Class of 2009 - Sisters in the same time frame

Renee ~ praying for your dad and your family tonight.  Thinking of you.  So sorry for all you are going through.

M360 ~ I am so sorry you are feeling so down about your surgery.  It does truly sound like so much to bear.  Don't give up on the chemo.  Hopefully they will come up with a chemo-cocktail that your immune system can withstand.  Just try to stay in the moment for more than that is truly out of our hands.  I KNOW easier said then done.  Prayers for you........

I have my 6 month check up with my breast surgeon who did my masectomy.  Guess she will be feeling up my sore 3 week old implants......  I can't find it in myself to feel myself up.  Too afraid I'll feel something ~ 

Hello Friends - 

Renee, I stopped and said a prayer for you and your dad the minute I read your post.  Let us know how he's doing.  Sending love your way, friend.  

Jen, doggone it.  That arm needs to quit acting up.  I'll say a prayer for you, too.

Michelle - hope you are doing well.  You still sound sassy, and that's a good thing.  

Juanelle, you just keep those old snakes where they are and don't send them packing for Dallas. Dang - a rattler!  

Alicia, I am thinking about you.  Hope you heal in mind, body, and spirit, and that you get to a happy place with all of these changes.  Hang in there.

M360, praying for you, too.  Lots of praying for all of you.  

Pam: Fa-HAB-ulous avatar!  IT's been nice reading your posts.  Always good words and calming, too.  

Love to all - and sorry for the ladies I missed in my list.  Reading about all of you and sending good thoughts and wishes.  I've jumped in the tamoxifen conga line, and it has been kind of rough.  Not doing well.  It has spurred on a full blown case of fibromyalgia.  Just awful.  Don't know if I can hang in there with it.  Doc says I must.   Am taking a breather for a few days, and will start on a half dose soon.  Hope that will be easier.  Don't know how I'll manage when it gets to be over 100 degrees here.  Don't think I will be able to go outside - I'll fold like a cheap tent.  Is anyone else getting started right now?  

Love and smooches - Mary 

Renee - I'm saying a prayer for your father. 

Mary - nice to hear from you and sorry Tamoxifen is causing you so much trouble.

M360 - my prayers are with you that you'll feel better and that there will be a chemo regimen that will work with your situation.

I'm done 13 of 21 rads as of today. It's actually gone faster than I thought but I will be glad when it's over. However,  I do have some sense of security while in treatment because I'm triple negative and there is nothing else in terms of treatment options after this.

I hope all you ladies are feeling well tonight. 

Sherri 

Psalm, I have had fibromyalgia for over 21 years.  It was a secondary diagnosis after a spinal injury.  Originally they check trigger points and if you have a number of trigger points that are swollen red unable to be touched etc.  I was also given blood test for inflammation regarding this.  I also have been given everything under the sun to treat, from spinal blocks, to Neurontin (which at 4,000mg a day still didn't help), tens machines.  I found manipulative massage worked the best along with trigger point release and last year I was given Lyrica.  I gained weight on it and wanted to be taken off but the doctors said I must stay with it.  I took no pain meds even after mastectomy, and second opening of chest.  But fibromyalgia pain at times makes me sleep with a burn apparatus so that sheets don't touch.   There is a thread for women with BC and fibromyalgia.

Renee, God be with you and your family this evening. 

mary, sorry to hear  about the flare  up.   My dogs are not doing their job, we may have to trade them for cats.  I started my Arimidex about 3 weeks ago and it doesn't seem to be bothering me at all.  Or at least I can't tell the difference between the arthritis and the Arimidex SEs.

michele, glad you have at least one good boob.  It feels good to get a good report  doesn't it?

renee, sorry to hear that your dad is back in the hospital.  I will keep him in my prayers.

Juannelle

Sharon, yes indeed it does get better.  I know it feels like an eternity some times, but it will come to an end.  Now that treatments are over for me, I find that some days I don't think about cancer for several hours at a time...where during treatment, I was thinking of cancer almost constantly.  Keep plugging along and remember we are here for you...

Thanks for the good words, ladies.  

Psalm - fibro is usually a diagnosis of elimination, meaning that they rule out all sorts of other stuff, and then look at the cluster of symptoms and diagnose fibro.  If you are just starting to feel icky because you started tamoxifen, you might want to ride it out for a while.  You'd really know if you had it because the tamoxifen would magnify everything.  For example, my eyes burn and contacts just pop right out due to dryness, have headaches, nausea, wound up and jittery like I've had an IV drip of expresso, weak weak weak - huffing and puffing up the stairs, and sometimes just about pass out due to heart pounding.  Tightness in chest, hard to breathe. Had to go to the hospital for an x-ray because they were worried about a clot in the lung. We're talking major stuff here.  Muscles and bones hurt.  Balance is crappy, to the point that it helps to hold on to someone's arm if I'm going down steps. And very little sleep due to pain at night.  You'd KNOW if you have fibro almost as soon as you started taking tamoxifen.   I'm rooting for you - hang in there, and PM me if you want to know more.  

Renee - how is everything going?  We love you, poodle.  Hang in there.  

XO, Mary 

All was good at my check-up ~ she said where I feel tender is the edge of the implant.  Too give it time to heal.  I have to make a gyno appt next.  (ugh I hate dr's)  

Shelby ~ what did your gyno say about the lump your feeling?

Renee ~ thinking of you and your family.........

Thanks, Mary

for the info....I always knew Fibromyalgia was pretty severe stuff but your symptoms are alarming...so sorry for all you have to endure.  I am going to send you a PM....thanks, again

woo HOO Shelby !  Good news ~

txstardust - Sure my dads name is Billy Joe, please add him to your prayer list!  By the way all my lovely ladies... he made it through a grueling surgery and was awake and able to speak (very softly) when I left the hospital.  What he had was very rare, but it is not hereditary thank the Lord!  It is called a Sub arachnal arterial venous fistual (hope I got that right).  It was behind his right eye and they had to cut away part of his skull go in and cauterize the fistual and then cut it out stitch everything up and then put the skull back with wires and staple him up 4 hour surgery.  After they did and angiogram this morning.  They didn't start surgery till 3:45p.m. and it was suppose to have started at 2 p.m. He has a long recovery of 2 months ahead of him. 

Renee

Oh Renee, I'm glad he made it through the surgery ok!  I know he has a long road ahead, but with all the prayers and the wonderful family he has seeing him through this, he'll have lots of support along the way.