will life ever be normal after a bilateral w/reconstrucion
Hello girls,
I am having my surgery a week from this Monday. First, I am at peace with my choice but overwhelmed....will my life ever go back to normal. I know it will be a new normal but will I be able to run, golf, play tennis. Will I be able to lift things above my head? Any words of wisdom.
Let me know what life is like on the other side. WONDERING!!!!
Dublin4
Comments
-
Hi Dublin 4 - I had bilat mast with immediate reconst Dec 23/08. (implants & latismis dorsi) Also had aux lymph node surgery. At first, I was not able to lift my hands above my head, put a necklace on, close a car door etc. It took several months and daily stretching to regain my mobility. It is not completely back and I have to keep up the stretching. Still working on the strength.
But, yes I am able to run and do everything I need to do on a daily basis. Golf & tennis should be manageable if you get back into them slowly. Recommend you see a physiotherapist after surgery.
Wish you well
Bev
-
Dublin,
I had my bmx surgery 9/18/09 and was playing tennis by Dec. I just had my exchange surgery on 2/8/10 and will be able to play spring tennis which begins mid-March. Life can get back to normal. You will have restrictions after each surgery (more with the mx than the exchange). Make sure you get a good physical therapist after your mx to help you recover more quickly.
-
Hi Dublin
I had my bmx 12/06 - first reconstruction 5/07 and second reconstruction 5/08.
Post bmx had the most restrictions - and you really won't feel like doing much anyway. I had lifting restrictions after both exchange surgeries. The second exchange surgery had more restrictions because they had to fix the pocket with lots of tiny little stitches and they didn't want it to tear.
I love to work out and I was fairly annoyed with life until I could resume all activities. I would say that my life was completely back to "normal" within a year after reconstruction was finished including cardio kick boxing, lifting weights, body pump etc. The only things that feel really weird and I don't really like to do are chest presses and pull ups. I also work with severely disabled children and adults and I have no lifting restrictions with them.
Good luck and Take care
It really does get better
-
Dublin4 - thanks for posting this as I was wondering the same. How long is recovery? This whole thing seems so scary.
-
I had a bilat mx 07/08 and had no range of motion problems at all. As badmamajama said, there are restrictions placed on you by your surgeons so that the incisions can heal, but many will give you simple exercises to do to keep you limber.
I had recon surgery three weeks ago (bilat DIEP flap), and still no range of motion problems. It's only the lifting restrictions and the need to get back to pre-surgery stamina that's holding me back from my regular routine.
-
Nancy D
I love your signature line.... that cracked me up!
-
mom3band1g,
I think your recovery has alot to do with how active you are before surgery. I had chemo first and tried to continue my activities as much as possible. After my bmx, had restrictions with lifting,restrictions with arm usage(these were lifted with PT ). . I took about 6 weeks off of tennis and then practiced with some friends for a few weeks before playing in a match. I felt like playing well before I was given permission to play. As I mentioned, I just had my exchange Feb. 8th and feel great and ready to get back on the courts but can't for 2 to 3 more weeks.
Just curious, I live in Alpharetta. I see you are from Atlanta. Are you in or out of the perimeter? Also wondering who is your BS and PS? I loved both of mine.
-
I am more active now than I was before my bilaterals, and I was darn active then. In fact, I've had implants removed and replaced by flaps (a monster surgery!) and I keep coming back stronger. And happier. It takes patience, time, determination, and someone to help coach you through it.
Anne
-
Life will be so normal you won't even believe it. I had a bilat w/ expanders Dec 17, 2008, exchange March 17th, 2009, nipple and port out June 15th 2009, 3D tattoos in September. It took me until October 1 to feel like I was ready to tackle gym again and now 15 months post chemo, 8 months post final surgery and final herceptin...I feel great! Sometime I actually catch myself saying out loud "really...I had cancer" then I look at my port scar and remember. I compare cancer to childbirth...IF...we remembered the pain of childbirth no one would ever have a second child. The brain has an amazing way of healing us.
Give it time...you'll get there!
Kris
-
mom_of_2, AnneW, badmaajama and everyone else who has responded...
