January Mastectomy
Comments
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Oh, the new bed was heavenly!!! I love it!!! I still couldn't lay on side much and I still felt that heavy feeling in the morning when I woke up, but I didn't have to have all of the pillows and I stayed there all night. It was so soft and lovely! My DH on the other hand woke up all grumpy and saying that he didn't sleep well.... Well, you can change the number to firmer or softer, so no excuses! He just has a negative, the glass is half empty kind of attitude, drives me nuts sometimes. I so want to be a positive person, but sometimes he drags me down. But he isn't going to drag me down on the bed, I love it! He'll come around, he just doens't want to admit that it is wonderful and worth every penny!!! Anyway, hope everyone has a great day, I am determined to walk today! But right now I need to do my stretches and loosen up my back! feeling pretty tight! Oh, Sally, yay for you and the happy dances!!!! And Kat, I read on another thread that you love your rub on tan, that is great, I might have to try that out!
Go Team January!!!!
Paula
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Paula..... I know that you're talking about the Komen 3 day, with the big financial committment of raising BIG funds. You have an awesome 5K in Detroit this spring. The first spring after my dx, when I was in the midst of rads we drove up and walked that one. We joined the BCO team -- under the MI thread get-togethers here on the boards. The team is called "Wings of Hope." The year that I walked with them we had 17 survivors and the team had over 50 people. It's only $25 I think -- and you get the t-shirt(s). If there's anyway you have the date available I'd highly encourage it.
The Detroit walk had a pink carpet at the finish line..... as you cross the finish line as a survivor you walk down that pink carpet and they have drummers at either side who are doing "African drumming" while the crowd cheers from stands set up nearby. VERY moving. Then the BCO team goes out to lunch together. They are one of the most organized little groups here. I've met them for lunch on at least two other occasions when my work has taken me north to your fair state. They are an amazing crew.
Can't believe I'm the first here this morning??? What's up with that????
RISE AND SHINE!!
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Debbie, actually you were the second, but who's counting!
thank you so much for that info, I didn't know about that one, I'll look into. I really wanted to do one of them this year, but the Komen walk for the cure was out of the question, and I checked into the Avon walk in Chicago but that has a min of like $1800 to raise, so again, out of the question. I will definitley look for the thread on here for this and see what I can find out, sounds like an awesome experience. Not sure that my mom will be able to handle it. We had a meeting last night for Relay and they had all of the survivors come up and gave us all cupcakes with candles (signifying more birthdays) and took pictures and stuff and my mom sat there and blubbered like a baby. Can't imagine how she'd take it walking down the pink carpet like that, but I think it would be awesome! Thanks again! You sure do get around don't you? You seem to have been everywhere, that is great. Although, I'm wondering about you referring to Michigan as a "fair" state.... pretty chilly up here! Anyway, have a great day!
Paula
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Debbie, just figured out that you are referring to the ACS Making Strides Against BC and I had checked into that a while back but they don't have the 2010 Michigan schedule ready yet, so I will keep checking back. I looked through the fundraising thread on here and didn't see anything about it, how do you get on the BCO team? Maybe they'll come up with one when they have the dates set? I know that there is one a little closer to me then Detroit, I'm about an hour from Lansing, so that is the one I would do probably. Thanks again for the reminder of that, I had totally forgotten about it! Thanks for keeping us all up-to-date on things!
Paula
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Yup. Ya beat me, Paula.
I must have been typing while you posted.
So close, so close and yet so far........ LOL.
Your DH was probably grumpy, if he didn't get the bed christened on it's trial run.
The other thing that they did at the Detroit 5K was that before the walk began they had a series of survivor speakers offering encouragement. Then they asked for a minute of silence and that was followed by bagpipes playing, "Amazing Grace."
Seriously, I was sobbing by that point.
One other thing I know they do up there every year, is that they offer a 'trolley bus' for any survivors who can't physically make the walk...... that way they get to still participate and see the route.
Detroit had 'bands' playing about every 10th block or so, or cheerleaders or whatever.
