Illinois ladies facing bc

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2010

    Great big wonderful Happy Birthday to you Kater !!!!!!!

     I hope it's wonderful and delightful. Hope you like chocolate cake -- this one sure looks good huh !!!

    Love and many, many more to a great person.

    Hugs, Jackie                   

  • zap
    zap Member Posts: 2,017
    edited February 2010

    Happy b-day to Kater!  I hope it is the best ever!

    Susan

  • ritajean
    ritajean Member Posts: 4,223
    edited February 2010

    HAPPY BIRTHDAY KATER!!!!!

    I hope you had a good day! 

    Rita

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2010
    "Friendships begin because, even without words, we understand how someone feels."                                           [Joan Walsh Anglund]
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2010

    Ok, I'm officially bummed.  We got a light dusting of snow last night.  Where o' where are the temperatures we use to have that gave us a foretaste of Spring.  Well,  ---  think we are going to have to hope for March now which is really close.  Otherwise -- nothing to really complain about but a little soreness.  Too much sweeping with heavy broom I guess made my upper arms a bit sore.  Sure it will be fine by tomorrow. 

    Hope you are all planning on a nice day. 

    Hugs, Jackie

  • makmak
    makmak Member Posts: 632
    edited February 2010

    Good morning.. snowed here too...  Now that I finally feel like a human being again, off to treatment this afternoon..  Now if the darn port would stop being so sore... still can't carry my baby... UGH..  This is just NOT fun.. My Dr called on Mon and asked if I feel any shrinkage in my lump.. so now I'm scared that it may not be working as I really can't tell... just a little added stress.. I thought it would take a month or two before I should see a difference..

    On a positive note, I got a lot of compliments about my 'hair style' at work yesterday.. Hard to get back into the swing of things after 12 weeks.. at this point, I am hoping it's just my maternity brain, not chemo brain!!

    Now, if the sun would just finally come out and STAY out...

    Marina

  • elf_song
    elf_song Member Posts: 163
    edited February 2010

    Good afternoon, ladies~!  

    Happy Birthday to Kater~!  I hope you had a wonderful day~! and more to come...

    Marina- I am glad you feel better and got lots of compliments about your hair style too..   I had similar problem with port, my ten month old son wanted me to hold him but I just couldn't because it hurts and sometimes he just jumped on my chest and that hurts big time too...   hang in there and my thoughts are with you..  Wink

    Jackie- I can't wait till spring too..   my muscle got tangle from shoveling the snow the other day, can't turn my head to the right, I have to move my whole upper body to see what's on the right side...   enuf of snow already... Even my older son said, "we cleaned the driveway yesterday and it's snowing again, what?? not again"   cute...

    Well, sun is out~! that's good, it will melt the snow, yeah~   

    I hope everyones having a good day and don't forget to smile~! Laughing

    P.S- Donna and I, we're trying to figure out that when should we have lunch with south ladies..  and where should we go??   any idea,  Buddy, Navymom??  anyone??

  • DonnaDio
    DonnaDio Member Posts: 905
    edited February 2010

    KATER.. HAPPY BIRTHDAY AND ALL THE BEST IN GOOD HEALTH AND BLESSINGS!!MAN.. would love to have a piece of Jackie's CAKE!!..Is it gorgous...OR what!!!

    Elf and south siders.. How would Orland be for distance? There is  a great place named PF Changs and the food is awesome..all oriental but healthy enough and fun to share.Anyway jumping the gun ..but location may be good for Lisa coming from Palos?

    Hope ALL are well..and Marina...glad your hair is doin well. Mine is pure curl and grown in alot since June. It is a process for sure. Wore wigs for some time also.

    Hugs,

    Donna

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Curly post chemo hair - here too.

    Hi girls...quick driveby...hope you're all having a good day. More snow in the forecast...atleast up north here. Looking for an inexpensive pair of cross country skiis, boots and poles. Anyone have a pair you'd like to sell?

  • buddy1
    buddy1 Member Posts: 750
    edited February 2010

    DONNA  PURRRRRRFECTTTTTTTT.  SET A DATE  I WILL BE THERE.  I HAVE BEEN WANTING TO GO THERE.  NOW I HAVE A REASON.

    LAURA TRY PLAY IT AGAIN SPORTS.  USED EQUIP.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Busy, busy day!

    Budder - Thanks - I did call them they have the skis but not the boots. But will call again - as they get "stuff" in everyday. I will also try Craig's list. Is the girls get together ONLY for southern IL girls? lol jk 

    Jackie - That cake is gorgeous!

    Kater - Hope you had a nice b-day!

    Marina - My port hurt like he**. I hated it every hour of every day. Most of the girls here say the pain goes away and then you don't even know it's there. Hope that's the case for you. Two days after chemo ended (and that wasn't even soon enough for me), I was in surgery having it removed. Glad you had a good hair day for your debut. Hang in there!

