January Mastectomy

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  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Well, I will say THAT is one problem I don't have, Paula Wink

    blessings....robin-no-breast

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Photobucket

    Gina and I went to a BC fashion show tonight sponsored by one of the local hospital oncology departments....my daughter went with us and took a picture of us before we left. Here we are :)

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    whoops....we keep trying to edit this so you can see Gina.....but the banner thing keeps covering her up.....we'll try it again....sigh.  sorry..

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010
    Photobucket  take two...
  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    p.s. sorry the pics are SO big....we kept trying to work with these to get them smaller, but I'm too tired to keep messing with this any more...full day of work tomorrow...need to get rest to keep  up with four classes of 5th graders and two classes of 1st graders, especially since it's the last day before spring break!!  The kids will be wound up for sure!!!

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited March 2010

    I LOVE LOVE LOVE LOVE LOVE the picture.

    Our first team-January meeing IRL!!!!!

    Love it!!

    Love it!!

    xx00xx00xx00xx

    from the ocean: where there was a smidge of sunshine today.

    take care of each other.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    That is such a nice picture of the two of you.  How nice that you are close enough and able to get together like that.

    I saw the oncologist yesterday and he has convinced me to just let it go about the reread on my pathology. I totally trust and like my oncologist. One thing that he said that made me agree, is that since I was enrolled in the clinical trial, the hospital would have likely already performed a reread on my slides.  So a decison needed to be made on whether or not to do chemo without the benefit of the test. Both he and I agree, that in my case due to the size of tumour, no node involvement, not to do chemo.  He would like me to take tamoxifen, so I have asked to have my blood tested to see if it will metabolize tamoxifen properly.  He said he will send it to be tested. Did anyone else have this test done?

    We have also been enjoying especially nice weather here Northwestern Ontario, but they are calling for snow on Sunday.  Too bad, I have already put the skiis away.

  • ReginaR
    ReginaR Member Posts: 287
    edited March 2010

    Hey Jan gal! Hope you all are feeling Stronger everyday ((hugs))

     Thank you Robin for getting me out. It had only been one week since Hospital stay, So I am  very tired, but it was so worth meeting Robin.It was  nice event  & surrvivor swimsuit fashion show  & many survivor told their story & I was finally going have a day with out crying since my TE removed & then I got choke up after hearing  about their Journeys! It was so nice getting out I wore my softie for the first time,  But I had it off as soon as we were back in the car  and heading home. LOL!  Thanks again Robin! Have a great time In Gattlinburg on spring break!

    Jan girls have a great weekend! xoxoxo Gina

  • frosty1
    frosty1 Member Posts: 420
    edited March 2010

    My foob doesn't bother me, but my wig comes off as soon as I get in the car!  I feel like I'm wearing a too tight hat all day and constantly worried that it is askew.  Feeling great though ...

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2010

    The photo is wonderful!  How great you two are near each other and can meet in person and do this fun event! 

    still can't wear a bra at all with my one TE in place more than about 3 hours.  I can't take it and wear big baggy clothes.  I'm so uneven right now anyway so it does help cover that fact up at least.

    For everyone able to go on spring break I hope you have a nice and restful spring break and not full of doctor appointments and medical drama and can just relax and have fun like most people do!

    I

  • neversurrender
    neversurrender Member Posts: 508
    edited March 2010

    Robin and Gina - nice to see you !   The first Team January meeting :) 

    Gina, glad you were feeling well enough to go out.

    Debbie, how is the infection going?

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited March 2010

    Sally I took my final antibiotic in the secind series last night....hoping and praying it was sufficient.



    In its wake I am left w much bruising and fluid retention. So I'm actually in more pain now than last month.



    I have an apt w my OH BS on wed so we will see what insight he has to offer.



    I will count on the strength of angels to get me thru this weekend.I was in tears this morning at leaving the "safety" of our friend's home to head to the conference this afternoon. Twill take my happy pills as needed, to get me over the first hurdle.



    Hugs to each and everyone on our team and anyone reading along.



    xx00xx00xx00xx



    Strength and courage.

    Strength and courage.

    Strength and courage.

  • jizogarden
    jizogarden Member Posts: 375
    edited March 2010

    Ronin and Gina...so nice to see you out together :)  Sounds like it was a  wonderful experience for both of you. Gina I cannot believe your strength and bright smile after just being through such a difficult time....I am sooo impressed with your spirit!

