"Not Just TNBC: thoughts, humor, pictures on LIFE!"

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2010

    Hi I saw on the other thread you were setting this one up. I've added to my favourite topics and hopefully we connect here. Thanks for setting up the thread.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011
  • puddingirl84
    puddingirl84 Member Posts: 120
    edited March 2010
    This is a sunset at Grand Case in Sint Martin last summer. I took this picture from the balcony of a restaurant called L'esplanade. 
     
     
     
       
     
    Puddin'
     
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Wow, I slept until 4 pm today. I have never done that before in my life, except after chemo days. I finished rads a little over a month ago.

    My body has been through the wringer but my mind keeps pushing me to get on with life. I am getting impatient with myself!

    How are you other ladies coping with energy levels post treatment? I am such an A type personality I can't stand feeling so useless at times, because my pre cancer life was very active and now I have to pace myself.

    Sleeping until 4 o'clock is SO over the top for me!Frown

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2010

    Don't feel bad....I slept in until after 9:30 a.m., which is really late for me.  My mom called and woke me up and my family were already up doing things!  I'm nearly back to normal having finished chemo (TC x4) on Feb. 8th.  However, I start rads tomorrow so I'm probably going to be tired again.  Well  I'm off to do some time on the treadmill momentarily.  I'm hoping I can continue working out while undergoing rads.

    Sherri 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    I continued to work out during rads and chemo; it was all the horse care that I stepped away from during treatment (hubby did it all).

    So now, even though I maintained a workout schedule throughout tx I'm finding it's my routine ADLs (barnwork, yardwork, etc.) that are wearing my down.

    I am so impatient... I want my energy back!

    Good luck with rads. I had no problems with them but I found the daily grind of getting there inconvenient.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2010

    Heidi - quick question...when you worked out during rads how was your skin from the sweat? That's my worry as I sweat (...or should I say perspire) a lot when I'm on the treadmill. I hear rads is more of a nuisance.  I'm fortunate in that I live really close to the regional cancer centre (less than 5 miles) and my co-workers have done a schedule and each day someone is taking me to keep me company.  I'm off on short-term leave for treatment so I'm looking forward to seeing them since I've been off since December. 

    I can only image how much work horse care is. I have a bichon-poodle who is a bit of work but nothing like a horse. He's my little buddy and has been there for me these past few months.

    Sherri 

  • scrappy_survivor
    scrappy_survivor Member Posts: 149
    edited March 2010

    joining in here if that is ok.... a wee laugh for you.

  • scrappy_survivor
    scrappy_survivor Member Posts: 149
    edited March 2010

    ooops forgot to copy it in... lol there is another for ya with my still slow brain

    Lizard Birth

    If you have raised kids (or been one), and gone through the pet syndrome, including toilet flush burials for dead Goldfish, the story below will have you laughing out
    LOUD!

    Overview: I had to take my son's lizard to the vet.

    Here's what happened:

    Just after dinner one night, my son came up to tell me there was 'something wrong' with one of the two Lizards he holds prisoner in his room.

    'He's just lying there looking sick,' he told me. 'I'm Serious, Dad. Can you help?'

    I put my best lizard-healer expression on my face and Followed hi m into his bedroom. One of the little lizards
    Was indeed lying on his back, looking stressed. I immediately knew what to do.

    'Honey,' I called, 'come look at the lizard!'

    'Oh, my gosh!' my wife exclaimed. 'She's having babies.'

    'What?' my son demanded. 'But their names are Bert and Ernie, Mom!'

    I was equally outraged.

    'Hey, how can that be? I thought we said we didn't want them to reproduce,' I said accusingly to my wife.

    'Well, what do you want me to do, post a sign in their cage?' she inquired (I think she actually said this sarcastically!)

    'No, but you were supposed to get two boys!' I reminded her, (in my most loving, calm, sweet voice, while gritting my teeth).

    'Yeah, Bert and Ernie!' my son agreed.

    'Well, it's just a little hard to tell on some guys, you know,' she informed me (Again with the sarcasm!).

    By now the rest of the family had gathered to see what was going on. I shrugged, deciding to make the best of it.

