bio-identical hormones

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I've recently made the decision to stop taking femara..I want to go back on my bio-identical hormones. I use an anti-aging gyno that will help me. Is anybody out there back on bio with estrogen positve bc.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Yup. Wouldn't be without my bios.

  • 4harleygirl
    4harleygirl Member Posts: 5
    edited March 2010

    I'm so glad to hear you say that, because everybody seems to think I'm crazy!! I feel like my  hormones need to be in perfect balance in order to avoid all the other horrible dieases. I have an appt. next week with my breast dr. I've not told her my decision yet, she's gonna be pissed!! I would appreciate any advise you have to offer.

  • Ruthy81674
    Ruthy81674 Member Posts: 67
    edited March 2010

    4harley-I use estriol and progesterone. Also take a lot of supplements. I was dx with estrogen progesterone positive breast ca in 03. I could not deal with the quality of life issues when they slam dunked my hormones with chemo. I was only 43. I was scared but after prayer, reading Dr. Lee and Suzanne Summers I threw out my tamoxifen and went to a naturopath who balanced my hormones. I just never told my Dr. I personally believe I am healthier if I sleep, have energy, and a normal sex life. Do your research and make this decision for yourself. I could not go back to relentless hot flashes, no sleep, no libido, difficulty thinking ect. I am a registered nurse in a busy ER and I need to be able to think quickly which I could not do with my hormones gone. Good luck and God bless you.

  • anondenet
    anondenet Member Posts: 715
    edited March 2010

    Count me in as a bioidentical user.

  • anondenet
    anondenet Member Posts: 715
    edited March 2010

    Reminder:

    Go thru the NATURAL GIRLS thread here and you will see how many women are taking bios. It may take some time but you will see them.

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    Me too - I am a bio-identical believer.

    Beth

  • turtle42
    turtle42 Member Posts: 139
    edited March 2010

    I didn't even know this was an option. I have been thinking I would like to try the bios but was to afraid. How do you go about finding a dr who will prescribe them?

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    Sometimes a good place to start is to contact your local compounding pharmacy who can give you referrals to local doctors. Also  - functional medicine/anti-aging docs do hormones - you can go to the Institute for Functional Medicine website and search for providers. If all that fails - you can PM me for a referral who does do long distance consults.

    Beth

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited March 2010

    I am just horrified by this post! 

    This is because I have seen other women ER+ tumors take actions that choose short-term comfort over long term survival.  These include:

    •  Abandoning anti-hormonal therapy which has proven to be of considerable benefit in preventing recurrence and death over a ten year timeframe (in my case, something like 25% less likely, but I am Stage IIb, not Stage I)
    • Replacing a proven effective treatment in preventing recurrence and mortality with a course of action that could very well have the opposite effect: promoting tumor growth in ER+ women

    My own take is that Suzanne Somers is very lucky to be alive with the path she has gone down.  And unfortunately, she can be very dangerous influence.

    She is what can be described as a "sample of one", and it is always dangerous to draw inferences from the experience of one person.  Any of us who have been put on Femara or Arimidex are put on these treatments because the body of medical evidence indicates that they are likely to have considerable benefit in our long term survival.

    I would urge anyone going off these treatments to seriously reconsider, or at least ask their oncologist for statistical evidence as to the relative benefit of each course of action.

    Because you don't want to lose this one.

  • fairy49
    fairy49 Member Posts: 1,245
    edited March 2010

    sorry Claire, but I don't think you have all the facts when it comes down to hormone balance.  Do your research and then comment.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited March 2010

    I will not comment further other than to say that I am probably better informed than you might think.  And the person whose advice I would seek on the topic is that of Dr Christine Northrup, not the blonde ditz who should go back to toning up her thighs!

    Dr Northrup has done trailblazing work in this area, and I still subscribe to the newsletter published by the medical practice that she founded.

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    . I don't think you should assume that any of us going this chosen path did this on a whim.  I have done my research, as have many others on this "alternative" forum. There are risks/benefits in every single treatment decision. I do not judge anyone for the path they have chosen. Instead, I think we need to support each other in fighting this awful disease.

