MARCH 2010 Rads Group
Comments
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MariannaHB
you got let off for a stomach virus? NotFair
as my 10 year old would say. By contrast the ZapNurse told me I wasn't get off for anything!!! If I get sick, I'm supposed to call her and even then they will just shove a mask on me and stick me in a private room away from everyone else. -
June- I am having vivid dreams as well, but I would think that it's due to the increased stress and pressure BC has put into my life. I think my body defenses are definitely "down" because of RADS, but I think our over-active minds are trying to process the "new reality" we have. I hope you have a good dream tonight, to counterbalance the bad ones you've been having! I've actually had similar dreams, and I always wake up distressed, only to realize my husband wouldn't do that!
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3monstmama- LOL, they let me off easy. I just called them and they told me that they would tack the time onto the end of treatment. Considering that I was probably contagious the few days before I got sick, I sure hope I don't make one of them sick!! I suppose my defenses are down, and that's probably why I came down with it. I did everything in my power to stay away from my daughter while she was sick. My hubby cleaned up after her, and kept her sequestered, but I guess it wasn't enough.......
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MariannaHB I am glad to know I am not the only one....It has become the joke now with my hubby and me as I went to bed last night I told him no more cheating! He thinks I am whacked! However last night was uneventful, not a thing.....I think the not knowing what to expect during all this hell has left me sleepless in Shrewsbury, but now with the rads I have been making sure I don't burn out and have been in bed before 11:00 and have actually been sleeping since last weekend.....
I didn't slam dunk today Raili as I entered the building my mood suddenly changed and even my male tech noticed I was not the same......I feel so UP and DOWN....just when I think I know what to expect and I have the attitude I CAN DO THIS, my brain switches on me and it is like I keep getting blindsided.......
My breast has been very sore since yesterday all over and they are now concerned thinking it might be an infection brewing as it is way too early to be tender, today was the 6th treatment. The nurse told me to make sure it does not feel hot and if it does go in to the hospital immediately.....so lets pray it goes away and it is not something serious......
1 more day till the weekend and I cannot wait......I think I need a nice cocktail ot 2 this weekend!
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Today was day four and it was by far the fastest thus far. Apparently they take x-rays for the first three days and that adds time to it. Now they will only x-ray once a week. I see the doctor tomorrow as his clnic is every Friday. I guess I'll miss seeing him next week for Good Friday as the cancer centre is closed that day. I think it also went faster today because it was the first day one of my co-workers came and kept me company. They did a schedule in Word and emailed it out. I decided I'm going to mix it up a bit with my various wigs (...give them somethng to talk about at the office as I'm off right now on leave)! So far, the Glaxal Base cream seems to be working fine. Good night ladies.
Sherri
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HI ALL
SUGAR
How nice of your work mates to go to rads with you ,you must be very special to them
JUNE
I'm glad to hear that your husband is now controlling himself maybe he stopped when you were on to him lol
Hope your boob hasn't got an infection bit of a worry well least you will have a rest this weekend
my boob has been sore as well but i think its just all the normal aches and pains that go along with getting your boob zapped
Had my massage today skipped the pedicure felt like i didn't need it, so i shopped instead bought me a lot of pressys then ate chocolate on the way home, oh boy it was all so nice wouldn't it be nice to do that once a week .
well of to buy some dinner for tonight no cooking for this princess
PRINCESS JOJO
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OK, small rant coming up, be warned!
Was in at rads this am and in good form (#18, so far so good, having that 'friday feeling' etc...). I was sitting in the waiting room, reading my book, minding my own business, when an elderly gentleman who was waiting to have his rads (think for prostate ca) interrupted:
Him - do you mind me asking you, how old are you?
Me - Im 29
Him - oh my god, you are so young, Its terrible when I see young people like yourself in here getting treatment for cancer
Me - well, there is no age limitation to cancer today - it affects everyone, Im afraid (went back to reading book)
Him - do you have children?
Me - no
Him - oh, thats ok, I met a 33 y.o lady in here last week who has 3 children, the poor thing, isnt that just terrible. Now, whatever about old men like me getting cancer, its just awful to see young people like yourselves. Life is tough (blah, blah for a few mins.............)
I was really hurt by his comments - it really was none of his business. I hate being the 'young one' in the waiting room, and getting all the 'sympathy' glances and comments from people.......