    'Kids, this is going to be a wondrous experience,' I announced. 'We're about to witness the miracle of birth...'

    'Oh, gross!' they shrieked

    'Well, isn't THAT just great? What are we going to do with a litter of tiny little lizard babies?' my wife wanted to know.

    We peered at the patient. After much struggling, what looked like a tiny foot would appear briefly, vanishing a scant second later.

    'We don't appear to be making much progress,' I noted.

    'It's breech,' my wife whispered, horrified.

    'Do something, Dad!' my son urged...

    'Okay, okay.' Squeamishly, I reached in and grabbed the foot when it next appeared, giving it a gentle tug.. it disappeared. I tried several more times with the same results.

    'Should I call 911?' my eldest daughter wanted to know.

    'Maybe they could talk us through the trauma.' (You see a pattern here with the females in my house?)

    'Let's get Ernie to the vet,' I said grimly.. We drove to the vet with my son holding the cage in his lap.

    'Breathe, Ernie, breathe,' he urged.

    'I don't think lizards do Lamaze,' his mother noted to him. (Women can be so cruel to their own young. I mean what she does to me is one thing, but this boy is of her womb, for God's sake.).

    The vet took Ernie back to the examining room and peered at the little animal through a magnifying glass.

    'What do you think, Doc, a C-section?' I suggested scientifically.

    'Oh, very interesting,' he murmured. 'Mr. And Mrs. Cameron, may I speak to you privately for a moment?'

    I gulped, nodding for my son to step outside.

    'Is Ernie going to be okay?' my wife asked.

    'Oh, perfectly,' the vet assured us.. 'This lizard is not in labor.. In fact, that isn't EVER going to happen.
    Ernie is a boy. You see, Ernie is a young male. And occasionally, as they come into maturity, like most male species, they um . . Um .. . . Masturbate. Just the way he did, lying on his back.' He blushed, glancing at my wife..

    We were silent, absorbing this.

    'So, Ernie's just . Just . . Excited,' my wife offered.

    'Exactly!! The vet replied , relieved that we understood.

    More silence.. Then my vicious, cruel wife started to giggle. And giggle. And then even laugh loudly.

    'What's so funny?' I demanded, knowing, but not believing that the woman I married would commit the upcoming affront to my flawless manliness...

    Tears were now running down her face. 'It's just .that . .I'm picturing you pulling on its . . . its. .. . teeny little . . '
    She gasped for more air to bellow in laughter once more.

    'That's enough,' I warned. We thanked the vet and hurriedly bundled the lizard and our son back into the car.. He was glad everything was going to be okay.

    'I know Ernie's really thankful for what you did, Dad, he told me.

    'Oh, you have NO idea,' my wife agreed, collapsing with laughter.

    Two lizards: $140.

    One cage: $50.

    Trip to the vet: $30.

    Memory of your husband pulling on a lizard's winkie: Priceless!

    Moral of the story: Pay attention in biology class.

    Lizards lay eggs! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    scrappy--- damn... you had me going there for awhile! I'm thinking...well, some sharks have live births and others don't... maybe the same with lizards. I remember one of my curly-tail lizards losing a tail when something scared him. Creepy how it kept writhing for 5-10 minutes after dropping it.

    sugar -- well,I have never been one to sweat a lot during exercise, so that was not an issue for me. I do the Curves routine after our local gym closed and it is resistance training electronically monitored. I check the computer after-wards and so far I have stayed on target 90-100% so I know my workouts are effective, despite very little sweat.

    I am 5"4, 125 lbs and wore a 36c. I wore cotton camisoles with no bras during treatment. I got a little moisture in the crease under my breast but nothing that a little cornstarch wouldn't handle. Other than that I guess a good cotton sports bra might be your best choice; something soft with no under-wire... even a cheapy like WalMart brand might do the trick as long as it did not have a tight elastic band under the cup area. Oh yeah... you might also look at some of those more formed camis that offer just a hint of support... maybe they'd limit the skin to skin contact if braless. Good luck.