    My choices were not for short term comfort, they were made because I believe that hormone balance is an important factor in breast cancer prevention. I also work with very qualified medical professionals who are committed to treating me as a biochemical individual, addressing every phase of my health and possible underlying causes. I much prefer this to a "one size fits all".

    FYI - My onc, who is quite conservative and very highly regarded breast cancer specialist, was the one who first suggested vaginal estriol.

    Beth

  • mollyann
    mollyann Member Posts: 472
    edited March 2010

    Claire, evidence will serve you better than personal attacks on Suzanne Somers. Somers is not a sample of one. Perhaps you should check the published literature of breast cancer patients who have been taking bioidenticals for years. There are thousands of women.

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    I too, respect Dr. Northrop. SHe actually talks about how many oncs do not understand that PR+ does not mean that the cancer is fueled by progestrone. It was because of her that I rubbed bioidentical progestrone on my breasts for the two weeks before my MX - I was grateful for her advice that it could help my survival rate. It was one of the many books and research  I read that made be a believer in bioidentical progestrone.

    I guess we can all read the same thing and still come to different conclusions.

    Isn't freedom of choice a wonderful gift!

    Beth

  • Ruthy81674
    Ruthy81674 Member Posts: 67
    edited March 2010

    Hi Claire-I was very afraid of going against the grain on this but after a lot of research made my decision. Also Suzanne Summers is not only surviving but thriving unlike so many who have terrible side effects like osteoporosis and horrible menopausal symptoms. My quality of life is very important to me and I really suffered from the effects of chemically induced menopause. I do not believe God put hormones in our bodies that cause cancer. Bioidentical hormones are the same as the ones in our bodies where as synthetics like progestins and horse urine aquired premarin are not. Our bodies know the difference at the cellular level. I do understand how you feel but as a nurse I really have seen plenty through the years to give me reason to question the current practice of using a drug for everything.

  • 4harleygirl
    4harleygirl Member Posts: 5
    edited March 2010

    I have a family history of heart diease an alzheimers. Actually my Dad is in the final stages of alzheimers. My bc was stage 1, less than cm, lymph node negative and my oncotype gave me an 8% chance of reoccurence.  I know that having my hormones in perfect balance protects me from the awful dieases that I mentioned. I would much rather deal with an 8% reoccurence vs alzheimers or heart attack. I too feel that at some point your quality of life plays an important part in your decision on treatment.  Thanks to you ladies who responded. I'm looking forward to going back on my bioidentical hormones..  I've been taking all sorts of supplements to help my body better metabolize estrogen.  I can hardly wait to feel good again. God bless all of you!!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited March 2010

    Suzanne Somers has a very engaging personality, and is a great salesperson; but if you read her books carefully, you will find that she ingests, rubs on creams, slaps on patches and gets injections of various hormones every day, plus takes over 60 supplements each day; a regimen that can hardly be followed by a woman with a normal life (and a normal checkbook!). Also, if her BC was estrogen positive, then she was just LUCKY that no micro-cells had escaped into her system and that all the cancer was removed through surgery and radiation; because if any had, she would be dead. Estrogen positive BC is estrogen driven, and feeding it more estrogen is simply daring it to come back!

  • Nan56143
    Nan56143 Member Posts: 349
    edited March 2010

    Dear ruthbru,

    My daughter was dx with TNBC in June of 2007. She has been on BHRT since June of 2009, and is doing quite well. It is the imbalance of hormones which I believe, and so does my daughter, which causes BC. My daughter did her homework, and quite extensively, I might add, before taking BHRT. My daughter also takes many supplements, and follows the Anticancer diet recommended by Servan-Schreiber. It's not a matter of "feeding" it more estrogen, it is a matter of balancing all the hormones. Natural Progesterone is known to prevent BC, where synthetic HRT and birth control is known to cause BC.

    My daughter wanted quality of life after a dx of TNBC, chemo poisoning and rads, and she now has quality of life. Kudos to Suzanne Somers for continuing to work with doctors who think outside the box, and for publishing books on the benefits of BHRT. The Life Extension Foundation backs up all of her books. I have read all of her books.

    In Europe women and men have been taking BHRT I believe since the 1970's, and the BHRT is touted in Europe, and yet here in the US we are told..."be afraid...be very afraid". That comes from the pharmaceutical companies, and yet they are the ones selling the BHRT in Europe.

