January 2010 Rads Start
Comments
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22 done, 11 to go. My skin, so far so good.
Use aloe vera twice during the day and Aquaphor twice at night. They work well for me.
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MSK was very strict on what I could use so I chickened out of using my "My Girls" cream I bought on BCO. I used aquaphor or eucerin, and put on cortizone immediatly after treatment.
I started to burn the day after my final TX, so if I had to do it again I would have hit the aloe and calendula hard the day I was done.
someone suggested a "shower hug" a product to give your breasts some support if they are burned. I have never tried it, but I did need something since the blister was right in the fold.
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Sanaisa...good chance you'll breeze through the rest.....you've earned a break! Hope the rest is smooth sailing....
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Today the Cancer Center called and the machine was broken and they are waiting on a part. They hope it gets here on Wednesday, so now I will not finish on Monday. I certainly hope they get machine fixed tomorrow, so I don't have to miss any more.
I guess the good part about that is that it gives my skin some time. I am still not having much of a skin reaction. It is pink, but not broken or burned anywhere. I guess I might be like cookiegal and get crispy after I am finished.
Sounds like all is going for everyone and we are all just slugging our way to the finish.
Juannelle
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Dear Cookie,
How do your boobies look now that its been a few weeks since completing rads?
Love,
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some days big red looks nice and beige, and then some days red again. It's kind of odd!
some days I have ouchies, some days it's fine.
How are you??
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23 down, 10 to go. My skin starts to be a little tender and tanned.
Took some chocolate covered strawberries to Rad center and they enjoyed so much. Ladies there are just so sweet, I had to do something for them and glad I did. They asked how I make them, I think I will make another batch on my last day of TX and give them my recipe with a melting cup.
Karen
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Well, the machine was broken again today. They got the problem fixed from yesterday and something else went wrong this afternoon. At least they are calling me before I make my way over to them, it is a 50 mile trip.
So I am at 28 and holding. 5 more to go. I guess the good thing is that it is giving my boob a little time to settle down. It hasn't been bad but 5 more treatments in a row might have been more than it could take.
Juannelle
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Hello all, 23 days since my final tx and healing has been going well. To ditto what's been said by others, I too experienced most of my SEs after tx ended...my last tx was Feb 8, the SEs peaked on Feb 16, and by the 20th the healing had begun. Since I'm pretty endowed, I needed a good bra and my favorite for comfort and feeling "hugged" was my Anita Comfort bra 5310 (I read about it somewhere on the website). Hard to come by (and also expensive) as the company may be discontinuing that style but for me it was a lifesaver....so soft and comfy..the only bra I dared to wear during the peak period,. I'm still wearing it today...not ready to give up the comfort and huggy feeling. Still have some rash-looking somethings and some itching but way improved.
One by one we cross the finish line....do you think one day this will all just seem like a bad dream? No, probably not. This is life and we're all proof that we CAN get through it! We are indeed amazing, are we not??
Carry on and be well, radiant ladies!
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Last one tomorrow!
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19 down, 2 to go. Port removal scheduled for friday after the last rads.....
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I am very happy for the women who have lost or losing soon their ports--must be a wonderful feeling! It's been three weeks since I finished rads, and I don't know if the minor fatigue issues are due to post-rads letdown or my return to work (part-time) the day after my last treatment. But the breast feels pretty good--it's nice to forget it's there! I am gradually returning to underwire bras since my skin needs to get used to the pressure again (which I never noticed until I stopped wearing them). I met with the med onc and the on-site pharmacist three days ago and started tamoxifen yesterday. My onc told me that "recurrence" doesn't mean another tumor like the one I had but metastasized BC. Well! That put a new spin on treatment options...I have been very lucky so far. All the best to everyone!
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Hi Ladies! Congrats to those of you whp have crossed the Finish Line of this marathon!
I'm at #22 of 33 today. The last 5 will be boosts. Here's my question:
I have tats, but the techs marked me for the boosts on Monday and put stickers over the marks to keep them on my skin. That means that I can't use any kind of lotions aor creams on my very red, sore skin because the lotions break down the adhesives in the stickers and the markers underneath then wash off. I can't figure out why they marked me so early - and just when I really need the lotions on my skin.
If you were remarked for boosts, was it done this early?
Feeling like a Crispy Critter and there's nothing much I can do to fix it!
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Karen1959--How thoughtful to bring them the chocolate covered cherries. I am sure they appriciated them. It must be hard on them as well as ourselves to watch us go through this.
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Hi MaineCoonKitty, I was marked the day before my boosts began. With the Sharpie X and adhesive tape. But I used the lotion, and just kind of skipped the adhesive patch. I had 7 boosts, so had the tape on for 10 days, and it held up well. Good luck!
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Thanks for the info, tangi-girl. Maybe I'll try that tonight and sse if I can at least get some lotion or aloe in the places where there aren't any taped marks.