    Strong ladies gather here :)

    The weather has turned beautiful in NY.  I want to pick up the rake and start cleaning out the garden beds.  I love gardening and working in the yard until I'm in a dripping sweat.....this year I'm going to have to learn to ask DH for help.  I am trying to practice patience.....I'll stick to the lighter chores :)

    Good day to all...closer to comfort...closer to healing......

    Laura 

  • ariesrottie
    ariesrottie Member Posts: 260
    edited March 2010

    Enjoying the weather I hope MY JANUARY SISTERS????? I am . Feeling much better today from yesterdays ordeal..Thank goodness...

    Gina And Robin.,... Nice to meet you and see how wonderful you two look.

    Hope everyone enjoys the day....

    Just stopped by to say hi!!

    {{HUGS}}

    Donna

  • bookart
    bookart Member Posts: 564
    edited March 2010

    Good to see you both out, Robin and Gina!  It's nice here in TX today - 70's, and tomorrow night they are promising 30's and possibly snow.  Good ole Texas weather in the spring.  A friend came over and planted my spring garden - now I need to cover the tomatoes and peppers.

    I had the good fortune to wrench my back in my sleep yesterday morning, early.  I'm not sure how I did it, just know I woke up yelping.  Back dr putting me on steroids, celebrex, muscle relaxers, hydrocodone.  I'm either floating or in pain.  Whoopee.  I keep telling myself the mantra my therapist gave me - Bless this back, bless this arm, bless the chest (etc) and I love my back, my back loves me, etc.  I do actually relax some when I keep that in mind.  I still managed to work most of the day, but it got tough towards the end.

    Debbie - good luck with your travels, and your travails - I hope the antibiotics kick a** and you feel better.

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Gina and I, along with my 17 y.o. daughter Rachel, had a really nice time last night at the BC fashion show....Gina was a real trooper!!  She is one brave, giant-spirited, talkative, fun lady :)   She had sat outside yesterday reading, so she had gotten some sun.....she wore her little bumper pad/softee/foobie thing....I was my typical flat-chested self.  I STILL have not come to the place I can come to terms with getting fitted.  I talked to one of the vendors at the event last night - they own one of the boutiques in town who do fittings and specialize in this - and I started tearing up!  ARGH!!  I haven't cried in weeks (well, at least one week....)  Somehow, right now, it's easier to not face the prosthetics...don't know why.  Seems a little silly, I guess. 

    Oh, and there was a purse seller lady there who was selling the CUTEST purse....oh gals!  It is a Beijo Pinky Promise purse....it's pricey though (out of my league!!)....$95.00!! (if you order through a consultant, she gives 10% off to a survivor)....go to www.beijobags.com to see a picture (NO, I am not a consultant/seller/whatever...not giving a party either....Gina, Rachel, and I just thought it was too cute!!)

    Glad others of you are getting some of this sunshiney, warm weather...it's about time, isn't it???  Ours isn't supposed to last though...sigh.  But it sure has been a moral and mood booster while it's been here!!!

    Grateful for spring break next week.  I know I've only been back to work for three weeks, but I am bushed.  Seems a little silly since I was off work for two months before that, but we ALL know that was "such" a vacation....ha!  And even though I was off work, I didnt' get to rest as much as I needed or should have....I was still sending in lesson plans for subs, and I was still homeschooling my own children here at home.  No rest for the wicked, I guess....Ahhh,but next week, I will rest...and sleep...and read...and rest...and relax...and hopefully hike a little...and read some more,,,,,maybe shop (if I can find some bargains, because goodness knows I owe my arm and both legs to the hospital, doctors, and numerous other medical offices...)

    blessings to alll....praying for all without ceasing (even if I don't mention YOUR name or YOUR condition specifically on here...know that I AM mentioning YOU to the Father above!!)...robin

  • burley
    burley Member Posts: 631
    edited March 2010

    I don't know what it is, but my TE's hurt every morning now!  I've only got 200 cc's in them too.  They're not tight anymore (from the last fill), but the sides of them are killing me.  And my armpits hurt as well.  Sheesh.

    Lovely, sunny weather here-enough that I got a sunburn from pulling weeds.  Ooops.  I think I'm more sensitive to the sun from the chemo.

    I seriously need something to pick up my spirits!  I'm terribly bored from being home all day with no one to talk to.

