March 2010 Chemo Start
Comments
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hi ladies
the new anti sickness meds have worked yeahhhhhhhhhhhhh
feel like a new women this morning not been sick once last night so managed to get a good nights sleep ( just what i was needing )
good luck to all starting today if any
just update on my stats
my name is alison i am 34 with 2 girls aged 10 and 5 today ( happy birthday baby ) married to my lovely husband for 7 yrs been together 17
found lump, got biopsied new yrs eve , results back IDC , no family history, left mastectomy 25th jan full node clearence, ct scan 2 small noduals found in lungs to small to biopsy these are going to be monitored but could be nothing lets hope so guys.
chemo fec and tax
radiation to follow
reconstruction
then back to getting on with enjoying my life with my hubby and girls oh and my dog
xxxxxx
]
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Hi Alison34, glad to hear you/re feeling better. I too have the pesky 5mm thing in my right middle lobe of my lung - they're going to correlate the CT with MRI breast to see if they can get more info, but otherwise, it's rescan in 3 months, and treat it as nothing for now (too small for PET), maybe small area of postop collapse/consolidation.
I'm just happy the FEC angels are scooting around my body in their turbo plasma, smashing cancer cells left and right, kerboom, pow. Perhaps the steroids are having a minor effect on me, might be time for an ativan,
goodnight all, sweet dreams,
Lisa
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Absolutely Lisa, your words are great. I''m so grateful I can enter this space and feel such a strong connection to those who are as challenged to the nth degree as I am as we share this most significant and important time. But it's magnified above and beyond the medical, the personal, the spiritual. I feel I'm here with my bffs and we can talk about anything and I thank you all so much. EZH thank God for your wonderful gyno and it's so great that you did do the self exam. I mentioned earlier, I neglected to do that...the most important check of all. I had all the confidence in mams as my first one, .5 dcis positioned very high, was a miracle the tech captured it. All the confidence in yearly mams for 18 years...10 months ago it didn't see the 3cm one. Great advice Suzanne, I know you're right about the ativan. It's craziness I'm more afraid of its addictive properties than I am the iv bombs. This chronic sleep deprivation is just not a good thing. Lovemygarden, so sorry to hear about the bp situation, that must have been a real scare. Hope that never happens again. I was curious also...were the cold hands and feet very uncomfortable, especially adding more hours? Glad to hear when it's going well for you all, love the bios.
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Pardon my rudeness, here's mine...Bringing up the boomer kaboose, I'll be 64 next month, never married, exclusive bf for 30 years, never see, he doesn't drive, about 50 miles r/t for me, talk to him every day. Came to Massachusetts from Glasgow, Scotland, 1955. Med tech training school, 18 months, did that for many years then secretarial. Love animals, life and especially kindness. I'm sorry to say I've lost my family. My wonderful and beautiful sister to ovarian cancer in 1988. Then my dear parents and last year my sweet little cat, who sat on my lap every day for 16 years, she was 18. I have two very kind, dear and supportive aunts in Australia and cousins there as well. Enjoy bustin' a move to my internet pop latino station, Beyonce ain't got nothin on me! Love chess.
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hereandnow
thats just what i have to do 3 cycles of fec then re scan theres always something isnt there
lets just hope for the best thats all we can do and if we get the worst we have to deal with it dont we
hope yours and mine is nothing xxxx
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Good Morning Sisters,
It's great to hear from you guys and know a little more about you. Sorry to those who are not doing well but this to shall pass. To those of you who are near our 2nd cocktail, remember to hit it head on. We "kinda" know what to expect so put the gloves on and beat it down! I go on the 23rd.
BarbK - I had very curly hair to just about the top of my shoulders, and my scalp started to hurt around day 12/13 and my hair was also falling out in a few strands. I finally made the decision to have it shaved on day 14 because I took control and not the cancer. It's not going to beat me and I will have the upper hand. My stylist said when she was finished that my scalp was inflamed and that is why it hurt, just from the weight of my thin hair.
