I want my life back!!

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I was diagnosed New Years Eve and have been slowly falling apart.  I've had a single mx with chemo coming next week, then radiation, then prophylactic mx and reconstruction.  Its just a very long road. 

When this hit I was finally, for once, doing something with my life.  Finally had a plan.  Felt like I knew where I was going.  Working full time, raising a son, going to school full time, and instructing martial arts.

I can't even walk into the dojang to train anymore without breaking down.  I had to give up school because of the time requirements and what I could physically handle. I'm preparing to return to work with a bunch of men who.  My confidence is shot and I still can't say how I feel about my body right now. 

Please share with me where you are/were at.  How did you handle it?  Did you ever get past it and get on with the things you love?  How long did it take?  I'm patient to a fault with others, just not with myself.

I can't see the light at the end of the tunnel, but truly want to believe its there.

Comments

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2010

    There absolutely is light at the end of the tunnel!  You're just in a bad place right now, with several treatment steps still ahead of you.  I know it's hard to believe, but the months will go by, and you will get your life back again.

    One of the best pieces of advice I've heard is something a doctor told someone else here -- to figure that your treatment will take a year.  Mine actually ran a little more than that, but it's behind me now, and it will all be behind you next year at this time, or even by the holidays.  And the fact that you're into martial arts tells me you'll probably do extremely well with everything, because you were no doubt in excellent physical shape going into this, and you also probably have some excellent mental discipline from all that training.

    Another thing you must do is ask for and accept help, especially if you are raising your son on your own.  Put out the word to family & friends about what help you could use -- maybe some meals delivered while you're doing chemo (most of us had a couple of yuckky days each cycle) or someone to watch your son after school.  I don't know what your particular needs will be, but most of us had some degree of fatigue during chemo, and if you're hoping to work through it, I would think about keeping the other things in your life as simple as possible.  You don't have to be super woman. 

    Good luck with your chemo, and just know that there absolutely is light at the end of the tunnel...(((Hugs)))    Deanna

  • maltomlin
    maltomlin Member Posts: 343
    edited March 2010

    Hi there

    I heard somewhere that it takes a month to recover for every month of treatment. It was right for me. It's early days for you yet and it takes a while. It takes a while to 'get your head round' things and it certainly took me over a year before BC wasn't the first thing I thought about in the morning.

    Go easy on yourself. It's a huge shock to the system (both physically and emotionally) and will take some time to recover - but you will.

    Mal x

  • Connie07
    Connie07 Member Posts: 636
    edited March 2010

    One Day at a Time. That's All you have to do. for now. Sometimes, it's the things that really are 'in the moment' and that's where you are, for now. Be nice to yourself, give yourself little gifts and surprises, like bubble baths or ice cream. You deserve it.

    And, you've found the most awesome place to come. For info, to vent. keep coming, you'll be glad you did.

    Good luck petit,

    ~Connie

  • Titan
    Titan Member Posts: 2,956
    edited March 2010

    It really does suck..I know..you think you will never be done with this...but you will...it goes alot faster than you think it will...it is really tough..but you can do it....YOU WILL!

  • Marion
    Marion Member Posts: 207
    edited March 2010

    I know exactly how you feel! I have ups and downs all the time. The worst part is when I look at pictures of myself 8 months ago and do not recognize myself. I often feel like cancer aged me 10 years in 6 months. It is not just the physical part. I miss my old life because I was carefree then. There has not been a day when I did not think about cancer. So I often feel like what you said: "I just want my life back!" 

    I agree with dlb823, it will take a year. But as titan said, it will go faster than you thought.

    I wish my doctors had told me that it would take a year, I would have prepared myself psychologically. I was diagnosed on July 23rd 2009 and only now do I feel my life coming back to normal.

    Realistically my goal is that by July 23rd 2010 (the one-year mark), I will be done with all the reconstruction and that I WILL feel like myself again and WILL have my life back!

    When I was feeling down, my husband liked to tell me "sort-term pain for long-term gain" ! Believe it or not, but it worked, it helped me get through the treatments!

    I know it is hard psychologically, but you will get through this and it will go faster than you thought!


    Diagnosis: 7/23/2009, IDC, 1.3cm, Stage IIa, Grade 1, 14 nodes removed, one positive node, ER+/PR+, HER2-, Mastectomy, Taxotere and Cytoxan, Tamoxifen, Zometa

  • dianenv
    dianenv Member Posts: 241
    edited March 2010

    My life changed on November 2nd when I had my mammogram.  I had surgery in December and reconstruction will be in May.  I also have ups and downs.  All of us just need to know that during the down times, there will be up times again.  When I start to feel the anxiety hit, I close my eyes and breathe.  Sometimes it helps.  This past week I have been cryiing at the drop of a hat.  I know I have these days and just accept it as best as I can. 

