80 years old......????
Ok, I know..... We are all happy if we pass 2 or 4 or even 7 years NED.
But,,,, I was just wandering if you think, if you believe, or better, if you know about people who actually lived healthy lives more than 20 or even 30 years after diagnosis.
Thanks
Carol
Comments
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My grandmother was diagnosed in her early 60s and lived her life to 93:)
catherine:)
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Hi
My mother-in-law was dx at 32, had a radical mastectomy and three weeks in the 'radium institute'. She is 86 now! It had spead to her nodes too.
Take heart.
Mal
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I have a friend who was dx when her son was 3 months old. She had a mast and "cobalt treatment" (early type of rads I think). Her son is 32 now and she was the proudest mama when I saw her recently at his engagement party.
She also had 2 more children after that and she breastfed them on the remaining side.
Leah
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My next door neighbour when I was growing up was dx when I was about 8 or 10 (so in the mid 70's) She only had a Mx. She's still alive, must easily be in her 70's now.
My mother was playing golf the other day with a woman she didn't know (and who didn't know about my Dx) She was telling my Mum about her own mother, who was in her 90's, they had just had to put her in a rest home. She was saying "she's a tough old bird, she had had BC twice, once in her 30's, once in her 40's"
The woman across the road from me, who is in her 80's, has a friend who was Dx over 40 years ago, when her kids were small. She had a Mx only, and is still going strong. My neighbour never knew until recently that she had even had cancer.
A women who has kids in the same classes as mine - her friends mother was dx 20 years ago, never had a problem since.
So, these are just a few I know about. I have no idea of their Stages, but as far as I know, all only had Surgery as their treatment.
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some one I used to work with, her mother was Dx in 1956 and had a radical Mx...we've lost touch but I know her mother made it to atleast 51 or 52 years past Dx....she was herself a survivor of over 20 years.....I haven't seen her for over 1 1/2 years.. at the Komen RFTC, they give out ribbons to put on your hat to denote how many years, and the first year we went, my hubby and I saw a few elderly women who were 20 and 30 year survivors....gave us such hope....so may we all be shrivelled up old ladies walking everyday!!!
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It is so hard to know since a lot of women dx 20-30 years ago would not even know what kind of bc they had let alone the stage of it. When I ask some of them they just say they never asked and were never told.
On that note, my mom was dx in 93 with DCIS and is now 82 and doing well.
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My neighbor had a mastectomy over 30 years ago. She was one of the first on tamoxifen. The real stuff made from the bark of yew trees. She was on it six months and has not had a recurrence. She is close to 80 now.
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My mother's cancer came back after 7 years; however my aunt had it when she was 40. She had a mastectomy on one side. It never came back, and she is now 76.
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Mamita, there's a BIG difference between the 30-year survivors alive today and us. They really had what would seem like crude treatment. Even the mastectomies tended to be severe, often taking the muscle as well as the breast tissue. Radiation wasn't as targeted, so there was a lot of scatter to other internal organs. I believe that that caused a lot of collateral damage that eventually caused their deaths...not breast cancer. (I believe that happened to my mother.)
It's hard to compare their stats with those of us today receiving much more targeted care. I know there will be a much larger percentage of 30 year survivors amongst the women we see here on this board, and across the world, who are receiving or have received treatment since then.
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I hope so Nancy........
Well, those ladies out over 20-30 years, probably had stage 0 or 1. I know a few of them, but never met a woman with stage 3 so long out.
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I met a women who was 19 years out from stage 3. She did have a reoccurence and is now stage 4 but even with stage 4 she has been alive 9 years. So 10 with stage 3 and 9 with stage 4.
Anyway- if we even go 10 years the landscape of this disease will be different. Each year more and more treatments come out. But if you go to the inspiring stories section there are a lot of women who are many years out. I will take every year I am blessed with.
Actually there is women who just recently on here-she emailed me-she was prego when diagnosed an dhad 22 out of 23 nodes. It has been 21 years for her.
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Actually, I am not really even sure that 20-30 years ago there would have been many women Dx at Stage 0 or 1.
There was no such thing as early detection then, no screening. Most lumps were probably found when they were already larger. More women of all Stages (1-111) are cured than not.
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Thanks to all of you for your inspiring stories. I plan to be around for a long time. I am now almost two years out, but I am aiming for at least 20. I just have to keep getting on the "right" lines. LOL
I do know one thing for sure now, since diagnosis, and that is that yes I am going to die. It was an abstract thought until dx and then it became very real. And yes, every little pain I notice (and now I do notice everything) makes me take pause,but I get over it. I have to, because today, just for today, I am living, not dying.
Caren
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I ran into a friend the other day whom I haven't seen since diagnosis. Her friend - same age as her - was diagnosed at age 27 with stage 3 and is fine today. I don't know her exact age, but she's at least 50.
