STAGE 1, GRADE 3, ER-, PR-, HER2+

Options
12346»

Comments

  • shadow2356
    shadow2356 Member Posts: 393
    edited February 2010

    Hi Linda-

    Its good that you are going to let it go. You don't hear of too many grade ones that need chemo anyway. Relax and love life. It could recur but then again you could get something totally different and unrelated too. There are no guarantees. I can't wait to finish chemo. I want my life back. I will still do herceptin for a year but it is nothing compared to the chemo. I will be very happy to feel normal again.

    The weather here is about 40 degrees. It is going to snow again this week though. There is so much snow on the ground it makes you wonder if it will ever melt. I will be happy when spring comes for so many reasons.

    Enjoy your spring weather!!!!!

  • charleneg
    charleneg Member Posts: 69
    edited February 2010

    Hi Linda,

    I liked MaryEllen's post because I really didn't know the answer to your question.  I, like her, feel you need to do what is in your gut to do.  But you really probably don't need chemo and are going to get the best treatment for what you have.  If it was me, I probably wouldn't do the chemo or the test because you are low risk it looks and chemo kills all the cells, good and bad, and who knows long term effects and why go through it.

    Honestly, my oncologist did tell me with my ER-, PR-, HER+ they were probably overdoing it, but his advice for me was to go through it all.  So that was from my oncologist for my situation.  So even they sometimes are in a little bit of a quandry but mind you I am Grade 3.

    Let us know.  God Bless You.

    Love, Char

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited February 2010

    Hi Char.  I've finally decided to pay for the ONC test and be done with it.  If the test score comes back on the low side I'm totally happy with my choice of tamoxifen and radiation.  If it comes back on the high side, my oncolgoist agrees that we should have the chemo discussion.  I just wish the ONC test was paid for in Canada...it's not.  Ughhhhh.  It's going to be close to $4,000

  • shadow2356
    shadow2356 Member Posts: 393
    edited February 2010

    Linda-

    If you feel you will always worry then do the test. I hope it comes out that you don't need chemo. $4000 is a lot of money but it may be worth every penny if it brings you peace of mind. I hope you don't need chemo, it has been a tough road, but, I am glad I am doing it. I need to know I am doing everything they suggest.

    Good luck!!!

  • charleneg
    charleneg Member Posts: 69
    edited February 2010

    Hi Linda and Maryellen,

    You have to do what you have to do in your gut, Linda.  I bet you are going to be fine.  Keep us posted, okay?  

    Maryellen, hang in there.  I am sorry it has been a tough road for you with a young girl at that.  

    One thing I know it does go by somewhat fast looking back in hindsight.  I have Herceptin through about mid-April 2010.  But sooooo many tests and so much happens in such a short time that it can be a mind blowing experience.  When I look back at October 2008 when I was diagnosed and all that I went through since that time, it stuns my mind.  But at the time, I feel God's grace was there to see me through.  My sister had breast cancer at 45 years of age and she also said the farther away you get from it, that is time, the more it is like a memory and you begin living again.

    Love you guys, Char

  • charleneg
    charleneg Member Posts: 69
    edited February 2010

    Hi Linda,

    I just read your post on the other board.  I think you are truly doing the right thing.  You go girl.  You are going to be fine I feel and are getting the best treatment there is.  There is so much breast cancer help these days.  They have come a long way.  It is just such a trauma initially and the fear of the unknown and as you go along it seems we "settle down" a bit and get through the hard stages.  And before you know it we are back living life as we now know it.  I refuse to be robbed of my present life by worry and fear but it can be challenging on certain days.  That is probably why I don't go to the Boards as much but I do want to "give back". 

    Take care.  

    Love, Char

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited February 2010

    Hi Char,

    Thanks so much.  I really did need to process everything and in the end, go by my gut...but my pink peeps/sisters really pulled through and helped me so much.

    I am sorry your sister had breast cancer as well.  My younger sister had cancer of the anus and she really went through a lot...but even though it was very aggressive and in stage 3...she managed to fight it (chemo and radiaton...no surgery) and has been 5 years cancer free now.  She is so special to me and I miss her a lot.  She lives in Nova Scotia and I'm in British Columbia...the other side of the country.

