February 2010 Mastectomy

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  • badger
    badger Member Posts: 34,614
    edited February 2010

    Oooh, we had a Friendly's in my hometown, loved it!  Enjoy yourself a little extra for me.  :-)

    Cyndi, thibaultm, and black-cat -- best wishes and prayers for you and your docs tomorrow!  {{hugs}}

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    Hey sisters!!

    I think we should all celebrate when the last of our group completes surgery.  That would be on March 4 when cakeisgreat goes in for her surgery.  I'm thinking some chocolate cake would be appropriate for several reasons --- "cakeisgreat" finishes us up and, chocolate is one of the major food groups.  Right??  We all know chocolate cake will help us all heal.  What do the rest of you think about us having a "We All Made It Through Surgery" celebration?  Maybe we could wait a few days after the 4th so that "cakeisgreat" will be able to eat cake with us, too, since she will most likely not feel like it for a day or two post-surgery?  Maybe Saturday, March 6?

    What do you guys think?  Different day?  Something other than chocolate cake?  Stupid idea???  Chime in and tell what you think.

  • susan3966
    susan3966 Member Posts: 1
    edited February 2010

    Hi Girls,  I was diagosed in Oct.2009 and had my double mastectomy on Dec.18th.. I also had a full hysterectomy on Jan. 18th.  Now I just started chemo on Friday, Feb.19,2010.  I am 43 and have put my life on hold for this disease.  Any advice you may want or need, I can help, just let me know!  

  • hbowser
    hbowser Member Posts: 253
    edited February 2010

    Faith316 - I think a "We All Made It Through Surgery" celebration is a wonderful idea, not that I need an excuse to eat chocolate cake!  I can tell my DH why I need to get that deep chocolate cake from Costco. :)

    Cakeisgreat - I haven't been to Friendly's in a long time; I don't think we have it around here, but loved their ice cream sundaes; isn't there one called the Jim Dandy or something like that?  I may be wrong, but it was a huge sundae with bananas?

    I saw my onc. today and she was surprised that I went back to work so soon.  I told her that I have been feeling a little down because I thought I was doing so well, but latter part of last week into this week I feel like my energy level is so low and the tightness and the sensations are very uncomfortable.  It is hard to describe, but does anyone else hate the feel of clothes on their skin?  It is not painful, but very uncomfortable.  She did say the incisions are healing nicely, though.  I got my prescription for Tamoxifen, so I guess I will start taking that once I get it filled.

    Take care everyone and here is wishing everyone a speedy recovery.

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    Nice to meet you Susan, but NO, NO, NO!!!!  You do NOT put your life on hold for this disease.  It just has to fit in around your life.  You cannot let it be what defines your life or you will go crazy.  You have just started your BC journey and as time passes, you will better understand what I mean.  When you are first diagnosed and just starting treatment, it is hard to think about much else, but as the weeks and months go by, it will not consume every waking minute of your thoughts as it might in the early days. 

    I hope you do well with your chemo treatments, but remember, you are Susan first.  Wife?  Mother?  Sister?  Daughter?  Friend.  And, oh, by the way -- yes you are in treatment for BC.  It becomes a part, but not your life.  Hope you understand what I mean and aren't offended by my post.  It is really kind of you to offer your help to others who are also going to possibly be starting chemo soon.  Good luck to you!

  • dangergirl
    dangergirl Member Posts: 30
    edited February 2010

    Susan, welcome!  I hope you find as much help and comfort from the girls here as they do from you!!

    hbowser, YES!  I can't STAND the touch of anything on my skin, not the incisions per se, but anywhere on my chest, or near my pits.  It's so annoying!  If it was summer and socially acceptable, I'd be walking around topless right now.  My PS tells me to massage my breasts to help the sensations of tightness in the muscle and says it will help soften them too.  Yeah, RIGHT.  I might as well use sandpaper on my skin!  Although, I'm at least trying, starting by just placing my hands there and pressing lightly to try and get used to the skin being touched.  It goes right through me!!  It's an odd combination of numbness and hypersensitivity.  Wish I could find a soft fleece camisole with buttons, that would be ideal!  Probably should just buy fleece pjs and cut out the collar and arms to achieve the same thing.  Fleece pjs feel the best right now, but it's hard to leave the house in them . . . ..

