Part of me wonders

Comments
-
well, I've been wandering around that literature too. My worry is not age but close margins. I have read a lot over the last few days about calculating risks of recurrence, and I have concluded that it is not something I can do by myself. I think margin status, tumor size, grade (all of w hich are very favorable in your case) lower your risks (don't know about your margin), though young age does raise it. How these all factor together seems really complicated. I would talk to your doctors; this is something a radiation oncologist or medical oncologist should be able to address for you.
-
I think being grade 1 I would be OK with lumpectomy and rads. But, I also know that unless you are 'there' it's hard to say how you would feel. It is hard to see a lot of recurrances. Everytime I read about one after a mast I freak out just a little. I try to remember that we hear about them here so much because women come here for support. The ones who don't have a recurrence... we usually don't hear from. Does that make any kind of sense? So, here it seems a larger percent have a recurrance but in the bigger picture it is probably very small.
It's so hard not to worry though!
k
-
Mom,
I think you hit it right on the head.
I hope you don't all mind me posting here. I was orig diagnosed with DCIS but then the diagnosis changed before my lumpectomies (but after 3 months of research
) Personally I got 1 cm margins on ILC & PLCIS and have decided to just wait and watch. It's what makes sense to me despite my age 43 at diagnosis. It's what I'm comfortable with.
If it's going to make you stress...that's not good for you or healthy for you. Don't rush into anything, but go and talk to your doctor or find another one that you are more comfortable with. I went to 2 surgeons, had 3 labs review my stuff, 1 med onc and 1 rad onc before I made my decision. Discuss with a doctor that you trust, are comfortable with and who's opinion you respect what your concerns are and what you can do about addressing them. Seriously, stress can really take a toll on your body.
I'm not saying that I don't think about it. I do, but it doesn't keep me up at night. I think it is normal to have it pop into your head from time to time.
I hope that this comes across as me just being concerned for you...
-
Bless - I, for one, love to hear from other women! Even though we may be different 'stages' we are all dealing with cancer...just don't tell us DCIS girls we don't have cancer! We all need to supprt and help each other no matter our stage.
-
I just wanted to say that I just had a bilateral, but it wasn't because of studies. Every doctor made it very clear that, yeah, the chances are better of recurrence (obviously, as you've still got a breast or breasts) but that it made NO DIFFERENCE in survival/cure rates, and that DCIS in one breast did NOT spread to the other breast, and spread in the same breast was going to be caught, again, early, and dealt with. They told me this over and over. But I had grade 3, and heredity, no chance of lumpectomy on the breast with DCIS because it was so widespread, and knew I would keep getting calcifications that would have to be biopsied on the other. I would definitely not have done this in your situation if I'm reading correctly.
-
I think you're overrating your risk on more DCIS, which laura rightly points out does not translate into an increased chance of death -- just an increased chance of more visits to the doctor.
If the weather report says there is a 92% chance of sunshine do you wear your raincoat, boots, umbrella and keep your kids inside in case they get struck by lightening ? If more DCIS is rain that's an 8% chance.
I might take my umbrella, i.e. continue getting annual mammograms/breast exams, but do I really need to deck myself out in the full rain gear? It's hot, heavy and can be expensive!
It's hard when you are in the middle of diagnosis/treatment to remind yourself that you are not likely to have this problem again. But someday this will be in your rearview mirror.
-
Marianna, I don't have much to add to what laurakay and roseg said, except that I agree. Well, one other thing I'll say is that if I'd had a choice to have a lumpectomy (I didn't - my DCIS was too widespread) and I could have come out of it with an 8% recurrence risk, I would definitely have chosen lumpectomy over mastectomy. No question about it. So if you were comfortable with your decision when you made that decision, don't let what you read on this board influence how you feel or make you question your choice. The women here are not representative. Most women who have lumpectomies for DCIS leave the board soon after rads is over (if they have rads) and in most cases, we never hear from them again - they are off living their lives, recurrence free!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team