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Kim, I'm not sure that the TE"s have anything to do with the sore armpits....right before I saw your post, I was rubbing my armpits and commented to my daughter how sore MY armpits are/were.  I don't get it....I'm sorry your TE's are making you so sore.  I keep thinking I should be feeling better than what I am, but I tell ya what, I'm getting an awfully lot of sharp stabbing kind of pains along my side, my pits feel knotty and they hurt, and my chest is still tender, too....You would think (or at least I  did that after two months, this should be going/gone away).....hope you'll be able to get a good night's rest tonight, and you'll awaken tomorrow WITHOUT being sore....

    blessings...robin

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2010

    Kim and Robin:  I hurt  under my arm too sometimes as well on my surgical side.  I think it is the TE pushing on nerves up there or something.  Since I'm all "filled" now, mine seems to be huge and a rock inside of me.  I had my husband bring me a valium after I did my therapy tonight to see if they will relax some.  I can hope. 

    I did have 2 nodes out though too and I have heard that in itself can make you sore too.  When I had my first lumpectomy my upper arm (including the armpit) would get very tight and sore.  I don't know if I was developing a slight case of lymphedema or what it was.  That's all I can think is going on.  If it keeps up too much and bothers you, make sure to ask your doc when you are at your next appointment.  They all seem to know about it even if it isn't their specialty from what I can tell. 

    Hope everyone has a great night! 

  • neversurrender
    neversurrender Member Posts: 508
    edited March 2010

    {{{Debbie}}} I hope your fluid retention eases and your pain disappears. 

    {{{Donna}}} I am sorry you have to endure so much.

    Robin - When should you recieve your BRCA results?  Enjoy your spring break.  Will you be traveling anywhere?

    Cathy, Yeah for no chemo!  I'm glad you have an onco that you like and trust.  Having a dr you like and trust makes things so much easier.

    Gina, how are you feeling?

    I think DH and I are going to go out to lunch and do a little shopping.  Then spend a pizza and movie night tonight with our girls.  I hope all of my Team January sisters have a wonderful weekend. 

    {{{{Team January}}}}

    Strength and Courage !

    Never Surrender !

    Sally 

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    I am thinking having the nodes out MUST have something to do with the armpit pain....I did ask my BS at my last visit about the little knots I felt under both.  He didn't feel anything abnormal on the side where only one node was taken, but he did feel the knots on the side where four nodes was taken, and he said, "yeah, you can blame me for those", and then said something about healing, and things getting in knots, and I didn't catch it all - I thought my daughter was listening, but she wasn't....sigh.  Normally I'm really good at listening and catching everything, but I must have gone into "fog mode" or something....but I DO know it had something to do with the nodes being taken out.  So, I would think the tenderness/soreness/pain would also have something to do with it.  Guess it's all part of the healing process.  He also mentioned six months for healing, so I guess, if after six months I'm still feeling all this weird stuff, I'll ask him again - or I'll look for the looney bin, because it's all driving me crazy.  (I don't have TE's.....bcincolorada).

    Sally, I'm guessing I should have only another week to wait for the genetic testing results.  I ran into the genetic counselor at the event Gina and I went to Thursday night, and she remembered me, and she said probably another week or so....and YES, we are going away for spring break!!  Leaving tomorrow...I SHOULD be packing right now!  ha....Going to Gatlinburg, Tennessee (Smokey Mountains)....my parents bought a timeshare down there - although daddy now gets to see the mountains all the time from heaven, mom still has the timeshare, so we're going down there together.  I am SO ready for this break and get away.  If I stayed at home, I would think about all the things I should and could be doing (and not want to do)....and feel guilty for not doing them.....sigh.

    In case I don't have internet access next week (kind of hoping I don't, so I'm not tempted to spend time on the computer!!), everyone have a great week....you're always in my thoughts and prayers...love to you ALL!!!!!

    blessings...robin

  • neversurrender
    neversurrender Member Posts: 508
    edited March 2010

    Robin - have a great time !  My parents go to that area at least once a year and love it.  We keep trying to go with them, but something always interferes :(

  • bookart
    bookart Member Posts: 564
    edited March 2010

    I don't have TE's either, and I have a lot of armpit (axiallary, they call it) pain.  Some is cording - there's a tendon that runs through that area that gets irritated, I guess and it will feel like a rope that goes from down near the ribs up through the armpit.  Slow stretching will help that.  Some is the incision and node removal, and yes, it can take 6 months or more for it to go away (or so I'm told).  I'm VERY tired of it.  If you notice swelling that seems excessive but is not accompanied by redness or fever, it could be lymphedema - find out about manual lymph drainage.