    Here are my two Boston Terrier pups: Brady & Gisele

  • BossyRenee
    BossyRenee Member Posts: 77
    edited May 2010

    Just wanted to share a coouple of funny incidences:

    My oldest daughter who is now 24 was 2 at the time and had just started attending daycare. Her verbal skills were great for a 2  year old but this one particular time she really had me going. Everyday I would ask what she did that day and would get pretty clear answers. One particular day I asked and she said, "we had sex at the nursery". Surely I didn't hear her right so I asked her to repeat it. Again she said the same thing. In fact I asked several more times and you know a 2 year old, she got irritated with me and just shut down, refused to repeat it or say anything else for that matter. Of course I was freaking out. My family was there and everyone was trying to calm me down as well as get her to repeat it.

    Finally after taking a few deep breaths, I decided to take another approach. I asked her,"what did you do when you had 'sex". She said we ate cookies and had juice! She was saying 'snacks' not sex. I was ready to kill somebody. We still laugh about it now!

    Some years later, my niece came home and said she had a 'prostitute' (subtitute) teacher that day. We had a good laugh behind that one also!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Hi guys,

    Just got back from my six month follow-up at Sloan-Kettering and had some interesting discussion with my BS that I thought some of you might find informative/interesting. Understanding, of course, that there are many opinions out there amongst doctor and patient alike, I will share some of my discussions in the hope that it may provide comfort to some of you (or at least answer some of your questions).

    First, a little background on my surgeon--- he is highly regarded and active both here and in Europe. In addition to his surgical skills he is also an active researcher on tumor pathology.

    On the subject of neoadjuvant chemotherapy (and why I wasn't offered it)-- this practice was started in Europe (Milan?) because the surgical waiting period was often months and it was felt that *something* needed to be offered to the patient during the waiting period. It has caught on since then for other reasons (testing chemo effectiveness, etc.). In my case, it was considered to be wiser to get the tumor out ASAP because apparently, satellite tumor cells can (and often do) behave differently from actual tumor cells. So, in effect, how a tumor responds to neoadjuvant may not be totally indicative of how CTCs might. But, as always, each case is decided on an individual basis and there may be very compelling (and correct) reasons for doing chemo neoadjuvantly.

    On the subject of Ki-67--- this has been the subject of some concern for me, as my original pathology (done locally) had it at 99%. MSK's path report did not even list it. This is because, in their experience, it is *unreliable*. Wow, I was pretty surprised at that. The reason given (and what I think makes sense logically) is that it is not duplicable. This means, that if a second biopsy were done on the same tumor, the result could be different. This is due to the fact that there can be areas of variance within the tumor itself which are not consistent with overall proliferation rates.

    On the subject of tumor size and staging--- though by current standards I am technically considered to be 2A, he puts me at 1.Smile This reasoning is based on the fact that tumor characteristics are becoming more and more a function of molecular science not necessarily determined by size for overall prognosis. In other-words, the current T1, T2, etc. system is becoming antiquated as medicine relies more and more on genetic/molecular status to determine more accurate prognostic factors. In fact, if I understood him correctly, he mentioned that tumor size may be better described as a function of ratio-to-breast size. Works for me! I like being "downgraded" based on a scientific approach.

    Weight--- as always, a healthy lifestyle, diet and weight all contribute to better prognosis.

    I hope I didn't mush any minds with this, but I felt pretty good after these discussions and I wanted to share. I think what I am learning from this experience is that unless you are on the cutting edge of cancer research what you read online (which I do voraciously) may already be undergoing revision!Laughing

  • living4today
    living4today Member Posts: 215
    edited March 2010

    Thank you so much for the information!!

  • Titan
    Titan Member Posts: 2,956
    edited March 2010

    ok...one thing..ratio to breast size..soo..if you have small breasts and a large tumor...what does that mean..?  I'm a 36 b with a 1.8 size tumor...soo..average size breasts with an average size tumor..is that a good thing????

    And I'm glad you were down graded!  Awesome news,..I really love it when the oncs take the time to talk and answer questions...I had a long list last time..and we just sat there and discussed everything...in this day and age with the insurance and the move to get people in and out it was greatly appreciated....

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2010

    Heidi - thanks for sharing!  That's interesting about the staging because my surgeon said the same thing.  He explained that they don't stage like they did before and that it's more the biology of the tumour (we spell different here in Canada) that treatment is based.  That's great news that you were downgraded.

