Preventive Mastectomy in One Week

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Joanie207
Joanie207 Member Posts: 97
Preventive Mastectomy in One Week

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  • Joanie207
    Joanie207 Member Posts: 97
    edited March 2010

    In one week I will be in a hotel in Boston trying to sleep the night before my PBM. It seems so surreal that right now I am feeling fine and next week I will be recovering from PBM with immediate DIEP. My risk is very high (LCIS, ADH, ALH, family history, .......) so know this is the right thing for me. I have a wonderful team of doctors. But I am freaking out a little bit. I have been getting my thoughts out on my blog which is helpful, but beginning to worry a bit. Has anyone else ever felt this way? Any pointers?

  • LISAMG
    LISAMG Member Posts: 639
    edited March 2010

    Deep breaths as the anticipation and fears prior to surgery are far worse than the actual surgery and recovery, I am told by so many women. Actually contemplating a PBM myself and feel your agonizing pain of the whole process. I applaud your strength & determination in doing what is best for you!  With a significant family history and multiple pre-cancerous findings, it seems like a no-brainer for many women. You are in control and so empowered,,, cancer will never have you. Having full confidence in your surgical team allows for a fully informed decision making process. Sounds like you have it all by having done your own research. I wish you peace and a full smooth recovery. Best wishes and keep us posted.

  • GryffinSong
    GryffinSong Member Posts: 439
    edited March 2010

    I had a prophylactic mastectomy on my non-cancer side and I've never looked back. It was worth it in peace of mind. Hugs to you, and best of luck with your surgery!!!

  • bebe51
    bebe51 Member Posts: 29
    edited March 2010

    I am so glad I found this site.  I have been thinking about it as well.  You, however made the decision.  I too have a high risk family history.  Mother and 4 of her sisters have had bc(9 girls in the family).  3 have BRCA2 mutations including my mom, but one tested neg for the mutation but still has bc.  It has been going around in my head about prophylactic mastectomy so I understand what you are going through.  I have a son (just turned 14) and it is all about being there.  I was just diagnosed with ADH in Feb and yes I am freaking out too. I have seen many Dr's at MD Anderson in Houston and will see my breast dr again in April and we will talk about options.  Lisa has good advice - Deep Breaths. It is a big step and I will keep you in my prayers. Keep us posted and God Bless.

  • Joanie207
    Joanie207 Member Posts: 97
    edited March 2010
    Thanks so much for your support. It's amazing just how much your support makes a difference. Right now life is like a rollercoaster....normal one minute and the next thinking about where I will be in exactly one week. I have been blogging, moreso lately... if you are interested... www.breastcancermom.blogspot.com. It really is an online journal, not much more, but it does describe my rollercoaster in more detail. Thanks again.
  • Stonebrook108
    Stonebrook108 Member Posts: 237
    edited March 2010

    I had a PBM with Alloderm and one step implants due to LCIS back in Jan 09. I have never looked back and said I wished I hadn't done it. I was so stressed out about my future with LCIS and all the testing every 6 months I felt that this was the way to go for me. But, it's not for everyone. It was the hardest decision I ever had to make. So, I set my surgery date and many times wanted to change my mind but knew it was the right choice for me. Waiting is truly the worst part.

    When I woke up in recovery I had such a feeling of peace that it was over. The recovery wasn't that bad. The drains are the worst part but doable. There was really no pain in the breast area. 

    My path report came back saying not only that I had LCIS in the right breast which I knew about but I had a small amount in the left breast too. So, I figured I saved my self from years of stress and biospies. One year later there are days I don't even think about what I went thru. It was the best choice for me

     If any of you want to ask me any questions please feel free to PM me.

    Best of luck

  • bebe51
    bebe51 Member Posts: 29
    edited March 2010

    I know what you mean.  I have always felt I was on a merry-go-round and I don't want to play the game anymore.  Have lots of questions for Dr.  I will check out breastcancermom.  Thanks.

  • cakeisgreat
    cakeisgreat Member Posts: 660
    edited March 2010

    Hiya, Beth...! DIEP recon is difficult, but you can do it.  Everyone gets stressed before the surgery, and in my case I was so sure it was the right thing to do...until a few weeks before surgery.  I was thinking, ok am I being too radical (I already was treated with lump/rads, but I wasnt comfortable with just doing that).

