New Diagnosis & Upcoming Chemo
I am 56 and was diagnosed with IIIA breast cancer five days ago. It was half ductal and half lobular, grade 2. The original biopsy showed no lymphatic invasion, but surgery found cancer in 5 of 6 nodes. The original tumor was small and discovered during a routine mammogram; I could feel nothing, and I do routine breast self examinations. Apparently, I never learned to do them properly. Prior to surgery (mastectomy) on March 19, the assumption was that this was stage I; after surgery, the staging was changed (as you can see), and I'm still reeling. I still have one drain in, but I plan to get it out tomorrow, Monday.
I begin dose dense chemo on Tuesday with Adriamycin and Cytoxan for 8 weeks (infusion every other week). That will be followed by Taxol for 12 weeks (once a week) and radiation. I'm not sure when I start taking the anti-hormone pills.
This was an unexpected diagnosis, as I've never had a call-back mammogram in 17 years and didn't expect one.
I am also still barely recovering from a months-long case of post-viral gastroparesis and 25-pound weight loss, so this diagnosis comes at a very challenging time physically. I know that this will not be easy, but I really do need some encouragement. My son is still doing follow-up for testicular cancer from summer 2009. Our family feels beat up.
Thank you,
Patsy
Comments
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Patsy ..my thoughts and prayers are with you and your family.It was 1 year ago,that I was hit with the BC bomb.My mammos were clear for 22 years,no history,and I was as healthy as a horse.
I did very agressive chemo,a/c taxol,and herceptin(which I am still on).I am 62,and I was so scared of chemo,but let me tell you,I did just fine.There are so many meds to help us get through this.There is a lot of support here if you have any questions,or just want to vent.
Hugs
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So sorry you have to go thru this especially after dealing with recent illness and son's issues.
I did the same regimen you will have 4 A/C followed by 12 Tax....although I was Triple Neg so they did my chemo first then lumpectomy...(It had a 93% growth rate) so the hope was to shrink tumor prior to
surgery...which it did...praise the Lord.....I have had 18 radiation....15 to go....
I did fairly well through treatment no nauseau but I did get dry mouth and allergic reaction to the taxol
but they gave me steroids / benedryl prior to infusion and that helped...so make sure you drink plenty of water....don't use regular toothpaste/mouthwash...any with alcholol...I used the benatine brand (spelling?
and it helped a lot.....I am 55 ...I worked through my treatment full time ....It helped keep my mind off of it.
I missed a few days here and there and 1/2 days on chemo days...I feel great now....so you CAN DO IT
I know it will be hard....been there but try to keep a positive attitude....get plenty of rest....
This blog is a wonderful source of information & support.
P.S. I have about 1/2" hair regrowth....if you get a chance go to one of the Feel Good Look Good clinics....they have great ideas regarding turbans...head covers....make up etc.and they give you some
free products.....
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I am so sorry Perverson that you have had this hard time with diagnosis. I too went in thinking stage one and came out being told differently. After 3 surgeries it was settled. I felt my world was falling apart and ...it did not. It was hard, yes, but here I am 4 years later and all is back to a very normal. I must still be effected or I would not be on this site. I think about cancer often, but not in that fearful paralyzing way.
You will make it through. It will be tough but not impossible. Hang in there with treatment and the sun will shine again. The most important part is getting treatment. Science has brought us a long way.
My hunch is you will take the anti-estrogen hormones after you are clean from chemo.
I went to a Bernie Segal workshop once, in Northern Cal, and he asked the audience if anyone thought life was not fair. Everyone raised their hand and he said "that proves it is fair." It sucks for all of us once in a while. Sometimes more sometimes less.
Like I said...the sun will shine again.
Shirley
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I'm so sorry you had to join us, especially when you and your family have been dealing with so much already. I can't relate to being used to clear mammos (wasn't quite old enough for my first one at diagnosis) or the shock of staging (knew I was at least stage 2 going into surgery), but I am just a couple of weeks away from completing the same chemo you're about to start. As the others have said, it's not fun, but it's completely doable. Come here and ask questions anytime - there is always someone who has "been there". There are so many wonderful women on this board and it has been invaluable to have a place to come where everyone understands.
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Dear Patsy,
I am also sorry that you have joined our club. You will find lots of good advice and encouragement here.
I had a horrible prognosis and am still here! Chemo is no fun, but doable. Rads is a pain because it's daily for ususally 5 or 6 weeks. You will be given meds that will hopefully make your tx tolerable. It isn't easy but you will get through it.
Sending you hugs and prayers from CA.
Lexi
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Hi there, Patsy. I'm so sorry you and your family have been hit with so much. It's especially hard to take when you are already down physically and emotionally. Nobody's ready for this diagnosis, yet we all find our way. The ability to share our ideas on this site really helps, so please come here often. Upstaging during all the surgery and testing happens to many of us; it happened to me, too. I did dose dense AC, too. No fun, but worth it if it improves our prognosis. Also, sending hugs from CA. G.
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I'm so sorry about your diagnosis. It is such a shock to hear the words breast cancer and then hear the words stage 3. I've been there. But the silver lining in a stage 3 dx is that you get the Full Monty - you'll get all the treatments to eradicate the cancer from your body. And you'll find that the treatments nowadays are very successful. We have lots of women 5+ years out of treatment who have no signs of cancer. When your ready, read the "Stage 3 Five Years+ Out-Check In!" topic and you'll hear about some of these ladies who graciously come back to give encouragement to people like you and I who are going through treatments.
