Custom breast prostheses

I have seen a thread on here about Radiant Impressions.  You might go back a couple of months and see if you get any help.  I can't tell you any more than that.  You might also check Barbara's non-profit website, www.breastfree.org.  I haven't been there lately, but she may have something about RI there.  Good luck.

Dawn 

Hi Donna,

I actually don't have information on my website, BreastFree.org, about Radiant Impressions or New Attitudes, but I have looked into both these companies. I spoke with the creator of New Attitudes several years ago. From all I have heard, these custom prostheses (also called custom breast forms) are good for certain needs. If you've had a mastectomy which has left you very concave or lumpy, so that it's difficult to find a regular prosthesis that can contour to your chest surface, then these custom-made prostheses might be helpful. Also, if you've had a unilateral mastectomy (from reading your post, it sounds as if that might be true for you) and you want the closest possible match to your natural breast, the custom breast forms can do that probably better than a regular form.

It's my understanding that both the Radiant Impression and New Attitude forms are meant to be worn directly against the skin. I've held a Radiant Impression form in my hand. In the back are little holes meant to provide air circulation, but bottom line, they are made of silicone and for me and many other women, silicone is simply too sticky, sweaty, and uncomfortable to wear directly against the skin. Also, I believe the R.I. form is meant to be worn as a contact form. Some women like contact forms, but many women don't find them the most comfortable choice. Also, there are some good contact options available among the non-custom forms.

When I looked into these custom prostheses, I wasn't looking for information to provide on my website. I was looking for myself. I felt that, having undergone such a traumatic surgery, I would try to find the absolute best forms. I just wasn't convinced that it was worth the very high cost (even if covered by my insurance) to get one of these custom prostheses. 

You said you are using a Nearly Me breast form. One of my first forms was the Nearly Me Lite Tapered Triangle. While it's a nice form, I found it heavier and sweatier than other forms I've since discovered, including a couple of forms that have a microfiber backing on the silicone form, so they can be worn comfortably in a regular bra without needing a pocket. They both have small nipple protrusions. I've never had a form fall out of a pocket (I'm small also) but if that's a problem, you can always sew (or have someone else sew) pockets in your regular bra. 

I'm not suggesting that you shouldn't pursue your interest in Radiant Impressions or New Attitudes. There have been women here at bc.org who have said they have a R.I. prosthesis and like it a lot. But you might also look into some of the many non-custom options available as well. To see the ones I and other women have found particularly comfortable, you can check out the Breast Forms section of BreastFree.org. 

One other thing I've learned is that, for me at least, the bra I choose is as important as the form, for comfort, shape, and appearance. And even the tops I wear make a difference. When I'm wearing a low-cut top, I prefer it to be quite clingy--that way, there's no gapping when I bend over and, even in a regular unpocketed bra, I don't feel insecure.

I hope this helps. Please let us know what you decide to do.  

Barbara

Hi Donna,

If you go to the Breast Form section of BreastFree.org, which I mentioned in my prior post, check out the Amoena Contact form and the TruLife Silk Connect Breast Form. Both are contact forms that have been recommended by women who wear them. If you click the names of these forms on the page (in gold letters) you'll be linked to pictures of them.

If you order one of these online, you should be able to return it if it's not the right size. I would check beforehand, though. I've returned forms online, but not contact ones. Also, check out my Helpful Links section. I list online sites about which I've received good feedback. You may have to submit your own insurance, however, since online retailers usually won't handle that. Do you live in a very outlying area? If not, it might be helpful if you could find a good fitter. If there's a Nordstrom's anywhere near you, they carry Amoena forms and bras (plus they'll sew pockets into any of their regular bras) and generally have good fitters. 

Maybe your current fitter gave you the equalizer because she didn't have anything else small enough for you. One problem at local shops is that they sometimes don't carry a great selection. Even if you're very small, there are lots of forms made (in sizes 1, 2, or 3) that should fit you well. You're fortunate that you can tolerate silicone against your skin. That gives you even more options.

If you search the phrase "contact forms" on this forum, by the way, you should find even more information.

Good luck.

Barbara

Donna,

Since you have to travel a long way to get to Nordstrom's, make sure to call first for an appointment and make sure the fitter has the forms you're interested in, in your size.

Barbara

I found a pattern for knitting your own prosthesis: you can size it, weight it, use whatever fiber you like. My connection to breast cancer is that I am an OT whose final thesis and research, 25 years ago overseas!, was on mastectomy and recuperation, and how I could help.

Now I am a knitter, and together with a friend, we are knitting these prostheses. I would love to donate a few . The link to the pattern is here: 

www.knitty.com/ISSUEfall05/PATTbits.html

Not being a breast cancer survivor myself, I don't know if these are for comfortable, but the reports I've seen on the web seem to say they are. Supposedly they can be put into any sort of bra you already own. And they don't rub on the scar.

