anyone else request a 2nd look at slides?
I called today to request a 2nd pathologist read my slides. I feel pretty certain the results will be the same but a mastectomy is a pretty big thing and I don't want to have any 'what ifs'. My biggest fear is they will find some invasive cancer. Saying out loud will hopefully make it not happen...right? I keep getting the phone call with the info I was least expecting to hear. Maybe if I put it out there it won't happen? It's a theory anyway. I hope we get clear margins this time. One thing on my path that has me nervous "The margin ivolvement is quite extensive, especially at the posterior aspect". I just hope it isn't too close to my chest wall. I am actually feeling pretty pissed off today and maybe that's better than feeling sad. Thanks for 'listening' everyone.
k
Comments
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Hi there, I didn't choose to have a second reading but my husband was transferred so I had to get a new surgeon who had my slides re read before she would do surgery. The two did agree it was only dcis. It is my understanding that if the pathologist finds cancer they automatically send it to another pathologist.
I too remember being ticked off. I hated the radiologist that found it as well as my surgeon for not getting good margins, but now I realize they saved my life. Emotions run high with this diagnosis just take it one day at a time. You will get through this. Mastectomy while no fun, is doable and I have never regretted my decision. The good thing about mastectomy is you know exactly what you are dealing with. If you have any questions let me know, I would be happy to share my experience.
Good Luck
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I think getting another reading is a good idea, especially if it helps you feel secure in your decision. I think (re the post above) that the pathology is automatically read by 2 pathologists, at least if it's cancer. My pathology report (from the stereotactic biopsy) says "Dr. X has reviewed and concurs." Of course, the second pathologist is from the same facility,
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Many of the cancer experts recommend having pathology sent off to different labs for opinions so I don't think there is anything wrong with asking for another opinion. It was something I did not know when I was diagnosed, but apparently pathology errors are pretty common. You need to do whatever makes you comfortable with your treatment plan.
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I think a normal pathology report does involve a second set of eyes validating the first conclusion, but having your slides sent out isn't a major thing and I think it's reasonable to have done.
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k ~ I had mine reread as part of a comprehensive second opinion at a major cancer facility, and the outcome led me to switch medical teams. What was interesting is that, while their pathologist did not agree with the oddity about my pathology that I'd questioned (the reason I decided to seek a second opinion), their medical team also questioned something else about my treatment to date that turned out to be a pretty big oversight in my initial care. So I am all for 2nd opinions, even though the first pathologist who read my slides had been touted as one of the best in the business. Deanna
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Agreed - it's very reasonable to have your slides read by a major cancer facility. In all probability they will agree with the first reading, but as Deanna says, second opinions can sometimes pick up something that the first reading missed. I see you're newly dx - you'll find as you go along that getting second or even third opinions for just about everything is a good thing to do. It's your life and health - you have every right to make sure that you're getting good advice based on accurate information.
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I recently got a second opinion on my slides at a major cancer center in our area and they found 2 small areas of invasion (not enough to change my treatment plan). So, I'm glad I did do it as I was waffling on starting tamoxifen right away and this helped me make a decision.
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I actually just got the report from a 2nd pathologist (who looked at the actual slides) and though it agreed with the initial DCIS diagnosis (non-invasive thankfully!), they did find that one of the foci was high grade. The initial pathology found them both to be low grade so I am really glad I decided to get another opinion. Now I'm just waiting to hear how this changes my treatment as I was only going to have to do a re-excision to widen the margins w/ maybe Tomaxafen too. The 2nd opinion is that I should not have the re-excision but should have radiation and Tomaxafen. So confusing! Also, it hadn't occurred to me when I sent the slides out for another opinion that I should have maybe asked my primary onc. for a recommendation of someone outside of his network. Luckily he knew and respected the pathologist I used, but I wonder if he hadn't if it would have been an issue about which one to believe. Just a thought.
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I had my slides read 3 times. The first reading said intermediate grade -- the second one done at another facility said intermediate to high grade and the third one which was done at yet another facility agreed with the first reading that it was intermediate grade. Yes, it can be confusing. I find myself wondering what would happen if I had it read again at another facility???
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As Rose mentioned above there are 2 sets of eyes at the original facility that your biopsy is done.. but I would suggest that just isn't enough.. At the earliest stage of this journey why not include a second read of the tissue itself to be more confident about your decision. When I asked my bs to send my tissue (slides) off to Vanderbilt he said "why the local hospital hasn't made a mistake" well actually that has happened in our community and when I got the results back from Vanderbilt instead of DCIS grade 3 it was DCIS grade 1 and we all know there is a distinct difference between the potential for invasion between the two.. I think you would be doing yourself a disservice if you didn't have a second read by a pathology group whos specialty is breast cancer or even perhaps DCIS itself! Good luck and I hope what ever you decide it helps you feel more confident about any decision you make!!! Best!
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The slides from my first biopsy ended up being read by 4 different hospitals, 3 of which were cancer centers, prior to lumpectomy. The slides from my second biopsy were read by the 3 cancer senters. Everyone agreed.
I haven't bothered with a second opinion on the lumpectomy slides (yet, anyway) because it bascially agrees with the biopsy path. And I think I'm just tired. And having an easier time accepting that I'll have to go through more crap, um...I mean treatment (rads & Tamox).
It was the surgery decision that completely freaked me out, much more so than rads & Tamox.
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