Emotional rollercoaster out of nowhere

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fighting4mykids
fighting4mykids Member Posts: 69
edited June 2014 in Stage III Breast Cancer

I am posting here because I know many of you may understand what I am going through.  These feelings I am having have totally caught me off guard. I am approaching my official 1 year cancerversary on 4/13/2010 and the past few days out of nowhere I have been an emtional wreck.  I just want to get through this date and move on.  People are beginning to comment and call and draw attention to it and I quite honestly want to just forget this year ever happened. I don't want to be called a 'survivor'. I don't want that attached to me. I paid my time and I should be free to move forward. But I am not free. I am not free of thinking about cancer every day and not free to think about my future thinking chances are cancer is going to come back. I am really struggling here. I just want this to all go away and be over. 

 this year has been the best and the worst.  I have given birth to 2 beautiful baby twin girls, have watched my 3 older children handle cancer with such grace and understanding and have given my so my strength. I have watched my husband give everything he has to me and the kids. I have had gone through childbirth, chemo,. bilateral mx, oopherectomy, tissue expanders expansion, radiation, wrist surgery, stress fracture in my ankle, financial hardship, family hardship...it's been a crazy year.

Relay for life is approaching in my town as well and everyone is expecting me to be down there for the survivor lap. I did walk it last year and I was a couple months past diagnosis but this year I just feel like it is hitting home to closely and making me think about it far too much. It's just too much for me and people don't get it.  They are saying it's a celebration of life and I see there point but I celebrate my life with my husband and kids EVERYDAY now.  I don't want to be rude but at the same time how can I get through this and move forward. 

not sure if this makes sense but I am hoping someone out there understands and can give me some wisdom!

Comments

  • tsotls
    tsotls Member Posts: 31
    edited April 2010

    I feel the same. I hate pink, do not consider myself a survivor, etc.. This is not to diminish the feelings of those who do. I just never have felt that way. It is indeed a strange and lonely ride and everyone is entitled to their feelings. It came out of nowhere, changed my life forever, and I have gone kicking and screaming all the way. So don't feel bad for the way you feel. For days and days I would wake up and think "it was just a bad dream". Cancer was on my mind all the time. My first anniversary just passed. Strangely I am feeling more free and just don't care---the cancer will do what it wants to do. No treatment is a guarantee. So I just go with the flow. Not sure if this helps and I am sure many will disagree. Again, we feel what we feel.

  • tsotls
    tsotls Member Posts: 31
    edited April 2010

    One more thing--don't feel bad. If it is one thing being a nurse has taught me, it is that we are all unique and never denigrate nor discount a person's feelings. God bless.

  • janincanada
    janincanada Member Posts: 258
    edited April 2010

    I get it.  It seems that the anniversaries provide us with both hope and stress.  We feel joy that we have made it to the anniversary, but, at the same time a part of us is concerned whether we will be healthy next year.  It is similar to the anxious moments that we have awaiting test results or when a newq pain emerges.  One of the first thoughts that we have is wondering if cancer has returned.  I too went to Relay for Live when I was doing chemo.  Friends from work had created a team in my honour.  I dragged myself there and found the experience very moving and uplifting.  Last year I went just before finishing my year of Herceptin, and it was moving, but also created a emotional tornado.  A little part of me kept returning to the "will I be here next year".

    You need to do whatever is right for you.  It is a celebration of life, but, it also hammers home the another message about the fragility of life.  At this point I have registered for Relay for LIfe; a team in honour of a dear freind of mine who recently passed away from BC.  I am keeping my options open.  I may go for the entire event, just the Survivor Lap or perhaps nothing at all.  I will listen to my heart and do what is right for me that day. I'm not sure how I will feel about going without Kim to walk the lap with me and my DH as we had planned.  I do know that I'm not ready to make that decision right now which is why I have registered so that I can go if I choose.  Hope this makes sense to you.

  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2010

    You and your family are already a celebration of life and you don't need any pre-structured "celebrations" to prove anything to yourself or to others. It's all about you, your children, your husband, your family right now. Stay tight within that circle. I believe it is oh so "normal" to feel unsettled, scared, groundless, as if you're walking a tightrope without any support. I felt that way after my year of surgery, chemo, etc., and what I went through is nothing like what you have described. You found a way to get through some really really tough stuff. I sure don't know anyone who went through chemo and the birth of twins, bilateral mx, all the other surgeries, and all this in a country with no real support in terms of childcare, financial security, etc. Wow! Take whatever time you need. You owe nothing to races for the cure, etc. You owe everything to yourself and to your family. My hat is coming off to you, and I send you all the best loving wishes for continued strength and confidence in your own ability to know what's right for you.