Hi Donna,

I have had Radiant Impression Prosthetics for mover 10 years.  I LOVE THEM!!!  They look and feel like the real thing!  I live in Arizona where the temperature can get up to 120 degrees.  They do get a bit sweaty but I take a towel and wipe the sweat.  It's worth it!!!  I was 29 when I found a lump in my breast.  Was told it was nothing.  Don't worry.  I have 2 aunts on both sides of family diagnosed with breast cancer. Nine months later the 1 cm "nothing" was over 4cm and had spread to my lymph nodes 4/19 were positive. I was diagnosed with stage three ductal carcinoma.  I chose to have a double masectomy.  I did chemo and radiation and reconstruction (very painful.) I had an infection for six months on the side that had radiation and had to remove the implant,  Soon after I choose to remove the right one as well.  I remember the day I went to pick up my new boobs.  My fitter attached them with adhesive to my body and I started to cry.  I rarely use the adhesive, they fit comfortably in my store bought bra and for the most part they are part of my body.  I am about to pick up my third set. I have small, medium, and large, Feel free to call me if u have any questions 480-584-2483.  Good luck!!

 Sincerely,

Elizabeth. 

I'm probably going to have to lose the implant for my radiated breast due to recurrent infection. I'm tired of surgery and I'm thinking I'm just going to do without recon. Are prostheses comfortable?

Erica,

What a great website! I saw it mentioned in passing, but your note convinced me to check it out. I think it will answer a lot of my questions. Right now I'm trying to decide whether to remove the tissue expander or take a low dosage of antibiotics for about six months to try to suppress the infection. I'm not hopeful it will work because I've already had two surgeries to replace the infected implant, and right now my priority is to be healthy and feel better. Thank you for sharing your site with me. 

Hello to all ladies who are searching for that custom breast prosthesis.......

I truly do have the answer for you! I have developed a new company, 3 years in the running that strickly does custom breast prosthesis. I am the practitioner who does the 3D scanned image that is forwarded to another company for final fabrication, mold, painted. I would assist you in picking out the skin color as well as the shape, and aeriola. They can be worn in the pool or for everyday life, exercise and leisure times. Please email me or call for more information. I would gladley hook you up with some of my personal patients to speak with.

Best of luck,

Wendy   www.symmetry.com and www.abilitypo.com or wendy.carter@abilitypo.com

I truly look forward to talking with you.... let me do the figuring while you just relax and enjoy a hot cup of tea

Wendy

Darsura,  I just saw an advertisement under Ameona I think, or you could probably google it up, for a new bra for small busted women --- it is called the "ZEE" bra.  You might try that to be more comfortable.

Hello all,  I have a very large size bra size (34H) and will be needing the recommendations of companies that do custom bras and prostheses.  I would love to hear from anyone who can help me.  Please private message me!  Please!

Hi Ladies, I know the discussion is abou the custom prosthesis, but I thought I would mention the Amoena Contact prosthesis.

I was fitted for my prosthesis a few weeks ago, and was told about the Contact. The fitter said that I couldn't wear the prosthesis attached for about six months after my UMx, but that it can be worn with a cover as a normal pocket bra prosthesis. I wish I had just ordered it and used it the way she described, but I bought another one that I was less than impressed with. Long story short, I ended up buying another discontinued Amoena from a site in the US, and it is just great, much more natural.

I went into the Lingerie shop yesterday and tried the Contact on. They didn't have my size, which is an 8, but although a little small, the 7 was fantastic. I tried it attached with a normal bra. I loved the fact that there is no fall forward when you bend over. I wouldn't wear this every day, but it is a fantastic option for the times that you want to wear something that is a little different from the norm. There is a video on the Amoena website that shows it in detail.

I am in Australia, so we get lots of really hot weather. I have been wearing my prosthesis most days, and although it can get a little warm, it isn't unbearable. I wear it in a cotton pocketed bra, when it is stifling hot, or I wear another "foob" with dacron filling, or microbeads.  Sometimes I just pin a "softee" into a sarong and tie the ends around my neck in a halter. 

I'd like to hear more about the Custom Breasts, I am not sure if they are made here.

I had a funny experience the other night while searching for prosthesis related sites. I ended up on a "Male to Female" site where there were details on how to make your own "boobs" it was very interesting. 

Bump

DG,and Crystalphm

I posted above about the Amoena Contact, and now have one. I had a problem with the original form I had fitted, so the store returned it to Amoena who gave me a credit. I used that to purchase the Contact.  Although I can't wear it attached for a few more months, I can wear it as a normal prosthesis with its cover on.

When I bought the Contact, the shop assistant was fairly insistant that it can't be worn without a bra, that it can "fail", but you can wear a normal bra with it, just as you have said. I don't have the pain that you have DG, so I will try it with some of my old pre Mx bras, and I am wondering how it would go with a camisole with a shelf bra in it? They are nowhere near as tight as a conventional bra, and would, I think, catch the form if there was a "failure", what do you think? is that what you were considering Cphm?

I know what you mean when you say it would be easier to go braless and flat DG. I relate to your "One Eyed Willy", and have described myself when I go braless like I have a "puppy up my shirt". It's less than comfortable. LOL