FINALLY....good news! -- and a question

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joyko
joyko Member Posts: 104

Well, for the first time in 5 weeks (since my annual screening mammo began this nightmare)...I have finally been able to get some good news!  The MRI guided biopsy on my 'good' breast showed nothing....nada....absolutely clean....yeah!!!!  I was so frightened after I went through the biopsy on Monday - radiologist telling me about patchy enhancements....and I doomed myself to more bad news.  Happily, I was wrong --- so great to know that the cancer is just on the right!  

I have thought long and hard - and decided to just have the right breast removed -- not a bi-lat.  I know everyone has their own reasons for choosing what is best for them --- and I feel good about this decision.  I have had many headaches over trying to 'figure out' what was best --- and once I went through this biopsy on the left, I reached the decision that if it was clean ... then I would keep it.  Anything can happen down the road - and I know this - but life goes on .... and anything can happen in any place ... not just in our breasts!   

My question now is --- how long did it take most of you to move from deciding what to do to the actual operation?   Do the BS usually schedule the operations fairly quickly - or am looking at waiting for a couple of months?

Many thanks for all you have done to help me through this journey --- I don't know what I would do without this board and all of you!

J. 

Comments

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    Congrats on your good news!

    I only had a lumpectomy and a mastectomy is a bigger surgery but my surgeon was able to schedule my lumpectomy within 3 weeks after my decision.  And when I had the reexcission, they squeezed me in at the end of the day within a week of the first procedure. 

    I would be surprised if you had to wait too long.

  • KAR
    KAR Member Posts: 225
    edited March 2010

    Hi Joyko, congrats on coming up with your plan, thats the hardest part in my opinion.  In answer to your question regarding timing of mx, it depends on how busy the surgeon is but in my case I had to wait over a month (7 wks) since I was not invasive, and surgeon and plastic surgeon had to arrange their schedules.  I had immediate tissue expanders placed at mx.    I hope you get your surg date soon.  You sound like you are in a good place, hope all goes well.

  • mom3band1g
    mom3band1g Member Posts: 817
    edited March 2010

    The tricky part was getting the surgeon and ps to arrange their schedules.  Both of my surgeons are very busy and their spring break fell between my lumpectomy and mast so I will end up waiting a total of 5 weeks.  I didn't think that was that long as I have needed this time to get my hear around it and the house in order!  Glad you have made your decision as I think that is one of the hardest parts.  I am doing tissue expanders at the same time as well.  Good luck!

  • joyko
    joyko Member Posts: 104
    edited March 2010

    I am in the midst of debating whether to have the DIEP reconstruction, or tissue expanders. I am torn between the two.   Can some of you tell me why you chose the method of reconstruction that you did??  Your input is valued.

    I have an appt. with the PS on Monday --- and she is definitely the one I am going with as she has come highly recommended in the Philly area.  I suppose the coordination between her and the BS will be tricky as they are both busy --- and I know the PS is already slated to be going away for two weeks.  My fear is not being 'healthy' by my son's graduation at the beginning of June....trying not to stress.....

    How long after the mx does one begin to feel better and be able to get around fairly well?  I am the type that never sits still ---gets up really early --- and I can't imagine becoming sedentary.  Many thanks in advance! 

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    Joyko, I would urge you to post your questions on recovery to the board that focuses on reconstruction--I'm sure you can get good answers there.  I have not had to have reconstruction.  The lumpectomy has worked for me as far as the need for good margins.  My left boobie looks different from the right but its a difference I can live with.  If I had had to have a mastectomy--and it was a close debate--I was inclined to implants.  I did a bunch of reading on the DIEP and the trans flap and decided against it for me.  The recovery was so long comparatively as the long term impact---I may not be that active now but I still have goals! Laughing  The idea of spending so many weeks in recovery plus the possiblity of rehab and all the rest, particularly since I've never been that attached to my breasts, was not for me.

    I may be telling you something you know but do you know your PS's philosophy on timing of reconstruction?  Both of the PSs I interviewed would not do reconstruction concurrent with the initial surgery--they required you to wait until treatment for the cancer is over.  I actually went to 2 different PSs because I thought one was an immediate reconstruction and the other was a delayed but then they both turned out to be more in favor of delayed.

    good luck!

