January Mastectomy
Comments
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Good Morning Ladies!
I have another fill scheduled for today and I sooooo do NOT want to go! I am so worked up over this fill... the first fill I was oblivious, no idea how it would feel.... I was sore for a week, could barely breath. The second fill I said, this one will be better because I'm not going to let him put in 150 ccs, only 100ccs! Wrong, still in major pain, hurt to breath. My DH said that it didn't seem to last as long, but it was sooo miserable. So, this time I know that it is going to hurt and I am going to be miserable and the pain meds do nothing for it and they make me sick and constipated, so I do not want to go. But I can't just say that I am done because I am not.... Oh well, I'll go and I'll get my fill and I'll deal with the pain, again. I am going to try to get some info from him about when I'll be close to being done, like how many more cc's we have to go and how soon after I am filled will he do the exchange surgery. So, that'll at least help if I have an agenda! Anyway, best to all, thanks for listening (reading) my whining!
Paula
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Morning Paula,
I got 120 for my first fill...ouch! Since then my PS has done 60cc's in each breast once a week. This is still uncomfortable but tolerable. Even with 60cc's I notice I get short of breath when walking Smudge uphill or coming up the stairs...just hard to get a full breath. I'm get really nervous during each fill...not sure why but my PS is wonderful about going slow and steady
If your hurting so much you have every right to ask him to slow down a bit...it may only make your timeline one or two weeks longer and may be worth it for a little more comfort while going through the process.
Best of luck today..... hope you get a timeline...it made me feel so much better to know there is an end in sight
Strength and healing,
Laura
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Good morning, team January!!
I so enjoy catching up on everybody's "real" lives and what everyone does to contribute, make a living, enrich the planet etc etc. We are a lovely group...... it's so much fun to hear the details. I always want to ask questions. Botanical art??? Tell me more..... etc etc.
We have several musicians and several artists in our little team. Interesting cross section to be sure. And business owners. The whole range.
This is my week to make a 'triumphant return' to my life, already in progress. So I will be here spottily from here on out. (Just don't want to concern anyone.)
I speak this weekend at a state conference in VA. I have 3 different workshops to present, each an hour and 45 minutes in length. This would have been a BIG committment prior to this circus act. My husband will do all the driving and hauling and set-up and vending for me on this trip (looks to be about 12 hours away.) Then it's on to Ohio for a week of schools and then FL, then fly to Baltimore. Then Columbus, then Chicago, then Cleveland, then MI and then KY.
LOL.
That's what I can remember anyway.
I've been attempting to build stamina for this return. I know when I finally kick this infection, it will help tremendously...... and when I can use my right arm and conclude PT.
More LOL.
Somewhere, over the rainbow..............
I'm sending out hugs and encouragement to Gina & Marie and certainly to our crew in the midst of chemo and hair loss.
xx00xx00xx00xx
Ever onward.
Strength and courage.
Strength and courage.
Strength and courage.
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Paula,
I started getting 100cc for each fill and after two of those, I opted for 50cc and then last week, because I was so tight, the PS did no fill. I have to tell you honestly that I don't think it matters how much the fill is. If you think about it, the muscle has to stretch to accommodate whatever the fill is....stretching a muscle is going to be uncomfortable. You can ask your PS, if you are really having difficulty breathing, sleeping, etc., to wait another week for your next fill. This isn't a race! You can have it done at your pace. If you want 50cc every other week, that should be ok.
I think when I go in Thursday, I'll ask him to go back to 100cc just to get this over with sooner. If it's going to be uncomfortable anyway, let's speed it up!
Good luck on whatever you decide. I just take 800mg ibuprofen for the first day or two of (and after) the fill. It helps!
Kat - please let us know how your husband's surgery went. Thinking of you.
