Crying too much to hold still for radiation
Does anyone have ideas for how to handle this?
I've been a complete emotional wreck lately, due to many stressful things going on in my life, not all cancer-related. But I'm in the middle of radiation - 10 treatments down, 23 to go - and today I had a meltdown and cried my whole way through it. It's actually the 3rd time I've cried during radiation, and I'm worried, because what if I'm crying too much to even be able to hold still/stay in the correct position?? That would screw it all up! Radiation wouldn't even be possible then! But I just don't know how to get my emotions under control right now. I'll be starting therapy soon, but therapy takes TIME - and I don't have time. Radiation is every day. I have to somehow have my emotions under control at 2 pm every day for 23 more days, but it's so hard to "schedule" my emotional state like that. And it's not like I have the option of taking a break from rads for a few weeks or months until I can regain emotional stability. I don't want to talk to the rad onc about this, because he himself is one of my stressors - I really can't stand him.
Comments
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Can you speak to your pcp? Onc? To me, it sounds like an antidepressant is in order for you. And, there is no shame in that. Many, many women take them to get through whatever they are going through....be it treatment or whatever "chit" is coming down the pike. As far as getting yourself under control at a certain time of day...well, good luck with that. The simple fact that we are female makes that an impossible task! :-) Sorry you don't like your rads dr., I have no words of wisdom there, but someone else who has walked this walk will be able to direct you towards the path you need to go.
Until then, I've got you comfortably held in my thoughts, and hope tomorrow or even this evening is much better for you.
Jennifer -
Railli,
I am so sorry you are going through this. Undergoing treatment can be very hard on one emotionally, though everyone's experience is unique.
I personally found rads fairly easy, but I did go through a period of frequent 'crying jags' about 2/3 of the way through it...I attributed it to the 'other stressors' in my life at the time (the very recent death of my mother, for one) Later I learned from the woman I was seeing as a counselor at the cancer center that depression and feeling emotional can be a common side effect from the radiation. I understand when you say 'therapy takes time', but found talking to a therapist during this period extremely helpful. It gave me a safe place to let all my emotions out with a sympathetic ear and shoulder to cry on, without feeling I was burdening friends or family. Crying and feeling emotional during treatment is normal and common, and my therapist confirmed this for me. Somehow that made it easier to tolerate and accept. I was also very lucky in that my rad onc was as interested in my emotional state as in what physical changes my breast was going through. She never dismissed any of my concerns and I'm sorry your onc isn't offering that level of support. Remember you can always come to us for support or to let your feelings out.
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can you take something to calm your nerves before going? Thinking of you and sending best!
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One thing about radiation is that there is nothing else you can do at the same time - so you think - and sometimes that thinking makes a person sad enough to cry. There are lots of cruddy things just with having breast cancer and all of us have lives with complications at the same time.
The thing I would suggest, if at all possible, is to close your eyes once you are in place and think - but about something you like. It's a form of visualization. I sometimes thought about an excellent mountain view with a lake in front of it and sometimes put special people or activities in the scene. By the time you get the picture in your head and make it how you want it - the radiation is over. No doubt you have something different that you like that you'd want to visualize - but make it something you like or would like if you could only have it or do it. Another one for me was to "see" the travel van I'd like to have and how it would be set up. Sometimes the travel van was at the mountain scene.
If thoughts of disturbing things in my life entered my head (and I'm no Pollyanna, there have been other not so lovely things), I mentally erased that picture and brought in something much more pleasant. It can be helpful to plan ahead of time what sort of mental scene you'd like to paint while you are having radiation - because you are quite right, it is a good thing to stay still during radiation so the radiation is precise.
Hope that's a little bit useful til you get to counselling.
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Hi, Raili ~ Sorry you're having such a hard time with RT. I'm wondering if one of those guided imagery CDs would help you? I used ones for both surgery and chemo, and they helped me a lot by reframing some of my deep fears into much more positive thoughts. The ones I used were from www.healthjourneys.com. I haven't looked to see if they have one for rads, but they must. Both of mine were by BellaRuth Naperstek. You can download them directly to an MP3 player, and they used to have short clips you could listen to, to see if you like them.