Wishing everyone a non SE weekend - it is suppose to be sunny and 60 here.
Sending Hugs, Kisses Good Vibes and Prayers to all my Sisters - Stacey
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Hello Ladies, Hope everyone is doing well.
Allison - Great to know that the new nausea medication worked. Happy birthday to your little girl!
Frosty - Hope your feet are better
EZH - Thank you so much for giving me hope that it gets better. Sorry to know about your genetic result. But there is hope. I am sure you have read about PARB inhibitors which are being tested on us BRCA mutants. Soon we will have a targeted therapy of our own.
I am actually feeling much better today. I slept early yesterday and the additional hrs made all the difference. I guess no more late night movies for me till chemo gets over. I do nap in the afternoon but I didnt realize that staying up was making me more tired.
Good luck and warm wishes to all.
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It's just after miidnight, and I really should try to have a sleep, the ativan settled my buzz well, and the wonderful chemo nurse has said to have another if I need it to sleep. Well, my right side is still a little to sore to lie on for very long, and the PS blew my TE up another 50ml yesterday, so it's sitting out proudly with a big 200cc [and a little cleavage -not in just the right spot unfortunately} but a llittle sore because of that.And there's a drip on my left for hydration -so it looks like I'm a back sleeper tonight - goodie.
Alison 34 - I find that I'm coping with all this with my practical Lisa personality, right then, nothing we can do about that, move onto next thing, gather information, make decision. And then every once in a while, I go and find a quiet place and howl for 5 minutes, then practical hat comes back and back I go to coping.
Through some magical trick of optimism, I have decided that those "things"will be nothing, so feel reasssured for now. I agree, thats all we can do. Good to talk about it though.
big FEC #1 hug to you all,
Lisa
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I went for my chemo treatment on Tuesday and they sent me home! I am still not recovered from this darn cellulitis that has been being treated with three different antibiotics (two at once, now) and they can't proceed until it is gone! So frustrating! I will call the onco on Monday to describe the color of my chest and he will decide if I should begin my pre-treatment meds or not. I know cellulitis can be difficult to heal, but gheez this seems to be taking forever. Now because I'm on such a strong antibiotic, I will look forward to a yeast infection soon. They already gave me the medication for that! All in God's time will this unfold, but it is difficult to accept at times. Thanks for listening. I am also very encouraged by the postings here. Not as afraid of chemo as I was. That is such a comfort and I appreciate reading everyone's feelings and thoughts. Praying for all of us March sisters! Karen
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Well, I was doing fine till about 7 pm last night, then suddenly shaky/dizzy/slightly queasy. Grabbed some flat ginger ale and oyster crackers and spent the next 4 hours on the couch watching CNN, FlashForward, and Project Runway feeling like I'd been hit by a truck. Spent a shaky/dizzy night, got up at 7:30 thinking "If I didn't know better I'd say I'm dehydrated, because that's exactly how I'm feeling." Then realized what I must have done by drinking 6 qts of water Weds and 5 qts yesterday... flushed out all my potassium, sodium, electrolytes... just like what happens when dehydrated/vomiting/runs. Too much of a good thing I guess. So I opened a bottle of Pedialyte and slowly drank that over the next 2 hours. I'm not as shaky anymore so I assume that was the problem. But I still have to go sit down for 10-15 mins after doing the slightest thing, like washing a few dishes, on my feet. It feels like everything's a huge effort and needs "recovery time" afterwards. Like being weak as a kitten. I guess that's the Herceptin?
Luckily I have been able to sleep more or less normally, though not as many hours as usual.