Anyway, enough moaning and thanks for listening/reading!...............
Will try to regain that 'Happy Friday Feeling'!
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The waiting room experience can be interesting. There was a new patient yesterday - a woman with her daughter. After the mother checked in, they began a conversation which quickly turned into a heated discussion about another family member. While they weren't loud, I could hear enough to know that the daughter was venting, which seemed stressful for her mother. I really wanted to tell the daughter that her mom didn't need that added stress, but of course, I didn't. I disappeared back into my book.
I've completed 19 of 21 - 2 remaining!
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Hi Grama5 Flo! Sounds like you are going along good! I'm glad for you! Been keeping up with you, & thinking about you....You will LOVE taking Max with you! Let us know what they say! Your little Buddy is in this with you too!
xooxoxo Jeannette -
Morning ladies - Happy Friday - today will be my 13th treatment. Having a terrible time sleeping, I get into bed wake up in less than an hour and then can't sleep - finally give in and take a sleeping aid and then all I do is dream all night long - I'm exhausted when I wake - I don't even know if I sleep or I think of these dreams - its driving me crazy. I was at the dentist yesterday and he said I have bretty bad "dry mouth" - gave me a few reasons why - but prescribed a gel like toothpaste to spread over my teeth 2x a day. I read on WEBMD that radiation can cause this - anyone every experience that? All during the night - my mouth is completely dry - it hurts to finally drink some water and swoosh it around.
June2268 - I ended up aith a breast infection after the 5th treatment - they precribed Cipro for 10 days, the heat subsided immediately and the swelling went down pretty fast also. It did not interrupt any of my treatments.
Hope everyone has a great weekend and enjoy the Spring weather.
Kathy
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TreadSoftly
I get the same looks when I enter the building. No one has said anything to me, but I sense that they are wondering why I am there. I have a friend who is undergoing treatment who met a woman in the waiting room that has a type of uterine cancer, and she has to spread eagle for her treatments, so all of us are there for more or less embarassing, personal, hurtful reasons. It's hard to think that we're in with the oldies, but we are there. Sorry about the comments from him, and know that we're all going through it with you. It's a hard place to be...
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5 down - 20 to go. And boy, do I have the Friday "high". I don't have to go back there for 3 days (if I count the rest of today)! My breast is definitely swelling, but no real skin problems. Thanks to all for the exercise support - it helps to know that there's hope that I won't have to give up exercise for 5 weeks. And yeah, the emotional UP and DOWN is just incredible. Yesterday I had a minor meltdown - it just seemed like such a long week, and it was my doctor consult day - nope, didn't make it through that one without crying. Fortunately, there's next week to achieve my goal.
TreadSoftly - I just read the other night some advice on radiation that said something like, "be a little aloof in the waiting room. You are there to get in, take care of this, and be done with it..". I think that advice is for exactly what you experienced. The international "leave me alone" symbol is a set of headphones.
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Hi Kathy: I have trouble sleeping too, or at least I wake up a lot during the night and find it hard to get back to sleep. In my case I thought it was still a lingering SE of chemotherapy and I attributed dry mouth to that too. If I go to the toilet during the night, I wash my teeth too and freshens my mouth and seems to help. Ordinary water doesn't taste right anymore, I need to drink sparkling water or soda water. Do you keep some water by your bedside? Are you drinking lots of water during the day? I used a tea tree mouth rinse during chemo that seemed to help. You might be able to find something like that in a healthfood shop.
I had treatment #23 today, now 10 to go—three regular and eight boosts. The time has really gone quickly. I'm only sporting a slight pinkness to the breast, no burning or blistering. Hope it stays that way.
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Four down, 29 to go!!!!!
No side effects yet. It sounds like I am getting more sleep than some of you---I was in bed before 10 last night same as the two nights before. Of course, part of it is that my oldest is away and the younger two miss him so we have been having "sleepovers" in the living room on the foldout sofa. And while I'm waking up in the night, I don't think its the rads, I think its most likely being kicked by my wiggly monsters. . . .
or the fact that since I'm sleeping in between two kids, I am ending up on the support bar for the fold out. We'll find out tonight as oldest comes home and everyone goes back to sleeping in their normal places.I think I am in a typical Happy Friday mood--not sure if its related to rads. As I've said before, the techs are all so nice and the experience is, as someone else said, so predictable, I just don't get as stressed about going or have a hard time with it. Plus it is nice to start my day around such cheery people--puts me in a good mood.