    Anna

  • scrappy_survivor
    scrappy_survivor Member Posts: 149
    edited April 2010

    I could have written your post myself. My 1 year out of treatment date was April 1st I thought when it passed I would feel better. I don't I really don't I am stressed I want to cry. I like you had a crazy time. I had a baby that I conceived after 2 miscarriages & being on fertility drugs. When she was 8 months old & I was bfeeding I found my lump it took 3 1/2 months to get a diagnosis. Then double mastectomy, 6 months chemo, then my grandson (my stepson's child who we have permenant custody of) well his mom decides ok she finished chemo now I want custody so she calls CAS (like children's sevices) tells them we are beating our kids. They come out & investigate for 6 months even though they felt there were no risks this protected us in case she would take it to court especially with my health so we get through that then ooph cervix uterus gone. Then bone spur from chemo waiting to see the ortho waiting list is until July 28th then who knows how long for surgery oh & I got to file bankruptcy thanks to cancer. My oldest child has adhd I am so frustrated with her. My other 2 feel the tension & are really pushing my buttons every chance they get. My littlest well for Easter we took away her susu (soother) so she is miserable & the kids got a puppy for Easter who likes to pee & not always outside. God help me and you........ I feel your pain. HUGS 

  • Pure
    Pure Member Posts: 1,796
    edited April 2010

    I know how you feel. I hate pink, I am not doing any races, etc.... My whole life revoloves around this disease. How can you get your life back back when your expected to be a walking pink ribbon. How do you move on when everything leads back to bc. I hate it.

  • aly72982
    aly72982 Member Posts: 29
    edited April 2010

    Hi fighting4mykids

    You are normal!! I don't post often but I could see myself in you.

    Read my posts...I need my life back....about the same time as you after chemo etc was finished.

    Now I'm waiting for my 3 year mark. Time gets better.

    Now I enjoy every day good or bad....cancer comes into my brain...........I push it back down.

    luv aly

  • Bugs
    Bugs Member Posts: 1,719
    edited April 2010

    Completely normal!  The first "anniversary" is the hardest to get through, I think.  Regarding the Relay ..I would just comment that cancer has dominated your life lately and you need to concentrate on your family...not cancer.   I did the Relay for Life a couple of years later and enjoyed myself...but I truly couldn't fathom doing it right away.  

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited April 2010

    I couldn't do the "pink thing" either.  I also took the view that my cancer is history and that I had to go through "kick butt" treatment just to be sure.  So I have been out cycling etc.  I still don't get why we treat breast cancer so differently than other diseases.  I mean, if I had needed bypass surgery, would I have been labeled a "survivor"?

    Our odds of making it through breast cancer are much higher than with heart disease. 

    Having said this, I am participating in LiveStrong on June 20 here in Seattle.  Because I think we need to address cancer on all fronts.  And I was a trifle smug when I did a short version of the Chilly Hilly about 6 weeks ago while in the midst of Taxol.

    Otherwise, my professional life just got re-energized big time, expanding in scope and in challenging new assignments.  Hopefully, $$$ to follow.  So meeting with a careeer coach on Friday although will still be dragging from last Taxol.

    The thing everyone misses at the onset, and I have learned from my own business experience, is the need to create a positive vision of ourselves going forward.  Back in September, it was to see myself as equally vital in a year's time, with only short hair and a couple of scars to show for my ordeal.

    I am now revamping, as way past the most challenging phase of treatment.  In fact, my Global Virtual Wine Party on the 24th was initially to celebrate the successful completion of chemo.  I am changing it to be a celebration of the commencement of the next chapter in my life. 

    So about beginnings and excitement.......  And certainly not about "pink" or "cancerversaries".

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    I am another who hates pink and just wants to forget this whole year. Going through cancer and its treatments has made me lose myself. I lost my inner child, being naive. I cry more than ever and constantly grieve for the things I lost out on in the past year. I hate my body for decieving me and I hate the scars that are left behind. And in a few days I have another surgedry to go through with more pain and scars. This time its my thyroid. I have aged so much in the last year, feeling much older than I am. I wish I could just move on.

  • janincanada
    janincanada Member Posts: 258
    edited April 2010

    I agree with many of you about the PINK issue.  As Pure said.....it is difficult to get on with your life and put cancer behind you if you surround yourself with it everyday.  You need to do what feels right to you. 

