Zometa

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  • lrsreyes
    lrsreyes Member Posts: 93
    edited March 2010

    Thanks Kerry . Where can I order Zometa in Canada for $600?

  • Karen09
    Karen09 Member Posts: 320
    edited March 2010

    I had my first dose of Zometa last month.  Was anyone told by their oncologist that they should take vitamins or calcium or do anything else??  I saw on the info sheets that if you are taking zometa for bone pain that you should be taking calcium.  I asked the nurse if I should be taking it anyway and she didn't really say.  I don't see my oncologist until May so I'll ask her then.  Just wondering if anyone was told anything....

  • hrf
    hrf Member Posts: 3,225
    edited March 2010

    I do take Calcium and vitamin D as well. The Zometa that I get from the pharmacy (I'm in Canada) cost $715 for the one dose.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    lrsreyes - I just have a prescription from my Onc, and I fill it at my local Drug Store. I don't know about ordering from the Internet. Sorry I can't help you more.

    Karen - I was told to take Calcium and Vit D. 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010
    Helen - just saw your post - Shoppers Drug mart only charges me $600 Smile I am going for round #2 on Thursday.
  • hrf
    hrf Member Posts: 3,225
    edited March 2010

    Hi Kerry .... how come Shppers Drug Mart charged me $715 for my first prescription? I know you are a few weeks ahead of me. I will definitely ask them when I go for the next one in a few weeks. Thanks for letting me know.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    Mmmm, that's very interesting, I am actually ordering mine tonight, Angus will pick it up tomorrow. I will let you know how much they charge this time.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    Helen - actually, I just looked at my receipt from last time, and it was $685....will let you know how much it costs tomorrow.

  • Mamita49
    Mamita49 Member Posts: 538
    edited March 2010

    can you file in for refund at your insurance. Is it considered a medication, or what............

    I am usually covered, but geeeeeee 700.00 $.

    I will ask my doc next appt. but I was not expecting that much to pay.

    I am in Québec/Canada. 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    I get refunded 90% from our insurance...it all depends on your drug plan.

    We would have paid out of pocket if we had had to. Norvatis will refund 50% I think.

    There is an oral one you take every day which is much cheaper, my Onc seemed to think it was as effective. 

  • living4today
    living4today Member Posts: 215
    edited March 2010

    Thank you all for sharing your info on Zometa, my onco wants me to start this on Wednesday, so I was excited to read all of your information.  Someone asked about taking calcium, when talking with a pharmacists regarding the pros and cons of Zometa, he told me it was very, very important to be on a calcium w/d supplement.  The way he explained it was that calcium is not only used in our bones, but muscles, heart, etc...when we receive Zometa, it is kind of like putting a protective coating around our bones, so that means that the calcium in our bones may not be as readily available for the other organs in our body that requires calcium to function...thus it was very important to take supplemental calcium.  He also instucted me to monitor for any muscle cramps (possible symptom of low blood calcium) or irregular heart beats.  I did ask him if I was his wife would he recommend taking the Zometa and he said "definately" and if that wasn't available to take one of the other bisphosphonates.

  • hrf
    hrf Member Posts: 3,225
    edited March 2010

    My insurance won't cover the Zometa but the drug company is subsidizing 50% plus they pay for the cost of the infusion. I'm curious if the price has changed in 6 months.

  • Karen09
    Karen09 Member Posts: 320
    edited March 2010

    Thanks for the info about taking calcium and vit D. I'm going to go get some this afternoon and start taking it. 

  • infohh
    infohh Member Posts: 71
    edited March 2010

    Hi

    I just had my DXA results and my BMD has stabilized I did not loose any bone during the last six month following my first Zometa. I had lost 30% after one year of Femara alone. .I also take calcium 1000 and D3 1000. 

    Hh

  • mawhinney
    mawhinney Member Posts: 1,377
    edited March 2010

    What is the benefit of taking Zomets vs Boniva?

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    My Onc said Zometa has less SE's, and is easier to take. She seemed to think the results would be the same.

  • gogo_xago
    gogo_xago Member Posts: 131
    edited March 2010

    Hi gals, yesterday we saw my mom's onc. When I asked him about Zometa (he has never mentioned it before), he said that Zometa is suitable for treatment of osteoporosis (which can be created by any aromatase inhibitors, Femara etc). And he said that is not confirmed-proved, that Zometa helps to avoid recurrences. I have read that the researches give good results as prevention of bc. So mom and me, want to have Zometa, but the onc. said that on June (3 months re exam), he is going to check the "bone mass exam" and he will decide. So I don't know what have to do... May I insist for my mom to start Zometa now or to wait the onc. to decide??? I trust him but I'm wondering...

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    I had to push my Onc as well. She was not sold on it at first, then she gave it to me, but with the "its not proven' line. If you feel you really want her to have it, I would ask outright for it.

    It is not standard of care here - my Onc can't give it to me in the hospital, there may be a similar problem for you.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited March 2010

    I had my first one today.  So far, I'm feeling fine.  Okay, my insurance covered the bill 100%(thankfully I still have insurance!)  it was $519.75.  Why all the discrepancy in price within Canada? 

