radiation tiredness

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icey
icey Member Posts: 141

Hi Ladies, Does anyone know the scientific reason radiation can make u tired. Is it because it can cause dehydration or what. I read that drinking a lot of water can help. Does anyone know?

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  • Annabella58
    Annabella58 Member Posts: 2,466
    edited March 2010

    hi there.  I don't know the scientific reason it does that, but I can help you, perhaps...

    I needed alot more protein during it.  And you need to eat small snacks, frequently.  Preferably healthy ones.  Tons of water is great, but it does definitely tired you out, and yeah, it is cumulative, unfortunately.

    This gets better afterwards.  Sneak naps whenever, wherever you can...think of it as when you were pregnant, if you have been.  you are just a different animal and you have to respect your body.  Now is not the time to exercise heavily, just be moderate.  I slept 10+ hours a night and afterwards, it took perhaps 3 months or so until my energy came back.

    Some women do fine, some adjust,some do not.  I didn't but I just kept on putting one foot in front of another and we do get thru it.

    Good luck to you and PM me if I can help you further.

  • irish47
    irish47 Member Posts: 109
    edited March 2010

    I asked my rad doc this question and he says its because the body has to use up so much energy repairing the healthy cells damaged by the rads. therefore what Annie above says about protein makes sense.

    I don't know if it's all in my head but i am definitely feeling more hungry since my rads started and am eating more but sticking to the healthy stuff!

  • adrienne2
    adrienne2 Member Posts: 183
    edited March 2010

    I agree with irish47: the radiation damages and kills cells, and your body has to work hard to repair/replace them.

    I was hungry during rads, but I don't know if it had a physical cause, or I just wanted "comfort food." At any rate, eating well is a good idea, as is drinking lots of water.

    I had very little fatigue during or after rads: I walked 6 miles or cycled 10 miles every day. My rad onc said that her patients who exercised had very little fatigue. I did have a small amount, mostly in the evenings: one minute I'd be sitting in my recliner watching one of my favorite TV shows, and the next thing I knew, I'd be waking up :) 

    I would have sworn that I didn't have any decrease in energy during rads, but 2 weeks after I finished, I did notice a slight increase in energy. This tells me that I must have had a decrease that was so slow that I didn't notice it. 

    I think that people who have had chemo before rads might be more likely to have fatigue, but I'm not sure about that.

    Good luck,

    adrienne 

  • Leah_S
    Leah_S Member Posts: 8,458
    edited March 2010

    I also have heard that there are some opinions that you actually get a very mild form of radiation sickness, and the fatigue is one of the symptoms.

    Leah

  • Alcie1
    Alcie1 Member Posts: 68
    edited March 2010

    Yes, I've been told we do get radiation sickness.  Some of the effects depend on what is getting irradiated.  If it's the left side it can be due to rads hitting the stomach. 

    My rad doc said I shouldn't be getting nauseated after only half the treatments when I complained - unless the stomach was in the field.  On looking at the pictures, sure enough, there was the fundus of the stomach, getting the full 65 grays!  He gave me Zofran.

    Another thing that happens is that often when the ribs, and maybe the stomach, are getting hit, we gel low blood counts - red and white.  We can take iron for the red, but there's nothing for the white.  In some cases, like mine, the low white count is permanent.

  • msmpatty
    msmpatty Member Posts: 818
    edited April 2010

    Hi Ladies,

    I'm so glad I found this little thread.  I just finished my last of 28 rads today and have been very surprised by how tired I've been for the past week or so, despite staying active and getting lots of sleep.  Some afternoons I've actually felt a little nauseated and I'm occasionally slightly feverish.  Your information and theories are making these symptoms make sense now.  I thought I had just turned into a wimp all of a sudden!  

    Patty

  • pip57
    pip57 Member Posts: 12,401
    edited April 2010

    I was told that it was because of the damage to the red blood cells which carry the oxygen to your organs.  That is why they do blood tests every week while doing tx.

  • icey
    icey Member Posts: 141
    edited April 2010

    Thank u ladies for giving me your opinions. To prettyinpink, The side effects sheet they gave me says possible low white cell count. It doen't say anything about red cell. I am on treatment 9 tomorrow and they have never drawn blood yet. I just see the doc every wednesday. I have't started burning yet but the waiting room has patiets who have. It would be nice to get through this with out burning. They said some people burn and some do not. It is just hard to tell.