    And my spring break was this week, but since I only teach one class a week, it wasn't a huge break.  My regular work does continue to be great about me leaving for appointments or coming in late or leaving early if I need to.  I think they are so relieved to have me back that they're willing to put up with it for awhile.  I just hope that lasts as long as I need it to last - but I can always start using vacation time.  I never get to use all of it anyway.  I am hoping to get to Maine this summer for a nice art residency.

    Hope everyone has a great start to spring!  We may have snow here in Texas.  Wild.

    Elaine

  • neversurrender
    neversurrender Member Posts: 508
    edited March 2010

    Here is a link to an inspirational cancer video my SIL sent me, kind of corny, but I like it.

    http://www.youtube.com/watch?v=TWGqETd6oxk

  • jizogarden
    jizogarden Member Posts: 375
    edited March 2010
    Hi Kim and all, I think my TE's are also causing some armpit pain.  I have one TE that seems to be further into the armpit than the other and that side gets much more tender...especially by the end of the day as I get tired. I feel like it's poking me right by the scar where my lymph node was removed.  I'm hoping when the TE's are finally gone this will all feel a whole lot better.

    For general pain and tightness in the armpit I put Arnica Cream in the area and it seemed to help. I put it on two or three times a day during the first weeks after surgery (careful not to get in near any incisions). Now I use it occasionally, when areas feel tender and poked by the TE's. I still depend on Tylenol and Advil to get through the day and to sleep at night. 

    We are having lovely weather here in NY on the first day of Spring Cool 

    Healing and comfort to all,

    Laura 

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited March 2010

    Lots going on for team January. It's so funny to me... When someone here is kind enough to 'speak' to DEBBIE, I always have to stop and think who 'Debbie' is. LOL

    DUH!! Me, you silly goose! I'm so used to being "Faithie"...



    Great news here!!! I have indeed made my 'triumphant' return!! I started at 8 this am and was finished rocking out my 3 workshops by 3. Of course DH did all of the driving, hauling etc....so that made it all possible.



    I'm not "additionally/more so in pain" just the normal aches and tightness. It was interesting to see how I adapted to the gimpy right arm. Ever onward.



    Now eight hour drive to home.



    Will see how long battery lasts in phone.



    xx00xx00xx

  • TNgolfer
    TNgolfer Member Posts: 253
    edited March 2010

    Hello January Sisters,

    Haven't posted in a while.  Last fill with the PS went well.  50cc in each breast.  He will do 50cc each in 3 weeks and 50cc again 2 weeks after that, so I will be done in 5 weeks.  I am used to the TE's now. 

    I also responded to a request for breast cancer patients (who could give up one appt per week for 9 weeks).  It has to do with Breast Cancer and Depression -- now I think that's a no-brainer...they kind of go together like peanut butter and jelly!  I met with a screener for 2 and a half hours.  It actually was a pretty good interview and there were lots of questionnaires to complete, too.  There is no medication involved; it will all be behavior modification, and I must admit, my behavior probably could use a little "modification".  Well, they called today and said I passed the test----I guess that means I'm depressed enough for their criteria, so my first appointment will be Wednesday morning.  I signed up for the clinical study, not because I thought my roller coaster of depression needed to be treated (actually I think I have some pretty good mechanisms to deal with those weepy times), but I felt the more people diagnosed with this disease that enter clinical trials the easier the road may be for those that follow.

    I also joined a health club today and will meet with a personal trainer on Monday.  I spoke to her at great length today and she is excited to work with someone in my situation.  The PS gave his blessing.  I have had no range-of-motion issues at all.  The only time I ever experienced ROM problems were after the axillary node dissection, but my PS encouraged (insisted on) stretching exercises the day after surgery -- and I think that really helped.  That took about a month to get through, but I have had no problems since the mastectomy.

    I also took advantage of the sunshine and warm weather and actually played 9 holes on Friday afternoon.  It was really awkward at first.  I was always pretty small chested so I had to learn to swing around these filled TE's.  First couple of holes the club felt like a foreign object in my hand and I had no timing, but pleased to say figured it out, got it back, and birdied (had a 4) on the last (par 5) hole! 

    I also have done a lot of reading on nutrition and natural aromatase inhibitors, so I have greatly decreased the amount of sugar in my diet, am doing all whole-grains, also greatly reduced anything white (bread, potatoes, white sugar, white rice, etc.), eating lots of organic fruits and vegetables.

    If I've been blessed with early stage breast cancer that was caught early and been given a second chance, I am going to physically do everything I can to treat this body well.  I am also going to celebrate life and do and enjoy!!  If recurrence happens, it happens....I am not going to waste any previous time worrying about it. 