I will be glad, however, when my schedule changes to 11:30 [I'm going before work now] because my husband is driving me and its hard on the monsters. Either the younger two have to wake up early and go with us OR they have to stay home alone for the 25 minutes that he is gone. My 10 year old is very responsible, they are just watching Sesame street and cartoons [which is a treat since we don't usually do that] but still, with the oldest, we only left him in charge at that age once in a while and this is every single day.
hope everyone has a great weekend!
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3 down. 22 to go... happy friday :-)
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Treadsoftly - in the hour since I got home from my rads appointment and read your post, I've had my own experience. About 15 minutes ago my door bell rang. My wig was upstairs so I grabbed the scarf I wear under my winter jacket and quickly tied on my head. At the door was a young man from the lawn care company, here to do whatever they do for spring (my husband takes care of organizing this). I told him I didn't want any pesticides on the lawn and he assured me none were going to be used. He could obviously tell I was undergoing cancer treatment. He said he totally understood where I was coming from about not wanting pesticides. He said his parents both died of cancer and then he nicely asked what "kind" I have. I said breast cancer and he said wow, you're very young to have something like that. I'm turning 46 in April and don't consider myself as young as others. However, it didn't make me feel any better when he pointed out I was so young to have this. He was a nice young man and meant well but I did feel a little sad after that. Then, the doorbell rang again and it was Canada Post with a package and it was a new wig that I just bought on eBay (I'm having way too much fun with these wigs!). Now I'm sporting the new wig and am heading out for a quick hour of shopping before my daughter gets home from school.
I have 5 down...11 regular and 5 boosts more to go. Have a wonderful weekend ladies!
Sherri
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Two favorite things about rads today were my #15 day SLAM DUNK -- thanks, Raili, I actually find myself looking forward to doing it -- and that it is FRIDAY -- Totally agree with 3 monstmama and AndreaS that Friday's are wonderful!!!!!
Tiredness has begun, feels like a wave that comes over me (like when you feel you might be getting a cold and your head is a little woozy/dizzy).
I start my 4th week of rads. on Monday. Looking forward to slam dunks 16-20 next week but mostly slamming the door behind me after #33.
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Just got through reading the last 24 hours of posts and am so sorry that some of you have had such conversations. Guess people don't know what to say.
As far as the waiting room, maybe it's just the time of day that I got, but it is filled with elderly men -- one missing a nose, another clearly having some prostate/lower ab. issues, several that look like they have throat rads -- no women patients, and no one close to my age (45) -- so I sit in my car until the last minute and then quickly and quietly go into the waiting room.
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Today is my 20th treatment (of 28) but I've still got 2 more weeks to go because of the Easter weekend. So far so good - still a bit of redness around the collar bone and underarm but nothing too uncomfortable.
I am taking the Ativan before I go to sleep on drs orders and I have to say that my sleeping, jaw ache and head pain have been improving.
At the place I go for rads everyone wears a gown. We get assigned a bag number and get a gown. It's not bad and quite easy to get into - change and then leave. We wear the same gown for our entire treatment unless something happens to it I suppose. So no slam dunking for me!
When I go into the waiting area there are a lot of older men drinking water (for prostateI guess) and a couple of other women around my age and older but I don't think they are there for breast cancer. They are wearing different gowns from me - gathered at the neck instead of kimono style.
I must admit that most of the time I just sit there, head down, reading my book or magazine but lately there have been some new women patients there that I want to ask questions of. Specific questions....like HAIR questions! They have very short hair (looks like chemo outgrow) and I'm just sooooo curious to find out what stage they are at PFC.
I want to say - I really like your hair - but I'm not sure if that would be too intrusive. One lady in particular has had hers trimmed (obviously styled) and it's such a sweet cut I'd love to know where she had it done and how long it took her to get to that stage.
Would that bother you if someone asked you about your hair and not your cancer? I'm not sure so I don't ask - but I'd LOVE to know!!
Hugs to all!
Marie
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Thanks for your support ladies, definitely like the idea of headphones! I thought a big book was enough but will bring my i-pod next week too!
mariek - I really wouldnt mind if a lady asked me about my hair regrowth, particularly if it was someone in the same boat, who was obviously genuinely curious, and had their own hair story to share!