    I have been approached by two local dragonboat teams (survivors all) who want me to join. They want my muscle, my energy, my time. I have decided not to join them because of the time committment and I do not want my life to be focused on CANCER. As ClaireinSeattle said, " I had cancer, I don't have cancer".  I had cancer and I don't want it to have me.  If I surround myself with survivors and people in treatment all of the time it will be more difficult to focus on the future and not the past.

    I may still participate in the Relay for Life, but I know that Dragonboats (at least survivor teams) are not for me.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited April 2010

    You know, my first anniversary of being diagnosed last year was very difficult. It is quite the hurdle to get over. Things are much cheerier on the other side.

    If it was any consolation, my "other" anniversaries (Surgery, starting Chemo, etc) didn't bother me. 

  • fighting4mykids
    fighting4mykids Member Posts: 69
    edited April 2010

    I can't thank all of you enough for being brave and sharing your feelings. I was hoping I wasn't alone in these feelings. I think unless you are in this situation there is no way to understand. I haven't shared my feelings with my husband as he has been the strong one when I wasnt and he has seemed to move ahead.  I am not even sure if he remembers next week is my anniversary week.  now I just have to keep hiding the tears. 

    Thank you again for sharing your thoughts and making it okay for me to feel this way!!! Thank you !

  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2010

    Feelings are ALWAYS authentic. It's a challenge to find the words to share them without distortion, guilt or blame.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited April 2010

    Dear Fighting....

    Sometimes guys need help remembering.  And you need to tell them you need help.  I have had to straighten out Main Squeeze a few times.  So let him know that you are feeling _____ because your one year is coming up and that you would appreciate _________.  I would throw in something special that is not expensive that I could ask for.  This would include flowers and perhaps dinner.

    Even if he has "moved on", I am sure he will be there if you say you need support.  But he may not be there if you don't help him remember.  So TELL HIM.  Good luck.

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2010

    I was worried about the one year since Dx, so I scheduled my CTS surgery for that day....I needed a diversion....actually one year was easier for me than year 2....I just marked 4 years and I still struggle....but to me moving on means many things....I'm tired of doctor appts,  tired of side effects and taking more Rx to counter side effects from another med, and supplements after supplements....I do like pink and always have...don't wear BC t-shirts, the ones I get from the RFTC and the 3-day, I wear as night shirts with jammy pants (though I am too hot to sleep in them!!!)....I volunteer for Komen and feel strongly about getting the messagte out....I have a pink survivor ribbon on my car and have BC license tags (CO has had them for several years)....volunteering for me is a way to play it forward....not all the Komen volunteers are survivors....and when I did the 3 day (I crewed) only a handful of us were survivors.....I just re-read everyone's posts and in a way, my pink ribbons are a way to show that I have survived and hopefully I am living life!!!  My goal is to try to move on more fully and life a feel good life.. BC is not a topic of conversation with people who did not know me when I was going through Tx or even with anyone who is not one of my closest friends....except for the gals here.....Our feelings are our feelings....we own them and have a right to feel however we feel......beginning to ramble, but just wanted to share some of my thoughts on a day that I am feeling good and feisty!!!!!  Hugs....

  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2010

    About guys - my husband always wants to fix things and move on. I had to sit him down and tell him it was okay that he couldn't make this go away and that I needed someone who would just listen and be there. Whenever I need to vent I tell him that I've got something that can't be fixed but may I please talk about it? He has become a super listener and this has spilled over into all sorts of areas of our life together.

  • NancyD
    NancyD Member Posts: 3,562
    edited April 2010

    I don't do the races, the survivor's laps, or anything like that.

    Less than a year before my diagnosis, I did a half-marathon for the Leukemia and Lymphoma society, and did their Light the Night walk every year. The marathon was it for me. It wore me out. All that effort, and really I could have just handed them the money. I ended up paying for about  third of the goal out of my own pocket since I didn't have enough supporters.

    So now, I just whip out the checkbook and ask, "Who do I make it out to?" 

    And the way I look at it, everyday is the anniversay of SOMETHING in my life. If I really kept track, I'd be going crazy. Do I celebrate on the date of my divorce? No...well yes, but only because it falls on New Year's Eve, lol. I'd rather remember and celebrate the GOOD dates. 

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2010

    Anna....you are so right....I was going to say "hit the nail on the head"...men....they want to fix things....you just put such clarity to why my hubby has struggled with this moving on...I like your comment to yours....I am going to try to remember it...or even better, so it to mine....Thanks.,

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