    There are a lot of stresses (and losses) coming up in my life right now and I'm going to do everything in my power to keep the ship on course.  Husband is leaving Friday for new job in NY.  He'll be living with his son and daughter-in-law and 2 granddaughters.  I'll remain here to finish 9 weeks of the clinical trial (5 of those weeks also for fills).  Then, hopefully, I will be able to go to NY and join him.  We will patiently wait for the house to sell and I will either be in Tennessee or return to Tennessee for the exchange surgery.

    I used to think (before breast cancer) that I had control, or that I could control things in my life.  If I didn't learn anything else, I have learned that I never had control, and never will.  So when it sells, it sells.  Again, I am grateful for family that has provided a place for us to stay in the meantime.  I will miss my darling husband and the separation won't be fun, but I will stay busy and look forward to us being together again.

    As I have seen from the posts, we all have something to deal with on this journey.  My prayers will always be with all of my sisters to find good health and peace and comfort along your jorney.

    Marianne

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2010

    Sally:  Thanks for the link!  I did not think it was corny at all and it made me cry!  I even copied it and sent it in an e-mail to someone I know who has BC who I don't think is "linked in" to the boards yet. 

  • robinlbe
    robinlbe Member Posts: 585
    edited March 2010

    Sally - I, too, loved the video......it gave me new "food for thought" about my scars :)   

    Debbie - be safe on your drive home tonight...so GLAD you had a good day :)

    Marianne - glad you got to golf today and got used to the newer, bigger YOU :)  I loved how you have expressed yourself and your feelings and what you have learned in your journey thus far.

    I know we have all grown so much in this short time, although in some ways, it has seemed like forever.  But when I think it has only been a little over four months since my diagnosis, I am amazed.  SO much has happened since then, so many new people in my life, so much knowledge I've gained, so much, so many changes....in such a short time....

    You know, for awhile, I couldn't stand the color pink and what I thought it represented.  I hated to hear the words breast cancer.  My kids couldn't stand it when a BC commercial came on TV.  But after Thursday night's BC event that Gina and I went to, it actually made me feel PROUD to be a BC survivor.  Today, I actually got to go shopping BY MYSELF (yahoo!!!!)....I wore a fairly fitted lower scooped long sleeved t-shirt with a fairly fitted light weight jacket - all flat, and I didn't care who I saw or who saw me.  I AM A SURVIVOR!!!!  I AM A CONQUEROR!!!  And if someone has a problem with my flat chest, then that is exactly what it is  - THEIR problem :)      I figure I'm tall and thin enough that it's not terribly obvious anyway, so I'm just not going to worry about it - at least not yet anyway.  Guess I'll eventually get around to getting my prosthetics, but I'm in no hurry....

    OK, got that off my chest (literally!)....heading out in the morning....and wouldn't you know it?? My family and I have stayed well and healthy (no colds, no flu, no viruses) this whole entire school year - until this weekend!!!  pooh........and it's spring break.  Go figure.  My 17 y.o. daughter has a bad cold and I'm fighting one, too......bah!  sore throat, stuffy nose, argh....

    take care everyone....love you all.....will be thinking of each one of you...in new jobs, in chemo treatments, in behavioral visits, in jobs, in PT, in fills, in rest, and in constant healing...

    blessings..robin

  • ReginaR
    ReginaR Member Posts: 287
    edited March 2010

     Hello Jan group.I hope you all are doing well.,Thinking  & Praying for all of you

    I Just want to tell everyone , I really appreciate Your  Concern & Prayers! When Life get challenging & really difficult it helps to have people like you to lean on for Support  & Thank you for making a hard time easier for me with all your gentle  Hugs & concerns & esp all your Prayers. They are working ,( Robin Thank you again for getting me out) !

    I had Less Post -op pain today ( will be 2 week tues March 23 since I loss my TE from Infection)  I felt like I lost my breast twice, 1st with mastectomy Jan 29th & 2nd one March 9th when They took out reconstrution It still lokks deformed & concaved. So I am jsut not looking at it!

    I have had a much better day today, I am still very tired, But Physically  & emotionally  is improving  & I felt stronger today, It probally the beautiful  weather! Hope you all having a great weekend!

    Sally- Thank you so much for sharing the Video, I almost made it thru the day with out crying, But It was awesome & I love it & I hope you don't mind me sharing with My other group. Thanks!

    {{{hugs}}}Gina

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