Depression 1 month after mastectomy

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  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Greysean,

    You are in the right place!! I am almost at seven weeks with a single MX and still have days that are not so good!  

    This board and these ladies are the best ever! I promise we are here for you, all the time.  I think for me personally it took awhile for it to hit.  I know Ladyod said her visit to the oncologist made it feel very real. So when it hits it is scary.   It is okay to be scared, we all are....

    I have been told it gets better.  I think you have to be happy not to have to take any drugs, that is something positive because taking additional drugs could have aggravated your pain and fatigue. 

    I hope you will share here with us because it is helpful and I know it has helped me tremendously to know others "get it"!!  

    If you want to talk send me a private message, I will be glad to talk! If not hugs to you!!!

    Fondly,

    Olivia 

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    Greysean:  Your and my story are very similar except the LCIS.  I felt the same way when I went to the oncologist:  I didn't want to be there, I didn't want to be a person who had cancer, and it WAS really scary.  I received the same news as you did:  no further treatment, no tamoxifen because the risk outweighed the benefit.  He told me he doubted it would ever come back again...still I bawled from the moment I went in the room.  Heck, I cried when the insurance lady came out to get my copay before I went in the room!  So I think it is absolutely normal for you to have this reaction and trust me when I tell you it does get better.  You are exactly where I was two weeks ago, but I am feeling so much better and getting stronger every day!  Time has a way of healing and you will start feeling better about your diagnosis and prognosis. 

    As for being on the right forum:  ABSOLUTELY!  It helps a lot to talk about this with others who have been there and we really do care!  So anytime you need to get something off your chest, you can:  we are here for you---you are not alone!  And as Olivia said, you can always pm if you'd rather!

    Praying for peace of mind for you!

    Tammy

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Greysean,

    How are you doing today???

    Olivia 

  • Stanzie
    Stanzie Member Posts: 1,971
    edited March 2010

    You all are all so nice I don't feel like I deserve it. I know some many of you are going through so much I feel awful for even posting my feelings. Thank you so much for such kindness. I so wish no one had to have this awful disease. It does make me feel better I haven't lost my mind. Thank you again.

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Greysean,

    Please do not minimize what you are going through and what you have been through! It is a lot and no matter what you have had to lose a part of your body over it.  This is not a simple disease and I think there are so many times we forget the toll it takes on us emotionally!!  

    The only good thing is we are all have normal reactions to a very traumatic experience and nobody can deny this has been tough and is serious!!  You do deserve it and more!!!   I think the best thing about this discussion board is we all want each other to be okay and we all want each other to know that it is safe to vent, cry, laugh and understand!! It should be a soft spot for you to land. It has been for me and I hope you will find the same comfort.  

    Cyber Hug -- gently of course!! I know it still hurts!!

    Olivia 

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    We got up early went to church and thought we would eat breakfast out. But a quick change, my brother is visiting and staying with my parents. So we knew we had to make sure he got to where he needed to be on time.  Got him there but now it is just down hill! This is a roller coaster!!!  It is too  much for me to get everyone together to spend time - I just do not have the strength to do it! I used to be able to get it all organized but right now I am just can't!! I hope this is a passing phase because it is not like me.  I passed on going to breakfast and just came home crawled in bed because it is too much!!

    UGH I hate this feeling!!

    Olivia 

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    Sweet Olivia:  You have enough on your plate to deal with!  I think you put too many demands on yourself!  Don't feel bad about letting other people help out.  And if they don't or won't, well then things just aren't going to get done.  Period.  Think about what you would tell someone else in your situation:  would you think they should have to organize and take care of everyone else or would you tell them to take care of themselves first and not worry what others think?  I know what you would tell them because you are so kind and caring....now look in the mirror and tell yourself that same thing, and be just as kind and caring to yourself!  You are so special Olivia!  Don't forget that! And please, be gentle on yourself!  You are worth it!!!      Tammy

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    And Olivia, remember,too - you just had MAJOR surgery....your body is still recovering.  All of that takes a toll on your physically, even if you don't consider all the emotionaly aspect of it all.  And Tammy is SO right - you would be telling one of us to take it easy, not be so hard on ourselves, etc - do the same to yourself :)

    And Greysean - welcome :)   As Tammy and Olivia have said, we have all been in your shoes ,,,all of us within the past couple of months.  I, too, had rough days - I still cry every once in a while, but not like I did.  I didn't have reconstruction (had a BMX), and sometimes when I look in the mirror, I can't help but stare at my poor chest.  Othertimes (when I'm dressed), I totally forget about it now. 

