Please stop

Randomly  throughout , I see these statements about ranting and venting . Then someone writes a note to stop ranting and venting. Why not have a specific ranting and venting topic page. Where ,whomever, knows they can go and shout it all out. That it's expected. No one ,but someone whom needs to scream it out can go. Anyone wanting to rant or vent can safely let go without someone coming in behind them and telling them how  to behave or whatever. We 've all had our moments. And there is nothing more frustrating than being in the middle of a primal scream because your heart is breaking or you're angry about whatever and you just want to blow off steam ----and someone says "x". that only makes what your feeling worse. If the page is named i.e. "For ranting , screaming, venting only--Getting rid of my anger. Then it informs readers not to enter. Everyone who has wandered these pages, knows there are many places to go. Maybe each level needs a rant and vent page.

I like the rant page idea. 

Rant, rant, rant, vent and steam . Pound on that pillow. Make a pillow kicker(gently test first). Scream and holler( use a pillow against your mouth)allow periods for breathing followed by a growl .For some reason the pillow thing helps to keep from loosing your voice and hurting the rest of the structures. Only have done the primal scream 7 times in my life. Finally learned to do it right after I think 3rd time. Anyways it was after the time I lost my voice for a week.  Frankly, I've mostly felt unusal after them --different each time  and  the sleep was deep and long.. Wonder if there's a sceince research project there. Diagnosed in DEC 08--didn't cry until June. highly don't recommend that. Haven't stopped since, it just rolls out in the most inconvenient places i.e.walking down a grocery isle.

I'll rant now, Everyminute I get your point. BUT if i'm feeling outraged and angry because every )*^*&*977 in my life has changed and I want to growl about it . I don't want a pollyanna, coming in behind me in the next post saying 'Now,Now just whatever and things will be better" It puts a complete damper on my rant. Thats why I think a rant page would be healthy. I go other places to do healthy writing ,talking, and yes I have a shrink. SO, I am taking care of my scrambled mental health. So I think the powers that be ought to consider this. An appropriate entry that would warn folks that this is a rant page for a given section, would keep people from thinking their feelings were hurt when they offerred a pollyanna response and somone jumps all over their letters. I literally mean the letters not the note. It could be trialed for a couple sections and see how it goes.

There is an excellent and very long thread for venting about anything at all in the section,

Recovery, Renewal and Hope / Moving Beyond Recovery / I'm Bitchy, I moan, I groan... Anyway

http://community.breastcancer.org/forum/7/topic/701893?page=1

Everyminute:  I agree with you about the exercising as I do it every day.  Since I do it anyway I havent thought about joining the challenge.  Helping others and volunteer work is also good, it is good for the soul.  It makes me feel good and of value despite the fact that I am unable to work at my job at the moment. 

You are a wise lady and the help that you are giving others to reach fitness goals is wonderful.  Many women as they reach middle age don't exercise enough and it is especially valuable for us.

Oh my, when I was first DX, I would cry so hard that I'd either have to stop or I'd throw up; also I can remember driving down the street with tears pouring down my face and my lips quivering like a two year old; I'd have to slap my face in the parking lot before I got out of my car and go into work...... I definitely agree with the exercise advice; it's the best thing for both physical and emotional recovery, that and getting re-involved with living in whatever ways are meaningful to you.

Claire thanks, definitely am doing the walking . but no stretches etc.--- getting up and down I look like I'm a 100y/o,but i do it many times a day because i forget things a lot so, instead of one trip it may take 3-4

tomorrow feb 26th will make the first  full 2 weeks that we haven't had a complication or calamity since dec 8th 2008. SO, right now we are happy folks. thanks for the kind words

my husband and i are really doing ok, we not only love each other , but we like each other too. that really helps. But I can tell you some times the conversations get pretty strange.  with both of us having chemo/ aneshtesia brain.

claire and  EM ---i walked 3700 feet today, increasing everyday . The lots are 100ft frontage so it makes it easy to track distance . I pm'd everyminute already. Told her I was thinking of her every 100 feet ---as it got longer. thanks sas

Claire, I know you probably read my note to EM. Please, i would like your opinion in regard to posting diagnosis? Does it cause a preset in other people? Has there ever been a known abuse of the info.

On the page they asked for signing the petition. I couldn't just sign. I was on about page 52. It was a rant. Considered deleting it. rereadit and felt like a rebel of the 60's. felt good so i left it I think. I'd have to break off here an go check. Besides bc /brain tumor/ fibromyalgia induced by arimidex and femara, i had a closed head injury in the fall from a fall in Aug/Sept 08. So, i think my posting seem normal, but memory things are screwed. Of course I could be deluding myself about postings seeming to be normal. I"M in an alternate reality oooooh.

your comment on pushing yourself to exercise got me out of bed sat. after about a 1/2 hour of talking to myself. I felt like the hornets were stinging (pain m/b/j all). walked abut 13-1400 feet. AND then headed straight back to bed. You were well thought of dear claire. 

AND are you doing ok?----sas

Everyminute, I found a commercial site that one can register at. I don't think bc.org allows identifying a site like this. It' a drug crosschecker, but also includes cytochrome 450 routesand supports their findings with reference links. It's totally different than any other site.

 I basically found out, I failed chemo and aromatase inhibitors because of one antihypertensive drug I'm taking .Husband in chemo now. prognosis not good. Same drug is the interferring drug. We both stopped the drug. He has 2 weeks before next chemo which is just enough time for this drug to wear ofand the enzyme naturally produced to heal itself in the liver..