I'm already concerned about my bloodwork. For some reason my WBC and RBC dropped to below normal from what they were on my pre-surgical tests 6 weeks ago, to the one they did Wednesday BEFORE my first chemo, and I have no idea why. Before surgery my WBC was 5.3 (middle of normal) but Weds a.m. it was only 3.8 (which on my onc's chart is below normal of 4.5 to 10.5 although the pre-surgical lab's chart says normal is 3.8 to 10.5). But still that's a 1.5 drop which to me is worrisome and for no reason. My pre-surgical RBC was 4.71 but on Weds it was only 3.99... another mysterious drop. Both marked "Low" on the printout I got from the onc, as were the LYM# and MPV. At least the platelets (PLT) are still within normal at 206, though they were higher six weeks ago at 250. It scares me to think that I was already "low" on the WB and RB before even getting any chemo, when I was fine on those just 6 weeks ago. :-(
Since I'm on a weekly regimen, unlike most of you who are on 2 or 3 week cycles, I was told this was "easier" on the body because of the lower doses, but I gotta say, this stuff has just knocked me for a loop since last night. I hope it gets better over the next day or so because right now I feel too wiped out to handle anything. Bummer. :-(
Julia257, the gloves/slippers weren't that bad at all. Other than not really being able to use my hands normally because all the fingers are encased in this giant thick mitten! -
Okay, here's my story. I am Sandie, the K9 part of my sign in name refers to my love of dogs. I currently have 2; a Lhasa named Violet and a long-haired dachshund named Sam. I moved to Seattle 2 yrs. ago from Boston, and had 4 dogs at that time. Drove across country with 4 dogs and my new guy - great trip! Bought a house on a hill with a pretty good view. Life was idyllic! Then 2 dogs were diagnosed with cancer in the same week. (Foreshadowing in a bad novel.) Harriet Ames, long-hair doxie, had melanoma and Henry Fussy, Basset Hound, had multiple myeloma. We took care of them for a year and a half, become good friends with all the vet oncs in Seattle, and put them down together in our living room when they'd had enough. Then it was my turn!
I'm 57, was married to a physician for 25 yrs, have one son who is 27 and newly married. After the divorce I spent over a year preparing my too-big house for sale, met the man of my dreams, sold the house for huge amt. over asking price, traded the beetle convertible for a passat wagon and headed west. Soon after moving in we hired 4 goats to clear our over-grown back yard, and one decided he belonged to us, so the owner gave him to us. Baxter the Pygmy goat now holds court in our backyard and is so sweet; very dog-like in his affection and responsiveness.
My cancer was active for a long time; large mass that was painful. I'd been binding my breasts at night so I could sleep. Unfortunately, not all masses can be seen on current diagnostic modalities. I had mammo after mammo, ultrasounds each time. The mass was behaving like normal breast tissue. ILC is rarer than IDC, and thus tests haven't been designed to find it. Finally found a nurse practitioner who facilitated a biopsy, and here I am. This 6 cm tumor doesn't show up on MRI, either.
Anyway, I'm practical about it all. Find it ironic I was married to a radiologist all those years, and in the end it was radiology who "failed" me!.
It's great to read your stories and know each of you is out there, caring about us all. What a cast of characters we are! All so different but sharing our most intimate fears and physical ordeals. This would make a good movie. I read an article recently about 4 women who celebrated beating some very tough cancers in Naples, Florida, all gratis at the Four Seasons. I think we should book rooms now for our survival!
xxoo Sandie
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Sandiek9: Your story really is one that is so touching in every respect. You don't even need us to make a great movie. You've got it on your own! Count me in, along with I'm sure many others, to meet each other in person for a huge celebration of our big WIN!! I feel so close to so many on this board already and look forward each morning to see how everyone is doing. I love each and every one! And I wish and pray for nothing but the best for you. I love your love of dogs! I love them too! I had a yellow lab named Daisy that died when I was in the hospital having chemo for my first cancer seven years ago. I think she knew how sick I was and she just gave up. She was old. We now have a beautiful little lab (2 yrs old) named Lilly, hence my screen name. My real name is Linda and that was taken as was LindaC, so I choses LillyC. She is my constant companion and my husband calls her "my nursemaid". So devoted...both Mr.C and Lilly!
