Scared... Who isn't right?

llanabeth
llanabeth Member Posts: 101
edited June 2014 in ILC (Invasive Lobular Carcinoma)

I was just diagnosed with ILC and while it is Cancer I was expecting far worse.

I had a lump that felt like it was 8 cm but it was only 2.4 due to inflammation.

I had an excisional biopsy last week and here is what the report I got back reads:

  1. Infiltrating Lobular Carcinoma, Well-Differentiated
  2. pT2, pNx, pMx
  3. Carcinoma measures 2.4 cm
  4. Amgiolymphatic Invasion is identified
  5. Extensive Lobular Carcinoma in Situ is noted
  6. Focus of Comedo Ductal Carcinoma in Situ
  7. Mild Nuclear Atypia


I havea general idea of what this all means, I like my oncologist and it sounded "hopeful" even with the change it may be in my other breast.

Next week I am getting a breast MRI and a bone scan and some other scan and after that is in we will formulate our plan of attack I guess.

I had been lurking these boards for 2 weeks now and could not find a place where I fit in, I think this is my area.

Tamara

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Comments

  • momand2kids
    momand2kids Member Posts: 1,508
    edited March 2010

    Tamara

    Welcome--- sorry that you had to come here but you are in the right place.

    Sounds like you are getting some good tests--have you asked for the oncotype dx?  You can get that after your surgery--- it can help you with decisions regarding chemo

    Once you can get the lump out and have a sentinel node biopsy, you will definitely feel better.

    After my lumpectomy, I finally felt like I could breathe and make plans.  You will get through this--- but it will take some time.  Glad you like your onc----

    The MRI will help you with both breasts..... it is always good to have all the info before you decide on your surgery.

    Please let us know or pM me if you need any more info--come back often- we can support you!!

    carole 

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  • Gitane
    Gitane Member Posts: 1,885
    edited March 2010

    Hello Tamara,  This is the ILC place, and we are here to help and support you.  Come back and talk with us whenever you like.  Glad you have an oncologist you like and trust, and also glad you found us.  G.  

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  • llanabeth
    llanabeth Member Posts: 101
    edited March 2010

    Thanks Gitane!

    Now waiting to get my "grading" proper "staging" and whatever other tests they can throw at me.

    I have never been a fan of the hurry up and wait game but apparently I don't have much of a choice right now *heh*

    Tamara

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited March 2010

    Welcome.

    Waiting is definitely tough.  But it sure is nice when all the scans are done and you know what you have and, more importantly, what you don't have!  So many fears come from worrying about the worst. 

    When is your next appt?

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  • llanabeth
    llanabeth Member Posts: 101
    edited March 2010

    I go this morning for the breast MRI - WEdnesday for the complete CT SCAN of my  bones and I see the doc Thursday to go over all the results.. so not too much wait but wait none the less!

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  • Survivor07
    Survivor07 Member Posts: 71
    edited March 2010

    Welcome to the sisterhood!!

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  • Gitane
    Gitane Member Posts: 1,885
    edited March 2010

    Hi Tamara,

    I read on the Just Diagnosed forum that you are waiting for a second opinion and possible biopsy.  Just wanted to tell you we are in the waiting room with you, holding your hand.  The waiting really is the pits.  I hear you about the blood pressure.  I have blood pressure that is always normal, except when I am seeing my oncologist. Last time mine was right where yours was.  Please keep in touch.  Big Hugs,  G. 

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  • llanabeth
    llanabeth Member Posts: 101
    edited March 2010

    Thanks all for the warm welcome...

    Am off to a bone scan this morning and praying I have arthritis :)

    Yeah the BP will be high today again I'm sure of it!

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  • spar2
    spar2 Member Posts: 6,827
    edited March 2010

    Hi there Tamara, glad your getting all the tests done so you will know exactly what you are dealing with and can get a plan of action going.  I am a 6 year survivor of ILC.  Praying the same for you.  Will be thinking of you as you go through all your trials.  hugs.  sherry

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  • spar2
    spar2 Member Posts: 6,827
    edited March 2010

    Hi there Tamara, glad your getting all the tests done so you will know exactly what you are dealing with and can get a plan of action going.  I am a 6 year survivor of ILC.  Praying the same for you.  Will be thinking of you as you go through all your trials.  hugs.  sherry

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited March 2010

    Tamara -

    I hope the bone scan is clear.  Any other test we like to hear about the "bright spots" but when it comes to a bone scan, dull is good.  May your scan be dull!

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  • llanabeth
    llanabeth Member Posts: 101
    edited March 2010

    Thank you both, still waiting ... I think my Onc was out of town last oart of last week so I will need to wait till tomorrow to find out.

    Unless of course he asks me to go in ...   Sometimes I wish they could tell you those things over the phone instead of making you get ulcers while you wait to see them.

    I already know I have cancer, now it's just grading and staging it.  I can handle it.

    We shall see.  

    In the meantime, thank you all for the positive words and thoughts.

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  • amlg1
    amlg1 Member Posts: 596
    edited March 2010

    Wishing only good news for you.

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  • Gitane
    Gitane Member Posts: 1,885
    edited March 2010

    Thanks for checking back in.  Still waiting with you; hope you get good news very soon.

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