Have a wonderful weekend everyone!
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TGIF! I finished week 4 today; 20 of 30 treatments are done! A nurse pointed out that I'm starting to get some tearing in the fold under my boob and on the side by my armpit. She said she mentioned it in case I noticed over the weekend; she wanted to let me know it's normal. Under my boob I can see a small circle (smaller than a pencil's eraser) that looks like a waterblister popped. It doesn't hurt. The nurse said to keep using the aloe vera gel and to not scratch the area. She said to not where a bra whenever I can. I'm glad she brought this to my attention. If I had seen the spots first I would have assumed something bad.
An elderly man was getting zapped after me every day. I'd see the man and his wife before and after my sessions, I always said hello and something like 'have a good day' or 'enjoy the afternoon'. Nothing more. Yesterday we ended up standing next to each other in the hallway and the wife turned to me and said "can I give you a hug?" "Sure!" I said and we hugged and then went on our ways. Today I found out that the man's session got permanently moved to another time; I won't be running into them anymore. I think the wife knew that yesterday. What a sweet little lady!
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Marie - if someone at the cancer centre came up to me and asked me about my hair I wouldn't be offended at all. In fact, I think it's flattering and you are both in the same boat, so to speak. I don't have hair to show yet but I've had a lot of compliments on a couple of my wigs at the hospital and I'm totally fine with it. I see a few older men drinking water in my waiting area and wondered what that was all about...now I know.
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TGIF - this was a very long week for me. I am happy to say that I have 1 treatment remaining. I plan to bring something in for the technicians on Monday. They are all very nice, and made this process as easy as they can. I am in the 'toasty' stage, not burnt or blistered, but I have to be sure to stay well lubricated. The technician noticed an area in the fold by my armpit that needs more attention.
I haven't had a dry mouth, but my dental hygienist advised me to rinse with Act mouthwash if I experienced this during radiation. My eyes have been a little dry. I'm really trying to drink a lot of water - it seems to help.
We had layoffs at work this week. We knew they were coming. Some managed the news well, some were shocked. The severance is generous, so that helps a little. There will be more next week, so the dreariness will continue. I am safe, which helps right now.
I got my prescription for Arimidex today. I'm hoping that my SEs aren't too bad, I really don't need any more joint pain than I already have - my knees have been cooperating this week!
Hope everyone has a good weekend.
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All you ladies have such busy waiting areas....I am the only one and on occasion will I run into a man who is quite loud and funny. He is fully dressed and his face seems to be on the red side, so not sure what he could be getting zapped for....I go in at 4:00 and they are open last appointment at 5:15, so on the quiet side......
3Monstmama ( is that for three monster for kids? ) if so I love it!!!! I did not sleep well last night and hope this is not a SE as I loved when I had the crazy cheating husband dreams as those were the nights I got the most sleep......
I just finished #7 and am loving the start of the weekend with a glass of wine in hand.......
Enjoy ladies!
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Whew, so glad to have Week One over with. I had much anxiety leading up to today's treatment, which I chronicled in a separate thread in this forum. In a nutshell: the techs and rad onc had been questioning/debating/re-checking my treatment plan all week and not explaining anything to me, and I was getting very worried. I decided that today, I wasn't getting on that table unless the rad. onc. first explained it all to me...and he did! Turns out, the daily conferencing/re-checking was in order to modify/tighten the radiation field so that it is even further away from my heart - which is a good thing! I was relieved, but simultaneously ticked off that the rad. onc. hadn't thought to tell me this DAYS ago, to save me all this stress.
Anyway, today I was in and out in 20 minutes, which is how it SHOULD be...but it's actually the first day that my appointment has been shorter than 45 mins! So I hope they are done tweaking everything now and subsequent treatment sessions will be short & sweet and I'll settle into a routine with it all. I hope, I hope.
I love thinking about you all slam-dunking your gowns.
Today, the bin was so full of other gowns already that I couldn't make that "swoosh" with slamming it down to the bottom. It just plopped on top of the pile of the other gowns and was so unsatisfying. :P And as I looked in annoyance at that pile of gowns, I actually thought about coming here and venting to you about it, HA!!HAPPY FRIDAY, LADIES!!! Yay for rest and a break from rads!!