    It felt horrible being in an oncologist's office.  I've been there 3x now.  The 1st time was awful.  Like Tammy, I cried.  I'm under no further treatment, although my oncologist recommended I go through the survivors' program.  It's still with the cancer group, but with a different oncologist, and it's more preventative.  My oncologist is with her patients undergoing active treatment.  The new oncologist I will see will make sure I get yearly screenings and such.  I feel MUCH better about this.  Kind of feels like a security blanket....my net or something.  At least I'm not being turned out to the wild dogs, you know?

    Anyway, spill your guts...I know I did.  I was on a thread (on here) for those of us who had mastectomies in January, and that was really good because we were all going through so many of the same feelings -both physically and emotionally- at the same time.  I don't know if your surgery was the end of Feb. or first of March, but you might also search under the surgery forum and look for the mastectomy group under Feb. 2010 or March 2010 (depending upon when you had your surgery)......They will be another great source of support. 

    Since Tammy, Olivia, Jennifer, and I are all at different stages - we all are here to stand by you, help you, listen to you, and do whatever we can as well....we've been brought together by this horrible disease, whether we like it or not, so we might as well make it the best we can :)

    blessings....robin

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Thank you all!! I did end up organizing the dinner for my parents, my brother, my niece and nephew (who had an attitude and would not pitch in to help get it together and yes, my brother, her father is the one in town).  She had made reservations for brunch but I learned yesterday my brother was busy so it did not make sense. Of course, she did not care because she had spent time with him yesterday and last night.  She missed the whole point. My dad likes it and looks forward to everyone being together. It is what gives him his greatest pleasure - I have told her that on many occasions but somehow she forgets and gets wrapped up in herself - UGH!

    My kind husband has to do all the driving to make sure my 84 year old parents can go tonight. He insisted I stay home. He said, he just did not think it was worth the stress after how selfish they all acted earlier today. He said, stay home, watch a movie, talk to a friend but do not go tonight.

    I just can not explain the roller coaster. I am hoping it is just the stress of another biopsy and the possibility of more decisions.

    Olivia 

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    Olivia: You go girl!  That hubby of yours is not only sweet and handsome (saw your comment on FBSmile), but very wise too!  That was very nice of you to take care of that for your family:  I can tell you are a wonderful person and you are most likely the hub of your family wheel that keeps everyone together.  I think every family has one of those....both my step sisters and my half siblings have one special person who is always there making sure we all stay connected.  Your family is very luck to have you in their lives!

    As far as the emotions go, don't worry, we are all on this roller coaster with you!  And we won't get off, until the ride has come to a stop :)  We are here for you as you are going through this again...praying for wonderful results! 

    Have a great work week Robin and Olivia!  Jennifer and Greysean:  rest up and take it slow!   Everything is going to be alright, just maybe not as quick as you would like!  Emotions have a way of popping up unexpectantly....this morning in church, I started crying uncontrollably.  Part of it was because it is Palm Sunday and as a Christian, the story of Jesus being taken to the cross just makes me so sad.  But I know that also it was because I am still a little sensitive and still have some emotional healing to do.  Either way, I sure got some strange looks at church! LOL!  And I think my 12 yo son wanted to crawl under the pew and hide!  Ha! Ha! 

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Don;t you just wish you could hold up  a sign that says, "I am trying to get over cancer" and so excuse me if I am a bit angry, upset. crying or just plain look tired"  

    I think the emotional is the hardest part, at least it is for me. I am doing okay with what I have to do for medication and follow up. Just the emotions that catch me off guard.   