Marianne
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Thank you ladies... I know that I can slow down, but... My PS waits 3 weeks in between each fill, so it's not because they are too close together. And I seriously have planned to ask for only 50 cc's this time, but as you say, if it's going to hurt anyway.... I still don't know what I'm going to do, I'll wait and see what he says when I get there, if he says that I just need 100 cc's more and then I'm ready for exchange, then I'll probably suck it up, pull up my big girl panties and take 100. If he can get that much in. I am already at 500 cc's and feel like there is no where to go, but I'm sure he can get more in. I am curious to find out how long in between last fill and exchange surgery he likes to wait. That is where my race comes in... I am in a race because my oldest son is planning on getting married in July so I want to be completely healed so that I can be present and enjoy the whole thing! So, I know technically it isn't a race, but for me it is. And I'll be honest, I want to be done for summer too, and hopefully be able to golf by June (would like to be golfing in May, but not getting my hopes up). Anyway, thanks again for the thoughts. I might ask him for a muscle relaxer this time, I have Vicodin, Darvicet and 800 mg Motrine but they all make me sick, so it's hard to take them when I know that they're going to make me throw up. And the breathing thing is like Laura said, hard to take a deep breath, short winded, I feel like I imagine Asthma would feel... Oh well, we'll see, I'll let you all know how it went later!
Paula
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Debbie, where are you going to be in Michigan? And what is it about?
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Kat...update date us on your husband when you get a chance...
Debbie...I'm anxious to hear where in Kentucky you'll be....when you get a chance, let me know.
You others with TE....I totally admire you. I don't know how you do it with the fills....I STILL feel tight with just my skin....and have tightness of breath in the mornings! It would be nice, I guess, to have bumps there....but I don't know if I could be patient enough to deal with the major amount of uncomfortableness you all are enduring.
I worked all day today, and fortunately this was my travel day, so I taught three classes at one school, then traveled to another. I stopped by home and bless my daughter's heart - she made my lunch (peanut butter and banana sandwich!) - I took a 30 minute nap, then headed to my 2nd school!! I won't be able to do that on Friday....but I will have a desk on which to lay my head
(and I have done that the last two Fridays). I am STILL having a hard time coming up with words sometimes! Maybe I'm just getting old....but feels as if there are more cobwebs in the old brain. I DO think I have new wrinkles in my face since surgery, and my students noticed I have more gray hair since I've come back! I guess these big surgeries take more out of us than we think!!
blessings....robin
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Hi girls...you're all so sweet. My DH's surgery isn't until next Tuesday but thank you for remembering! He's been 'practicing' all weekend how to recover in his big chair in front of the TV while I wait on him for a change. HA!
Paula, by now, your fill is done...I hope you're ok! Try to lamaze breath and focus. Maybe find out from a massage therapist where some pressure points on your hands and feet are. I think you are really really so tense and afraid that it's probably making it worse.
I'm sorry you're having a time with them and I think it's a good idea to ask him for a muscle relaxer...I hope that works for you!
On Sunday I started having these lightening bolt pains again on the R side only. I changed sheets that day so I wonder if I did something bad. It's been sore since but not lightening bolts. I wonder if it could be from the side sleeping? I rolled over quite a bit to the left side and that's better but every time I even raise up in bed it hurts. Today at work it was uncomfortable to the point where I sit there and rub it without regard to how that might look to anyone passing by. lol
Works been real good to me and easing back into the swing of things is agreeable on a lot of levels. It's nice to be missed and wanted! Yes, Debbie, please do tell us about your triumphant return to life already in progress! Love that! And, I'm agreement with the botanical art Laura...How cool is that?
How's the Arimidex Marianne? Have you golfed yet...Thursday is going to be in the 60's...whoohooo!
Hi to Lynbob out there saving lives...hope you're feeling well today.
Prayers to all of you are enduring chemo treatments or side effects today!
Have a good evening all!
Kat -
Well, I'm back! And I have a date! April 16th, Yippee Squishy! I did get another 100 cc's today and he might put in another 50 on the 1st, but I have a definite exchange date! Yay! I am so happy that it doens't hurt nearly as bad. It really doesn't hurt as bad this time, I don't understand why, but it doesn't. He did give me a muscle relaxer script but I haven't taken it yet. I am huge! It is so funny! Maybe not huge compared to some women but for me it's huge! He figures that I'll be a full C after exchange and he is going to us a 500 cc smooth round. And he is doing nipples at the same as exchange, he uses the scar tissue to make them and I voiced my concerns over the nipples being too large and he said that he won't make them too big and if they are that is an easy fix. Yay!!!! Yippee Squishy!!!!!