The FORD company is a major sponsor and they go alllllllllllllllllllllllllllll out.
By all means, find the MI get-together thread and introduce yourself.... you can tell them that I sent ya. LOL. They all know me as Faith..... not so much Debbie. More laughing-out-loud.
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No. I'm talking about Komen's Detroit 5K.
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Well, I'll be, didn't know that Komen had a second thing! That is cool! Thank you again, I thought you were talking about the ACS one... I just found it online. Now how do I find the MI get together thread?
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I've walked our Columbus ACS Strides walk on two occaisions..... and our Columbus Komen on two occasions as well. In Columbus, our Strides walk is a MUCH smaller affair than the Komen.
Here's me being interviewed by the morning radio D.J. at our Strides walk last fall:
The head 'boppers' are my original set from the Detroit Komen, Wings of Hope.
They had asked me to share about my prayer-scarf.
We are very fortunate to be living in a time when you can say "Breast Cancer" out loud.
We are very fortunate to have the support of so many as we walk this journey.
There are so many diseases that do not have the 'pink-buzz' and muscle.
xx00xx00xx00xx
Strength and courage.
Strength and courage.
Strength and courage.
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In the BIG list of all the forums here on the Discussion Boards,
Go very near to the very bottom of the list.
Under: Support & Community
Then Go to the section on Get-Togethers'
Then look for MI
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Try this:
http://community.breastcancer.org/forum/34/topic/52574?page=96#idx_2879
For what-ever reason, I can never get a link here on BCO to go hot..... you may need to try cutting & pasting.
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thanks Debbie, I found it! Just posted to see if anyone near me. They have set up the team "Wings of Hope" for that race so I can go on and sign up, haven't done it yet, but probably will. Saw that one of the ladies is about an hour from me, in the same place where my PS is, might be cool if she used the same one! We'll see.
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Hi Ladies...
Hope all is well today.
Glad the new bed has the potential for a true love story Paula! My DH is much like the glass is half empty at times as well although he's getting better...Sometimes he likes to convince himself that there will be a negative outcome so that "if" it turns out positive, he'll be pleasantly surprised. I say that's BS (and not breast surgeon either
When you expect negative results, you will get negative results. That's just how it works.
Yes, my faux tan is fabulous! The secret is to scrub scrub scrub. (with an exfoliater in the shower the night before) Then, I mixed it with a little dab of my own lotion and was careful where I was putting it. (mostly forearms and face) This product is like the real deal...none of the gradual stuff that's out there. Remember that one product "Got a minute? Get a tan" Well this it....except it takes overnight to see it...It's called Faux Tan from Bare Escentuals. They don't have it on Sephora.com but we have a boutique that carries the line so I just went in. It's about $25.00
Another good thing I'm using is CVS brand Scar Treatment Silicone Scar Sheets. I have a 2.5" axillary incision that I've been religiously using it on. It fits perfect and you can leave it on for up to 3 days. It stays on in the shower and everything. The main trick is...when you do change it, you have to put it on before you put your deodorant on or it will never stick. I usually shave with it in place too as I feel like it gives me an added protection from my razor knicking my scar. 28 sheets for about $25.00 (the official amount for breast cancer post surgery items) Obviously not using these on the foobs just yet...but I intend to after the exchange is done. I should be able to cut them long ways in half and be just fine. My axillary incision now is 75% faded and healed already. I'm amazed.
Oh and I did have one (negative Ack!) thing last night. My right foob (cancer side) was just sending lightening bolts of pain through me. Not just discomfort either. I had to stop in my tracks and go YOWZA. This went on intermittently for about an hour. I ended up taking iburophen and it settled down. Waking up in the morning though remains the most painful part of the day...so thank goodness it only lasts for moments.
Have a great day ladies!
Kat -
Kat, I had those lightening bolts, they told me it's the nerves coming around and totally normal. I know what you mean, they about brought me to my knees and would take my breath away. I haven't had any for a while, thank goodness!