    I started taking a huge does of Vitamin D yesterday, 50,000 mg per day. It seems like a lot. It made me feel weird today and have lost my appetite.

    I hope everyone has a good Monday -- I am sure I will be checking in all week.

    Olivia 

  • Stanzie
    Stanzie Member Posts: 1,971
    edited March 2010

    Robin,

      I never thought about any survivor's group because I know I wouldn't feel comfortable if so many had to go through so much worse. Also I guess I'm not very good about speaking in a group. I have a child with special needs and I tried a special needs parent group and it just made me feel worse even though it was an opposite situation as their kids were doing so much better and I felt like anytime I said anything it made them all feel bad for me. I know this probably doesn't make sense. I think this site with the different forums are wonderful as it isn't as hard to say something.

     It is nice to know my emotions are not crazy or out of line. I thank all of you and I will read some of the posts from the Jan. and Feb. posts as they will be further along, that is a great idea. Thank you. 

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Greysean, I guess I didn't explain the survivor's thing very well...it's not a support group.  It's actually another oncologist, within the same cancer group.  I will be seen annually for blood work, check ups, etc.  Preventative for cancer(s).  It's my security blanket, my safety net. Since my oncologist doesn't need to see me for any reason, whatsoever - that leaves me with a very shakey feeling, you know?  I know that my BC was "just" DCIS....and that because it was caught early, before it was invasive, there was no chance of it going mets, BUT, because so much cancer runs rampant (sp?) in my family, the oncologist thought this would be good for me.

    So, I will actually see an oncologist (within the same group)....I'm not exactly what all it involves, as my 1st appt isn't for another week or so.  But I know I will be monitored carefully.  And that gives me a real comfort.

    I DO understand the support group thing.  I have hesitated to go to one, because I know I would be one of the "better" ones....however, I did go to a BC survivor fashion show a couple of weeks ago, and it was kind of neat....I almost felt PROUD to be able to say I was a breast cancer survivor.

    I met a gal from my city on the January mastectomy group...we went to the fashion show together and we are going to a BC survivor's retreat together in June.  I may not have been through chemo or radiation, but I did lose both of my breasts to cancer.  My emotions have been toyed with, messed with, messed over.  My body has been mutilated, marred, scarred.  I need to be able to meet with other women who have been through less, who have been through the same, who have been through more.....I think I'm ready for that. 

    Each day, I'm a little stronger.  YOU will get there, too......Remember, give yourself a break.  It's only been a matter of a few weeks for you.  My BMX was Jan., 6.....which now seems like a lifetime ago....ha!

    blessings..robin

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Greysean, I guess I didn't explain the survivor's thing very well...it's not a support group.  It's actually another oncologist, within the same cancer group.  I will be seen annually for blood work, check ups, etc.  Preventative for cancer(s).  It's my security blanket, my safety net. Since my oncologist doesn't need to see me for any reason, whatsoever - that leaves me with a very shakey feeling, you know?  I know that my BC was "just" DCIS....and that because it was caught early, before it was invasive, there was no chance of it going mets, BUT, because so much cancer runs rampant (sp?) in my family, the oncologist thought this would be good for me.

    So, I will actually see an oncologist (within the same group)....I'm not exactly what all it involves, as my 1st appt isn't for another week or so.  But I know I will be monitored carefully.  And that gives me a real comfort.

    I DO understand the support group thing.  I have hesitated to go to one, because I know I would be one of the "better" ones....however, I did go to a BC survivor fashion show a couple of weeks ago, and it was kind of neat....I almost felt PROUD to be able to say I was a breast cancer survivor.

    I met a gal from my city on the January mastectomy group...we went to the fashion show together and we are going to a BC survivor's retreat together in June.  I may not have been through chemo or radiation, but I did lose both of my breasts to cancer.  My emotions have been toyed with, messed with, messed over.  My body has been mutilated, marred, scarred.  I need to be able to meet with other women who have been through less, who have been through the same, who have been through more.....I think I'm ready for that. 