    Sherri  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Titan--- I'm sorry but I can not speak to your question because I did not ask him to further explain that aspect of it. I was just so happy to hear he viewed me as a stage 1!

    Also, I want to stress that on "paper" I guess I am still considered 2A based on *current* staging, but from *his* clinical expertise (which is considerable and therefore valid IMO) I am a 1 based on practical aspects. When you consider it, there really is a big variation in size for tumors within the same "T" size.

    Oh yeah... one more thing which I was already somewhat cognizant of--- surgeons and oncologists do appear to view cancer from different perspectives. The surgeon is in to the "cure" (remove the disease) whereas the oncologist is in to the prevention (keep it from coming back). This really does result in a very different perspective on the patient's condition. Clinically I am "cured" because my tumor was removed (no nodes, neg. margins, etc.) but from the medical onc's point of view I am NED.

    Potatoes, patahtoes... interesting, either way!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Had a Cat scan today as well as six month mammo. For the most part, everything looked good. They were not able to get as close to the chest wall as before (scar tissue?) and they sent me for a liver ultrasound that showed some "benign" cysts that are commonly found (unrelated to BC).
    Now waiting on tumor marker test results.
    BC--the gift that keeps on giving...

    OK Titan... you're next!

  • Titan
    Titan Member Posts: 2,956
    edited April 2010

    Heidi..I'm still chicken!  I will think about it in May..maybe,.I still feel..that as long as I feel good..I just don't want to put myself through this..but maybe I will..I think..ok..I feel great..but what if something is found..then I will feel sick..even though I just felt great a minute ago..Oh well,,I'm glad things went well for you,,,as far as the tumor/tumour markers test..well I hear they are inconclusive,,,

     Tomatoes..tomahtoes...tumour or tumor....(right sherry)...anyway I would spell tumour/tumor another way but it probably wouldn't be allowed on here.

    Good point on the onc/bs difference..My bs told me when I questioned why I had to see everyone every couple of months but the janitor and he said it is because they look for different things...so I guess seeing all these doctors is a good thing.,,,

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Yes, we spell things differently here in Canada...tumour, centre, neighbour, colour, etc. 

    I also wondered why each of my doctors wants to see me and that makes sense that they're looking for different things. I guess I never thought of it that way.

    Gotta go...for some strange reason, my dog has just jumped into the laundry tub, which is high up and he's a small dog (bichon-poodle)! He's barking for me to rescue him. I think he's the culprit for the missing socks!

  • justpayton1
    justpayton1 Member Posts: 786
    edited April 2010

    Too Funny about your dog Sugar.. I have a big golden and I have found socks in the backyard. My boys leave them laying and if she can grab one out she must go..

    weird thing about her is I have NEVER had a problem with her chewing in the house but if she can get it outside all bets are off.

  • Titan
    Titan Member Posts: 2,956
    edited April 2010

    So you guys are dog people...I'm a cat person...we have two..one is an "old girl"..we got her from the Humane Society..she has never really been a normal cat..for one thing she really doesn't have a tail...we used to live on a farm and had tons of cats..I mean tons...we were almost like Heidi as we seemed to rescue them..we had 18 at one time (outside)...We were like a cat farm!  Now since we moved we just have 2..the other one is not quite a year old and he is a handful...He keeps us busy..and since my kids are both at school it is probably a good thing..I never thought we would have 2 cats in the house...!

    Payton..I have a friend that told me.her cat used to take her son's socks out of his drawer and hide them under the bed..how the cat got in the drawers I don't know..the cat only took the boy's soccer socks..very weird...do you know that you can buy a collar camera to put on your pet and that you can find out what they do all day when you are away?  Not sure if we really want to know!   Whatever we have as pets..they really help with things...!

     When I was getting chemo one day some Cancer Dog group came in with a couple of dogs for we patients to pet..the dogs just layed on the floor....didn't do much...I guess it kind of hit me then..that I was a cancer patient...didn't like it much...