    Again, thanks for "giving back"...I will remember to do the same.  I know I am going to get there and will try to be patient.  LOL.  Not easy for me to do, let me tell you.

  • charleneg
    charleneg Member Posts: 69
    edited February 2010

    Hi Linda,

    So great to hear about your sister.  That is amazing story of her 5 year ned.  That is very interesting because my sister lives back East and I am in Colorado and she has helped me sooo much along the way also by her going before me.  Hers was in-situ and she had radiation only and Tamoxifen for 5 years and is done now.  

    Keep us posted.  You are going to be fine.  That is a cute picture of you and your husband.

    Love, Char

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited February 2010

    Hi Char...thank you for what you said about my picture.  It was the ONLY decent one of mine I could find so that is what I used.  I really like yours as well.  You seem quite young for all of this.  I've noticed though that there are more and more young women joining us.  Not a happy thought.

    So happy you are doing well. Take care and God bless you too. ((((((( CHAR ))))))))

  • charleneg
    charleneg Member Posts: 69
    edited March 2010

    Linda,

    It is a pleasure talking to you.  While I was in the throes of this, there was a sweet girl that we "journeyed" this together but she has since gone away from these boards as sometimes we all just want to walk away from this chapter of our lives.  

    I am 59 and this picture of me is with my wig.  I will be 60 this year.  What a thought.  My hair is now growing in but still looks a little like a boy's cut, pixie looking.

    Keep us posted.

    Love, Char

  • gabriela_1979
    gabriela_1979 Member Posts: 8
    edited March 2010

    hi char,hi all the girls

    i had to step awhile from the board.actually i am doing ok,i passed chemo in late november last year,i had to had 29 rounds of radiation therapy(i.m.r.t)which i did in Turkey.the radiotherapy was a bless comparing with chemo.i had to stay for almost 6 weeks away from my son but i had my husband with me all this time.the time passed very quick,the sessions of radio being 15-25 minutes.at the end of the treatment they increased the number of minutes.the radiation therapy i had to do it away from Romania,my country because of the ancient machines that we have here.i was blessed to have the means to go away,sometimes i was speaking with my husband about the other girls from my country that do not have the means to go abroad and take care of themselves.we have to be strong and pass this brige,the brige of our lives,to smile and go on.we have to gather all the power that we have left and with the support of our families to begin the battle.fights we shall have.

    char,girls,bluedasher i found out that virgine olive oil has a great potential of fighting with her 2 neu protein,and cancer cells.in the morning i make a cup of mixed broccoli,cabbage,ruccola,greens,water added and 3 spoons of virine olive oil.it give me enouth energy for the day.mediteranean diet is supposed to be great.

    another diet is flaxseed oil,virgine.

    we have to give power to our body in order to fight .

    kiss to all of you

    gabriela

  • charleneg
    charleneg Member Posts: 69
    edited March 2010

    Gabriela,

    So glad you were able to get the best treatment available.  So sad your country does not have what it needs.  Thanks for the "energy drink", I will try it.  I heard those veges good for fighting cancer.  God Bless You.  Do you have a year of Herceptin now like I do - I am just finishing up.  It is to fight the aggressiveness of the cancer.  

    Char

  • gabriela_1979
    gabriela_1979 Member Posts: 8
    edited March 2010

    DEAR CHAR,GIRLS,

    i haven't finished the herceptine treatment.i still have to have it untill july or august.what can i say.it was a broadcast here in romania 2 months ago.they had as guests some of the leading natural healers.they all spoke about cancer like a defense of our body when it has to do with stress,illness,wrong food,junk food.they spoke about the natural way of treatment which includes no meat,no animal protein.they spoke about proteins that we can find in vegetables,mushrooms,seeds,olive oil,flaxseed oil.

    actually i experianced a great deal of energy eating raw food in the morning.some exercises,sport,good eating,good drinking,green tea,no stress if you can :)).good air,fresh air.

    some spoke about a treatment with honey it is called APISAN FORTE,he is an inventor with many medals.another one who live in the city of Constanta who treats cancer with good results is mr.Dumitru Dumitrescu.

    i think that cancer has a cure,within us is the cure.i do not tell you about this just to tell,i have been searching internet for answers...just like you.at first is the question why me,what did i do wrong.after we deal with it,we fight the ideea of having cancer.

    we have to be strong.my husband gave me an ideea,to write down i am cured for 100 times.we need to tell our body what to do,to think positive,to pass this.i do not think cancer is death is a changing that we need to do,begining with us and ending with the others that are near us,to solve problems that we had before.life is beautiful.

    so pray and stay healthy.