Day 3 after 1st TC treatment and Neulasta shot yesterday: Feeling good; no bone pain or really any pain at all. Will be off anti-nausea and steroids tomorrow - wonder if that will make a difference. But for now, enjoying today, beautiful weather here in VA, and thankful for everything - especially all of you! God bless!
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Added my diagnosis - Lumpectomy ,micro traces found in sentinel node, reincision for clear margins, port, Oncatype 22
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Hi Love my garden, don't worry too much about the disparity in your blood tests, they will be affected by your degree of hydration when you took your test. When you're well hydrated there's more fluid in the intravascular space where most of your red cells, and white cells are floating -so they will be more dilute in that fluid, than if you were fasting for a blood test or just not well hydrated (hydra = water).
Similarly, by drinking lots and lots and lots of water, you can actually make your electrolytes (sodium in particular) dangerously low (in that the sodium is so diluted in the water in your vessels, that its concentration drops), which can lead to quite serious problems, The problem then is too much water, so you were completely correct in your electrolyte replacement strategy- smart. Probably good to check with your onc safe quantity limits for hydration. I've bought one of those water filter containers and am going to aim for 3 litres/day.
We are a resourceful bunch hey?
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hereandnow, thanks SO much for the information on hydration affecting blood test results! I had been wondering about that but couldn't find any specific answers via Google. And you are correct: When I had that pre-surgical blood test in late January, I was drinking only 2 qts (a bit less than 2 litres) per day, and had maybe 1/2 quart, if that, before the blood was taken; but during the last 6 weeks between then and Tuesday I have been drinking 3 qts/daily to prep for chemo. I'd already had 1.5 qts before walking into the onc's office on Wednesday morning! And by then time I went to bed that night I'd drunk 6 qts... double my normal intake.
The shakiness hit me yesterday after I'd had another 4 qts and stupidly I drank another quart afterward because I thought the SE was from one of the chemo meds!
I think my strategy from now on will be to stay at 3 qts/day except for one additional quart on Chemo Day and the day after... but I'll ask my doc if it's okay, and if so if that additional quart can be Pedialyte to guard against electrolyte loss. My diet contains very very little salt anyway, by choice; when I do use it, I use "Lite Salt" which is 50% sodium chloride and 50% potassium chloride. So my doubling my usual water intake for almost 24 hours I probably flushed most of my electrolytes out! -
Start 3/9/10 Taxol & Herceptin weekly for 12 wks
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Start 3/9/10 Taxol & Herceptin weekly for 12 wks
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Day 2, not so bad, horrible taste in my mouth and cramps from my period that started today...oh yay!
My stats: 45 years old, newly wed Lesbian (I was reading on the other forum and it seemed they just wanted to talk about gay issues, not BC sharing soo.....) I have a 24 year old daughter, 2 dogs (one of whom is paralyzed from the waist down and I find that having more time with her is a blessing!) 3 cats.
Found the lump 9 months before I did anything about it. Here I am, and I'm in a much better place than before! I may not write a lot, but I read, and you guys are wonderful!
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Hi again, home now, and feeling a little tired but I think it has more to do with laying on my back all night in a bamboozle of dexamethasone and ativan. Taking my anti nausea tablets religiously, and so far so good. I've just picked some beautiful capsicums from my vege patch, and an eggplant, and I'm going to make a modified chili con carne (1 little chili only boo hoo). I've got lots of little storage containers for snack pack chili - comfort food and It's a nice quiet thing to do in my daze.
I too love my garden, Lovemygarden, and I'm going to get some soft glove liners for my thick gloves so I can carefully continue - it's my zone out zone -I go and talk to my snow peas, encourage my silverbeet, and generally commune, so I'll just have to be a bit careful.
I think you're wise to chat with your Onc about the water intake, particularly because you have a low sodium intake anyway - doesn't hurt to get some advice, and cutting that back from more than 6 litres/10 litres down to 4 sounds right too. The hyponatremia happens with large water intake, and the kidneys get to a point where they have trouble peeing it out, so your sodium isn't peed out, it's diluted down in all the water still inside. Weird hey? isn't the body amazing? It does like balance thats for sure, and gets a bit confused when we change things too much. But hell, my cupboard looks like a pharmacy, and I won't even tell you about the bathroom. We're the queens of change management.