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My aunt was diagnosed with BC in the early 1960's and had a radical masectomy, the only treatment offered her at the time. She just died several years ago at the age of 87 after a full and happy life. I am thinking that back then, nobody was stage 0-1 when their cancers were found, because the only way they would have been detected was by a large lump or some other obvious problem.
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My MIL took care of a lady years ago that was 90 and had BC when she was very young. She had a mastectomy and nothing more, I agree with everyone else it had to be large enough to feel. They didn't have early detection and I don't think they staged it or told anyone about different types of BC. I know another lady from where I used to work that is 19 years out, she doesn't know what kind or what stage. They told her you will die or you will live, shes still here and doing very well.
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My mother was 58 years of age at the time of diagnosis - invasive breast cancer in both breasts. She died at the age of 80 of an unrelated illness.
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My husband's aunt was diagnosed at 55 years old, had a radical mast. as her only treatment. She is alive now at 85 years old.
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My mother was dx in 1962 and will be 97 in April. She had radical bi lat mx, nothing else. no rads or chemo. They stopped counting at 14 lumps and she says they asked if they could take pictures - not sure if that was before or during the surgery. I was 16 at the time and remember her showing me the scars - like a letter Y on her chest, stomach. And I remember the scars went over her armpits and onto her under arms. There was no staging, grade or anything except "cancer" at that time.
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When I was first Dx I was doing random crazy-girl Google searches and I came across a posting on a different forum that this - a woman saying when she was 22 she was dx with BC, had 6+ nodes, had a Mx, and was told she had two years to live. She was now 42.
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My Mom has survived 21 years. She was waiting for her surgery when a lady asked her, "What stage are you?" My mom didn't even know about stage so she asked her doctor. Her doctor said "when you sit in the waiting room don't talk to anyone about your bc." So my mom new nothing.
Me and my mom have the same gene mutation and here is what I have available to me in treatment that she never did or knew about. She actually didn't know her er status and looking at her path report I couldn't find it either.
-oomph
-tamoxfin metab test
-AILS
-Dose Dense Chemo
-Taxol
-Zometa
-Aspirin
-power of exercise
-Targeted Radiation
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My Aunt had radical bilat mx over 30 years ago....I guess back then there was no biopsy, they just took everything off....Apparentely, they did not even tell her she had total mx until she woke up from surgery...The docs made all the decisions.....Sometimes I wonder if that would be easier than having so many decisions thrown at us in the early days of dx, I know my docs would not take that on....My Aunt is alive and well, but I think she was always bitter about the radicalness of it all....
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My mom had her first BC 30 years ago. All they did was remove a lump and had it biopsied. Positive for BC but no other tx. I find it amazing, now that we know she is BRCA 2+ that she had no more BC until this last May. That was stage 1 and she had a lumpectomy and rads. Interestingly, she had a hysterectomy not long after the first dx due to something (fibroids?? I don't remember). Did that reduce her risk?? The sad part is that she now feels very guilty that she has been able to survive cancer but lost her daughter to it. I do what I can to help alleviate the guilt. The hardest thing I have ever done was to tell her that her remaining daughter was dx'ed with stage 3 BC. But her immediate response was, OK - what do we need to do to get you through treatment? Having her help me through this has been wonderful. And I think it's been good for her to know that she is helping me.
BTW - she turned 81 last May.
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My cousin's MIL wasn't diagnosed until her breast was the "color, texture and hardness" of an orange. She doesn't know the stage or stats (probably never knew) but I remember how her wonderful gnarled old fingers rapped against the picnic table when she described the hardness of her breast. Had to be pretty bad, I think. She had a single mast and a year's worth of chemo and she's here-- going on 35 years. She does have heart trouble but never worries about breast cancer or even thinks of it anymore. She's in her 80s, living alone with her sweet little dog in a little house at the beach.
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thanks ladies.....
Needed a bit of up-lifting.
I have difficulties sometimes with the survivor thing, makes the ones who died before look like loosers. I hate that. I also needed to hear that women with nodes+ can actually live more then just a few years.
Does it sounds silly if I say, I am actually planning to be here for a damm long time, any one with me ?????
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Carol,
I'm planning on rocking my great grandbabies. Love these stories!
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I am going to take my (yet to be conceived) grandchildren to Disney World; and be the cool gramma who goes on all the rides, to the waterparks etc. with them
. Can't wait! Ruth
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I'm with you! I have a three-year old daughter and a crapload of dreams I plan to realize...HAVE FAITH ladies. My mother is a 12-year ovarian cancer survivor who was initially given 6 months to live. I believe anything is possible...
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ruthbru,
I have the same wish than you, and somehow, I am saying, THATS IT, you are going to take your
( not yet conceived either !!) grandchildren, and I WILL.
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The only problem I foresee is getting those grandchildren conceived in the first place
! If our kids won't cooperate, you and I will have to meet up and do Disney ourselves!!!!!
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