    Donna - Have you ever tried bitter melon?

    Where's Weeeeeeeeeeeeeeeendrew?

    -------------------------

    Hope you all have a nice evening. More snow headed our way - good gawd when will it end! lol I need skis! lol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010
    Just read on another thread here...if you've had ANY Lymph Nodes removed, some Drs forget to tell their patients to avoid having blood pressure taken or blood drawn from the arm on the side of the Lymph Node removal. It's clearly written in all of my "charts" to NOT access my left arm, but I can honestly say that many times I have had to remind them about this. JUST FYI! Onward and upward...lol!
  • makmak
    makmak Member Posts: 632
    edited February 2010

    Good information Laura.. I just had my BP taken and the nurse asked which arm.. and I never knew why they ask.. as I am not having the surgery until 6 weeks from now.. and I know I'll get lymph nodes taken as they already came back positive... Today's chemo went fine.. had my laptop and worked through it.. They changed some pre-meds, so I sure hope the side effects are better tomorrow... Reading this thread is so much fun!! I showed the nurses the website today..told them that's why I ask so many questions.. Can't believe they didn't know about it..

  • Mich101
    Mich101 Member Posts: 529
    edited February 2010

    Jackie-That cake looks sooooo good!

    Well, I was so happy to learn the other day that my Vit D levels were good, now today I got the bad news that I have osteoporosis. I had a dexa done on Saturday and got the results today.  I will need to start taking Fosomax or Actenol, calc. supps w/ vit D.  I'm bummed :(    I have to go back and read the emails that were posted about this to get more info.

    Yes, where is Wendy???

  • Carolyn422
    Carolyn422 Member Posts: 162
    edited February 2010

    Just poppinng in to wish Kater a very Happy Birthday!

    Try not to let the snow get you down everyone! Cool 

     Carolyn

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2010

    Hooray for the good D levels but geesh....the osteoporosis.  There are lots of answers for that, but I am thinking.....they seemed ???? maybe to have found this fairly fast.  And is this not somewhat of a possibility for many who have cancer.  Your right -- we do need Wendy.  I just hope it all gets settled out soon.....are there grades that come with this diagnosis.  Maybe I should do a GOOGLE like I could understand everything I'm reading. 

    Carolyn --- Spring is coming -- probably not fast enough for any of us.  This last summer was a disappointment -- not much of a summer and gone in the wink of an eye.  Even if we have to wait a bit longer....hoping and praying for a wonderful Spring and fantastic Summer. 

    Got to go find my recliner.  I am a little beat.  Been achy, mild nausea, very tired -- dragging all day yesterday and today.  Hoping by tomorrow to be back to my usual self.

    See you all later.

    Hugs, Jackie

  • buddy1
    buddy1 Member Posts: 750
    edited February 2010

    Good morning Friends,

    Mich Try not to be bummed.  You can build that bone back up.  My friends DH has it severe and takes a shot everyday.  It can be built back up.

    Laura are you thinking road trip to Orland.   COOL.....

  • DonnaDio
    DonnaDio Member Posts: 905
    edited February 2010

    Budders..GOOD that  this restaurant could work.. need to see for the rest now and when would work! Of course you can come Laura.!!!We cannot get to the North outings so this is why trying to arrange one for us! PLEASE come!!!!lBTW, what is bitter melon?

    Michelle..know it is a another disease as i have this in my family and have some osteopenia. Still try to cease this by doin more wieght bearing excercises and excercises. That is what i feel is impt. In my mind good natural options have to do something to any disease!!!

    Wendy...Search light goin for your whereabouts!!!!We miss you!

    Hugs.. goin to a excercise class. Brrrrrr though!!!

    Donna

  • smerf
    smerf Member Posts: 615
    edited February 2010

    Hi to all,

    Back from CO where the weather was SNOWY, just in time to be felled by a terrible cold. Can't complain too much, because it is the first since chemo. I passed my 4 year mark since dx while in CO, so I'm not letting a mere cold get me down.

    Mich...Sorry about the osteo, but it is treatable. Our biggest risk factor is just getting older, because it so often happens as we reach menopause. Cancer tx seems to make us even more vulnerable. Were you taking calcium supplements already? Vitamin D helps us absorb the calcium, so it is important. When your doc tells you the amount, be sure and get the D in gel cap form as that is easier to absorb. I like to take Citracal type rather than the carbonate form of calcium because you can take it with or without food. With carbonate forms you should take it with food, to help it absorb. We can only absorb about 500 to 600u of ca at a time, so we need to divide the dose and take 2 or three times a day. Pain in the neck for me to remember! Also, for some people the carbonate form causes constipation. I find generic ca and vit D at good prices at Walgreens. They frequently have a buy one get one free offer on the D, and also on multivitamins. I get one comparable to Centrum Silver as we shouldn't have any iron after menopause. I think Wendy prefers carbonate, and has no problems with it. I guess we just eat at all different times, especially dinner, so it is too hard to remember my evening dose of ca. Hope this is helpful, and not more confusing. Miss seeing you at lunchbunch, and hope those college kids are doing well! 