  • edenh
    edenh Member Posts: 16
    edited April 2010

    Hi everyone, 

     I too was surprised at how tired I would feel all of a sudden. I have small children, and just couldn't play like I always do with them. The fatigue hit me like a ton of bricks sometimes. I have three more treatments left, and my rad onc told me that the real fatigue comes at the end, even after you have finished treatment. I'll let you know!! 

  • adrienne2
    adrienne2 Member Posts: 183
    edited April 2010

    edenh, congratulations on being so close to done!

    Just in case you weren't told this: be sure to take really good care of your skin for at least two weeks after finishing rads -- you can still have reactions for that long. After that, things got better fast for me. 

    icey, I expected to burn (and my surgeon told me I would burn), because I am a very fair-skinned redhead. However, there was only a small area above my breast that felt like I had a sunburn, and I never did peel at all. Just be diligent about skin care, and avoid friction that can rub off your skin, especially in the underarm area and the bottom of your breast. Protect your breast in the shower, too: a strong spray of water can remove damaged skin before new skin has had a chance to mature.

    adrienne 

  • dianalynn
    dianalynn Member Posts: 21
    edited April 2010

    Can anyone tell me if they have experienced that in addtion to being fatigued that they feel unbalanced and dizzy? I have repeatedly explained this to my doctor and he had no explanation. It is awful and i feel like no one understands what I am going through :(

  • Sotiredofthis
    Sotiredofthis Member Posts: 17
    edited April 2010

    Diana - I do occassionally feel a little dizzy which impacts the balance.  Light headedness is also a sign of dehydration.  Are you getting enough water and are you resting or pushing through the fatigue?  I worked through out my radation (finish my last treatment yesterday) and I only noticed it at work.  (Where I'm busy pretending the cancer treatments haven't impacted me.) 

  • irish47
    irish47 Member Posts: 109
    edited April 2010

    I am exhausted, absolutely flattened.  I am ok for a few hours after I get up and it's downhill after that. I have had 19 zaps so far and haven't had any blood tests done either but going to ask about having one done Monday.

  • icey
    icey Member Posts: 141
    edited April 2010

    Well Ladies, I am on treatment 24. Just nine more to go. I have turned red above my breast but i am not burning yet. If the next 3 treatments don't burn me then I will avoid burning because the last 6 treatments are boosts that treat the tumor bed and it that spot the skin look great. I can tell I am a little more tired at times but I am not working and don't have any young children to take care of so I can take a nap anytime I want. It would probably be different if I had to work or take care of children. I have found the best thing to put on your skin is aquafor. It work great. Good luck ladies. icey

  • Raili
    Raili Member Posts: 435
    edited April 2010

    I think I have 10 treatments left... I've started to feel fatigued.  I sleep about 9 hrs a night, which is normal for me in the winter, but usually I sleep less once the weather warms up... but my body is still in "winter mode"! 

    I'm not sure if this is my imagination, coincidence, etc., but I feel like my cold tolerance has decreased since starting radiation.  That is, even more than usual, I can't STAND being cold - I wear socks all the time, and drive with the windows up after the car has been baking in the sun because I like the warmth, and I can't bring myself to take cooler-than-usual showers because I need it hot, and if it's even the slightest bit chilly or windy out I get grumpy and instead of simply putting on more layers before going for my daily walk, don't want to walk at ALL.  I'm not sure if all of this is due to the fact that I've spent the month living in my parents dark, drafty, old farmhouse, or if it's actually related to radiation somehow.

  • hymil
    hymil Member Posts: 826
    edited April 2010

    I can't remember if you're doing hormones, Raili; if you, are it could be that as they do mess up temperature control... as also does low thyoid function so bear that in mind if it persists... but my main thought is, it's a feely thing, , It's HORRIBLE having BC and its HORRIBLE being cold and its HORRIBLE trying to lose weight, exercise more, eat healthy, trek back and forth to the hospital every day, it all just SUCKS and you want to go hide under the duvet...Do you also have to deal with dark, drafty old parents with compassion fatigue who think you should be better by now? but seeing as you're home and awake, would you just pop out to the other barn, there's a dear, and milk the cats? (Have you never wondered why cat milk is so expensive? ;)

     If that's it, you're not alone! I suspect once the day-in day-out radiotherapy appointments issue is over in a fortnight, it may improve. But also, thyroid malfunction, depression and BC are all treatable (without running up a humungous electricity bill...) 