    For those of you who had se's, when did they kick in?  I have a meeting tomorrow at 1pm and I'm hoping I'll be right as rain.

  • Springtime
    Springtime Member Posts: 5,355
    edited March 2010

    Let, I didn't have any symptoms for my fist one.

    My second one, by that evening, my back was hurting and it was like I could not get comfortable. Then I remembered the zometa! (I was thinking, boy I must have overdone it at the gym, type thing). It lasted about a day or so, maybe a bit more, then was gone. Not horrible. Not fun, but doable. 

    I have my third one in May. I am hoping since it's an odd number, it will be no symptoms like #1. I can hope!  

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    Christine - it takes at least 24 hours for me - I didn't get any chills with my 2nd, but had bone pain two days after. But, Tylenol took care of it once I though about taking some! I hope you will feel OK for your meeting. Maybe even take some Tylenol preventatively, just to make sure all is OK.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited March 2010

    Okay, thanks, I woke up this morning feeling achey, so I will pop some tylenols!

  • kim40
    kim40 Member Posts: 904
    edited March 2010

    Ok, I feel that I am getting totally ripped off!  My first perscription for Zometa from Shoppers Drug Mart was $750!!  What is up with that??  I have insurance and so do my husband so we can "double dip" but I like to know why it is so different from around the country? 

    I don't get a perscription from my onc.  He send the paperwork off to Access Zometa and they look after it all from there.  I don't even get to pick it up!  They send a courier to my house and drop it off.  My first infusion was at a local infusion clinic, but my next one will be done at home.  So maybe the cost of my Zometa was a little higher because they covered the cost of the courier and the cost of the infusion clinic?? 

    I was already told by Access Zometa that the next time that they courier me the Zometa, all of the necessary items that is needed for the nurse will also be sent at the same time.  Now I call that service!

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited March 2010

    Kim, maybe it was so low because I had the first one at the clinic.  I don't know if the pharmacy there is cheaper than Shoppers.  But, I did have to pay an extra $100.00 infusion fee.  The rest will be in house and I'm told the nurse will bring all necessaries.  I don't know why the difference.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    Well, for me, I pick it up at Shoppers. This time it was $661.24. My Onc faxed a prescription to them, its on my "list" of meds, just like my Arimidex.

    Norvatis couriers me my "Zometa Kit" which has all the saline, needles, etc. They also organise the nurse, all at no cost to me. Well, no extra cost, I should say. They have very good customer service (lots of phone calls to make sure I am OK, etc!) 

    Christine - hope you feel OK today. Keep popping the Tylenol (no Advil, it is cleared by the Kidneys, same as Zometa, Tylenol is cleared by the Liver)

  • hrf
    hrf Member Posts: 3,225
    edited March 2010

    Mine was like Kerry's and Shoppers charged me about $715. I get my next infusion in a month so I'm just getting everything arranged again. I will definitely ask about the price of the drug at Shoppers if it is more than $661. My insurance won't cover it. Zometa pays for half.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited March 2010

    I can scan my receipt if any canucks want a copy of it.  It makes no sense that there is such a difference for the same presciption 4mg of zometa.  HRF, if you are paying half, the less the better!

     Oh man, Kerry it kicked in today just before my meeting.  Starting getting the chills but popped a tylenol and started coming down.  I've been fuzzy all day and achy.  I was hoping I was in the clear, damn!!  But it was tolerable, not at all like "shiver" chemo, I just seemed lackluster and had a hard time getting out of my chair!  I'm going to vege tonight.  

    I agree Access Zometa has been more efficient than my cancer clinic. 

    My sweet son said today, "remember when you feel bad it means the drug is working".  So cute, so unfortunately well-trained from last year's crisis. 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    So sorry it hit you, Christine. It is sneaky, this time I thought I was away clear, but i got the pain 2 days later. But I am fine now - certainly not Chemo.

    Just another question - what is Iscador??

  • Frankie_
    Frankie_ Member Posts: 422
    edited March 2010

    Had my first infusion today. Let-It-Be (Christine) my bill was the same as yours. My insurance is covering the cost luckly. I too am wondering if I will get any SE's from the Zometa. I had it right after my herceptin. I had to pay my cancer centre an infusion fee of $100.00 which makes no sense to me as I was already scheduled for my herceptin and had my port/iv hooked up and everything. I was told that it was manditory that I had my first  zometa infusion scheduled at the centre. For any future infusions it can be done at my home with the coordination from Zometa Access (home care nurse) I was told "free of charge". Oh I thought that I heard somewhere that the first infusion should run for 30 minutes (I think), but my centre did it in 15 minutes. This freaked me out and I questioned the nurse and said it should be over a course of 30 minutes. They still did it in 15 minutes. What has been others experience???

    Frankie

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    It says on the Drug info sheet to have a 15min infusion, my Onc wrote on the prescription 15 min infusion. My nurse laughed and said, "Oh, silly Dr's, that is too fast", and does it over 30 min.

    So, the nurses at your infusion centre are doing it over the prescribed time, although others do get it in over a longer time.

    I can't believe they charged you $100 when you were all hooked up anyway. . That is just cheeky. 

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