Based on their database, I learned that my 1st chemo that almost killed me, this antihypertensive drug was significantly causing and overdose and the overdose with arimidex and femara. SO, what do I do now . Obviously I'll tell the onc and show him the program. It also interferred with the effectiveness of my husbands first round of chemo. The whole thing I went through from april1 2009 until this week could have been avoided ,and my husband might not be in what the doc called"salvage treatment".  I stopped 2 of his drugs pre last chemo because of what I had learned and then learned about 2 other drugs that are causing his chemo not to work. I"m a nurse at least for a short  time more. I didn't do what I've done in a vacuum (which means in nurse language I talked to the presrcibing doc's and asked about interrupting these drugs). BUT once I learned this stuff and talked with oncs and pharmisists and they didn't have a clue about what I was talking about, all I could do was cry, that the pain and suffering we have both gone through didn't have to be.

ON all the chemotherapeuptic drugs I was on, I was being overdosed. All the horrific side effects I've had, you take this one drug out of the equation, and it brings me back to a standard dose level. I will never know know if I could have taken the 4 recommened chemo's or the AI's without all the damage they have caused to my body. AND the damage is not going away at this point.

This program is way more sofisticated than things like drugs. com. Light years ahead. They not only cross referrence drugs they check how they are metabolized by the liver and if the drugs are going to change liver metabolism or renal excretion. This is huge. The particular liver metabolism site interferred with was cyp 3A4. There is no genetic testing for this route yet. BUT I could have controlled it by elimination of drugs that affect that route AT the beginning of my therapy and my husbands therapy.

Yet my understanding of this site BC.ORG is you can't mention specific commercial products. Excuse me while I take a percocet. -----------ok back, question if someone sends me a private message can I tell them what the site is?

I'm now on social security disability because of the damage done by drug interactions. How do I prevent this from happenning to someone else having to go through this. I'm going to have to give up Nursing. I wasn't ready to yet. BUT I have no choice----I am crippled by my life saving drugs because my docs 17 in total plus pharmisists didn't know to look for these interactions. They all had their own body part and the average drug database does not include what I'm talking about , so, a pharm doc couldn't answer the question if asked. No one wanted to look at what I"ve just written about---why--time---not enough time . AND they don't now about the site.

So, as many others , I've come to this site seeking ideas to lead to solutions, AND I found it on one thread, someone talked about genetic testing which started me on my search. I did the search and found this organization.

Well, I'll take a chance that the moderators won't wipe me out on what follows. If ----I  with bc and my husband with lymphoma would not have been on a "slow channel calcium blocker" our chemo drugs would have worked more the way they were supposed to period blunt. There were other drugs in the equation we could have control over , but I won't mention them. The one common drug class was the group I mentioned above.

Breaks my heart, he may die because of this . Thats how serious this group of drugs affected his treatment. For me, I may have a recurrence of bc, that didn't have to happen ,because like I said previously ,I could have followed the treatments. But since I was being overdosed on each drug, I as you would expect had GREATER SIDE EFFECTS. I fell into the category of "NOT ABLE TO TOLERATE TREATMENT-- treatment discontinued."  or "treatment failure" ---doc speak for "we don't know what went wrong".

I won't post the name of the  site tonight I would like one of the moderators to contact me. AND guide me through the process of what to do. I will be patient enough for a short while. I also am going to notify the company of my intent to post their name, because it could overwhelm their system. They are primarily set up to work with doctors offices and pharmacies that subscribe. The subscription fee for them is much higher . For individuals it's effectively $24 for the first family member and$18 for a second family member. There is also, an extension  on subscription if you refer someone. If you decide, whomever, to PM me on this I won't respond until both of the above have been accomplished. I gain nothing from this other than it has already set my husband and I on a different plan. The basic plan now is to make his next chemo's work better. I perfer the word cured vs salvage(which is doc speak means we don't have much hope)

To all my sisters out there,pray that the moderators respond and the company responds well to this.-----------I have probably opened a hornets nest. ,but I quess a few stings are better than dying when there is a chance to prevent it because of an "adverse drug event" ADR, that can change chemotherapy response.

Thanks everyone for the kind thoughts and suggestions. 2 1/2 months since last post. Continueing on the snri Savella for fibromyalgia , fentanyl, oxy, and ativan. Already moderating dose lower. Only 2 doses of oxy in last three weeks.Exercise everyday has made a HUGE difference and live with some pain. My old prebmx pain--post polio would be a blessing , I could handle that with very occassional pain meds. Now I feel like a person on drugs.

Genelex coorporation is the site for the drug interaction checker. 30 day free trial. Very cheap for subscription. 

The further I get away from the AIs, I beleive the damage is improving. It makes the word HOPE brighten up,sparkle and shine more---very nice.

Husband and his doc's have abandon any thoughts of looking at drug interactions. They just order drugs and he takes them. Knowing full well of the interactions.  AND it's not that they know more------ the ones involved admit they don't know what the info is telling them. It's above their knowledge level. I think there's a phrase about horse and leading them to water, but you can't make them drink. You can't make someone learn if they don't want too.

3 jays mom, odd isn't it i haven't been on in awhile. And there you are in need and we meet. PM me if you have trouble using  the Genelex site. It can be tricky. What is the antihypertensive your on? I think I might be at my max 5 for the night.

you can go to google and use this "list slow channel calcium blockers".

The best recommendation I have is to do the Genelex site-- plug in all your drugs after you have gone through the demo video and see what kind of drug interactions you may have.  I describe drugs.com drug interaction site as kindergarten level and genelex as grad school level for sofistication. So, don't be suprised at all the info you come up with. There are thousands of drug interactions per year that can be prevented. AND yes some of those interactions may make you present as "crazy" and/or make you feel crazy. 

nothing has changed-sheila