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2010
    "From quiet homes and first beginning, Out to the undiscovered ends, There's nothing worth the wear of winning, But laughter and the love of friends."                     [HILAIRE BELLOC]
  • zap
    zap Member Posts: 2,017
    edited February 2010

    Good morning!

    Laura, Paul and I are going cross-country skiing  this weekend if I can get my act together and get the hotel in Waupaca.  You are welcome to try my boots and skis to borrow.  I am not sure if your shoe size is the same as mine.  I have had my skis for umpteen years so they are dated.  I do not know if they change in styling.

    I think I better get my bones checked again based on the news.  The biggest thing is taking still another pill.  My insurance now that I am retired for prescriptions is not so great and this is getting expensive.  Was told to try and get the  90 arimidex rather than what they are giving me as it is now $40.00/month just for that.  Of course I know it could be much more without insurance

    That is it for me.  I am hoping all are well! Glad you got home safe and sound, Pat.  It sounds like it was a great trip.

    Susan

  • makmak
    makmak Member Posts: 632
    edited February 2010

    Well, the day after tx, and I"m eating up a storm.. so much for losing my pregnancy weight.. but the nausea hasn't kicked in yet.. I'm hoping the switch to a different drug in my IV and not taking the Zofran will help..

    I know I can't worry about all the vitamin discussions here.. but yes, they are expensive.. so thought I'd share the website I get all my supplements from... Vitacost.com.. Great products, great prices...

    Marina

  • wendyk13
    wendyk13 Member Posts: 1,600
    edited February 2010

    Morning all....I actually do read a couple of times a day but on my iphone and I can't post from there...Kept forgetting to actually haul out the laptop!  So...no need for the searchlight but send a sled!

    Smerf....sorry you are down with a cold.  I really haven't had one since chemo.  I too buy my stuff from Walgreens...watch in the Sunday papers for their buy one, get one free sale and stock up!  I take either form of Ca as it doesn't bother me.  I take the plain one and take my D3 sep.

    Mich101...you are young so I am curious...does osteo run in your family?  Did you get a copy of your results?  What were your numbers?  Boy am I nosey!!!!  But it is treatable and Laura is sooo right...weight-bearing exercise will really help strengthen bones....very important.

    Marina...glad you are doing well and don't worry about dieting right now.  Time enuf for all that later!  Glad too that everyone at work loves your new hairdo!  Really fast in the mornings isn't it...and never a bad hair day!  LOL

    Susan....I bought the double pleated shades for all my windows (black outs in our bedroom) when we moved out here 9 yrs ago.  I just used scarf valances in most rooms but I am slowly putting up casual drapes as I have been told on HGTV that scarf valances are now out of date!  But I do love the shades....no taking down and washing in the bathtub like I had to with blinds...just vacuum away!

    Kater...sorry I missed your BD...hope it was glorious!  Jackie's cake did look pretty good....

    Laura....bikini season????  I saw that on your fb.....where the heck would I wear a bikini these days???  I can't seem to get out of my down coat!  Wait....maybe a down bikini?????  That would work! 

    My dryer just dinged so I have to grab the stuff as I do not want to iron!!!!  Back later...have a great sunshiny day!

  • Juliechicago
    Juliechicago Member Posts: 200
    edited February 2010

    Hi all.

    Well...have hesitated to post this as I tried to wait out my two weeks and not give in to the fear- but the two weeks (plus) has passed, so it's my turn on the ledge right now. Have a bone scan scheduled for this coming Tuesday.

    I have been dealing with increasing pain in my lower back and hips now for a bit. I've had on and off issues with what I know to be a herniated disc at L5-S1.  Usually, a few trips to the chiropractor and laying off the offending activity clears things up. Throw in massage- so I didn't think much of it when it started up. Chalked it up to attempting to start running again with a goal to join my husband in some 5Ks this summer. Did my usual- saw chiro, went back down to walking.  What feels--- hard to explain--- like a hot, burning, or "buzzing" sensation from small of my back, radiating around my hips, into groin area, sometimes down to the knee, continued to increase. First exclusively on the left. Now on both sides, though more on the left.  Chiro trips not helping.  When I realized I was lying awake, prone and feeling it- well, I admit it- panic has started.  It's worst when sitting- and of course- I'm sitting, in front of monitors for most of the day. It's better when I'm up moving around. No weakness that I can identify- just this damn constant burning sensation.  