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Hi All, Hi jeannette;
13 down 20 to go. No real problems yet, I have some really itchy bumps between my breasts and thought they were blisters but the tech said they were more like pimples. She said the hair folicle gets irritated fron the rads and to just put cortizone on them.
I bathed Max before I took him today, not that he was dirty but I just felt he should be really clean to go in to the hospital. Of course he made a big hit but he was worried when I left him for my treatment. They took pictures of him with each of the techs and the nurse. They used the camera that they use to take the pic of us before we start treatment(polaroid). When I left there I saw pics of max tacked to the wall before you go into the treatment area. So every day I will see my little boy there on the wall. One lady wants the name and phone # of the breeder Max came from, so I need to dig into his records and get it for her. It is very hard to find them this small.
I met a lady in the waiting room a couple days ago, had early chemo, so they stuck her in inbeteen so she didn't have to come back later. She spoke to me and asked if I was there for breast cancer and we got to talking. She is 65 same as me and dx breast cancer 5 yrs ago, had a lumpectomy and nothing more, no insurance. Turned over in her bed about a month ago and BROKE HER LEG. Found out it was cancer of the bone and with further checking breast cancer in the other breast. Original breast cancer free GO FIGURE! Right now if I felt like complaining about being stuck with BC I'd shut my mouth and count my blessings. I would enjoy seeing her again but she is back to her regular schedule. Yet we all know that Ca can come back to bite at any time, we just want it to be "NOT ME"
Have a great week end Girls
Flo
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HI ALL MY ZAPPY GIRLS
Isnt it so nice not to go and get zapped, love the weekends.
My mouth is also really dry it has never gotten any better after chemo, its like my saliva glands have just stopped working, I'm drinking around 2 lites of water a day wake up thought the night with my mouth stuck together ,so im snoring even louder ,apparently our room rocks says my husband ,sadely its not from the sex its from my snoring .
ENJOY THE DAYS OF AND BREATH IN LIFE
JOJO
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Hi Ladies,
4 down for me. No problems at all yet...but it's early. I am sleeping very well but with help from lexapro and ativan. Have a good weekend all!
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Hi ladies!
I finally got mostly caught up with reading - I haven't been around this week because my schedule changed and I've had no time to do anything other than working, rads and class.
I had an interesting experience on Thursday...there I am on the table. They zapped the first field, then I lay there waiting for the machine to move over to the other side, and NOTHING. I lay there for about a minute, wondering, until the tech came in and said the computer froze! So she said don't move, we have to reboot the machine and then it will move and treat the other side. I lay there for TEN MINUTES in that awfully uncomfortable position, trying not to move a muscle, until the machine finally came back up and finished the treatment. I tried not to worry that the computer would mess up and give me the wrong treatment!
I'm doing ok skin-wise, no redness or swelling - I actually think my boob is shrinking! They look even more lopsided than before! I just finished my second week, so I guess it's not time yet for any redness or blistering, thank goodness. But I am noticing fatigue. yesterday morning, about 11:15, it just hit me out of the blue. I felt like I was going to fall asleep right there in my chair! I'm doing classroom observations right now, and I tried not to yawn but couldn't help myself. i explained myself to the master teacher that I'm observing, and she was so sweet and understanding. She even said that if I need to adjust my schedule, that it would be fine. Thank God for people like her!
Raili, I like the slam dunk, I think I'll start doing that myself, although by the time I get there (1:45 pm) it's getting pretty full. But I'll do it anyway!
Jojo, I love you, you always put a smile on my face!
June, so funny about the dreams! I hope your sleep gets better. I'm sleeping almost too much - in bed by 9:30 at the very latest, and when I have to wake up at 6:00, I'm not able to jump right out of bed like I used to. I didn't even use an alarm clock before, now I'm pushing the snooze button!
To all my other sisters...I'm so glad we have each other through this time. It's so great to know there are others out there fighting the fight with me!
Blessings,
Shelby
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19 down 14 more to go- I have a tan now and some swelling. I agree that it seems to make me feel dehydrated. I am now carrying lots and lots of water- this seems to help. I just started on high dose Vitamin D- and can't seem to sleep through the night (this did not happen throughout any of the earlier BC events) has anyone had this experience?
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