Starting Chemo Feb 2010?
Comments
-
Hi Ladies, I wanted to pop in and say hi and I finished my 4th and final T/C last thursday!! Had a rough weekend but now starting to feel better. Hope you all had a great Easter weekend
Verene I too have young ones and sleep issues, but my doctor gave me ativan and told me to take that before I go to sleep and it helps me out a lot!! If I don't take it I have a real hard time falling asleep and can't turn off my mind.. but when I take that I don't have any problems. So maybe you can ask your doc about it.
Well I hope you all have a great day, its been beautiful here..
-
CAL30, congratulations!! So happy for you. Tomorrow is my tx #4. I wish it would be my last one, but since my onc wants me to do 6, I'm still a few weeks from the finish line.
Since I have what feels like 200 pieces of hair, each about 1/3", on my otherwise brightly bald head, I now have the strangest sensation of "wind in my hair." Any time I walk fast or turn around or bend down fast, the hair must be dancing in the wind! Perhaps I once felt like this once when I was a baby, but I truly don't remember LOL.
I've had some sleep issues too. I blame it on the hot flash.
-
BaileyCan, welcome! Please check your PM.
-
Congratulations CAL30!! I hope you continue to recover from the chemo quickly!
-
Sleep issues - check, got that, too! I have the Ativan that someone mentioned but have been avoiding taking it - don't know why, just afraid that I'll wake up feeling groggy. I think I'll try it tonight though - need a good night sleep. Had a facial today and the woman who I've been going to for years said that my skin has never been better - and I don't think she was just being nice because of all this - soooo, hopefully we can all take that away as a nice side effect from all this stuff - beautiful skin! And, of course what did I do?? Fell asleep during the facial because I can't sleep at night! Maybe I should book her full time at night! Have a great day everyone! Mo
-
Had to laugh - I heard Carol Burnett on the radio today talking about her old show (which I adored as a kid) and the image came to mind of one of her characters - and I think it's what we're all afraid we're going to look like when we paint on our eyebrows and put on lashes!
-
Sleep? What's sleep? I wake up every hour, either due to a hot flash or boob pain...I never feel rested. Yet I can't fall asleep until late at night, and that's after I've taking a sleeping pill. Sigh. Maybe I'll get some sleep after August.
-
Add me to the no-sleep club. I don't take any sleeping meds, tho, due to bad reactions in the past. But I could have fallen asleep during the MRI I had
Had to renew my driver's license today and get my photo taken in my wig. Not super-happy about that, but I guess it's better than my bald look.
-
I too am having problems sleeping at night. I am taking Ambien, but lucky to get 4-5 hours sleep a night and wake up every morning at 4 am. I am also experiencing night sweats, which are not much fun. If anyone can come up with a better way to get some sleep - let us know!!
Just had #9 of 12 Taxol treatment yesterday - only 3 more left. Had an appointment with my Onc and he said the next treatment will either be AC or FAC for 12 weeks (once every 3 weeks) - anyone has any input on this??? He seems to be leaning towards AC.
Hope everyone is doing well - thanks once again for all the great support and info on this site.
-
congrats CAL30 on your chemo completion
have been taking ativan for the past 2 nights otherwise I wouldnt be able to sleep at night as well. so far so good with it, able to catch about 4-5hrs of night sleep.
-
I have sleep issues the nights after taking Decadron the day before, of, and after infusion. Even with sleeping pills. My anti-depressant (Lexapro) says 'can cause sleepiness', so I take that when I take the sleeping pill. Decadron is still stronger. *sigh*
-
i've got fran drescher's voice double next to me on the chemo floor. aaahhh. hearing it on TV is one thing but it's pretty annoying in person. gotta look on the brightside, i only have 3 more weeks to go and we're getting record high temps today. everything is gonna be ok.
can relate to the sleeping problems. i wake up around 5:30am every morning, look at the clock and my mind starts racing. usually wind up feeling groggy all day when that happens.
my doc warned me that ativan can be addictive so i've been abstaining but think it's time to break open the bottle. why is everything that's bad for you so addictive?
happy wednesday all.
-
I too have sleep problems..........i seem to be groggy and sleepy during the day and then at night I get a second wind and can be up all night. My internal clock is backwards? Anyways, some nights I take Ativan and some nights I take Benadryl and some nights I take nothing - all depending on what side effects I'm having. (benadryl for the itchy crazy hives). Last night the benadryl didn't make me sleepy for once. Darn. I hope my system isn't getting used to these drugs ! It's crazy, life BEFORE Breast cancer, I never, ever took any kind of drug. ...and now, life with breast cancer and all i seem to do is pop them without even thinking twice. Hey if it's gonna help, then I"m going for it ! :-)) But I am a bit worried about my body getting addicted ! Yikes !