  • mathteacher
    mathteacher Member Posts: 243
    edited March 2010

    Ruthbru,

    Perhaps you could set personalities aside and come up some actual evidence for your statements about hormones?

    Have you read about the breast cancer patients who have been taking hormones for years without recurrence?

    You do know that estrogen was prescribed as treatment for breast cancer before the recent estrogen blocking fad?

  • fairy49
    fairy49 Member Posts: 1,245
    edited March 2010

    estrogen doesn't cause breast cancer, unopposed estrogen is the problem, estradiol is the problem, if you balance your hormones, i.e. add progesterone to balance unopposed estrogen you will begin to see the picture.  I have spent the last 18 months reading everything I can get my hands on with regards to hormones, I haven't taken this path lightly. When I asked my onc to test my hormones when I was first diagnosed he said no as it was not important! ummm, does that make any sense? When I asked him what progesterone positive BC meant, he said he had no idea, noone has a clue why they even test the progesterone receptor, and I have talked to many many doctors.  You have to read and educate yourselves on your disease know it inside out and backwards, its not a quick fix, it takes time and persistance, I wished I would have know this s..t BEFORE!!  It breaks my heart that women are walking around without the knowledge that they can possibly prevent BC in their future by acting now and balancing their hormones, just my opinion.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited March 2010
    I can only speak from my own personal experience, but I am very thankful that I can take an Al, which gives me a 40% risk reduction of ever having to play this game again (far more than the 20% risk reduction that chemo gave me). My quality of life has not been affected one bit by taking it; I feel great; as good as I ever have at any point of my life, even when I was in my twenties and had more hormones than I knew what to do with Tongue out, so that is just how it has been for me, (and now I will exit stage right.......).
  • fairy49
    fairy49 Member Posts: 1,245
    edited March 2010

    Ruthbru, I am going to assume your 40% risk reduction stat is a relative risk reduction as opposed to a absolute risk reduction? Huge percentages like that are thrown around by oncologists who don't understand the difference. Your comment about having more hormones than you knew what to do with in your twenties is exactly right, estrogen dominance.  But you are right, each to their own, and as long as we are all happy with the paths we are choosing then that should be that.  Wink

  • ijl
    ijl Member Posts: 897
    edited March 2010

    Fairy, I was shocked to read how ignorant your oncologist is. I hope you've already switched to someone more knowledgable.  Obviuolsy if we women can educate ourselves the doctors with all their medical school education can at least do the same :) And if they can't, it is time for a new doctor

  • fairy49
    fairy49 Member Posts: 1,245
    edited March 2010

    ijl, yup, scary huh?? I have had the hardest time! However, I am now on the right path with a naturopath and someone who totally gets, and understands the whole hormone balance "song" Smile 

    L

  • ruthbru
    ruthbru Member Posts: 57,235
    edited March 2010

    I'd have to look it up, since it's been 3 years (knocking on wood as I type), but it was from a website doctors can go on and type in all your specific information and then it gives you your chances of reoccurance with various treatment options; I'd assume it would be relative; everything is relative, and nothing is absolute anyway........(hey, that would make a great quote!)

  • fairy49
    fairy49 Member Posts: 1,245
    edited March 2010

    Which drug would you rather take? One that reduces your risk of cancer by 50 percent, or another drug that only eliminates cancer in one out of 100 people? Most people would choose the drug that reduces their risk of cancer by 50 percent, but the fact is, both of these numbers refer to the same drug. They're just two different ways of looking at the same statistic. One way is called relative risk; the other way is absolute risk.

    Here's how it works: Let's say that in a trial involving 100 people, two people would normally get breast cancer during the trial duration, but when all 100 people are put on the drug, only one person gets breast cancer, meaning the reduction of breast cancer is one person out of 100. Yet the pharmaceutical industry will exclaim that the relative risk reduction is 50 percent because one is 50 percent of two. In other words, the risk is cut in half from a relative point of view.