    I am 2.5 weeks out and now that the first week is over (hardest), I can say that I am so glad I did it.  I feel I did everything I could to keep cancer away (not a guarantee of course, but everything in my power).  I wish I could have had that choice before I ended up with cancer (no family history, no lumps, so it blindsided me).   I dont think I was being too radical...I am high risk now because I already got cancer.  So for me it was the right thing to do.

  • cmb35
    cmb35 Member Posts: 1,106
    edited March 2010

    Hi, My PBM w/immediate DIEP recon is also exactly one week from today, and I'm also starting to get really nervous. I'll be at the Brigham, my surgical team is Golshan/Caterson. Where will you be?

  • tweekerbeeker
    tweekerbeeker Member Posts: 93
    edited March 2010

    I had a PBM 1 year and 2 months ago-brca+, no cancer. Yes, the time right b4 surgery is worst. I thought maybe I wouldn't show up the morning of surgery!! But looking back, and even since I woke up from surgery, I  can tell you it is so empowering to know I will not be blindsided with cancer like my mother and sister.

    you are normal. Stay busy, rehearse the reasons you are doing this, and stay on the boards. My best to you!

  • Kimber
    Kimber Member Posts: 384
    edited March 2010

    That's right, stay busy, get everything done you won't feel like doing for a little while.  I am 2 mos out, wearing tissue expanders.  Had some complications with an infection but all in all, the process was easy.  I am a complicated case according to my dr, due to lots of previous scarring, which compromised the blood supply to most of my skin.  But I can tell you the whole process is very do-able.  The reduction in my risk was well, well worth it.  No more mammograms, no more tamoxifen, no more stressful monitoring....  I have NEVER regretted my decision.

    My Best to You! 

  • Joanie207
    Joanie207 Member Posts: 97
    edited March 2010

    You all are so inspiring. This is just what I need right now. It's like a moment to moment thing. One minute up, one down, one worried, one scared...... you all understand. This whole thing is NEVER far from my mind.

    Cakeisgreat, I was so calm and collected about this whole thing until it got closer, then I got cold feet when my surgery was postponed from March 15th to March 29th. Now I am relieved that I have the extra time. But that time is getting very short. Fear is creeping in, but I am reading a Preparing for Surgery book that has lots of advice on positive thinking, so as Tweekerbeeker says, I will be repeating these positive statements....

    Thank you all so much.

  • tracys
    tracys Member Posts: 1
    edited March 2010

    Hi 

     3 weeks ago last Saturday I had a PDM with LD flat reconstruction , I was very high risk too.  I sympathize with how you must be feeling, I too knew I was doing the right thing but I was worried sick, I had never had a op of any kind so was worried about everything, the actual op, the pain involved, how I could cope looking after my 2 young children and how I would look after wards.  For the week leading up to my surgery I couldn't sleep, I had constant indigestion which I am sure must have been stress and I would break down in tears every time I looked at my girls.

     All I can say to you now is I am so glad I am this side of surgery, the op went really well, the pain was nothing like I had expected, with a bit of help taking care of the children isn't a problem and already I think they arn't looking too bad.  For me the worry was far worse than the actual surgery.   

    Good luck next week.

  • Joanie207
    Joanie207 Member Posts: 97
    edited March 2010

    Tracy,

    You sound like me. I have never had more than an excisional biopsy as far as surgery goes, so have a great deal of fear surrounding the whole thing. I know I will sleep through it, but I know it's long, I know the potential complications, etc.

    Last Sunday we had friends over for a potluck "feed the flap" (DIEP flap) party. I want to make sure that the PS has enough material to work with. One friend brought this beautiful canvas she made with "Brave Me" painted on it, so when she gave it me I cried. Other friends gave me things too and each time I cried. The tears are so close to the surface.

    I have two little girls (7.5 and 4). It will be so hard to say goodbye on Sunday. The four hour drive to Boston will be very hard, but probably not as hard as the walk over the hospital in the morninig.

    Thank you so much for sharing your experience. It really lifts me up to hear success stories and of how much better it is when the surgery is behind you.

    Thank you.

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