Paula
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Wow! Paula- congrats, April 16 will be here in no time ! I'm so jealous that you will get your nipples at the same time. I am probably looking at mid/late summer for my nipples
Yippee Squishy.....I love it
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I know, I am soooo excited I can hardly contain myself! I was a little nervous about getting the nipples done at the same time due to drop and fluff, but I talked to him about it and he sounded very confident that he knows what he's doing and he's been doing it for a long time and I trust him, so, that's what we're doing! Whooohoooo!!! Yippee Squishy for summer!!!!
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Bookart--well I definitely went back to work too soon. Does anyone remember the book about Alexander and the Terrible, Rotten, Horrible Day? (or something to that effect). Well that was today. I was in tears by the end of the day. I made a mistake at work that cost the company $2300 and my boss is mad at me. I was yelled at by people all day long on the phone or in e-mails. I just want to not go back tomorrow.....but I have no choice. It is definitely worth staying home long enough to recoup!
On a happier note, congrats to everyone getting their exchange dates! Yippee!!!!!!
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BC - I'm so sorry! It's not like you were careless - your brain just wasn't quite online yet. So those people need to just BACK OFF. Wish you could tell them so without losing your job! So I'll do it from here - Hey! -you ingrates, you insensitive slobs - BACK OFF this brave lady who risked her health to come back to work to get the job done! Cut her some slack, you! Mentally sending...there. Chastisement delivered!
Thank goodness most of us have understanding classes, bosses, families and co-workers. My class laughed their heads off at me last week - I kind of clowned around some to make light of my anesthesia brain - it feels pretty pitiful when I can't remember something I've taught for years!
Debbie - Wow! When you go back to work, you hit the ground running - or should I say flying? Please make sure you have considered wearing a lymphedema sleeve - all that change in altitude could trigger an onset. I don't remember if we have talked about that in this thread. Check it out if you haven't already.
For all of you going through fills and exchange - my best wishes for you from here in flatland. (One of my co-workers welcomed me back today and asked me how I was doing and I said "flat" She asked me if that meant I was down and I said, "no, it means I'm FLAT" and pulled my shirt flat against my chest. I heard later that she was kind of freaked out about it and didn't know what to say. I guess I felt that I don't want to pussyfoot around it - I have no more breasts and that's just the way it is.)
Blessings on all of you going through chemo and radiation, tamoxifen and other treatments.
Elaine
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On the subject of understanding workplaces; I do childcare from my home. When I was diagnosed, I had to tell all of my 'families' immediately due to the fact that I would have to be gone during the day for appointments and tests and all of the accompanying BC crap. All of my families are teachers, so they all worked their schedules around so that when I had to leave my house, one of the moms stepped in and covered the house. That way all of my babies/kids could still keep their daily routine and weren't being shuffled all around during Nov/Dec/Jan. My biggest concern was what would happen to my 'group' while I was off for recovery. It made me sad to think of them scattered around and not having each other (they've been together so long it is almost like a sibling relationship). I have to have 12 weeks off due to lifting restrictions (under 10lbs for 12 wks). I have a very close friend, who also does childcare in her home, and we talked about what would happen with my babies and my income - if I don't work, I don't get paid. At about 6 weeks pre surgery, I called my friend to see if she could fit any of my babies into her group. She said she and her husband had discussed it, and she would take my entire group so that they could stay together - and she would not accept any of the pay for it. She said this is what she and her husband could do for me to help me through BC ! There are true angels walking among us, we just don't always realize it until something like this happens.
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Paula I am so happy for you that you now have your exchange date. It is very interesting that this fill isn't as painful as the others. I wonder if it is like someone else said you see the light at the end of the tunnel? Whatever the reason that is such good news.
Debbie, WOW, when you go back, you really go back. It sounds like you have a full slate full of things to do, places to go and people to see. Just remember to take care of youself! You had mentioned that you had done a couple of very long bike rides for breast cancer. I would be very interested in hearing about them if you could share the details.
Sally, when I read your latest thread, it brought tears to my eyes. It is truly amazing and heartwarming what some people do. I would put your story right up there with some of the nicest things I have heard someone do. On another note, Sally did you have to travel for your surgery? If so how soon after were you able to travel. I will have to fly, and the surgeon said I could fly 7-10 days afterwards.