    You can get through it, and this forum will help you, it has sure helped me.

    diane

  • billmomson
    billmomson Member Posts: 10
    edited March 2010

    I know how you feel. Getting that diagnosis is quite a shocker. But you HAVE to deal with it. There's really no other choice. As someone else said, you have to have the mindset that the whole treatment is going to be at least a year - year and a half. It's not always going to be a walk in the park, but when you look at the alternatives, I will happily take that walk ANYDAY.

    I want to tell you what worked for me...First I had to get past that idea..."Why me". Why me...because that's the way it is. Nothing you can do to change it. So you learn to deal with it. You talk to other survivors. Talk to people where you get your chemo/radiation treatments. Listen to their stories. I found that sometimes comparing others situations to mine..I didn't really have it bad at all. Another thing that helped me thru it was setting goals. I began my chemo on Halloween 08. I had to have 4 treatments of Adryomycin and Cytoxin. That brought me right to the beginning of January. The way I looked at that was the time from Halloween to Christmas flies by!! And so would my treatments!  The same thing in January when I started the Taxotiere/Herceptin treatments - that would run till May (at least the taxotiere) and I looked at that - it was almost summer by then and also my hair would be coming back shortly after that.

    It might sound crazy, but those are what worked for me.

    I wish you well on your journey.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    I'm sorry you are feeling so down.  Its hard when you feel you have everything on track and then you get hit by a train.  But I think once you get started on your treatment it will feel more in control and that, at least for me, helps. 

    Hang in there!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Hang in there, you are still in shock from the reality of it all.  You still have treatment ahead of you, and the not knowing is so hard also.  We with BC are suddenly thrown into a new reality, and after diagnosis, surgery, and treatment, we begin to re invent ourselves and oftentimes some of our relationships.  You will get thru this, you are having a bad day.  I sure do have mine pretty often, but am glad I can come here to vent, rant, share, and encourage.

    image

    Barb

  • ak_survivor
    ak_survivor Member Posts: 24
    edited March 2010

    I was a single mom of six boys for years healthy and doing okay. I decided to marry on Halloween 2009 at a costume wedding so the second time around would be as fun and carefree as possible. I was diagnosis with Breast cancer 10/20/09, Ten days before my wedding. We told no one and had a blast! I had a double Mastectomy 11/7/09, we spent our honeymoon in a hospital waiting to see what Pathology had to say. My husband told me that he's always been a butt man so things workout for him, haha.  What I'm trying to say is you will get through it and be stronger for it. I've just start reconstruction and it's going well. Everyone needs time to adjust and things will happen when you're ready. Hang in there, the changes and pain is unreal at times. I went from 5ft 5inches and 115 lbs and very nice c boobs, to 5ft 5in 165 lbs and nothing. But I'm alive and so are you! Remember all the women who haven't made it, this will make you stronger and fight just a little harder....

  • Marion
    Marion Member Posts: 207
    edited March 2010

    I totally agree with billmomson: you need to set goals. It will help you. It helped me too!

    ak_survivor: wow, you were diagnosed 10 days before your wedding, did not tell anyone and you had a blast. You're inspiring! 

  • petitcocquin
    petitcocquin Member Posts: 7
    edited March 2010

    I'm glad I came accross this site.  Thanks everybody.  Last night I read and cried only this time not just for myself.  Funny thing is I'm not gonna get my 'life' back because I'm getting the feeling it hasn't left me yet.  Goals will be hard because I'm still in the tunnel, but it sounds good. 

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2010

    Petit ~ If you go to Forum Index above, then scroll down to Chemotherapy, you'll find a thread for women starting chemo this month.  It helps a lot to share what you're going through with others who are at the same place in this journey.     Deanna  

  • Debonthelake
    Debonthelake Member Posts: 244
    edited March 2010

    This is a great site for getting support.  I was a daily visitor during my treatment last year.  Cancer is a curable disease.  I still remember the dark days of treatment.  Chemo was the worst part for me.  It was tolerable but not fun....at all.  Last summer I was post chemo but receiving radiation.  In July of 2009 my treatment was complete except for follow-up, watching my diet and exercise.  I cann't tell you what a joy it is to be on this side of treatment.  Regular exercise will help you throughout your treatment and help you gain your strength back after treatment. 

    It's terrifying, depressing, exhausting and an experience that causes much reflection and soul searching.  On the other side of that experience I have found joy and the ability to enjoy the present and focus my energy on the things that are the most important to me.

    You will come through this.  This is just part of your journey, not a pleasant part but cancer does not define your life or who you are.  

    Hang in there.  God bless you

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