    Each day, I'm a little stronger.  YOU will get there, too......Remember, give yourself a break.  It's only been a matter of a few weeks for you.  My BMX was Jan., 6.....which now seems like a lifetime ago....ha!

    blessings..robin

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Tammy, Don't you just LOVE your 12 y.o. son???  Seriously, I KNOW we do....but arent' they just a scream??  My youngest is 12, too....so much different than when my oldest was that age, though.....

    You know, when I got my drain tubes out and saw the holes in my side, I immediately thought of Jesus and the swords being put through His sides.  As I saw my body fluids pouring out of my holes, I thought of his coming through His.  I asked my BS how the drain tubes were put in me, and how they were able to get out of me....he explained how the end was a spear that poked out from the inside.  WOW.  Glad I couldn't feel it.  Can't imagine what Jesus must have felt with the spear....

     I look at my four drain hold scars on my sides, and often think of Jesus' scars.....

    Anyway.....your emotions will get stronger.  You're several weeks behind me yet, and I can tell such a difference in me in the past three weeks.  I'm just amazed.  But if I start talking about prosthetics, or have to look at one (I did at a vendor's booth 1.5 wks ago), I start crying....So, I still am going totally FLAT!!!!  

    Have a great week, Dr. Tammy :)

    blessings..robin

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Olivia....I'm so proud of you, and that wonderful husband of yours!!!  He really "gets" you.....what a jewel of a man and husband (sounds like my husband!!)  And of course your emotions are on edge and are raw....duh!  You're going through new and more stuff AGAIN....bless your heart.

    The emotional roller coaster is the WORST.....but it's better for me now.  I really think it is....except for that prosthetics thing I wrote to Tammy about....other than that, I'm doing so much better.  Of course, I realize it's different for all of us - but time is a great healer, but when there are setbacks, that starts the roller coaster ride all over again :(

    Be kind to yourself....allow yourself to grieve and continue to do so.  If you journal and write, put all of this into writing.  I know that helped me a lot.  If you don't believe me, check out my notes on my FB and you can see all the writing I did and how I spilled my guts. 

    IN the meantime, you are in my thoughts and prayers....blessings,,,robin

  • BulldogluvrBeck
    BulldogluvrBeck Member Posts: 41
    edited March 2010

    Robin, I love reading your posts. So encouraging. I did not make it to church this morning but your written images of the wounds of Jesus meant so much to me. By His stripes we are healed. Good days, bad days but everyday through His grace. 

    Olivia,  we are all strong, independent, loving moms, center of the home and taking care of everyone and everything. Whew.... we need to give ourselves a break! So hard to do!! We are no used to it!

    I went to the mall with my daughter today for 3 hours, her birthday is tomorrow and my gift to her was shopping for shoes and clothes. We had a wonderful time but I am now in my recliner!

    Hang in there everyone, take some deep breaths, pat yourself on the back and carry on!

    beck 

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    Robin:  Yes, often when I was at my lowest points, I would remind myself what Jesus went through for me and for all of us...how brave he was!  I felt His presence throughout my healing and continue to feel him there for me, and when I get down, I just pull out the Bible and start reading!  I actually cry every Palm Sunday, but this time its was different.  I feel so connected spiritually right now to God and Jesus and the Holy Spirit...I hope that I can grow this feeling and not let it slip away as I become more confident in my diagnosis!  I am sorry that you get upset when you think about prosthetics:  you are so outgoing and confident and sweet...I think everyone can see how beautiful you are with or without breasts!   Have a great week!

    Beck:  I went to an 8 hour conference 3 weeks after my surgery----I figured what was the difference between sitting in a conference hall versus my living room, right?  The most enjoyable moment was that night as I snuggled up with my cozy throw, on my comfortable recliner, in my home, sweet, home.  The difference was inevitably clear!  LOL!  Good Luck in your recovery!!!