I am off to see the oncologist today and I am anxious to see what his thoughts are about "no result from Oncotype test". I am hoping and will ask about a reread on my slides. Otherwise I assume he will discuss whether or not to do chemo or just hormone therapy? I am thinking he will lean more toward the hormone therapy.
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Bookart: Thanks for the kind words. I had a rough night and have a huge knot in my tummy from worry about going in today. Being a teacher is what I would have loved to do! If I had enough sense to go to college when I finished high school I ight be doing that now. I don't have the energy now to go to college now, that is for sureI love little kids and elementary school kids are so fun! I bet they missed you while you were gone and a great encouragement to heal and get back to them. Teaching is a very special calling in life.
Formykids: Good luck at the onco today! I hope your appointment is a good one!
I hope all of us have a great day with more healing, keeping it all in perspective, and getting on with our recoveries!
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Wow Sally, that is so awesome! As you said, there are angels among us! What a wonderfuly thing for them to do.
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My PT called in sick again today......... bummer. Trying not to freak about sliding back down into the hole that I've worked so hard to climb out of.
On the uptick, that means we will leave just as soon as the laundery is dry & the car is packed.
We'll be sleeping on an island the next two nights. I've recharged my camera's batteries in the hopes of pictures to share.
Yes. I promise to take it easy in my whirlwind spring ahead. I just got off the phone w a center director and we've come up with a plan for next Mon -- where they will combine classes for me, and in essence cut the day's length by at least a third, with a two hour rest time at lunch.
I am asking for that sort of support and people are eager to step up to the plate.
My goodness, Sally, that is an amazzzzzzzzzzzzing story. Truly incredible. I'll give you each one of my DVD's when I get home. She deserves a picture book as well.
OK. This is it!
The 'real world' is calling me back.
Elaine. I plan to get a sleeve before my first flight. Thanks for the prompt. This first jag is in the car. I realized that I left out the trip to Pittsburg in my list yesterday. Anyone live in Pitt?
xx00xx00xx00xx
Take care of each other. Hopefully I can stay connected via my phone..... tho yesterday it didn't let me on at BCO??? What's that all about.
Strength and courage.
Strength and courage.
Strength and courage.
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Debbie - let me know when you are back in town for a while, we can try to meet up. Enjoy your travels - and don't overdo it.
Cathy - I did not have to travel. Fortunately, I live in Columbus OH and the Ohio State University is here and they have DIEP surgeons. I stayed in the hospital for 5 days. I went off my pain meds on day 7 or 8, so I think I could have flown on day 7 - definately on day 10. I was still really tired at that point and needed naps each afternoon, so it might be hard if your trip is very long. I am very excited for you - and for me, it will be nice to have one of my Team January girls with the same recon.
My friend has really downplayed this whole thing. I have tried to make her understand how much this means to me. I told her I would not have been able to have this recon if it were not for what she did. We could not have endured the loss of my income for so long. With her act of kindness, she allowed me to have the recon I wanted - the breasts I wanted - a gift she has given me that will impact the rest of my life. On the night that all of my friends took me out, prior to surgery, I think I finally made her understand - we all got teary. Until someone said that now everytime I look at my breasts, I will think of Julie
Have a great day ladies !
Sally
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An Irish Prayer: May God give you... For every storm, a rainbow, For every tear, a smile, For every care, a promise, And a blessing in each trial. For every problem life sends, A faithful friend to share, For every sigh, a sweet song, And an answer for each prayer.An Irish Prayer: May God give you... For every storm, a rainbow, For every tear, a smile, For every care, a promise, And a blessing in each trial. For every problem life sends, A faithful friend to share, For every sigh, a sweet song, And an answer for each prayers.