    The headlines promoting this drug, therefore, will always talk about the relative risk -- "A whopping 50 percent reduction in risk!" -- and these headlines will be parroted by the mainstream press, medical journals, the FDA, doctors and drug marketing reps who are always pushing and exaggerating the supposed benefits of their drugs while minimizing their risks. Because, you see, even though this drug may help one out of 100 people, its side effects create increased risks to all 100 people. Everyone suffers some harm from the potential side effects of the drug, even if that harm is not immediately evident. Yet only one out of 100 people was actually helped by the drug.

    When you look at drug claims, especially miracle-sounding claims on drugs like Herceptin be aware that these statistics are routinely given as relative statistics, not absolute. The numbers are distorted to make the drugs look more effective than they really are. Herceptin, for example, produced only a 0.6% absolute reduction in breast cancer risk, yet the medical hucksters pushing this drug are wildly screaming about it being a "breast cancer cure!" and demanding that practically all breast cancer patients be immediately put on it. Yet it's not even effective on one person out of a hundred.

    Reverse the perspective for natural treatments

    At the same time, when conventional medicine promoters want to discredit a natural substance, an herbal remedy or the effects of nutrition on health, they always talk about absolute risk. If taking green tea supplements reduce the risk of cancer by that same 50 percent, eliminating cancer in one out of 100 patients, the news about that supplement would be something like this: "Green tea doesn't work. Only helps one out of 100 patients."

    In fact, a study comparing some anti-cancer drug with green tea might report: "New breakthrough drug reduces cancer risk by 50 percent! Green tea only helps one out of 100."

    It's the old joke about an Olympic race between the United States and the old Soviet Union. In the race, there were only two participants. The Soviet runner came in first, the U.S. runner came in second, but the U.S. newspapers reported, "U.S. Wins Silver Medal, Soviet Union Comes In Next to Last."

    Now you know how drug companies, the FDA, the popular press and many doctors lie with this numerical shell game. It's a clever way to promote the minuscule benefits of pharmaceuticals while discrediting the enormous healing effects of natural remedies,

    Now, do you want to hear some real statistics on cancer? I'll share a few. Out of every 100 women who might get breast cancer, 50 of them can avoid breast cancer by simply getting adequate levels of vitamin D in their body, and that's available free of charge through sensible exposure to natural sunlight, which produces vitamin D. This vitamin, all by itself, reduces relative cancer risk by 50 percent, which is better than any prescription drug that has ever been invented by any drug company in the world.

    Combine that with green tea, and your prevention of breast cancer gets even stronger. Even the World Health Organization says that 70 percent of all cancers are preventable, and in my view, that number is conservative, because if you combine sunlight therapy and green tea with anti-cancer herbs, anti-cancer foods such as garlic, onions, raw broccoli and raw sprouts, plus some rainforest herbs that are well-known for inhibiting the growth of cancer cells, then you can boost your cancer prevention success to well over 90 percent.

    There's nothing in the world of pharmaceutical medicine that even comes close. Yet the only thing you'll ever hear from the drug company-controlled mainstream media, medical journals, the FDA and most old-school doctors is that natural remedies are useless, but prescription drugs have all been scientifically proven. Sure they have, if you fall for the relative risk gimmick and can't do basic math.

  • anondenet
    anondenet Member Posts: 715
    edited March 2010

    Ruthbru, This is not a joke of everything being relative. We need to stop saying "Oh, I heard it somewhere" and take responsibility about where the information actually comes from. This is freakin' cancer we're talking about, not restaurant recomendation. We need to know the source of life or death decision-making.

  • Jellydonut
    Jellydonut Member Posts: 1,043
    edited March 2010

    I've been on Bio estrogen since June 2006 and feeling super.

    It's a personal decision and no one should talk you into it, or out of it IMO.

    Somewhere in time (though not soon enough), a study will be published to include all of us "BC & Bio Users" and that, IMO, will be an eye-opener.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited March 2010

    Since I also am a cancer survivor and have had to make the life and death decisions we all face, I can assure you that none of this is a joke to me. The website I referred to is www.adjuvantsite.com, your oncologist should be familiar with it. 

  • mollyann
    mollyann Member Posts: 472
    edited March 2010

    Ruthbru-- that link didn't go through. And where did the website info come from and how was it measured? If you don't know that, you're just taking somebody's word for it.

    Anyway, this thread is about bioidenticals. I hope we get back to that.

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