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Well guess what some of the side effects of the mega Vitamin D are.... loss of appetite, mood swings, increased thirst, headaches, muscle pain -- oh and guess who has all these??? Yep you guessed it me!! I just can not get a break.  I have been on the verge of tears all day... could not figure it out until I got home and my husband (AKA Kevin) said, let's read the side effects.  Oh my goodness, I have lots of them.  I will call the oncologist tomorrow because I can not do this for eight weeks.  

    Had an argument with my niece, first one ever!  Fortunately, my boss came in my office around 4 and asked how I was doing. I told her it was a bad day. She said well she could not tell it from my work I turned in. I thought that was nice.  We talked for a few minutes and we laughed about a few things she had to do with her fight with colon cancer.  I told her, she lifted my spirits and thanked her! She said, no one has ever told her that before and I think she had tears in her eyes.

    Just so you all know I hate this journey!!!

    Olivia 

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Well guess what some of the side effects of the mega Vitamin D are.... loss of appetite, mood swings, increased thirst, headaches, muscle pain -- oh and guess who has all these??? Yep you guessed it me!! I just can not get a break.  I have been on the verge of tears all day... could not figure it out until I got home and my husband (AKA Kevin) said, let's read the side effects.  Oh my goodness, I have lots of them.  I will call the oncologist tomorrow because I can not do this for eight weeks.  

    Had an argument with my niece, first one ever!  Fortunately, my boss came in my office around 4 and asked how I was doing. I told her it was a bad day. She said well she could not tell it from my work I turned in. I thought that was nice.  We talked for a few minutes and we laughed about a few things she had to do with her fight with colon cancer.  I told her, she lifted my spirits and thanked her! She said, no one has ever told her that before and I think she had tears in her eyes.

    Just so you all know I hate this journey!!!

    Olivia 

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Oh and Kevin just said, he hates this journey too - LOL

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Ah, Olivia....bless your heart.  Those are MEGA doses of vitamin D.  It's amazing they're not making you feel sick!  But what awful side effects...TERRIBLE side effects!!!  And you're right  - both of you are right.  It's a nasty, yucky, horrible, rotten, awful, no-good-for-nothing journey....BUT, you'll make it.  You've won once.  You've won the war before.  You'll win again!!  You have a wonderful husband and too much to live for :)  

    I'm glad you have an understanding boss.....one of my principals didn't even acknowledge when I had returned to school.  The other two, though, did give me hugs.  But it sounds as if you have a keeper there :)

    And a keeper of a honey...let him hug you extra for you...and have him give you a hug for me, too...

    blessings...robin

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Not sure my boss is a keeper but on occasion she can say the right thing, most days she is just plain old mean!!

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    oh yeah and I am nauseous  -- what a roller coaster - you think it will start on the uphill soon this cork screw part of the roller coaster is crazy -- just my visual for tonight

    Olivia 

  • Stanzie
    Stanzie Member Posts: 1,971
    edited March 2010

    Robin, 

     The survivor's group sounds wonderful. I did ask the oncologist what tests I might need in the future or what things I should or could do to make sure cancer wasn't coming back anywhere. He didn't say there was anything at all I could do. I'm sorry he didn't suggest something I could do. Perhaps when I go back to the BS I can ask if he has any suggestions. It is scary to me that I won't have mammograms anymore - not that I liked having them or anything but being able to do something proactive does give some comfort. 

    Here is an odd question, so since people know I had BC and if they don't know will assume mastectomy does anyone else wonder what people will think or notice about having breasts? I know that sounds odd but I guess I'm basically such a private person and I know around my kid's school and the choir I sing in they all know what has happened and I feel awkward about it. I guess I just am not sure what to expect. My new breasts are the same size which is small so it isn't like there will be anything dramatic but I guess it still makes me self-conscience. 

    Olivia, that is a lot of vit.D I assume your doctor put you on such a high dose. My vit. D was low but not anywhere near that low. They have me taking about 5,000IU of D. and calicum twice a day but I don't have any side effects from that. sorry you have to deal with more side effects on top of everything else. 