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Today will be 24 down and 9 to go. Still have middle upper chest rash and itching -- Silvadene seems to be keeping it from getting worse. A little difficult to swallow foods but doable.
Not sure if it just in my head or not- but feels like my radiated rib cage side is a little sore? Could this be from RADS?
I am sooo happy to be on the countdown with single digits. I will not be given any boosts since I had a BMX and there is no tumor bed to Radiate.
Hang in there ladies-- We Will Get Through!!!
Loretta
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I'm having radiation in the prone (face down) position. I had treatment #7 (out of 33) today. For the last week, I've been feeling pain/soreness in my upper arms. It gets bad at night and seems to fade during the day. I don't think the radiation itself can be the cause as I have it in both arms but only left breast is being radiated. I have to hold my hands above my head during the treatment. This is just for 10-15 minutes but was much longer during the planning session. Would that be likely to cause this pain? Just wondering if anyone else had a similar experience.
precioustime: I feel a little soreness in the lower rib cage after radiation but I know it's just from that area pressing down on a hard edge of the bed during treatment. I complained after the first treatment and now they tape a small foam to that hard edge during treatment. But I still notice a redness there for a short while after treatment.
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Onty, you crack me the hell up. Just because of you, I am going to ask for this port (won't be taken out until September 2010, though!!!). Blechies! I love your suggestion of putting it in a jar with the "break in the event of breast cancer". LOL! Tomorrow is your BIG day! I am so very happy for you.
I knew it was too good to be true...a tinge of pinkish hue and tender skin has arrived. I notice the skin seems to be shedding lightly (but not in any pattern or form yet). Today was #21 of 26 full rads...then I have 7 boosts left to finish by 3/22. Techie told me today that some people get these SE by week two, I got 'em in week 4 and some people never get it (lucky ducks!!!). He did say that the one thing that can be expected is continued SE, even worsening, after Rads end (2-4 weeks after Rads end). No surprise there from your posts! Cookie, I am beginning to feel like your Big Red guys! Can't wait to see what they look like in one more month! Ugh!
hugs to crispy critters...
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24 down,9 to go. My skin is tanned, little tender and sore from time to time. Looking forward to weekend break already
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Ah Mary, MSK is all about the prone. It was so uncomfortable on the healthy breast side, they would pull that little wege!
I had a few odd aches and pains, I twisted my funny on the table.
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I'm done!
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Cookiegal: yes, uncomfortable but I think that I would prefer this than having those big metal disks swivelling by just inches from my face. Actually I'm not having rads at MSK as that is a longer drive for me. I'm going to a center closer by. I'm usually there and back and irradiated in less than 50 mins.
Cookie: Have you read the book "Cancer Vixen" by Marisa Acocella Marchetto (cartoonist at the New Yorker)? As I started reading it, I was thinking you might like it as you are a NYC gal (at least it's your adopted city) and and also since you have a media background.
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weety: congrats! how do you feel?
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thanks, MaryNY! I have a bad sunburn, but no blistering. I can't complain. I saw a lot worse!
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Onty, yea for you being at the finish line. Glad you did get to arrange to have your port out. It is a relief, just one more thing off the list.
Good news today, I did get my treatment. The machine is fixed and I hope it stays that way.
Saw the Rad Onc today and he said I am really doing well. He said normally he likes to see his patients back in 3 to 4 weeks after finishing, but I am doing so well that he said I could wait 4 months before coming back. He did say that I might still have some skin issues and if I thought he needed to see them, just give him a call. I am still waiting on the fatigue, so I asked would it just hit me one day and I would be so tired I couldn't make it through the day. He said maybe since I haven't been fatigued so far, maybe I wouldn't be at all. Keeping my fingers crossed on no fatigue.
It doesn't matter what happens now, this was so much easier than chemo. Can't hardly believe that I am almost done.
Cookiegal, glad you are finally getting well and feeling better. What are your plans for the future? Now that you have all that free time.
maincoonkitty, I got a big black X that they covered with some tape and it is right on my nipple. I just hope it doesn't take all the skin off when it is removed. Anyway they didn't put this mark on me until the day before I was starting my boosts. But I haven't worried about putting lotion on it, they didn't tell me not to and it has not come off and it has been there for over a week. Good luck to you. Lover your name, I use to have a main coon kitty and it was the best kitty we ever had. He was alergic to something in my house and always had an upset stomach. I would take him to the vet and he would never be sick. He stayed at the vets so much, that he and his office staff fell in love with him and they kept him for an office kitty. At least he wasn't sick anymore.
Juannelle
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Last rads and port removal tomorrow. Can't wait for this milestone.
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Mary I love love love that book. I actually carried it with me in the hospital like it was my binky!
I have tried to get in touch with her, I know her publicist. She has a fund raiser every year for St. V's (well who knows what will happen to that hospital) but this year it was too close to my surgery to go.
Love that book!
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Last rad done. The techs had me ring the bell to signify the milestone!!!
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yea for Onty, hope the port removal goes well. You are done done done done.
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