Just a quick up -date. Saw surgeon Monday, he pull drain, but if any fluid build up, he will have to Aspirate , so I hope the swelling stay down ,still having lots of Incision pain . Tues I saw Oncologist & they did lots of Lab work, to try to find why I have No Energy & I am so weak ( they say it because it only been 1 week post-op ), My labs were mostly ok except still low on iron & calicum, Treat anemic with Women Vits & still on Antibotic for Infection. I havn't been able to walk well since Sun, Rt leg Pain to back of calf.,My oncologist sent me to Hospital for Doppler/ultra sound rt lower leg to rule out Blood clot. It was Negative -Yea, But I still limping & we think it is the Tamoxifen I 've been taking since Feb 12,, so My Doctors taken me off for 1 month to see if the symptons may go away, weakness & fatique & muscle pain -( all side effect from tamoxifen-ugh) This way I can concentrate on geetting over the surgery & Infection & try to get back to being me again. I havn't felt human in a long time.It really hard to get up & move with out hurting & & still hard to look at the ugly Incision.I just want feel like Gina again!
I am Thinking of all you each day! & Praying you all are healthy & resting & feeling stronger every day!
Have a great St Patrick's days my Jan friend! ((( hugs))) Gina
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Gina-wow, my heart goes out to you! So much you have to deal with-rest up, and treat yourself to something yummy (like a whole container of ice cream!)
I'm a little down today thinking about how long this whole process is going to be for me. I can't have an exchange surgery until I'm done with chemo, which won't be until August. Then apparently they wait 3 months after that to reconstruct nipples-which puts me into next year. Ugh. I'm seriously jealous of those of you with exchange dates.
And whem I'm done with chemo, I have to start looking for a job again-I had to quit my job to go through the surgery, recovery, chemo...I didn't have the kind of job that would wait for me, so they filled the position. Ahhhh! How do you find a job where you can say, "and oh, I'll need time off for implant surgery, doctor's appointments, etc. etc." Maybe someone will feel sorry for me, and work with me? One can hope...
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Afternoon to all,
Hi Kat....glad your husband is getting practice time for his recovery next week
The main house chore I have stayed away from is making beds.....I think pulling the fitted sheet onto the mattress is still beyond me.....maybe next week
I wouldn't be surprised if your chest muscle is sore from all the sheets. Last Sunday my DH had a "cold" and needed to rest all day, I think he needed a time out from all the work he had been doing to take care of me...so I poured him many cups of tea and fed him chicken soup....thankfully he recovered quickly
Robin I was exhausted just listening to your first day back! The nap and lovely sandwich must have been so welcomed in such a busy day...
Congratulations Paula on your date! So nice to have an end in sight..glad you 100cc's are feeling better this time
BC I'm so sorry about your first day back....what a nightmare...I hope everything smooths out for you soon....to go through all you've been through (and are still going through) deserves so much more kindness.
Sally your blessed with wonderful support.....and the kids will all benefit from this kindness too...
I'm tired after a long day teaching but just wanted to check in and see how everyone is doing. Wishing all the best on fills, doctors appts. and just getting on with life
Some have asked about my botanical art so here's a link where you can see some of my pieces hope you enjoy it. http://www.flickr.com/photos/jizogarden/sets/72157621668426727/
Strength and healing to all...and watch out for Leprechauns the day's not over yet
Laura
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January Sisters.... I don't know where to begin/ All my sisters... My heart goes out to you girls...... I don't know who to talk to first... My heart goes out to everyone on you... Fills, Exchange,SE, Chemo, Dr. appt ...Just feeling plain old s--ty........... (((HUGS)) Love you all and thoughts and prayers.
So do I have a story to tell you... I had my hairdresser come to my house today to cut my hair so that I can wear my wig... She was so nervous that when she came here she forgot her scissors. I felt bad. i went back to the hair salon ...... I get there she cuts my hair and the she uses her buzzer... she does around my ear... and switches the blade... and wooosh... A BIG SKUNK LINE FROM MY EAR TO THE TOP OF MY HEAD.... She felt horrible.........She almost started to cry... I told her not to worry I was losing it anyway.........I sucked another experience down from this horrible stuff....... OH well... I guess it was going anyway... Thought I just would share...... Now that I think about it .. I'm laughing
Tomorrow my 2 tx at 9:30... So night girls SLEEP TIGHT.
STRENGTH AND COURAGE-----
Donna -
Oh Donna, oh no! I'm sorry you're having to endure this.
Sally...I'll echo the sentiments of someone who suggested you put this in a book! Your very eloquent and you have a gift of putting feelings into words. I'm really happy for you and your babies...They will definitely all come back now and you don't have to worry about losing your clients either. What a blessing!