    GOD bless all of us.

    kiss you all

    gabriela

  • shadow2356
    shadow2356 Member Posts: 393
    edited March 2010

    Its nice to see people are finishing their treatment. I finished my chemo last Monday. I had a hard time with it so I am very happy it is over. I did the cold caps and I still have all my hair.I have herceptin until December. I keep hearing what a wonder drug it is. I sure hope so.

    Good luck to everyone and have a great holiday.

  • charleneg
    charleneg Member Posts: 69
    edited April 2010

    MaryEllen, Gabriela, Ladies,

    What are cold caps?  Great.  Herceptin is truly a God send I believe.  It has very little side effects, if any, so be encouraged.  So sad chemo was so hard for you - you will appreciate Herceptin.  

    Gabriela, I heard once they have more hope for treating cancer than finding a cure.  It seems to have so many mysterious factors but I am sooo happy for the Herceptin because a few years ago our cancerns did not make it.  Honestly.  

    Love, Char

  • shadow2356
    shadow2356 Member Posts: 393
    edited April 2010

    Hello! The cold caps are Penguin Cold Caps. You put them on your head during the chemo. It works by making the follicles hypothermic (closed) so they can't uptake the chemo and because of that they aren't damaged and you don't lose your hair. I used them and I still have a full head of hair after my TCH. I did lose my body hair.

    I read about them on this site. There is a thread about them on BC.org under Help Me Get Through Treatment. I was skeptical, but decided to go for it. I am glad I did.

    Their website is:

    http://www.msc-worldwide.com/

  • GAgirl01
    GAgirl01 Member Posts: 61
    edited May 2010

    shadow2356~

    What encouraging news about the cold caps!  I just found this forum board & was so exciting to read the comments.  I too am ER-/PR-, HER2+++. it seems like the 20-25% might be larger than anticipated!! I'm trying desperately to reach Frank before my chemo is set to start on June 11th.  I am set to start 6 regiments of TCH every 3wks followed by Herceptin 1yr. (the usual cocktail of choice...LOL)  I would like to not lose my hair if at all possible :0)  I already underwent a bmx with immediate reconstruction (TE's) 2 weeks ago. They found 8mm of invasive ca hidden within my DCIS; lucky me...so it's off to the infusion room I go on June 11th.  If you have any additional advice regarding chemo treatments I will take whatever I can get...I'm entering the world of the unknown!

    Still scootin'

  • charleneg
    charleneg Member Posts: 69
    edited July 2010

    Hi GAgirl01,

    How are you doing on chemo?  I felt like you at first, what am I getting into?  But it was pretty doable and I hope you have that experience.  Metal mouth and sleeping 12 hour nights was the most drastic experience I had.  I tried to take care of myself and do less so I could keep up some energy and just get through the chemo stage.  The year of Herceptin had very little side effects and very doable.  Let us know.  I don't check the boards as often now as I guess sometimes it is like you want to put it behind you but I still like to give back also.

    Love, Char

  • mymorganhorse
    mymorganhorse Member Posts: 4
    edited July 2010

    Hi I hope this helps.  I was diagnosed with IDC Stage 2 with her2 positive and estrogen and progesterone negative.  They thought I had hot spots on my lungs and said I could be a stage IV candidate because of the Pet Scan I had.  With my diagnosis, I was given Taxotere and Carboplatnum with Herceptin.  It will be one year for my Herceptin in August, 2010.  Not sure if doctor will keep me on it.  I heard that some patients stay on the herceptin longer than one year if it's helping.  The chemo works for us but, my cancer is aggressive so I'm checked every 3 months.  The doctor used the word "Controlling" the cancer.  Not sure if that's bad or good.  But, most likely you will go on the same three unless your doctor thinks something will work better.  I got it every 3 weeks and the taxotere made me lose my hair.  I hope everything works out for you.  I hope this info is helping to you.

Categories