I'm going to the onc today and will either get my last chemo tx or we'll decide that I'm done. I've been on neoadjuvant chemo to shrink the tumors and get rid of the diffused cancer cells in my breast so they'll get clear margins. Surgery for me is April 26. Chemo wasn't fun but with the supportive meds the side effects were manageable. I'm 51. My chemo was slightly different than yours. I had the taxol first (along with a trial drug called Sutent) and then did weekly AC. I kept working through the first 4 months but I listened to my body and my emotions, which were getting very tired, and went on short term disability at Christmas. I'm feeling much stronger and it won't be long before I'm back to work until I take another leave for surgery.
It's going to take some time before you're OK with this diagnosis -- at least that has been the case for so many of us. But you will get through it and be fine.
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Patsy, I know this can feel overwhelming, but hang in there. I am 45 and was diagnosed the same way as you on my first mammogram. The needle biopsy for my lymph nodes came back negative and when I woke from surgery, I found out that 6/7 were positive and I had a 3cm tumor on one of my nodes.
You will feel better once the drains come out and, from what I am told, chemo is a lot less scary once you start -- the anticipation of the unknown is hard. I start chemo on Monday. I think it is nice to keep all of our sisters in mind as we go through this, and I will keep you in mind.
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Today was my first session, and I feel pretty draggy. My gut feels OK, but my mouth and throat feel irritated. Did that happen with you?
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I never had any issues with irritation in the mouth & throat. I did have swallowing issues but that was toward the end of the AC and sounds like a totally different problem. Are you still feeling the irritation? If it gets worse then call the onc's office and ask about it.
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Hi Patsy,
Sorry to hear about your dx, but you have found a great support here. I've said before that learning about BC is like learning a language you never wanted to learn to begin with and without a teacher. Unfortuntately I've seen a lot of woman like you who are told one thing going in to surgery and then find out a whole different story after (me included). I think maybe the docs want to try and be as optimistic as possible, but I do think it's their duty as well to reiterate that none of what you get from the biopsy is set in stone until you get the FINAL pathology AFTER surgery. I don't remember any of my docs even mentioning this.
I had 4 dose dense A/C treatments followed by 4 Taxols (just finished last week) and am getting ready to start 6 weeks of radiation. Chemo is rough, but with a good support group you'll make it through. And we'll be here to answer any questions, as well as to just hear you vent. Lord knows I did!
Take care,
Sharon
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Peverson - I had to rinse (water & baking soda mixed) several times a day for at least a week after each AC to keep my mouth from getting sore. My throat also got sore with the first one. My onc checked it out several times to make sure it wasn't serious, but I did have the sore throat for several weeks after my last AC. I've kept up with the mouth rinsing, though, and have had very few, mild problems with mouth sores. So I don't forget, I keep a glass of the baking soda water outside the bathroom so every time I have to go, I just take a swig and rinse on the way in. It's become such a habit the last several months, I'm sure I'll feel like I've forgotten something every time I use the bathroom when chemo is finally over!
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Peverson - I am so sorry you had to join the club that none of us wants to join, but you will find plenty support from the women here. I was diagnosed right after spending two years helping my daughter who had been ill for 2 years with a rare neurological disease. I was 42 when I was diagnosed and was caught off guard with the diagnosis. It's hard to hear the words you've got cancer and the road your faced with is scary, but you can do it and will get through it. I also did 4 DD AC followed by 12 Taxol.
Kimber suggested rinsing your mouth to help avoid or minimize possible mouth sores and that is a great suggestion. I also sucked on ice cubes during the Adriamycin portion of the infusion because I heard that helped. In addition I used Biotene toothpaste and mouthwash because it was much easier on my mouth during chemo. I also drank lots of water to help flush my system and stay hydrated - which really helps. And.... like Anacortes said - call your dr if you have a question or something doesn't seem right - they're there to help you get through this and answer all of your questions.
I'm sending (((HUGS))) your way........Jenn
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Patsy, sorry you are here with us...but, we will help you thru.
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I'm so sorry with you dx and having this added on to the other challenges in your life. The wonderful group of Stage III ladies will help you get through. I had the same treatment plan as you and am currently in rads.
Remember, when it comes to chemo, the s.e.s (side effects) vary from person to person. And the meds to combate nauseau are so much more effective than previously. If you are concerned about losing more weight you might want to ask about Emend which is more expensive than other anti-nausea drugs but very effective. You may want to consider joining the Chemo Board for more tips, although I always felt more comfortable with other Stage 3 ladies.
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Your journey is basically very similar to mine...Oh its a tiny thing on mammo...Oh but there is 3 tiny things? Oh you seem to have neg nodes...well...4 possitive nodes...Oh so you are stage 3 now....EEEEK.
I know how that feels. I told the ONC to pass me the trash can I may vomit..I was only kind of kidding. Its a blow. But I am 1 1/2 years from DX and still think about it multiple times a day...But I am generally happy and adjusted and living life...
You will be too....It seems far off and almost impossible, but you will be there and giving out advice to new comers sooner than you think!
My thoughts are with you and your family...try and rest and let them help you. Its a road none of us want to be on...but in some ways I have emerged different, and I like the present day me.
Love and hugs
Robin
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