The other thing some of us in our January 09 rads group did was play mental games while we were on the table, letting our minds take us to a favorite place -- the beach, Paris, wherever you would love to be. And someone else gave us the idea to name things we were thankful for by color -- blue things one day, yellow another. Anything to distract your mind! Deanna
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All above are great suggestions. I closed my eyes and pretended I was back being a camp counselor (which I did for 4 summers when I was young), and lying on the dock, and would think, "I wonder what we are doing for activities tonight?", "What songs shall we sing at the campfire?" etc. when the machine came over, I would pretend it was a cloud momentarily blocking out the sun. I didn't think of this until I was done, but I wonder if they'd let you bring music in with you, a CD player you could turn on and play music you like or would find soothing.??? Best of luck. Ruth
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Hi Raili - radiation can be difficult because you don't have the physical sensation of having something done like chemo where you actually have the IV, etc. My rad techs had a CD player in the room with an assortment of music that I could pick from. I focused on the different songs and usually the tx only took about 1 1/2 songs. I could have brought my own music in, too. The techs have seen everything and they should give you a few moments to try to compose yourself.
I had trouble sleeping during chemo and med onc prescribed Ativan. It worked wonders. By the time rads came around, I didn't need as much, but it still helped in those situations.
Also, know that you can come here any time and vent, whine, anything and we will help you through it. You are doing great and you are 1/3 of the way done. Those first few treatments seemed overwhelming from the standpoint of how many more were left. But day by day, I got through them. It helped me to mark days off of the calendar and the days clicked by.
Do you have some times during the day when you feel more "stable" or less emotional? Would it help to check and see if you can change your appointment time?
I hope some of these ideas help. Let us know what else we can do to help.
Hugs - Julie
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LORAZEPAM! An antianxiety med would help you alot. Ask your doctor or the rad onc. Get a rx and start taking them NOW! They helped me alot. It just takes the edge off, doesn't make you loopy. Best of luck, you will get through this!
XOXO
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I agree with Linda it does take the edge off and I only take it when I am stressed. Sorry you are going through this you are really newly diagnosed and it takes some time for it all to sink in, don't be so hard on yourself....
Sandy
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I agree, get a scrip for an anti-anxiety medication. They work quickly and will help you get through this. The antidepressant's take a while to kick in so you need something like xanax to get you thorugh until they do start to help.
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I had a hard time with rads too. I would cry and have panic attacks on that cold steel table. I would panic when the machine was so close to my face. The only relief I could find was to count the seconds it was there and try to breathe.
May I make a suggestion ... can you reschedule your rads for early in the morning? That way you won't have all day to think about it. My appts were early and that helped me a lot.
Sending hugs,
Bren
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I had a really hard time during treatment, and it didn't help that my mother (who I was taking care of, who also had cancer & dementia) died in the middle of rad... I cried a lot! Fortunately every single person, from the receptionist to the rad. oncologist, was kind and empathic and supportive. Helped a ton. So did a therapist, an anti-depressant, and Ativan when anxiety grabbed hold. Some antidepressants take a few weeks to work, but Ativan works really fast, so it was a good boost when I needed it.
You've gotten a lot of really good suggestions. The only thing I'd add is if you can, to find a safe place and time of day and just let your emotions go... cry, pound on pillows, scream, whatever will help you. Sometimes we hold that stuff back enough that when we finally let go, it's really cathartic and helps "clear" things out for a few days.
Most of all, be gentle with yourself.
Best of luck and a warm hug.
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By now your finished the treatments and are doing fine. It was good for me to read this thread though. I've just been dx and I'm totally out of my mind with panic attacks. I can't even function.
Cant get to my dr. booked up till after my surgery, so am white knuckling it. I am allowed 1 xanax going to bed, want one for daytime though and don't want to use up my supply unless I can get more. The anxiety, stress and panic attacks have crippled me completely.
And my surgery is next week and treatments after that. I have a long way to go and am already going nuts. I can see that our lives will never be the same again ever.
Marg
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Marg ~ As difficult as it is to believe it now, your life will be fine after you're finished with your treatment. It sounds like you are very recently dx'd, and, yes, it's a long haul -- maybe as much as a year or more, depending on the tx you need. But it does end, and your scars lessen and your hair grows back (if you've had chemo), and rads come to an end, if you have to have those, and eventually you're living your life again. Breast cancer does change you, but from someone who's been through it in the past 2 years, as hard as it is to understand now, there can be hidden blessings in this journey, like learning to put yourself first, and realizing how much people really love you. I'm so sorry you're going through this; I wouldn't wish it on anyone. But trust me -- you are much stronger than you realize, and there is light at the end of the tunnel. Deanna
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