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    My dog is a jumper and is very hyper.  He has slowed down somewhat now that he's two.  We adopted him on June 4, 2008 and in less than 24 hours he broke his leg.  It was a complicated break and the regular vet couldn't deal with it so we were referred to an orthopedic surgeon. He broke his tibia on a growth plate. I had planned on purchasing pet insurance but hadn't done so by the time of the break.  You don't even want to know how much we paid in medical bills ($$$$). He's worth every penny. Once we adopted him, he was part of our family no matter what. Call me crazy but he's getting a dog Easter toy tomorrow and a bag with little biscuits and treats. It's more for my daughter to see that the Easter Bunny brings things for Brandie, too.  I did draw the line at stuffing little biscuits in the plastic eggs (although I did think of doing that!).

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Titan, here's one of my cats. Her  name is Butt... she doesn't have a tail either. Her name was supposed to be Miranda, but she had bowel problems as a very young kitten that required constant cleaning so I would ask my sons to "bring me the butt" so I could tend to it.

    BTW... my tumor markers were good: 4 & 9--very low.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Sugar--- I've got over $3500 invested in two "free" strays.

    Titan ---I'm looking into acquiring Therapy Dog status for my two Bostons. I, too, had the dog in chemo ward experience and felt the same way. I want a role reversal...

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Heidi - how do you insert a photo? I was trying to put in a photo of Brandie my dog in my earlier post but couldn't figure out how to do.  I see the icon to insert a photo but it's asking me for a URL and it's on my hard drive.  Do I need to post somewhere first?

    Sherri 

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Heidi - how do you insert a photo? I was trying to put in a photo of Brandie my dog in my earlier post but couldn't figure out how to do.  I see the icon to insert a photo but it's asking me for a URL and it's on my hard drive.  Do I need to post somewhere first?

    Sherri 

  • Titan
    Titan Member Posts: 2,956
    edited April 2010

    OMG Heidi!  Your Butt looks like MY cat!   And how in the heck did you get him to sit that way and stick his tongue out? 

    Oh yeah....the cancer dog experience..I told my Dh that I would prefer bringing my cats in...they would have had a good time...chewing on the chemo drug bags and scratching on the furniture, climbing up and laying on. the nurses station and hanging from the blood pressure machines..

    Sugar..even free pets aren't free are they?  Along with our having cats with no tails we had a 3 legged cat also...He got caught in a trap...$800.00 to operate with therapy or to just remove it...we had it removed...He lived 13 years...and with all his issues that was a pretty long time.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Sugar--- you can't post a photo from your hard drive; it has to be in an online photo album somewhere (Photobucket, Snapfish, etc.) Those site have a function that allow you to Copy/Paste the URL.

    Once you have copied the URL from the online album you then hit the picture icon in the Post a Reply window (it's to the left of the smiley face) and you paste it into the URL location. Then you choose Insert and it (the picture) should appear in your post.

    If it doesn't it is because the file size on the jpeg is too large (most web applications optimize the photos for faster download/viewing and won't allow a large file). If this happens you have to reduce the file size via a photo application/software. OR, if the option to choose "web viewing" is available in the online album site (as mine does...it's called Phanfare) it will do it for you.

    Give it a try and I'll try to walk you through it if you have any further problems/questions.

    Titan-- my one "freebie" had a prolapsed rectum which I corrected but developed scar tissue in the area which required major abdominal surgery a year later. The other "freebie" blocked badly as male cats often do and was *really* at death's door. Both are worth every penny we paid...either that or my husband and I are crazy.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Titan - don't laugh but since I paid for my dog on Mastercard, I called the card company because I knew they offered added protection for items that break. They looked into it and informed me that the protection only covers non living things...like clocks, coffee makers, etc. I figured it was worth a try! I bought the platinum pet insurance plan a few days later (his leg is noted as a pre-existing condition) and have never needed it, thank goodness.

    I got a package delivered by Canada Post a month or so ago.  I was surprised because I wasn't expecting anything...all my eBay purchases had already been received. When I opened the box, I was surprised to find a quilt from a charity that hand makes quilts for cancer patients. Someone had contacted the charity and requested this quilt for me. It was a lovely gesture and the quilt is beautiful but it really made me feel like a cancer patient. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    Cancer... the gift that keeps on giving....

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