chemo nurse questions

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Hello Ladies,

Yesterday, I had my 4th taxol.  I also had to do labs, and see the onc.  She was running

late, which made me late for chemol.  The nurse set up the steriods, and chemo bags, and

apparently didn't turn on the chemo bag!  She obviously didn't check on me either ( I was

napping) because when the chemo 'should' have been done, she came in and says, "Oh,

the chemo didnt's start!  There was an assistant who had come in and taken my blood

pressure a couple of times while nothing was going on!  Then when she actually started the

chemo, she didn't check my bp at all!  All this delay put us directly in the Houston "rush"

hour traffic!!!  I want to ask NOT to have this same nurse again!  Who do I ask?  Should I

ask at the chemo infusion site, or email my onc's nurse?  Thanks!!

Comments

  • RegulJ
    RegulJ Member Posts: 244
    edited March 2010

    The nurse was just probably having a bad day. Yes I know this sounds bad, but if this was her first "screw up" give her another chance. If you do happen to get her again, remind her nicely of what happened the last time. If she seems busy or flustered ask her to slow down engage her in a short conversation to get her to focus on you.

    IF she messes up again ask for a different nurse because you feel unconfortable with her.

  • ElaineD
    ElaineD Member Posts: 2,265
    edited March 2010

    I agree. Goodness these people are human, and mistakes can be made. No harm was done, other than a delay.I could give you  a few tales about the delays I've had. Being stage 1V and on chemo for life, I accept delays as being something which just happens-I would never actually dream of complaining.

  • MomoB
    MomoB Member Posts: 68
    edited March 2010

    Hello Ladies,

    Thanks for your replies and wisdom!  I had her for the first infusion, and I wasn't

    too keen on her then.  I had other nurses the next two times, and the difference is

    night and day!  My concern is that since the steroid was decreased on that visit, there

    might have been more of a reaction to the chemo.

    You are right!!  I need to keep perspective on these minor irritations.  I know delays can

    happen.  I just feel like she was negligent, and having chemo (for the first time) breast

    cancer (for the 3rd time), I am worried about it more that I should be.

    ElaineD - my daughter is in England`- Surey, Engham, I believe.

    RegulJ - that is good advice!  I imagine she was overloaded because of my being late.

    Thanks ladies!

  • lbreedl
    lbreedl Member Posts: 59
    edited March 2010

    I think I had that same nurse on Monday! I finaly had the port in and was way late too! I'm always watching to make sure its dipping and everything is moving along, I can't imagine sleeping during a regular chemo, but I did at the chemo after the port got put in, thanksd to the nice drugs. Ha! Maybe I'll run into you sometime at MDA. I agree that sometimes stuff just happens and we can't let it get to us, but we have to be our own advocate as well.

    Laura

  • concernedsis
    concernedsis Member Posts: 256
    edited March 2010

    MomoB

    That was a preventable error and should have been picked up by the nurse and whoever was monitoring you. Thats just standard of care. 

    If your chemo is at your doctor's office - then speak to your doctor about your concerns. If its elsewhere, ask to speak to the nurse manager of the unit and explain your concerns. If you get the nurse again, it will be hard for you, but say - geez I am sorry but things didnt go so well last time - I would be more comfortable with a different nurse - thanks! Your body, your treatment, your choices!

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited March 2010

    I agree overall with those who said she's human and to give her another chance. We all can make mistakes. 

    The experience points out, however, how much we have to be on our own toes and be our own advocates.  Like we don't have enough on our minds already!  I never had your experience but whenever I was hooked up I would look at the bag and ask if I was dripping yet.  I wasn't concerned about errors, I was simply curious, but it's a good way to remind the nurses.

    I don't think there's anything wrong with requesting another nurse if that would make you more comfortable, nor would I hesitate to gently and kindly point out what happened to her superiors.   It's possible to do it without naming names, too, if that makes you more comfortable.

    I had a terrific team and never had any problems, and for that I'm grateful.  Best of luck and a warm hug to you.

  • MomoB
    MomoB Member Posts: 68
    edited March 2010

    Hello Ladies,

    Thanks for all your replies.  This was the second time I had this nurse and I do plan to

    ask for a different one when I check into the chemo area next time.  Both the other nurses that

    I had, let me know when the steroids were finished and the chemo was about to begin.  This

    one only came in and started the steroids and said she set up the chemo to start on its own!   

    I don't have anyone go to chemo with me, but it might be a good idea to have someone there to

    help monitor what is going on. 

     My insurance is  paying for this, and I want to at least get standard care and monitoring.  lbreedl,

     I go to the "green" room for chemo.  I don't know if the nurses work only one "color" area or not.

    That would be great to run into you sometime!  I'll pm you.

    I am scheduled for a port of 3-29.  Not looking forward to that!

    Nature girl, you are so right!  We do need to advocate for ourselves.  Guess I'll have to stay

    awake at least until the chemo starts to drip!  I like to nap during that time because I have a

    lot of other things to do at home and can use the extra rest!

    Concernedsis, thanks for the input, and good ideas!  I will ask about a nurse manager.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    MomoB:  I had a bad experience one week where the nurse took 3 or 4 goes to get the needle in my port when 2 tries are the limit before they seek help. She bruised me badly and had only been doing the job for 4 months. She told me she goes home feeling really sad when she misses lots of ports during the day. She even asked me what size needle they usually use!!! Good grief!!!

    I went back out there a week later and asked to see the supervisor and told her about it. Showed her the bruise which was still quite dark and asked for my records to be noted I only want the most experienced nurses from now on.

    Well, that worked big time. I've only had the best nurses since and I actually thanked the supervisor on Wednesday for looking after me. I also praised the girls I've had since. I still have to go out there for 11 more herceptin treatments and feel comfortable about that now.

    My husband heard about one place where they actually damaged the port and the patient had to have surgery to put a new one in!!!

    Remember, we (or our insurance co) are paying them for this service. We are the customer - don't let them get away with it.

    Sue

  • MomoB
    MomoB Member Posts: 68
    edited March 2010

    Hello Ladies,

    Suepen, that must have been a terrible experience!  I hate needles and try to be well

    hydrated when I need to get stuck!  I don't think I could sit still while they "try" 3 - 4 times

    to access a port!  Sounds like the nurse could use more training.  I feel compassion for her,

    but I don't like to be a guinea pig!

    Well, I had my 5th weekly taxol today, and when I signed in I asked the lady at the desk if I

    could request not to have a certain nurse again.  She said absolutely and that I should have

    come out to get her when there was a problem.  So, I got a different one and it went very

    smoothly.  I did stay awake long enough to be sure that the chemo was actually dripping!

    I didn't go into details about why I was requesting that, and she didn't ask.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    MomoB: I'm glad you did that, no reason why you shouldn't. I do keep an eye on the drip - I make sure it's not too fast also.

    I only think it was 3 or 4, it was definitely more than 2. I saw her when I was there last week and I smiled at her. If I hadn't complained, imagine what my reaction would have been if she was the one who came to get me at the next treatment. I probably would have run screaming to the lift. By seeing the manager privately I avoided any fuss.

    Good luck with getting your port - they do make life a lot more bearable especially when you get a good nurse :)

    Sue

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