  • mom3band1g
    mom3band1g Member Posts: 817
    edited March 2010

    I can tell you I chose the tissue expanders with implants because I wanted the least invasive surgery with the quickest recovery (this is my take on it).  My kids are young and I don't have a lot of time to 'heal'.  I am also NOT good at sitting around.  My husband is already lecturing me on how I am going to follow instructions to the letter after my surgery.  He knows me very well.  I know a lot of women like the thought of their own tissue to create a breast and honestly, I thought I would feel that way too.  When it came down to it though I just had to go with what felt to me like the one I would heal from the quickest.  Just my 2 cents.  Hope that helps a little. 

    I think it will help you to talk to the ps as well.  One may be suited to you and your body better than another.

    k

  • joyko
    joyko Member Posts: 104
    edited March 2010

    Thank you, ladies, for your responses.  I do know that my PS does immediate reconstruction ...but I will head over to the other board and read some of the posts there.    How much has changed in less than 6 weeks...and how much I have learned in those weeks!!!  Unbelievable!  K, having four sons of my own --- I know I am like you in that I need to heal quickly!

  • limegreen
    limegreen Member Posts: 124
    edited March 2010

    Hi joyko, congratulations on your decision!  I made my surgery choice the week before Christmas and I had my surgery on January 13th.  I can tell you from my experience that the docs estimate how long your surgery will take so that they know how long to book the OR for.  Once they know the dates those block of times are available then the docs coordinate with each other and they decide upon a date.  I think it just depends upon the hospital and docs and how busy they all are.

    Your PS will help you with the decision of DIEP or implant.  In making my decision I thought about a single mast and the docs said I could do a DIEP, or because I was small breasted and still perky he said I could also do an implant and it would match the other one very well.  Explore your options and ask questions because DIEP is a bigger surgery but you also want the end result to match nice.

    I can say from my experience, I had immediate reconstruction with tissue expanders and am happy I chose it because it was only one surgery.  The doc did an alloderm one-step procedure in which the expanders I have in are my permanent implants.  No second surgery for exchange.  For me, recovery went well.  I had drains in for the first few weeks and had discomfort but the pain wasn't bad and usually only had pain when I lay down to sleep so I took a pill before bedtime.  I was out and about driving after 4 weeks, but was careful and didn't lift grocery bags and got tired quick and took naps, but other than that did very well.  I am now in my 8th week since surgery and my stamina is almost all back, I am able to exercise and am healing and doing very well.  I am active too, and don't like to sit around, so it helped me.

    My advice is to have a good attitude but listen to your body so you don't overdo it.  Be religious about taking your antibiotics in the weeks immediately following surgery and stay away from anyone with a cold.   Let people help you lift things and reach for things for you while you need to.  Pay attention to your limits and start your stretching/flexibility exercises a few weeks after surgery and you will get better and stronger everyday.  Good luck!

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    I am happy for you for the cancer free breast and glad that you have made your medical plan...that must be a relief!  I had my surgery 1 month after dx, but I knew I wanted a double and I had immediate recon after since I already had implants.  Wishing you a speedy recovery after you are cured of this disease!  Stay positive and know that you are doing what is right for your body!

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    I think the hardest part of post major surgery is the forcing yourself to cut-back.  I know when I had my hysterectomy, I was floored by how long it took me to feel 100%.  I had never had any surgery, I was busy on the hystersisters board, researched it all but decided that wasn't going to be me, I was healthy and active and I was so sure I'd recover quickly.  When I didn't, it was SOOOOO frustrating. My kids needed me--needed me just to be around,and awake and listening not out playing soccer.  I had trouble accepting that stupid stuff would make me tired so I pushed myself back to work a bit too soon and found myself at the end of the day, standing at my bus stop for 30 minutes, maybe 6 blocks from my house, unable to pull together the energy to just walk home--something I'd always done pre-surgery when I missed my connecting bus.  And that state lasted for MONTHS.

    What that experience taught me was that I really couldn't control my recovery.  And that if I could avoid things with a big recovery, that would probably be best for everyone. All of which lead me to realize that while a free tummy tuck might be a nice way to cheat from having to do sit-ups (giggle) the recovery period for the trans&diep were just not for me.

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