Debbie, I'm just going to throw my .02 about the sleeve. I ordered a sleeve and a gauntlet since I had the Axillary Node dissection for a total of 19 nodes. I flew to AZ and back without wearing it. (3 hour flight) I really struggled...do I wear it, do I not wear it...blah blah blah. Anyway, my BS said, she does not recommend I wear it. I have no indication of lymphedema and I could possibly upset the natural order of cellular behavior and I would hate to get a rebound effect and actually trigger an event. She suggested I bring it with me and if I had one hint of heaviness after the flight or in the next 24 hours after than I should immediately put it on...I thought it sounded like good advice so I went with it. I did elevated my arm frequently....you know, pretended to fiddle with the lights and air. I also wore my 'breast pillow' placed under my arm so that my armpit area had some circulation. When I got off the plane, I felt fine. I didn't even give it a second thought to wear it home. She did say though that if I were taking a LONGER flight that I might want to consider it. So, just wanted to throw that out there....back to your regularly scheduled program!
Congrats on your date Paula! Will you be our first?
Have a good sleep everyone. Took a Melatonin tonight so am anxious to let it kick in!
Kat -
Kat - Thank you for the kind words regarding my posts. I have to say, if there were no identifying comment or names, I could let every person I know read this thread and not a single one would be able to identify me as NeverSurrender. Not DH,mom,sister,closest friend.....I am not sure what happens on this board, but our Team January group brings out the Mama Tiger feelings in me and I find myself typing very passionate posts. I usually end up hitting submit and then rolling my eyes at how corny I sounded
Have a great night ladies.
Hugs to all.
Sally
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Burley -- if I can job hunt and interview during the whole surgery and following process and start a new job this week, you can. Be selective. Don't say anything about what you are dealing with (legal rules about that). And if and when you receive an offer, you can talk to the hiring manager about your needs and see how they respond. That's what I did and I love my new spot. It is a huge weight lifted off me (I was laid off in November and diagnosed in December. Whooppee!) and I can now focus on my health.
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Well today was a much better day at work. No one yelled. The person who called and yelled at me yesterday called and apologized. My boss was back to herself again and more calm. Maybe it is the "luck of the Irish" or something.I personally wish I didn't have to worry about work during all the drama of doctor appointments and takingn off work for everything and going in when I feel icky and tired and cranky, etc......but with a husband who is disabled I don't have much choice. We need my income to make ends meet.
Well I just have to count my blessings, like we all need to try to do. A roof on our heads, clothes on our backs (or pjs at least) food on the table, and great support system of medical personnel and everyone on the boards willing to share their experiences so others can learn from them.
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Mind numb tonight - just checking in. Take care, everyone.
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Kat, thanks, I think that Sunsnow is 2 days ahead of me for exchange... she was my surgery buddy, I saw her date over on Exchange City. We should add our exchange dates to the original post, of course, there might not be room with all the other stuff we had going on. Anyway, just a thought! Have a great day ladies! I'm trying to enjoy our beautiful weather before it turns cold again... we've been having beautiful sunny days of about 65-70 degrees these last few days in Michigan, but, sadly, they're talking snow for Sunday! WTS!!! I hope it blows on by us, getting the kids out of spring jackets isn't going to be easy, they're already wanting to wear flip-flops! Anyway, enjoy the day!
Paula
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Just a note on bathing suits.... I just spent over an hour at Penney's trying to find one that will cover my ginormous TE's for our short spring break trip in a couple weeks. Wow, was that a horrible experience! I think I tried on about 30 suits and I found one! ONE!!!!! And then I didn't buy it because I forgot my coupon! Grrrr! The problem is these things are sooo big and round, they're like a coconut sitting on my chest, so if the bathing suit is at all revealing it shows some wierd looking indents and drop offs. I like them fine in clothes but revealing, not so much. And I am really glad that I will not be this size forever, too big for me. Never thought I'd say that, but it's true. I had to go up from a size 8 to a 12 to cover the girls up! Surprised CRAZY! So, I guess I'll be going back with my coupon and buying that suit and hope that it fits after my exchange too, would hate to waste that much money! Oh well. Good day ladies!
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- 285 Who or What Inspires You?
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- 50 Immunotherapy - Before, During, and After
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