    I'm in for chocolate cake.  Always appropriate Smile 

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    hbowserand dangergirl -- Me, too!  I can hardly stand to feel things against my skin.  It is so tender and sore.  Like you, not just around the incision but just on my chest in general and under my arm and upper arm.  Even the seams inside my very soft post-surgical camisole are irritating.  That is why I took a really old man's undershirt and cut the sleeves out and cut the back and front apart.  (Use one and throw the other one in the wash for the next day.)  I put this under my camisole to give me an extra layer.  I took two safety  pins and just pin the piece of t-shirt to the camisole.  It helps, but even this t-shirt bothers my skin.

    I hope our 3 girls for today are doing well.  Wonder about Lee and Caltex that went yesterday.  Hope they'll pop in when they feel up to it and let us know how they did.

    sejnboys and dickisonmomma are up tomorrow.  Hope you two are ready!  You're gonna do great!  All of us here will be right there behind you!

    Anybody else up for our "party" on March 6th?

  • badger
    badger Member Posts: 34,614
    edited February 2010
    Good morning everybody - hope this finds you healing and hungry for chocolate cake like me!  Faith, count me in, I may add ice cream!! Smile
  • dangergirl
    dangergirl Member Posts: 30
    edited February 2010

    Doncha think it's funny, in my earlier post I referred to my *breasts* as though I still have them?  I found that interesting.  On that note, I'm pretty petite and was small breasted, and noticed that I lost a total of 3 lbs when they got lopped off.  Not sure what I expected that number to be, but there it is.  

    On another note:  I'm off the pain meds except for one at night when I go to bed.  WOW, is my colon happy about that!!  This morning I was unceremoniously woken up to take care of business, and wow.  What a relief I felt after that.

    Thinking about the girls on deck today and the rest of the week.  My surgery day coincided with an 18 inch dump of snow here, and NO, it didn't effect my scheduling one bit.  Not sure if any of our ladies are here in the east where we have another potential doozey coming tomorrow.  It was a bit of additional anxiety for me, but turned out to be fine.  Best wishes.

  • lilacsandoldlace
    lilacsandoldlace Member Posts: 8
    edited February 2010

    Hi Chalex, actually I had a really easy time with my first chemo.  I find out yesterday that I will most likely qualify for a research study on TNBC's.  And my oncologist pretty much said I'd be toast if I don't do chemo, so I guess that's that.  The kewl thing with the study is that they will provide all the anti side effect drugs for free.  I dont' know why the thought of chemo is bothering me this time around.  I had AC the first time and had very few side effects other than fatigue and turning into a vampire.  By that I mean I could not get enough rare red meat.  I think thats what kept my cell counts up.  This of course will be a different type of chemo, and I think I'm settling more into the fact that I have to do it now. 

  • lilacsandoldlace
    lilacsandoldlace Member Posts: 8
    edited February 2010
    PS count me in for the chocolate cake too!!!! Foot in mouth
  • chalex
    chalex Member Posts: 131
    edited February 2010

    Hi Ladies,

    I also say YAY to the choc. cake. Sounds YUMMY! Great idea Faith.

    Susan, Welcome to the group. We will get you through this rough time. It's always tough to have to go through treatment but sometimes we need to focus on the end result that we WILLl get better... That's how I got myself through it. Refuse to think any other way and have your bad days but enjoy your good ones. I am also younger (39) and I have teenagers ( somedays I have more drama with the teens than the cancer). There should be a seperate thread for "moms who have cancer with teens". LOL Keep you chin up, rely on us to help you out.....

    OK, so I would like to know if anyone has all drains removed and are still leaking? Mine was taken last Fri and I still have drainage and my skin is very sore and red from the fluid on the skin. I do use packing and change it 2-3 times a day...... Any thoughts or comments. Tomorrow, I see my surgeon (1st time since surgery 2/8) and I will find out more info on my skin coming back burned from rads b/f surgery. I just thought I would pick your brains.

    Also- My tip of the days to all the ladies, I hope this comes out OK, however, I work in the hospital and have been there for 12 years in Health Information Management. I would HIGHLY recommend you get copies of ALL your test results and reports. They may come in handy later, you are one step ahead of the DR's and you can go online for furthur questions you might think of later..... Just thought I would mention it....

    To our ladies having surgery soon, we will be thinking good and happy thoughts for you during surgery and recovery.

    Chalex

  • olivia218
    olivia218 Member Posts: 257
    edited February 2010

    Faith 

    Count me in for chocolate cake!! I love the idea.