    So- of course- me being the control freak,need to understand everything type-- I research. Does it sound like it could possibly be disc related- yeah, maybe. But then you read accounts-- variations of "I thought it was my sciatic nerve, but it was the tumor pressing on the nerve...."  In just about every other area of my life, I handle crises calmy and logically. Not this. I'm kind of a mess and feel very much on the verge of tears at every moment. Keep having to reign it in for work, the kids. But I am so rigid with stress right now I think I could crack in half. So-- venting to the one group of women I don't have to explain myself to.....

  • smerf
    smerf Member Posts: 615
    edited February 2010

    Julie. hang in there. I know exactly what you are feeling, though mine was two years ago. Of course it can be disc disease, but we always have that nagging fear, and I'm going to be thinking of you, and crossing everything hoping for good news. My onc just went right to the MRI for my lumbar regions, and it came back with disc disease and spinal stenosis. I had also known that I had disc disease, but like you, wanted to know if that was what I was having then. My DH could not understand why I was happy {you know, the ortho surgeon} because he said you have a serious back problem. I said I know, but it is not a tumor, and so it is still good news. I'll be hoping and praying for you to have good news too.

    Do you have any ativan or something to help with the waiting? Don't know if you believe in the meds...but they do seem to help so many of us. It must be much more difficult when you have to hold it together for the kids...or maybe they are sometimes a good distraction.

    You aren't a control freak, just a reasonable and intelligent woman doing the right thing. All of us here are holding onto you, and will do anything you need to help you through this. Just say it. 

    Big hug, Pat

  • BustersMom
    BustersMom Member Posts: 495
    edited February 2010

    Hi everyone - wow, I missed a few days & i'm so far behind already on posts!

    Julie- you are right, you def. don't have to explain yourself here.  I'm sending you good JULIE vibes for your scan on Tuesday - please let us know asap! 

    Happy Belated Birthday to Kater!!!

    I started rads - man, they take a long time.  I'm on that damn table for a good 15 minutes.  Tack on extra time for student techs in the room...  blah blah blah.   I won't complain too much right now.  Went back to work yesterday - 4 hours per day...  which is ... tolerable.  I just can't stand that place, what can I say ?   lol

    Miss you guys - XOXO 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010
    Julie - You're right...you will NEVER have to "explain" yourself to us. All of us here, can truly understand your concern, frustration and dismay. I am so happy you reached out...it goes without saying...we are here, primarily for support. Yes...fortunately, we stray by way of posts about family and kids, and fun and hobbies, but when it comes right down to it...we are here to help each other through the "hoops" of life, before, during and after a bc diagnosis. I have to start with the fact that I personally think of you as a very upbeat, FUNNY beyond words, an awesome Mom, a dedicated wife and a savvy career girl. You have been quite patient throughout your journey(s) and I am sorry you have to deal with more. The bone scan will provide some answers and hopefully give you some peace of mind. Try to remain hopeful and optimistic. Some of the aches can be related to age and the fact that our hormones are crazy and most likely not properly balanced. Ever since my dx, I have had burning pain in my right hip - some days less painful than others. CT's, x-rays, bone densities, etc., have all indicated it's "most likely" Arthritic based. But not one Dr has been able to verify this 100%. There's always hope. Hang in there, Julie. We're here for you...24/7!
  • NatalieH
    NatalieH Member Posts: 2
    edited February 2010

     Hi everyone !!! I just joined the forum today.  I have been looking for a place to ask questions or just to vent.  I am 45yrs old and this is my second bout with breast cancer.  I have had 4 of 6 chemo treatments (TCH) so far and am wondering if the fatigue gets worse as you go along.  I am typically sick for about a week after treatment mostly from the Neulasta shot but then the next 2 weeks I feel great !!!  But after this last round of chemo I don't seem to have recovered they way that I did before and today my Dr said that he is going to stop with the CARBO.  Has anyone had to stop CARBO ?

    Thanks

    Natalie

  • zap
    zap Member Posts: 2,017
    edited February 2010

    Welcome Natalie!  I am going to google your town to see who might live near you.  I know I do not.  So glad you found us and I wish you well.  I do think most people would say that chemo is cumulative and that the crappy feeling lasts longer as you go on with the treatments.  I know you will be happy to get them over with.  Tell us a bit about yourself if you are up to it.

     Oh Julie, do I ever understand.  I especially get the "rigid with stress" feeling.  I get so I am like a stick and my mind just gets stuck so I cannot even track with what people are saying.  I feel like I am going to crack when I get so afraid.  Maybe your mind and body needs to rest and maybe Pat has an idea there that this calls for support meds.  I am thinking about you and wish I oculd carry some of that baggage for you for awhile.

    Take care everyone else!

    Susan

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