THANK YOU! You have all given what I need to hear. I think I am more scared of not being active and doing for myself then anything else. I am normally the one who takes care of others and I am not so good and accepting help. But boy am I going to accept the help with this one. I have a wonderful group of people surrounding me...they are organizing my life from meal delivery's to someone to clean my house and carpool my very active kids. I know this sounds strange, but I truly feel blessed.
This website has been such a wonderful place for me to talk with you, ask questions and learn. I am so glad the nurse suggested it. Keep the info coming.
Thanks again to all....Much love!
-
I was able to run around after a two year old and lift her all day within weeks of my BMX. I don't think there is anything it would keep me from doing right now. I was worried about being able to go to the bathroom unassisted, it was never a problem. I think you will be surprised how quickly you recover.
Good luck!
-
All of you are my inspiration and hero's! Thanks you. Next Monday can't get here soon enough and it can take its time...It would be easy for me to live dwell in denial and fear, but instead you have all helped me to dwell in appreciation and hope!
Keep your fingers crossed next Monday for me!
Thanks again,
Dublin4
-
We'll keep everythng crossed for you, Dublin!
My biggest piece of advice is to get into physical therapy a few weeks after surgery, to help get back range of motion, then strength. I didn't do it with my first surgery 8 years ago--I was foolish enough to think I knew it all then! But with my last four surgeries, I was right there with an awesome therapy group, and I came roaring back!
It is a very scary time. We get robbed of our innocence and our body. We are vulnerable. We have to accept help. So, we can't change what happens, but we CAN change how we react to what's going on. Be proactive. You can still be afraid--that's normal--but just keep moving ahead. baby steps, and soon you'll be running!
Anne
-
AnneW,
I am in a good place...my mind is at peace and my body is strong (except for the unwanted guest). I know that I will have to accept help and I will. I have been overwhelmed by the outpouring of support from my family, friends and neighbors. They have held me up and lifted my spirits. Just as many of the women on this chat board have! Since my families needs will be taken care of, I can focus on getting better as soon as I can. Baby steps and then running.
Thanks for the info. It is SO appreciated. This time next week....hopefully all will have gone well:)
-
I had my mastectomy and TE in mid September. By December I was golfing, working out, biking, walking two large dogs, and doing everything I was doing before. The only thing I haven't tried yet is canoeing and upper body weight training. I'm only holding off on trying them because I'm out of the country and don't want to have problems while I'm away. I love canoeing and do miss it but I'd rather be safe than sorry.
-
How lucky you all were, guess no one has experienced Florida Hell Care and MRSA/VRSA, which I contracted during my initial surgery in January 2008. Life will never be the same and thanks to our wonderful non-working government, I won't be able to change jobs for years. Nine surgeries later, I am still in pain. Not one of you have experienced T1-2 nerve regeneration pain? Yes, you are lucky. Wow, I guess you all have your cognitive skills and can sleep too. I was in great shape at the time of diagnosis, however, seven months on a couch and an additional eight surgeries (five due to MRSA/VRSA) with recovery time, I figure I spent over a year propped up in the corner of the couch. No one had problems with chemo brain and your employers must be great, that is, assuming anyone works. There is a reason everyone writes a book; prepare yourself for the worst and when the best happens, euphoria. I do hope your surgery went well and you have federal employee health insurance. Good luck with your recovery.
-
I didn't have my mast's at the same time but yes you will be able to be active. I had my origianl mast in April 08 followed by chemo, rads and herceptin. Finished in July 09 and went on vacation to climb a mountain and hike. In Dec. 09 I had the other breast removed and started recon. I had TE's placed with a LD flap done on the radiated side. During chemo I started yoga and walked. I was lifting my arms over my head after 2 weeks. I didn't do physio then. I went to the gym and was active. After my second mast and recon I was back playing racketports and doing yoga after a month. Now I play racketposrts 8 hours a week, yoga 4 and walk and ride my bike. I did do Physio after this surgery to help me get the range of motion back.
You need to keep stretching and moving as I notice that if I skip a couple of days I notice a difference.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team