    Bulldog, I'm impressed you made it through a mall trip for 3 hours - that is a lot but glad it was fun.

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    I just had a great night!  I went to my first Sassy Sisters meeting!  It is a local breast cancer survivor group, but the focus is different than most.  Instead of talking about treatments, we talk about God and how He is there for us, even if we don't see Him.  We discussed the things that hold us back from being completely happy:  our fear of reoccurance, body image, doubt, treatment side effects and then we reviewed Bible passages that show that God is there for us.  We were given these cute little cue cards to write down our most uplifting and favorite passages and to carry with us.  When we have those negative thoughts or doubts, we are to pull out the cards and use it as ammo against those bad thoughts because they can come at any time.  It was very uplifting and I felt very safe and understood.  At the end, we were allowed to put someone down for a special prayer, and I asked for Olivia218:  I hope that you don't mind Olivia!  I just think about you often and so am hoping for good news and a smooth journey.  You deserve it so much!  So positive thoughts and prayers went out for you tonight! 

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Thanks I appreciate it!! I woke up at 3:30 this morning and have not been able to go back to sleep, I guess it will be a long day.  I feel nauseous, so I guess that is just side effects.  I am calling the oncologist the minute they open to find out what to do, I can not do this for the next eight weeks.  

    I hope everyone has a great Tuesday!!

  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    Greysean,

    Yes the oncologist called me last week, Thursday evening and put me on it immediately.  

    I understand how weird it feels when people know you have breast cancer - it feels like they are staring at your chest. It was a bit uncomfortable at first but now it seems to be better.  I think people mean well but really they do not know what to say. I was probably in that group too before BC.

    Hope that helps

    Olivia 

  • ladyod
    ladyod Member Posts: 152
    edited March 2010
    Greysean:  A lot of people are shocked when I tell them I had a mastectomy 8 weeks ago.  One lady said (and I quote) "But your skin and hair---they look so healthy"........Foot in mouth I had immediate reconstruction and went from a DD+ to a B.  The only response I have gotten is "Are you going to have reconstruction?"  HA! HA! HA!  "Um, it has already been done" is usually followed by an embarrassed "oh" so I don't think that people always know the treatment and what all it entails.  The only place I have actually felt people looking was last night at the meeting, when we were discussing our results.  And that was OK, because they were looking because they cared.  Oh, and I was looking also, trying to see who looked the best:  I want their PS numberEmbarassed
  • olivia218
    olivia218 Member Posts: 257
    edited March 2010

    LadyOD -

    That is funny, that you were looking and wanting their PS numbers.  I asked my PS after surgery why did you make the fake one look so good?? He laughed so hard, even the nurse was laughing - I guess they did not know I was serious.  

    I called the oncologist today. I had an appt this afternoon and I have two medications for the nausea and moodiness. I told her I felt like one minute I could bite someone's head off and the next I could cry.  She said, yep that's the heavy does of Vitamin D. I have to keep you on it so we will try to manage the side effects.  I have lost five pounds in three days.  So I hope it will help.  I will let you all know at 3:00 a.m. if I am awake!! Let's hope not!

    My boss was very understanding again today. We must be getting ready for a big change or shake up because she is not usually nice two days in a row.  

    I can tell tonight is a better night already, the Dr was very validating and told me to give myself a break, I have a lot going on. She was really kind.  

    It could have been I caught her a bit off guard last time (our first appt). When we met, she asked if I knew anything about her, so I showed her the information my surgeon provided to me. She asked if I read it and I said, yes. I told her my surgeon told me I would really like you. She said, wow I have a reputation to hold up.  After we spoke for a couple of hours and I was leaving, she asked, well did I pass?? I looked at her and said, I do not know how some people get all the luck, not only are you intelligent, funny and compassionate but beautiful too !! She had a huge smile on her face and I said, just stop, and a gorgeous smile!!! I think at that moment she decided I was her patient and I am glad.  She told me to call her anytime and I think she actually meant it.

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