I am Stage 1 but the Grade 3 continues to make me nervous

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  • Redbarb804
    Redbarb804 Member Posts: 299
    edited April 2010

    Thanks for the info.  I will go check the wigs out before I start chemo.  If you could let me know the brand that would be great.  I know my insurance won't cover the wig, but any convience I can have will be worth the money.  I will definetly check with my ono about the two week apart chemo.  Depending on what surgery I opt for I could be starting chemo at the end of April which would put me on about the same schedule as you were.  I hate giving up my summer but it;s better than losing work time.  I will keep you posted on what I decide to do.  My biggest concern is that I will miss my kids activities.  One plays baseball and basketball right now and during the summer, the other is on the track team (broken ankle right now) plays soccer and is in his schools play at the end of April.  I'm hoping not to miss that.  My 12 year old is asking me all kinds of questions and really doesn;t want me to have a mastecomy (he;s afraid that his friends will make fun of him if I get bigger ones)  I love the things little ones worry about!

  • sheila888
    sheila888 Member Posts: 25,634
    edited April 2010

    And before you start chemo you need to have different scans. They usually do that after the surgeries. Like bone scan, muga scan to check your heart before A/C chemo.

    I don't remember every one of them but they were few.

    I tried to schedule more than one test a day. all my Dr's treatment centers, radiology were 5 minutes away by car.

    Wish you good luck and if you have any more questions that we can answer just come back.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2010

    What I did was have my chemo on Friday, that way I could do the neulasta shot on Saturday and lie low the rest of the weekend if I wanted to. They  gave me heavy duty anti-nausea drugs the first 3 days, so that's when I felt the worse ,but still was able to drag myself to church by Sunday and work on Monday. After those 3 days, I felt better and better. The weekends of the off week I felt good enough to do whatever I wanted (including driving 500 miles for my niece's graduation weekend. I felt good enough to go to almost all of my son's stuff; concerts, track meets etc. the only two things I missed were on the day-after-chemo Saturdays (and I still feel bad because one was being a chaperone at the post-prom party, and the other was a regional track meet, out of town Cry). I did spend more time watching movies, watching him play video games, rock band etc. than I would have if I felt better. I will dig out the wig brochure and PM you later this weekend. I have company coming in a couple hours and have to get busy here. All my best! Ruth

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2010

    One more thing for now; here is the book that I found the most down to earth and helpful 'Breast Cancer, Real Questions, Real Answers' by David Chan, MD

  • Meece
    Meece Member Posts: 19,483
    edited April 2010

    Six years ago I had my chemo on Wednesdays and the Nuelasta on Friday Mornings.  I could get thought half the day before the se's set in and Tylenol took care of it until I could get home from work, then I was down throughout the weekend and on the upswing by Monday to get back to work.
    I never looked at the cost back then, I think I will dig out the records one of these days and see what it cost.

    I started losing hair about 10 days post first chemo, but it didn't really become a wig-wearing issue for nearly three weeks.  I had AC x 4 and Taxol x 4 three weeks apart.  CBC every week to monitor wbc.  Radiation x 33 five days a week, including five boosts

     I was  obsessive about not being around sick people.  My boss used to come into my office and tell me he had never lost a day's work because of being sick,and then cough and sneeze all over.  I made no bones about asking him to stay at the doorway , and I kept Lysol in my desk and sprayed the room after he left.  I never got sick throughout the ordeal, and because I started that sort of "habit" I have been sick less since as well.

  • weety
    weety Member Posts: 1,163
    edited April 2010

    Redbarb, I teach kindergarten and my onc said NO WAY to teaching during chemo.  She put me on medical leave the whole time.  I do have 3 young kids of my own, so it still wasn't entirely germ-free in my house (LOL) but at least I wasn't around the twenty 5 yr olds who don't know how to cover their mouths when they sneeze (usually right in your face) or grab your hand with their own (that have just wiped their own snotty noses!) 

  • Redbarb804
    Redbarb804 Member Posts: 299
    edited April 2010

    Ruth: thanks for the info on the book.  I'll have to check it out.  I will try to schedule my chemo on days that my son doesn't have games.  What I might try to do is schedule it for Thursday after work. if I can work, so by Saturday I can drag myself to at least some of his game.  I have a feeling my ono isn't going to let me work though.  I do have a graduation in June that I really dont' want to miss. 