  • precioustime
    precioustime Member Posts: 233
    edited April 2010

    From my experience with 6 1/2 weeks of Rad treatments in which I completed 6 weeks ago --

    I developed a dry cough about 2 weeks into treatment because of getting radiation to the mediastinal lymph node area.  By the end of 6 1/2 weeks, I was feeling very tired BUT not as tired as when I went thru Chemo.  

    The Rad Oncologist told me that Radiation is accumulative and that the peak is usually 2 weeks after treatment ends and then I should start going up hill from there.  She was right-- as far as my skin burning was concerned.  The fatigue was still there after 2 weeks post Rads and at that time I had been placed on Prednisone (steroid) for the cough I had and also placed on Vit. D3 50,000 units per week due to the 25 level I showed on my blood screen.

    3 weeks post radiation -- I all of a sudden woke up one day and felt almost like my self before all of my cancer treatments!!  I'm not sure if it was from taking Prednisone or Vit. D3 or just my body starting it's healing process.  My prayer throughout all of my treatments was that God would protect my body and every healthy cell from every poison and radiation treatment given and that in the end-- I would be healthier than I have ever been in my life.  I am definitely more wiser and appreciative of Life now!

    Loretta

  • dianalynn
    dianalynn Member Posts: 21
    edited April 2010

    I am pushing through the fatigue which I know is not helpful but taking a break from work wasnt a great option. You are right - I do notice it most at work. Thankfully I am more than halfway done with tx. I may see if working from home a few days (preferably the end of the week when I feel the worst) is an option.

    I am also going to see if more fluids in the diet help. It certainly cant hurt! Thanks so much!

  • mari65
    mari65 Member Posts: 131
    edited April 2010

    I have 3 weeks of rads left anf I hope fatigue doesn't get me. I have a daughter graduating from high school and we are having her graduation party memorial weekend at our house and the next day oldest daughter's baby shower. I hope I will be one of those that don't get fatigued. Cleaning my house in itself is going to take a month....

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited April 2010

    Mari65

    I hear you on the housecleaning bit. I have only had a small amount of fatigue, but it's there. I have not been cleaning my house, except for surface cleaning for the past 3 months. I had a cleaning frenzy yesterday (the old me emerging!!) and had to sit down several times, exhausted by housework!! Of course, it could have been the 13 mile bike ride in the a.m., but I definitely was TIRED. I went to bed at 8:30pm, slept until 7am (slept so soundly that I didn't hear my 2 year old come into my bedroom at 4:30 am!). Feeling better today, but now trying to kick caffeine, so can't rely on my old standbys to give me that needed "boost".......

  • mari65
    mari65 Member Posts: 131
    edited April 2010

    MariannaHB- 13 mile bike ride,and housework, wish I had half of your motivation.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited April 2010

    I just finished Zap 24, 9 more to go. I have tried to get 9 hours sleep every night and for the most part, am doing well. In the beginning I found that I felt MUCH better on the days I got more exercise---I would be so energetic after a bike ride with the monsters that I wouldn't go to bed on time [note that my bike rides are NOTHING like MariannaHB].  And I was able to reduce my caffine consumption considerably.  But last week, things changed.  I didn't have the energy to walk up  the hill to Zaps and took the bus instead though I continued to walk down and squeeze in some bike rides with the kids.  But I felt so out of it on two days that I just bailed on work and went home early and on those days, I had to have some caffinated tea in order not to fall asleep on the bus past my stop.  When I did get home, I took a nap so I could make it through dinner which is something I never do. 

    Today I am again feeling zonked and I'm not sure I will make it to my scheduled quitting time.  I have to say, I am really glad that my mother in law is arriving tomorrow as she will be a great distraction for the monsters while I am lying in bed in a fog.

    So based on my experience, I would say that the fatigue does accummulate.

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