Good to know about the tanning stuff, will keep that in mind for when I need a tan! As far as the scar stuff, my PS recommended this stuff (that he sells of course) called ScarGuard, you paint it on like fingernail polish twice a day. I think that it has made a difference, my big question is, why he has me using it now on my foobs, since he is going to be cutting them back open for the exchange, but I guess every little bit helps. So, I'll keep doing what he tells me to do!
Went to lunch with a couple friends today, met them at the restaurant! I felt so free, such a big girl driving myself to lunch! haha! Sounds so silly, but you forget the freedom of driving yourself around when you don't do it for so long. I had just started when I got my fill and it put me out of commission again. I bought some "homemade" cookies from Miejer today to take down to daughter in law so that I can have an excuse to see the baby! Her family is definitely getting in more baby time then I am! Getting a little frustrated with the whole thing! Oh well, that's the joys of being the mom to the daddy and not the mommy!
Happy day to all!
Paula
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Made it through my first chemo treatment today. Although I bawled through the first hour, the rest was uneventful. Actually feeling okay right now. Just tired and woozy. I have 3 anti-nauseau meds and 1 anti-anxieity/nauseau med to take starting tonight. I'm anxious to see how the next 5 days unfold.
On a happy note, I'm having a Hair Today Wig Tomorrow party next Saturday. Wigs and Hats encouraged. My dad wants to shave his head that day and my brother is coming up from Oregon to shave his head (my DH is nearly bald, so not much for him to shave!).
Friends just sent me a beautiful burgundy synthetic wig -- very nice and it looks good too! I'm giong out tomorrow to look at other wigs. Want to start with wigs at my new job on 3/15 then I"ll work up to scarves.
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(((((((((((((((((((((((Brenda)))))))))))))))))))
((((((((((((((((((((((Brenda))))))))))))))))))))
((((((((((((((((((((((Brenda))))))))))))))))))))
xx00xx00xx00xx00xx
Strength and courage.
Strength and courage.
Strength and courage.
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Congrats Brenda on your first treatment-and the party idea sounds awesome! What a great group of friends and family you have!
My 2nd chemo treatment is tomorrow, and I'm about as nervous as I was for the first one-and I have no idea why. I have no hair for this one, but at least I have boobs again! One of the bonuses to having small boobs to begin with-you get them back with only 2 fills of the TE's-nice!
I actually played the Wii today with my daughter-I was surprised at how out of shape I was after not doing it for 6 weeks. She kicked my a**, and loved every minute of it!
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Up and at 'em!!!!!!
PT this a.m. -
Brenda- Hope you are feeling well today after your first treatment...I does get better... Today is day 7 . I actually feel normal again yesterday was great. today is even better... I decided to go back to work on Monday just a few hours... I work in a dental office lots of germs , but i will mask up and wear my gloves... Do 4 or 5 hours ... The day that I have to go to Dr. app. I will ship... And take the week off for the chemo...My boss is willing to work with me.. That's all I can ask... Getting tired of staying home.
Kim- good Luck today on your second treatment .. I know how you feel I am feel rather good today and to think of doing the steroids all over again and the achy feeling... Not looking forward to it.
Kat- I'm a dummy... Where are you putting this scar tap on your node section or the mastectomy scars???? Don't they have to open that up again to put in the new implants,,,,???
Help.... Mastectomy 101....(LOL) Any info will be helpful...
I am so glad they who ever got the onco type results back and a in the non chemo range congrats to you.... Thank goodness. One less of us getting these SE of this medicine that is suppose to make us healthy again.Tomorrow I go for a fill...... I guess he will do what he thinks I can handle....
Feel well today ladies... The sun is out here.. I think I will take a walk around the block a couple of times.
HUG-
Donna
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Donna, from my experience, my PS always thinks that I can handle more then I can, so you might want to be cautious... but then again, maybe I'm just a wimp, which is really bothering me, I have never considered myself a wimp before this, and I seriously thought that I would be super tough and handle anything they dished out to me, but damn, those fills hurt me!!!! Next time I am going to try 50 cc's instead of 100, maybe 75, but I don't know. I was sooooo miserable. He told me before all of this started that most women say that they're not that bad and barely have any discomfort... LIAR!!! I am just sure that he's lieing to me about that, because I can't imagine anyone taking those fills and saying it's not bad. But, in the same token, I have read women on these threads sayign the same thing, so I'm back to me being a big wimp and I don't like it. But what do you do, except come on here and ramble, like I am doing. I'll stop now! Good day ladies!