Hope everyone is going OK today.
Lisa
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Welcome knotes!
Wow! So much going on with all of us. I'm enjoying my normal week, not looking forward to starting this process all over again next week. It is almost like Groundhog Day. At least I hope it will be ... same SEs, same days, same fatigue. That I can handle.
So sorry some of you are having trouble. But now you know what to expect and can better manage on the next go-round.
Lovemygarden - 6 qts? Really? I'm shooting for 3 and that is hard. I really have to watch it now working again as I'm not drinking enough.
All of your stories are amazing. SandieK9 -- where in Seattle do you live? I'm over near Factoria. There is a Crazy Sexy in Seattle discussion group that meets quarterly. They are great -- I just met them for the first time this week. And surprised -- you are just "up the road."
Have a wonderful, restful weekend to all. Know that you will get through this -- take charge, rest, and make others do for you. You deserve it!
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Hi everybody. I had my first treatment today (TCH), and it was pleasantly uneventful. The facility was very nice and had all the comforts of home. I love my onc, and the nurses and staff are wonderful. My father came with me, and it was really nice having him there. The only "excitement" (if you can call it that) was while I was getting the Taxotere. Dad noticed that my skin started looking pale, especially on my arms. He brought it to the nurse's attention, but she didn't seem too concerned by it -- I wasn't that pale (just enough for a father to notice), and I wasn't having any other symptoms. I did notice later that my normal color returned after the Taxotere stopped. Wierd, but whatever.
The anti-nausea meds seem to be working well -- knock on wood. The only symptom I've noticed so far is a sort of crampy/achey feeling around my abdomen/lower back/legs. It feels like I normally feel around the time my period would start. But I haven't had a period in nearly a year, so I'm not sure what to think.
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Hi all,
I can't believe I'm actually doing this chemo thing...it was so hard for me to decide to do it, and then I got derailed for about 6 weeks because of a horrible staph infection (I understand all the waiting/antibiotics, ThereisHope, and hope your cellulitis clears up very soon). It felt like I lost my momentum, so the past week has mostly been spent not sleeping in a state of high anxiety. yuk.
I start TC (Taxotere) x 4 on 3/25. I had chemo ed with the head nurse yesterday and I just did not like her. I'm hoping it was just a bad first impression!
I don't remember who asked, but Taxotere and Taxol are different drugs -- they are both taxanes, so related, like penicillin and amoxycillin. I don't know how they choose though.
I take Benadryl and Decadron orally before I start, not sure what's in the IV bag besides the TC, and then I'll go in 4 days in a row (sigh...90 minute drive RT) for Neopogen injections. I asked why, and nurse said Neulasta is like 11 doses of Neopogen and with this regimen I should only need the 4.
And me? I live in Los Angeles, am 43 with a wonderful partner of 5 years and a herd of cats. I had my first mammogram in November and they found a 1.8cm tumor, stage 3 -- so luck or the universe was with me, because stage 3 grows really fast and I don't think I would have had a mammo this year if I'd had one last year. No cancer in my family, either side, and I'm generally a checkup a year kind of person (if that). Luckily I squeaked by with a lumpectomy and clear margins on the first go, so my only real setback was the staph infection, which landed my in the hospital for a week.
Happy weekend to all!
