1 or 2 ...how do you decide?

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  • CAROLMARIE427
    CAROLMARIE427 Member Posts: 206
    edited February 2010

    I just wanted to send hugs and prayers to the above women who are scheduled for their surgeries soon.  You will all be fine, and will be amazed at what strong women you all are...  God bless...

  • ladyod
    ladyod Member Posts: 152
    edited February 2010

    Hi and sorry you are having to make this huge decision!  Unfortunately, it has to be a decision made by you and you alone, but I think gathering information from those of us who have already been through it definetly helps!

     I was dgxd with dcis in the right breast in multiple areas in Dec.  MRI confirmed the two areas mammogram found plus two other areas in the right breast.  No cancer in the left breast was suspected.

    When making my decision the following factors made up my mind:  1.  Peace of mind:  I am a worry wart and never wanted to go through that period of not knowing if it was DCIS or Invasive again!  2.  My age:  I am 43 and married...my husband wanted me to have both done 3.  My body type:  I am overweight and my own breasts were sagging a little.  If I were to have only one side done, I would not look even or balanced.  If I wanted I could have a breast reduction on the left, but if I am going to go through all that why not be safe instead of sorry?  4. Sexual preferences:  you lose nipple sensation following surgery:  is that important to you? 5:  Family history.  I don't know if there is any merit or not, but for me it was important.  Knowing my grandmother had breast cancer in both breasts helped me to make the decision to have both breasts removed   6:  I am afraid of surgery and wanted to get it all done at once.

     After considering all of this, I made the decision to have both removed.  Honestly, I look thinner now and my breasts are sitting where they are supposed to and perky again (though smaller than I hoped).  Interestingly, post surgical pathology showed extensive atypical  cells, collumnar cell changes, fibrocystic changes, and hyperplasia in the left breast:  it definetly was the right decision for me!  But it is a big decision, so take your time to make up your mind so that you won't have regrets after. 

    Good Luck to you and no matter what you decide, it is going to be alright!

  • nolookingback
    nolookingback Member Posts: 38
    edited March 2010

    I went through this same senario. At first I thought take them both and be done with it. But my surgeon really didn't encourage that, though he said he would if I wanted that. In MY case the statistics and my pathology just didn't warrent taking the healthy breast. Instead I had the flap and reconstruction on my "cancer" breast and a reduction and "perk up" on the other breast. I'm so happy with my new little (it's about half it's original size) reduced breast I'm glad I kept it. I know some ladies are happy to be rid of both, but I'm glad I kept my healthy breast. My statistics for another cancer in it are pretty small (not ZERO - but small) and I will of course watch it like a hawk, having my Mammograms done at the cancer center, not just my local hospital. Remember, we all have health risks of all kinds - I figure right now I have a higher chance of heart attack or stroke during my life time than another cancer. If you want a zero chance of anything you will be sad because it just doesn't exist. The day before you found your cancer - you had a percentage of getting cancer - we all do - just by being female. And be careful of the "breast as a ticking time bomb" thinking. If you have the pathology that makes a Bilateral needed then thats the way it is. But don't talk yourself into it if you don't need it. Any ways that's my take on it.

  • mom3band1g
    mom3band1g Member Posts: 817
    edited March 2010

    I thought  I would 'update'!  After much soul searching and lots of tears I have decided to do 2.  My MRI showed both sides to be 'busy' and with so much NOT showing on any test, for me, this just seems to be the right choice.  It took me a few days to actually tell anyone my decision!  I actually 'forgot' that I hadn't said it out loud to even my husband!  I had been living in my head.  My entire family is so relieved that I have chosen the bi-lat and I know my surgeon feels it is the right decision.  I am using the same surgeon as my Aunt and she even told my Aunt she felt that was the best decision for me.  I thank everyone for telling me their story.  Hearing from everyone did help.  My surgery is march 25.  We get to celebrate one last anniversary with the old boobs (march 23rd)!  I want to see if my parents will take all the kids for one night so we can do something special.  I don't think my parents have ever had all 4 over night.....hmmmm.  Hope they say 'yes'!

    Thanks everyone.

    kathy

  • Susie123
    Susie123 Member Posts: 804
    edited March 2010

    Kathy,

    Have fun celebrating your anniversary! I don't think you'll regret your decision to take both. My bilateral mast was on 1/21, and I'm just three weeks away from my exchange surgery to get the permanent implants. My cancer was just in the right side, but I chose to have both removed too. I'm just 3 weeks away from getting my permanent implants, and my foobs are filling out my clothes again. I had my surgery in Atlanta at Northside. Not sure if you're using that hospital, but if you are, they are wonderful! Best of luck and I'm keeping you in my prayers for a speedy recovery. The first few days will be tough, but after that you'll be surprised at how it wasn't as bad as you expected. After 2 weeks I was pretty much back to normal. Everyone was praying for me and I know that really helped. I'll be praying for you!

    Susie

  • mom3band1g
    mom3band1g Member Posts: 817
    edited March 2010

    Susie,

    I will be at Northside too!  I had my lumpectomy there and they were great.  Glad to hear you are doing so well.  I  have heard from several people that the 1st week is not fun so we  have decided that I will stay with  my Mom and Dad and my Mom will go to my house to take care of the kids.  I have great parents (my dh will be taking care of me)!

    thanks,

    kathy

  • ciwinter
    ciwinter Member Posts: 5
    edited March 2010

    I just had my Pe-op appt. with my surgeon today.  I too have to make a decision for a Monday, March 22nd surgery.   I'm 47 years old with two types of cancer in my right breast.  No family history.  My Braca 1 was negative, and Braca 2 had a "uncertain varience".  Only 16 woman in the country have this so there is not enough data to understand it.  Even though the Genetasist and the Surgeon don't think I need to take my left breast, I'm 98% sure that I will have it taken.  I, like many do not want to go through the fear that cancer will appear in my left breast.  I don't want to worry about it every time I feel something.  I'm typically not a worrier, but this is different.  I feel so lucky that I found this cancer early.  I don't want to temp fate and risk finding cancer when it's too late in my left breast sometime down the road.  I feel better knowing that it will happen in one surgery.  I'll be "rebuilt" at the same time, and I'll look equal when it's all done.  I have an appt. with the Oncologist and the Plastic Surgeon tomorrow.  My decsion will be made then.  This is the most frustrating and nerveracking decision I've ever had to make. 

  • bogdany22
    bogdany22 Member Posts: 24
    edited March 2010

    I was diagnosed with DCIS in my left breast.  The pathology came back as one of the most aggressive forms of DCIS and it was known to go to the other breast.  I chose to have a bilateral mastectomy with immediate reconstruction.  I decided that even though my right breast didn't show any evidence of DCIS, I was not willing to wait around for it to show up.  I decided that I never wanted to be in this position of feeling overwhelmed, scared and confused.  

    I have not had any major complications at all with my surgery or recovery and my reconstructed breasts look amazing.  My surgeon was incredibly talented.  He did a DIEP flap reconstruction using my tummy to restore my breasts.  It was all done while I was sedated for my mastectomy so I never really felt the loss of my breasts.  Initially my breasts were numb underneath and the sides closest to my arms but that has all come back now.  I had my nipple reconstruction done in November and they look so real!  

    I do believe that you need to follow what your gut feeling is telling you.  I am glad that I chose the treatment path that I did because I have peace of mind and my surgical outcome has been great.  I wish you all the best as you try to find the right decision that will give you the peace that you need.  Hugs, Tammy 

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