-
You can build tolerance. It would take me 10 benadryl to knock out hives now, and agitation instead of sleepiness.
-
Congratulations CAL30! That's great that you've finished, and I hope you have very little SE's. My final chemo is this Friday. I can't believe it! The time has gone so much quicker than I thought it would. Tomorrow it's back to the Dex (ugh!) and a fill in my expander at the plastic surgeon's.
BaileyCan, welcome! I know what all of you mean about the sleeping problems. I'm having them too, but they have been a lot better since the hot flashes have slowed some.
I hope everyone is feeling good. Take care!
Cindy
-
I'm getting tired of all the "how are you's?" How about just a, "you look great!" and leave it at that! That may sound terrible, but alas...it's true. I've been filling in at my old work and everyone asks the same questions every time I see them, when it's obvious I feel fine-I'm working, I'm smiling, I look totally normal because of the wig. Sometimes I just want the conversation to be about something else other than my cancer/chemo. Ask me how my kids are...ask me how the husband is. Something! I think people get caught up in feeling like they have to talk about it, when they really don't. So I'm working on getting better at changing the subject...
I hope everyone has a day filled with few SE's!
-
I think they want to be supportive, but just don't know how, burley. Grit your teeth and smile, then change the subject. Someone in one of these threads said that when you catch 'looks', it's sympathy and support, not morbid curiosity. IMO, we as a society (America) don't really know how to deal with death and/or serious illness. And so, there are awkward looks and comments. They mean well. That's what I choose to believe, anyway.
-
Round 4 tomorrow. Took my dex this morning and started drinking water like mad. This is my day off work each week, and I devote it to dog training. Got a little dizzy this morning, and had to find someplace to stop for a restroom on the way home, but otherwise things are going normally for pre-treatment day.
My friends and co-workers know the non-cancer subjects that get me talking about other things. All they have to do is ask about my son, for one thing. So, I bring him up if I want to change the topic. And there's always, "who do you like on American Idol?" I get, "I can't believe you're working; and, you look so good." I just say, "If I'm here, I'm having a good day," then move on. I appreciate someone who asks how I'm doing more than the folks who have avoided the topic altogether, but that's just me.
I brought up some of the hurt I feel over people from my former church being silent when I was talking with a friend this afternoon. She knows someone recently diagnosed with leukemia and didn't know how to act or what to say. I brought up some of the things I've read here, as well as my own feelings. Gave some practical things she could do as well.
I wouldn't want people looking at my chest and checking it out, so slap those folks!
-
I've had sleep issues, too, but a little different. I'm usually able to fall asleep and stay asleep, but it's like my dreams are loud and wild. I feel like I'm trying to sleep in the middle of watching a loud action movie. I'm asleep...but it isn't restful. Weird stuff.
-
Beth I know what you mean about the dreams. I've had some really crazy ones and when I wake up I feel like I haven't slept a wink. I keep telling myself I'm half way through and this will be over soon. Hopefully we all will be able to sleep better a month or so after our last tx.
Hang in there ladies, it's almost over! This too will pass.
-
Morning Girls! Was up all night last night for it was day 1 ion dex....On my way for round 3 of T/C. Hopefully with no side affect from the taxotere.... Keeping my fingers cross.
Who ever has treatment today or this week i am praying for you .... Who ever finished this week .Great job for you...
Courage and strength,
{{{Hug}}}
Donna
-
Donna: Thinking of you, too. I'm off for #4 this morning. Hope you have an easy time of it.
-
Oh, yes, ladies. I can relate to this week's topics of no sleep, and sleep with dreams. I have always had dreams but they are much more vivid right now! Luckily, I don't have small kids at home that have to deal with my sleep depravation- just a whole high school full of teenagers to battle with. Of course, they have their own system- they must send out texts or something to send out a Mrs. S warning...
- probably with this icon attached!
I finished my 4th and last AC yesterday, will start the Taxol x 12 the last week of this month. I can tell that the SEs are cumulative, I just did not feel like I rebounded either mentally or physically after round 3. Hope that doesn't mean round 4 will be the worst one!
Prayers and good thoughts for you all.
-
Sleep does seem to be the hot topic. When I remember to take an Ambien I seem to do better. When I forget - my mind is racing all night and my head is sweating.
