Is it OK to request an additional follow up appt. with my onc?

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Laurie09
Laurie09 Member Posts: 313
edited June 2014 in Stage III Breast Cancer
Is it OK to request an additional follow up appt. with my onc?

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  • Laurie09
    Laurie09 Member Posts: 313
    edited April 2010

    This may be a silly question, but i'm wondering if anyone else has been in this situation...  I've finished my treatment and am on tamoxifen. 

    I had my last follow up with my oncologists office about 5-6 weeks ago and I had some questions ready for my onc, but when I got there, they had me see the nurse practitioner instead. The Nurse practitioner is very good and thorough and I trust her very much.  She did her best to answer my questions for me and even went out to ask my onc a couple of my questions. 

    My problem is that I'm still a bit unresolved about a couple of things, and I wish I could just talk with my oncologist directly even for just 15 minutes.  I called the office back to get my questions answered, but when I call, the nurse asks the Dr. or NP and then relays the answer.  So, consequently, I feel like I keep asking the same questions, and they're trying to answer them for me,  but I keep getting mixed messages and still haven't really gotten a direct answer.  I'm starting to feel like a pest.  My next scheduled follow up isn't for 6 months. 

    I love my Onc and her NP - they've been incredibly good to me.  I was wondering, if I called and requested another follow up with my oncologist in the next couple of weeks, will they let me do that?  Has anyone had to do this before? 

  • Hattie
    Hattie Member Posts: 414
    edited April 2010

    If you want that, ask for it, and you should get it.  you are your own best advocate--good job taking care of yourself.

    Take care,

    --Hattie 

  • Faith316
    Faith316 Member Posts: 2,431
    edited April 2010

    Of course you can.  That is what they are there for.  Call and make an appointment and get your list ready.

  • nowords
    nowords Member Posts: 423
    edited April 2010

    I have the same problem and thought about sending a letter with my questions to my oncologist and asking her to call me or write back...she was better about calling me during active treatment...

  • weesa
    weesa Member Posts: 707
    edited April 2010

    Sometimes I fax my questions to my onc, and he replies when he has time. This seems better than the conveying messages over the phone to a second person sort of thing.

    By the way, tho, I have found the collective wisdom here to be phenomenal. Just about any question I have I can find answers for here.

    Unanswered questions can certainly eat at you!

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2010

    when you call to make the appt, specify that you want the appt with the onc, that on your last visit you saw the NP and she was great, but that you have some concerns that need to be addressed by the onc.....

  • kuchagirl
    kuchagirl Member Posts: 66
    edited April 2010

    I was in a similar situation, and I made an appointment with the onc who I saw for a 2nd opinion.  I just wanted to talk about tamoxifen vs. aromatase inhibitors.  I know that, for oncs, this isn't rocket science, but for me I had a lot of competing impulses that were saying "yes" to this and "no" to that.  This 2nd opinion onc, who is lovely and answered all my questions, suggested to me that I was there because of cancer anxiety. That felt dismissive of my concerns, but probably contained some truth.

    When I saw my regular ongoing onc, and I said that I am afraid of aromatase inhibitors (due to existant scoliosis and osteopenia), she seemed brittle and offended when she found out that I saw another onc, but when I told her that also I read the internet, she dismissed the internet.  But I only get 10 minutes with her every 6 months. 

    It's hard to know when is an appropriate time to ask basic questions to a qualified medical professional.  I find it confusing when they put down the internet, and yet they also find my questions pendantic.  I'm making it sound more uncomfortable than it was, and I am glad that I sought out the second doc, so that I could use the entire visit to pepper her with questions.  I still haven't decided about the aromatase inhibitors, but I probably will give them a try. I haven't really felt so undecided about any aspect of my cancer treatment until I hit this point (but that's another whole topic).

    This site is great and helps me a lot.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited April 2010

    My Onc has told me that I can see her any time I want. I would call and specifically ask for a time when your Onc will be available.

  • Laurie09
    Laurie09 Member Posts: 313
    edited April 2010

    Thanks guys.  I have my exchange surgery next week (yay) and I think I'll call the following week to set something up. 

    I felt like I was being a bit neurotic because I keep asking the same question and i feel like I SHOULD understand.  I'm 95% sure I know the answer, but i've gotten some mixed messages and would feel better talking to my onc about it. 

    Thanks for the input, I feel better about calling. 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited April 2010

    Laurie, I would write down exactly what it is you are wanting to ask, and really don't leave until you are satisfied in your own head that you have been answered. Good luck!

  • Laurie09
    Laurie09 Member Posts: 313
    edited April 2010
    Thank you, Kerry.  Smile
  • pip57
    pip57 Member Posts: 12,401
    edited April 2010

    I didn't  even realize that some people don't actually see the onc at their app't.  I would expect that scheduling a specific app't to speak directly to your doc should not be an issue.  If it is, I would find another doctor!

  • idaho
    idaho Member Posts: 1,187
    edited April 2010

    YOU are the boss... not your oncologist.  YOU are paying him...  you most certainly have the right to get answers to your questions.....  If breast cancer has taught me nothing else it is that nobody but me is going to stick up for me.... Wishing you peace and health.   Tami

  • Laurie09
    Laurie09 Member Posts: 313
    edited April 2010

    PIP, I think some people always see their oncologist.  Some oncologists have NP's that help to handle the quick follow ups and medication changes.  I don't mind seeing the NP for some of the appointments.  In some ways she is more thorough than my onc - she actually spends more time discussing the fine details of side effects, etc. and is very thorough and conscientious. 

    However, this is a treatment question that I need my onc to answer for me. 

    Tami, thanks, I know you're right.... I'm trying to learn that lesson myself - I have to speak up for myself and if I have an issue, it's up to me to get the answers I need. 

  • Gabrielle
    Gabrielle Member Posts: 73
    edited April 2010

    This just irritates the heck out of me.  It's like requesting an audience with the pope, isn't it?  Would it kill an Onc to give you 5 mins of time? 

    You've got to be prepared to walk -- that's what I did.  I dropped my first Onc after the first 8 rounds of treatment due to his condescending manner.  I found a great woman Onc afterward. 

    Best of luck,

    Gabrielle  

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