Paula
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Good morning my January friends,
Well, it's Thursday and that means FILL DAY. Why is it, the night before the fills, I sleep better? Actually managed to roll onto my side (for a little while). They feel a little softer this morning; not as rock hard as a few days ago. Guess that means the tank is low and needs a fill! Anyway, I am going to stick by my plan of going down to 50, unless the PS can do a great job of convincing me why I shouldn't (and I don't think he'll do that).
There is hope here for better weather; we may see sunshine today and it looks like the temp's are headed up. I swear the weather has a lot to do with our moods lately. But Spring is a time for rebirth and new beginnings and we all seem to be headed that way.
I continue to pray for those of you going through chemo. May those drugs be effective, may the side effects be minimal and may it be as easy for you as possible. My thoughts are with you!
Kat - I never put anything on my incisions. My guess is we had different types of Mx's. I only have one horizontal scar (about 2", where the nipple should be) on my rt breast and 2 small incisions in the bottom half of my left nipple. Once the bandages were off, I showered, was told to use antibacterial soap and left them alone....no bandages or anything. The only thing the PS recommended was cocoa butter or any lotion with aloe.
As for the exchange surgery, the PS said they just go back in the original incisions (ouch!). I had my AND with the second lumpectomy on Dec 10th and that scar (which was the nastiest of all) is fading beautifully. Still shave around it, but it is getting flatter and blending in with the skin around it.
Starting to get anxious about husband leaving first of April. I will see what the PS says about exchange surgery....how long I will have to wait. That will help me make a decision about when to put the house back on the market. Right now, can't quite deal with the thought of packing, moving, finding another house, etc....
Love the pictures Debbie.
Stay strong and remember, the only thing we have to fear.....didn't we learn that from all the anxiety that we've had in the past. Looking back, the anxiety before a procedure was always worse than the actual procedure....or is it that once it's in the past we have selective recall?
Everyone, try and find 15 minutes of peace and solitude today!!!
Marianne
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Sunshine here, too!!! yippee...certainly puts a little extra kick in your step
Always have to do a morning "check in" with my January buddies each day....will miss you tomorrow morning - duty calls (as in WORK!).....my first full day back. I will have four 5th grade classes in a row without a break...then my quickie lunch while I shift gears to prepare for my tired, squirrelly, rambunctious 1st graders....then two 1st grade classes.....who are soooo tired at 1pm on Friday afternoons, they don't care what fun songs or what fun music activities I have planned - all they want to do is lie around on the chairs, or run around like wild Indians
I'm sure by that point, I'll be ready for a nap myself....
You girls who are doing chemo just amaze me....I think of you and pray for you all the time. My dad went through chemo seven years ago, and he stayed amazingly strong. He would joke about his hair - how he'd save money on shampoo, and it would take him less time to get ready in the morning, and stuff like that..- He didn't get sick on the chemo, but the pain from the shots (neulasta, I think it was) as the red blood cells (I think) building back up, he did talk about...
So, even though I don't know first-hand what you're going through, I am with you in spirit and in prayer!! I know that even then I STILL don't know what it's really like - just as someone who knows someone who had a BMX doesn't really know what that's like either....
I guess each of us is called to experience something different, so that when we come across a person going through their own experience, we can relate. We are comforted so that we can comfort.
I'm rambling....better stop.....sorry.
blessings....robin
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Day 2 after chemo and I"m feeling amazingly fine. Makes me wonder what's around the corner! Heading out for a walk since I feel good ... get that exercise in while I am able and keep the weight done. These steriods make me want to eat constantly! Wonder if I start lifting weights I can buff up like Linda Hamilton in Terminator??? One can only hope. Or what was that one where Natalie Portman shaved her head? Yeah. I could be like her. Only 30 years older.