Got through tx #3 last Thursday - and like kshep - I did not rebound as well as the first two. Also managed to pick up some kind of stomach bug. Feels like I have a bag full of puppies in my gut. Doesn't really hurt - just very irritating! My onc suggested Prilosec to calm things down. Had a much worse time with the fatigue this time, but getting vertical and moving around seemed to help.
My eyebrows are fading away, but have managed to hold on to my eyelashes so far. I've signed up for a Look Good Feel Better class next week hoping to get lots of good makeup tips! I've found that wearing wigs is just too big a hassle for me. I'd much rather wear the nice caps and scarves, so that's how they see me in the office now.
Praying for mild to no SE's for all of you ladies!
-
compared to the last a/c treatment, i am having a good week--even though after seeing the onc yesterday and having the neupogen shots extended due to low white counts, and just barely avoiding a transfusion. wow--how sad does that sound!!!! but only one more to go. can't remember who mentioned the cumulative effects of the a/c, but yes they do. my onc was talking about the next phase for me-radiation with concurrent taxol--and i asked him about se--he said the taxol should be better for me than the adria, but since i seemed to be 'sensitive' to the drugs, he wasn't promising anything. so, that is encouraging......i will start off with 2 taxol treatments on a 3 week cycle then do 6 weekly.....the end is getting closer.
food--ugh. the only thing that truly tastes good to me is grapefruit juice. bread isn't too offensive, so maybe eating more than i should of it...but gotta eat something. the dogs are lurking about more than they use to when i 'eat', cause there is a higher probability of them getting something. so it makes me feel better to know i am making someone happy....little tail waggers.
hey, burley---think you need to call tax masters....good luck hanging onto your dough!!!!!!!!!!!
take care all you chemo girls..........
-
Round 3 for me too today. Round 2 was for whatever reason waaay easier than the first and I rebounded faster (maybe anxiety of not knowing for round 1? dunno). I'm getting a little freaked out with all the talk about cumulative nature of this - I'm on carboplatin and taxotere, every three weeks. I just felt like I got my taste buds back the last week; am dreading losing them again for the next two weeks
I have some ofmy hair left ~ I can wear a cap and some still sticks out (not much, mind you), still have eyelashes and eyebrows (getting thin tho). I related to others who, like me, inexplicably couldn't bring ourselves to shaving it all off. The slow loss has been depressing. But thankfully I found a wig (paid a pretty penny for it tho) that I like and feels good, so that has helped.
*knock on wood* this has been pretty managable (with the help of many drugs and good onco staff) so far... I'm struggling not to keep expecting the worst and staying positive. OK got to get ready for the poking and prodding and my third round. Wish me luck and wishing you all for a SE free week!
-
grdnslve- I laughed at your comment that your dogs are eating better... my dog got a whole piece of salmon last night- he too, is enjoying my appetite issues and hanging closer to me at meal time! He wont touch his dog food until he is sure all my rejects have been distributed!
Seems like unsweetened iced tea has replaced water for me, everything else is too sweet and the tea taste seems to overcome the metallic taste of water.
-
Just adding my name to the no sleep list. Dr gave me Ambien, I'm concerned about weaning off of it later so I take sporadically and sleep well every other night
That said, my opinion on the drugs is that, unless you've had addictions in the past, you probably won't start a lifelong addiction now, and we should do anything we can to make this ride easier. When we feel good, strong and have energy again, we probably won't even think about taking a pill. I decided to stop worrying about it because my worry list was just too long and something had to go!
I am fully enjoying my week 3, which started today. I feel completely normal except for the weird scalp that feels like it's pushing its hairs out.
Hugs to all having a treatment this week.
-
kshep - I've discovered the wonders of unsweetened ice tea also! I loved it before, but now it's the best thing going to make sure I get my fluids in. Everything else just tastes "off". One of my favorite things is to stop at Sonic and get the big Route 44 unsweetened ice tea with a double shot of cranberry juice. Deeee-lish!!
-
Hey, my dog clings to me at mealtimes too!
One thing I also notice, he is much more "snuggly" throughout the day, too. He especially likes to "snuggle" up to either my breast area (where my tumor was removed) or my right side, tucked into my liver area (which is where my mets are).
Dogs are soooooo funny that way.
I have to admit this last round, round 3, really kicked me on my rear. Plus I ended up with pneumonia this week.
I feel like I've been tossed into a potato sack and thrown into the the bowels of a 12th century wooden ship!
But did want to check in and give all the Feb Chemo pals a thumbs up! One more infusion in a couple weeks to look forward to. . . .
Bring it on!!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team