    Meece: When you said you had 5 boosts, what is that?  As far as chemo, my ono is recommending TC. I am going to have to really clean the house before I start surgery, with two boys  and 2 cats the house tends to not stay as clean as it should.  I will remember to keep lysol around me at all times.

    weety911: I was afraid that I might not be able to be around my kids.  If I can't I will really be upset.  We have our end of the year program and picnic the end of May.   I really love this group of kids and parents.  I know what you mean about the kids not covering their mouths and coughing on you, and snotty noses!

    Thank you all for the great place to come and feel comfortable asking questions.  By this time next week I will have made my decision on surgery and getting ready to really start my journey.  I'm sure once the journey has really started I will have a whole bunch of new questions!

  • Meece
    Meece Member Posts: 19,483
    edited April 2010

    Boost are when they direct the radiation at a stronger dose focusing it closer to the affected area.  It is done at the end of radiatation and often results in blistering or burning of the skin.

  • sheila888
    sheila888 Member Posts: 25,634
    edited April 2010

    It left me with a lifetime memory.

    Its still purple

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2010

    I got 5 boosts at the end. It's a different kind of beam, I believe, & like Meece says is targeted right on the surgery site. I didn't blister, or burn anymore than if I had been out in the sun too long.

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited April 2010

    I have been reading all over that chemo works BEST on grade 3 cancers.. hmmm  I have to wonder why this is..   As I am stage 1b grade 2.  (my Oncologist highly recommended it to me).  I have 2 breast cancers Invasive Ductal Carcinoma and Infiltrating Lobular Carcinoma.  I had 4 chemo's and 21 RADS (16 RADS 5 BOOSTS)..

    Charmaine

  • Redbarb804
    Redbarb804 Member Posts: 299
    edited April 2010

    Thanks for the explanations of boosts. I appreciate it.  Do you have more ses after the boosts?

    I just had my appointment with the another surgeon and she is also recommending lumpectomy.  So I have one more doctors appointment to go before I make my final decision. 

    Charmaine:  I wondering if she is recommending it for you because you have more than 1 ICD plus the inflitrating lobular?  I too will have 4 chemo's but I think they are going to do 33 RADS (don't know how many will be boosts yet)  I did you do through the chemo and RADS?  What kind of chemo did you have?

  • Char2010
    Char2010 Member Posts: 532
    edited April 2010

    Hi Ruth,

    Please let me know what brand wig you got.  I am trying to make a decision if I should do chemo or not.  Will have to decide within a couple of days.

     Char2010

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2010

    Hi Char, I PM you back with the wig info. I don't know if we are suppose to post brands or not. Does anyone know if that would be OK?

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited April 2010

    Redbarb804 - the chemo that I had was 4 rounds and the drugs they used were Cytoxan and Texatere.  As for radiation therapy I had 21 rounds of it, and 5 of them were boosts.  Generally those going for 33 rounds of radiation, often 8 of them will be boosts...

    Charmaine

  • Redbarb804
    Redbarb804 Member Posts: 299
    edited April 2010

    Thanks Charmaine!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2010

    One thing I would suggest to any of you who are in any stage of active treatment, would be that you check out the 'Look Good, Feel Better' program run by your nearest chapter of the American Cancer Society. It's one morning or afternoon, and an expert comes in and gives you a session with makeup tips, hair/wig/scarf advice if you need it, and you leave with several hundred dollars worth of really good, name brand makeup, all absolutely free!!! Since it's about the only fun (and free) thing I can think of out of the whole experience; I'd really recommend it. Ruth

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited April 2010

    Hello Ruth,

    A couple of months ago I did go for the 'Look Good Feel Better' workshop at my local Cancer Support Centre, and had a rather good time.  In fact they had me up on a chair as the 'wig model' and tried on a variety of different wigs on me :)

    I did indeed come home with tons of wonderful make-up of which I got to try out there, have not used any of it at home yet though...  I do have plans to sometime.

    Re Look Good Feel Better

    Here is the link to find any workshops in the USA - http://www.lookgoodfeelbetter.org/women/program_finder/

    Now for in Canada - https://www.lgfb.ca/workshop_locator

    Charmaine

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2010

    Thanks for posting the contact links, Charmaine!!

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited April 2010

    You are most welcomed Ruth and glad to help... Charmaine

  • Redbarb804
    Redbarb804 Member Posts: 299
    edited April 2010

    Thanks Ruth and Charmaine, I will have to check it out here in PA

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