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I have sunshine today also ! I went for a morning walk, and now I am in the midst of a do nothing day.
I have always loved to read, and usually read a couple of books a week. I haven't been able to concentrate enough to read since my surgery. I started a new book last night, and I am enjoying it ! I am so excited. Reading gives me a lot of peace and reduces any stress I am feeling. I love to get lost in a book.
Ladies, all of you having fills...I hope you get a managable amount and little discomfort.
For those of you with Chemo, I pray for you daily.
Anyone heard from Cathy?
Hugs ladies.
Sally
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Mornin' glories {hugs}
I hope the morning finds you feeling better today than yesterday. Come on spring! Thoughts and prayers with everyone and especially those getting chemo and fills. As for pain and discomfort... there are no wimps and no one can tell you how your body feels. Besides each person is physically different so what is not a big deal for one person may be extremely uncomfortable to another. Hang in there.
I have a question: Has anyone had an issue with a fungal infection in the area of surgery? Now 7 weeks out from surgery and I have developed a scaly red patch just above the incision. Went to my family physician who felt it was a fungal infection and started me on a cream. Saw the BS yesterday and he was concerned. He wanted me to let him know if I didn't have improvement within three weeks saying we may have to biopsy it to see exactly what it is. Of course hearing biopsy freaked me out. I can not figure out how this got here because I have been keeping the area scrupulously clean and dry.
Besides feeling unclean (there is no fun in fungi girlies) now I am worried about being able to have the exchange surgery. I have been trying to get my 'happy' back the last several days and this isn't helping. Ok, done whining on that.
I am going Monday for a transvaginal ultrasound to check out my remaining ovary left from my partial hysterectomy in 2002. And also having lab work for FSH testing. I had decided against tamoxifen with my oncologist but this has been weighing on my mind. I just have this need to know one way or the other whether that ovary is or is not functioning and that it looks ok. I had the hysterectomy because of a suspicious pap and horrible periods. I wanted to keep my ovaries but the doctor took the one because it looked suspicious. It was benign.
Anywho, I hope I can get my inner self settled down, back up to happy and ready to move forward. Love you girls {hugs}
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Afternoon gals....
Had a constructive morning of laundry followed by a mani/pedi. Only a little more time to pamper myself before I too go back to the working world. I'm a little panicked about it...mostly with getting phone calls in the middle of the night. Thank God the worst of the snow is over as snow and staffing don't work as well together.
I went with a girlfriend yesterday to look for her mother of the bride dress and I about started crying at 6pm to please take me home I was so miserable and cold. I think initially, we had more swelling and that limited the 'discomfort' Sure, you couldn't raise your arms, but it wasn't a thin piece of skin holding up a tuna can either. Speaking of raising your arms, I'm happy to report putting hanger items back on the rack is quite doable!
I have an extra incision than most of you...from where they stripped out 17 more nodes a week after my initial surgery. it's horizontal to my armpit. I am using the silicone scar tape only on that...not anywhere near the foob incisions. The way I understand the PS, when it is time for the exchange, they do go through the initial mastectomy incision, although only a portion of it. Like the direct center....the outside/lateral portions of the incisions left intact. They deflate the TE and fold it over on itself like an enchalada and pull it through...then they push the implant through the same opening but this time like a crème puff through a keyhole and viola! Let the healing begin.
If the most central part of the incision after the exchange isn't 'great' it's ok, because the nipple tattoo will cover that up. I was driving down the road today looking at all the cracks and crevices this winter has done to our roads and couldn't help but think of my poor incisions! They do finally look better...as better can look I guess. As compared to a cracked road.
Sorry about your fungus Lyn...yeast is manageable...I don't understand the biopsy part, you'll have to share that when you know something. Are you sure he didn't say culture?
Glad you girls on Chemo are doing well. Tamoxifen isn't so bad either. I really can't complain about it. Another benefit I'm finding is I take it at night and I'm extremely sleepy about 20 minutes later...so hip hip hooray!
