Surviving TNBC

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Triple-Negative Breast Cancer
http://forum.tnbcfoundation.org/topic5893_post51131.html#51131
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  • Titan
    Titan Member Posts: 2,956
    edited March 2010

    Thanks Heidi...I have been trying to find out what the actually difference is in the reoccurence rate is between negative and positive.  Couldn't find much except it was SO MUCH HIGHER..I always wonder how much higher..now we know..!  Not that much really,

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  • CAtharsis
    CAtharsis Member Posts: 52
    edited April 2010

    Thanks for sharing. 

    If I read correctly, I guess we're waiting for the three year mark ...

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Yep, three year mark is a big one for TNBC. Never thought that "everything comes in threes" wives tale was so,...er,...true?

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  • Titan
    Titan Member Posts: 2,956
    edited April 2010

    Ok...I'm one year out...I feel that is good...after two years...I think that will be awesome..after 3 well...party time..if I get there...I wish there were some percentages..as in..the percentage of reocurrence, in year one, year two and year three...I wonder if..it comes back within one year out..does that mean it never was really gone? 

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  • siscobaron
    siscobaron Member Posts: 1
    edited April 2010

    I have just been told I have triple negative breast cancer stage 2 , 19 lymph nodes taken - cancer in 1 as well as a lumpectomy. I am new to this forum and I am not sure where I put this in. I would like to meet other people with this type of cancer I am post menopausal 56 no cancer in family. (not spread) Seeing the radiation oncologist tomorrow morning and the other chemo oncologist next week. I have read so much about the triple negative situation.  

    the most promising thing to happen is with the parc therapy coming into the final stages. I am looking everywhere on the planet for information. 

    Is there anything out there in tests or chemo or radiation that you might have choices in? I would love to connect with someone I am going a little crazy!

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited April 2010

    Hi Sisco.  I am a TN too.  I believe that you are speaking of the PARP trials.  Right now it is a study drug for TN with mets.  There is a ton of info right here on BC.Org.  You will find the women on these boards to be very knowledgable, compassionate and even really funny at times.  I wish you the best.  Get all of your info, ask lots of questions, and keep things written down in a binder that you take with you EVERY TIME you have an appointment.  Hugs to you

    Navy

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  • Morgan513
    Morgan513 Member Posts: 664
    edited April 2010

    Sorry you have to be here Sisco.  You can also try www.tnbcfoundation.org.  There are a few women on these boards who also post on there.

    I am having my 2 year anniversary on Friday!  I am so excited!

    Lorrie 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    sisco,

    Keep your chin up. Read and seek knowledge as much as you wish, but do not believe all the doom and gloom about TN. There are many survivors out there and you are early stage.

    When I was first diagnosed I scared myself sh*tless reading stuff on the Internet and, to a certain extent, on some of these online forums. Remember to remember that many women with TNBC go on with the business of life and just don't hang around in forums.

    I think, if I do continue to post, it will be because, more than anything, I want women to have hope when they get this diagnosis. I know you are scared, but you will find a way to move forward and, in time, your fears will subside as your mind learns to cope.

    Trust your instincts and remember to keep breathing... there ain't nothin' more important than oxygen.

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  • Titan
    Titan Member Posts: 2,956
    edited April 2010

    Hey sisco..what Heidi said...Heidi is a great person to listen too...She is practical but not one to say  you will be fine and live to 100...what I mean by that is that she won't sugar coat things...

     The thing is..yes you have TN... and that may not be the best cancer to have...but is having any cancer "best"...no...  

     Talk to your onc...make sure you get the most aggressive treatment there is..don't back down...get it..and then go on with your life..and you will!  It won't be easy..but really..it is a short time in your life to hopefully make lots and lots more years.

    And Heidi is right (again)...don't read all that junk on the internet...stay here and the tncb foundation...don't go to those other stupid websites...and talk to your onc..(didn't I say that once...sorry)..but trust in your medical professionals...and still look on here for new things..sometimes the oncs just don't know a couple of things and they are usually agreeable with what you suggest......sometimes they need our help too!

    Congrats Lorrie..on two years...awesome to hear and glad that you come on here to support the newly diagnosed,..it means alot! 

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  • pas
    pas Member Posts: 55
    edited April 2010

    Hang in there ladies!!!  I will be celebrating my 5th year as a TNBC survivor this July, no recurrences!!  And I remember way back wondering if I'd ever be able to say that!  So, stay strong, have fun and don't waste time worrying!   We can't change anything so doing your best to be positive and go on with your life is so important!  I originally had a lumpectomy but found out last year that I was brca2 positive so I opted for a bilateral mastectomy and I'm so glad I did.  We're all in this together!   Sending hugs your way!

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