Mastectomy after 2nd dx in 2 years?

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2nd-time-around
2nd-time-around Member Posts: 5

Hi Folks, I just got my 2nd dx on the 'other' breast.  Had stage I lumpectomy with clear margins and did not do rad or chemo 7/08.  So now the other breast and I don't have all the stats on it yet.  I'm thinking about double mastectomy; would this be preventive for future cancers?  BTW, my mother just finished her 2nd bout where she had one breast removed. After almost 2 yrs. of chemo and rad, she's in remission with quarterly and bi-monthly appts. So I definitely have a history. I am 62.5 yrs.

I've read some of the other posts, and am wondering what the community thinks? Thanks for your feedback.

Comments

  • nmi
    nmi Member Posts: 180
    edited March 2010

    Sorry about the 2nd dx. I believe a BILMX would be preventive, but I assuming your first cancer was early BC since you did not receive chemo or rad.  Were you ER +? Have you taken any estrogen blocking drugs to prevent a recurrence?  I'd also wait until the path report comes back and see was doc and oncologist have to say.

  • 2nd-time-around
    2nd-time-around Member Posts: 5
    edited March 2010
    Yes, first cancer was early and I am ER+.  I'm in the early stages of gathering info.  Thanks for your input.
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited April 2010

    I faced a similar situation. I had DCIS plus a small invasion in my right breast, had a lumpectomy, radiation, and took tamoxifen. Three years later, extensive DCIS was found in my left breast, mastectomy recommended. With my doctors' full support, I decided to have a bilateral mastectomy, to decrease chances of a third occurrence, although I realize that there's still a possibility of recurrence. I don't have the BRCA mutations, but I do have a strong family history.

    It's been 3 1/2 years since my bilateral and I have not regretted my decision for one minute. I chose not to have reconstruction and have been quite happy with that choice, plus having a flat chest makes it easier to detect any recurrence very early. The surgery isn't very tough physcially (if you don't have recon), but for some women it's a big emotional adjustment, with or without recon. But the peace of mind was worth it to me.

    Good luck, whatever you decide.

    Barbara

    BreastFree.org

  • 2nd-time-around
    2nd-time-around Member Posts: 5
    edited April 2010

    Thanks, Barbara, good to hear from you.  I go in for another biopsy and then we'll know the extent of cancer in both breasts.  It's good to know that after the bilateral, it's easier to detect an recurrence.  I'm leaning that way and my surgeon put that on the table so it sounds good to me.  Going through these cancer episodes is a drag.  Of course, we have to die of something but I think I've got more time left.  Thanks for your good wishes.  All the best to you for a happy life. 

  • hrf
    hrf Member Posts: 3,225
    edited April 2010

    I also had 2 different dx. Details are in my profile. Second time I did bilateral mx. I had to do chemo and rads both times. I am BRCA2+

  • puddingirl84
    puddingirl84 Member Posts: 120
    edited April 2010

    I had two different dx, but breast cancer 3 times in four years. An ER+ and two TN's. I had bilateral MX on January 25th, 2010. I realize it can still recur, but I just feel my chances are better. BTW, I chose no recon. I am doing chemo now. Details are in my profile.

    Puddin' 

  • chumfry
    chumfry Member Posts: 642
    edited April 2010

    Me, too. I had a second primary in my "other" breast 18 months after my first mastectomy. I figured my breasts just must be very good at creating cancer, so I got another mastectomy. My docs certainly considered it preventive.

    That's not to say that it can't come back in the chest wall or show up in distant organs, but I feel it's much less likely to do so now. I feel pretty confident that I've done everything I can, and that's given me more peace of mind. I miss my breasts but I've never regretted the decision.

    With your family history and a second tumor, I'd opt for bilateral mastectomy.

    --CindyMN

  • 2nd-time-around
    2nd-time-around Member Posts: 5
    edited April 2010

    Thanks so much for everyone's input.  This is helpful and I feel less alone.  I go this Thurs. for my second biopsy and check both breasts then the surgery decision is made.  It sure is nerve wracking with each procdure, isn't it?  I'm getting support but in the end, I guess, you just gotta go through it.  I'm resting and sleeping a lot and have a strong connection with my higher power so I'm feeling peaceful and accepting of it all. Though I still get anxious.  Thanks for all your feedback. 

  • chumfry
    chumfry Member Posts: 642
    edited April 2010

    I honestly think the most awful part of this journey is at the beginning, when you don't have a treatment plan in place. I'd always have way too many what-ifs running around in my brain. Once you get the info you need and make the decisions about your battle plan, you can just kind of march along through it. <grin> But that limbo situation at the beginning is the worst, IMHO.

    I don't know if you have an iPod, but having one really helped me through the process. I could listen to calming music or even angry music, if that's what I needed then. I've got one of those iPod Touch models now, so I can play games or read free e-books while I'm waiting for appts. And it plays music, too! LOL

    Getting plenty of sleep and trying to eat healthy foods will give you fuel to get through this rotten time. You might also ask your doctor about a presciption for Ativan. It's an anti-anxiety drug that just kind of turns everything down a notch. It can be habit-forming so you don't want to take it all the time, but I would take it to help me sleep if necessary or before a scary procedure.

    You've got every right to feel anxious. And you've got every right to take advantage of the drugs that have been created to help out with anxiety. This, too, shall pass. You'll reclaim your "normal" life eventually. But the ride's going to be bumpy the next few months!

    Let us know how things are going!

    --CindyMN

  • 2nd-time-around
    2nd-time-around Member Posts: 5
    edited April 2010

    Thanks, Cindy, I have all of the above: MP3 player and Ativan.  Yup, those drugs are good for reducing the anxiety, to be sure.  I got both the MP3 player and a new laptop on my first diagnosis and they are indispensible.  Now I just need that treatment plan.  I'm guessing I'll get that after this next biopsy; until then, I am resting and relaxing BIG TIME.  I'm sleeping well and just doing whatever I feel like and that's a good plan of action.  I've applied for disability ins. which has reduced worry. I was looking for work and fortunately you can collect even if looking so FYI, at least in Calif.  I'm also checking out Federal disability.  I also enjoy meditation and attending (and volunteering) at an awesome church near me, not a dogmatic one but very supportive.  So I'm doing as well as can be expected.  All the best to you.

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