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teemee, did you talk to the head nurse about the ice mittens and ice socks for taxanes? Just interested to hear. Apparently at my clinic they supply the ice mittens for taxanes, but not the boots. I'm thinking of buying a cheap eski from kmart for $15, picking up a bag of ice, and dip my tootsies in anyway.
brrrrr
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Thereishope, hi Karen, I've been thinking about you and hoping the cellulitis is gone now and that they can get on with the good work for your good health. Frosty, the Crazy Sexy Group sounds fascinating, I just can't imagine what you would talk about!!! Hope you have a great weekend also. I just love to hear about all the cats, dogs, horses, the pygmy goat, how sweet. Lisa, I agree with your practical, intelligent approach to it all. In actuality there's no other way. We have to deal with each step in the best possible way for the best results. Be in control as much as we can and be strenghthened by the best First Aid there is, lovingkindness from our friends and loved ones. Have laughs and fun this weekend, oooxooo
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Lisa, you have solved another mystery for me! Ever since I upped my water intake from 1.5 to 3 quarts per day, I've wondered why despite doubling my intake I was not peeing any more often than I had been when drinking half that amount! I was expecting to be running to the toilet every hour but no... it was the same old "4 times per 12 hour day". So I could see that my body was/is holding onto that extra H20 for some reason, despite my low dietary salt intake....but had no idea why. No wonder my pre-chemo blood work differs so much from my "old water habits" ones!
About the ice booties, do the stores in AU sell those therapeutic gel packs that can be frozen but still stay pliable, like the chemo gloves? I'm thinking maybe you could make your own cold foot covers by securing them around your feet with some of that long elastic "Ace bandage" material. Maybe the clinic would let you store the gel packs in their freezer in between treatments along with their gloves.
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Hi everyone,
I started chemo on 3/9. Cytoxan/Taxotere, four treatments, every 21 days. See some with similar experience to me. EXTREME nausea set in day 3 and 4. My treatment team is very adament to call if you have bad nausea as they can adjust/change up meds to make it better. They tell me I should not be that sick and they were right, once they made adjustments I was at least 90% better. They said all along to call immediately for anything and I waited and suffered for it. They also recommended getting out to walk - though I did not feel like I could or wanted to do it I absolutely did feel better after taking a walk and getting some fresh air. Hoping next round will be much better and I will call for sure if I encounter that extreme nausea again. Also had the Neulasta and experienced the aches and pains but even just taking tylenol helped. Don't know if anyone else geting TC and Neulasta experienced headaches (I did) but they prescribed Tramodol for it and it worked miracles!! Thanks to all for all the info shared here, helps to hear I'm not alone in this battle and that what I am feeling/experiencing is normal. Good luck to all!! Stay strong and keep up the fight.
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Day 3 after Tx, I can feel the fatigue starting, no nausea, and a touch achy, but nothing I can't handle. Ativan has been wonderful in allowing me to get the sleep I need to TRY and feel my best. I am considering myself VERY lucky so far with minimal SE. Then again, it's only day 3.
It's a beautiful day in Ohio, I'm hoping to take a walk. I understand it helps with some SE.
On a funny side note, my husband pampered me a little last night and painted my toenails. This morning he painted his OWN a BC pink. What a funny show of support...He's wonderful!
Hope all you are having a good weekend. Bigs hugs to you all.
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Ana1973 - I think we are on the same chemo and same schedule. I am Stage II IDC micro in one node and started TC X 4 on Wednesday, the 17th. Same slight side effects as you have had. Today is my first day without Decadron and Emend. I feel a little weak, a little indigestion, but everything tolerable. It's a beautiful day in Virginia also . Did your doctor say anything about being in the sun? We are driving to a river house and will be outside a lot, I'm sure. I have a wonderful husband also, but no pink toenails on him yet. That was so cute and sweet of your husband to do for you. Love it!!!
Wishing everyone a good weekend with little or no side effects. Just think - another week done!
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Sunscreen, sunscren, sunscreen! Many of us our lucky to have beautiful spring weather this weekend and sunscreen is in the forecast. With chemo it is especially important. One thing I have read is that some of your age spots and other skin spots will clear up with chemo. I did have a small bout of acne, which I understand is common as well.
I'm still swelling, so hoping this weekend getting out and being more active will make a difference. Still have full hair (well ... the 1/4" that is left after I shaved it off), but noticing it is dropping from the legs and pubic area. Some go top down, I'm going bottom up!
A wonderful weekend to all!
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