Good luck with your fills Marianne! Hopefully he'll put 60cc in. They do use 60cc syrnges so why not?
Yes, where is Cathy? Hope all is well...
Have a great day girls!
Kat -
Lyn,
I have a nice fungal/yeast infection also
Mine started in my belly button and spread outward. My PS attributes it to the anitbiotics I am on. It nearly drove me crazy before he diagnosed it. I have an abdominal binder I wear 24/7 and this rash is under it -- the itching nearly killed me. Mine has been around almost 2 weeks. He prescribed me 2 pills and then has me applying cream. I will probably see him Tue, so I am sure he will check then to see how it is going.
The fun just never stops
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I am glad I am not the only one Sally! I haven't been on any antibiotic and the doctor did say biopsy and not culture. I was too shocked to think to ask because I just thought it would have nothing to do with the bc. But he said it was 'concerning'. Ugh.
{hugs}
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Lots of chattering today.
Glad to catch up on those reporting in.
Still concerned we haven't heard from Cathy in a l-o-n-g time.
Cathy.
Cathy.
Cathy.
Those of you going back to work,
Those of you in chemo,
Those of you having fills,
Those of you with fungi,
Those of you waiting for one thing or another,
Those of you seeing therapists: OT, PT, heart&mind,
Those of you with children at home,
Those of you with less-than-supportive spouses,
Those of you struggling with the emotions,
Those of you in the midst of side effects,
Those of you feeling alone,
Those of you starting healthy new habits,
Those of you shopping for foobies,
Those of you on anti-biotics,
Those of you with drains,
Those of you on the roller coaster,
Those of you awaiting intimacy,
Those of you doing research,
Those of you having trouble sleeping,
Those of you with many emotions..........
Know that I am sending up a prayer just for you.
xx00xx00xx00xx00xx
Strength and courage.
Strength and courage.
Strength and courage.
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Kat,
I love your description -- pushing a creme puff through a keyhole! Actually I like the whole "creme puff" thing; I'd much rather have a creme puff under my muscle than a can of tuna! I swear any newbies looking at these posts would think they used way too much anesthesia on us!!
Had my fills today. The PS said everything is looking fine; it's just the way it is supposed to be. He will take care of the things that aren't exactly symmetrical in the exchange surgery. Said the discomfort I am feeling on the left is from the second surgery--that muscle is a little tighter and there is probably more scar tissue in there. He asked if I was comfortable with last week and I asked if we could try less. Absolutely, he said...how about 50? I said ok. That means I now have 350cc in each one. I asked him when he would schedule the exchange surgery. He said he likes to wait about a month after we have decided we have filled enough....so if I get 50cc the next time in each, I'm thinking I'll be done in April and if we wait a month, it might be mid or end of May when we schedule.
Debbie, love your posts -- you seem to cover everything you read...I can barely retain what I read in the last post -- maybe I did get too much anesthesia.
Anyway I can tell the difference in the fills; 50 is much more manageable (so far).
Everyone have a restful and peaceful night! Thinking of all of you!
Marianne
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Creme puffs sound much more desirable to me than tuna cans to me, too....and I don't have either one!!! (sounds tastier, too....yum!)
Ok, I have a question.....does anyone feel little bumps in your armpits??? I started feeling these little bumps, and now my armpits are feeling sore/tender (the parts that I CAN feel - especially the left side where the feeling has all returned - the side where the four nodes were taken).
I go see my surgeon on Monday again, so I plan on asking him anyway, but just figured I'd ask you all first....I tend to be kind of on my own schedule compared to you all, somehow....don't know if it's because I was one of the first in January, or because I didnt' reconstruct, or just because.....
Tomorrow's my big day....back to a full day in the classroom....not sure I'm ready. I'm next door to the PE teacher....she told me she's there if I need her. I told her that if she sees me on the floor to either awaken me or perform CPR - whichever is necessary...ha!! (and I also told my family to NOT expect supper.....<grin>)
blessings...robin
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- 50 Immunotherapy - Before, During, and After
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