, tho, since I sit in front of a computer most of the time.  So wanting some renewed energy.  On the up-side, they are working (finally) on the elevator at my job.  I get really winded climbing the stairs.

    leta:  Yeah!  No. 5 is almost here.  Will be thinking of you tomorrow.

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