    For everyone on deck for surgery - prayers and hugs!

    For those who have had surgery Monday, Tuesday or today - can't wait to see you back!

    This board keeps me going ! Thank you all for being my cyber sisters in the fight!

    Olivia 

  • Lillies4Laurie
    Lillies4Laurie Member Posts: 32
    edited February 2010

    Hi There, I'm due to have my drains out tomorrow.  I'm nervous about it,  One of my drains hurts to the touch so I can only imagine how painful it will be to get them out.  What are your experiences with taking out the drains?  I'm hoping I don't have leakage like on of the gals said on their posts,

  • chalex
    chalex Member Posts: 131
    edited February 2010

    Hi Lillies4Laura,

    I only had one drain. I think my drain was different than some of the other girls on this site. My drain was a HVAC and it was flat and then expanded with more drainage.....

    My drain also hurt to touch b/f it was taken out. I would take some T3's or percs b/f you have them take it out. I am being truthful in telling you that it took seconds to take mine out and it did NOT hurt.... Who is taking the drain out? I was happy that I had a nurse that was experienced with pulling them out.

    Pls let me know how you make out tomorrow but don't fret it was not too bad  (in my case). I can understand you being nervous beforehand b/c I was too. I will send happy thoughts your way tomorrow.

    Chalex

  • hbowser
    hbowser Member Posts: 253
    edited February 2010

    Lillies4Laurie,

    I don't know about the rest of our February Sisters, but for me the drain removal was not painful at all.  I was anticipating this huge ordeal and my DH was beside me holding my hands and told me to squeeze the stuffing out of him if it hurt.  Honestly, in seconds he had it out and while I felt it come out, it didn't hurt and I didn't have any leakage issues afterwards.  I hope you have similar experience. 

    Thanks everyone for sharing your experiences with sensitivity of your breast areas.  I hope and pray this goes away soon, because I tell you by the afternoon at work I am ready to rip my clothes off.  :)

    I hope the ladies who had surgery this week is doing well and recovering nicely. 

    Sejnboys and Dickisonmomma, Good luck tomorrow.

  • olivia218
    olivia218 Member Posts: 257
    edited February 2010

    Lilles4Laurie,

    It did not hurt when any of my drains were removed.  I had 3 drains and two pain (Qballs) that did not hurt either.  I was only shocked at the length of the drain tube but other than that no pain at all, just relief.  I think I said earlier, if I could have kicked up my heels I would have at that moment to be free of a drain.  

    Good Luck - they know we are nervous and in my case the nurse told me this should not hurt and if it does let me know. I thought that was really sensitive.

    Chalex -

    Thanks for the tip.  I did not start collecting my records until close to my surgery and now am thrilled I did because I have found my plastic surgeon to have the best bedside manner. He reads them with me and helps me understand what it means, gotta love that!! 

    Dangergirl 

    I had a single mx and lost two pounds and like you did not have large breasts. Who knew??  I also appreciate you sharing that the pain meds caused you regularity issues, me too and thought it was just me.  THANK YOU FOR SHARING!!!

    Olivia 

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    I still have one drain left, but today the drainage finally seems to be lessening.  If it goes to less than 30cc today it can come out tomorrow.  Or hopefully by Friday anyways.  Instead of going in, I may just take it out myself when the time comes.  My surgeon told me that was ok with her.  I took the first one out 3 days after surgery because it was working its way out by itself and when I called her to ask what to do, she said to remove it.  It did not hurt at all.  Nor did the two drains I had a year and a half ago when I had my lumpectomy and first axillary node dissection.  Totally painless.  I hope this last one will be, too. 

    hbowser -- I know what you mean by wanting to rip your clothes off from the sensitivity.  In addition to my morning shower and washing the incision gently with soap, my surgeon told me to wash it again in the evening.  So, after getting undressed, I use one of those disposable face wash cloths and gently wash again and then rinse it well with warm water.  Then, I leave my nightgown open (button down the front gown) for awhile so there is nothing touching my sore skin and also so it can get some air to the incision.  

    chalex -- could you put just a little vaseline on your skin underneath where the drain was to protect your skin?  Kind of like I would do with my kids when they were younger at bedtime to keep the runny nose from making the skin under the nose sore.  Would that help to protect the skin some for you?

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    I second chalex's suggestion to start collecting records.  I have a 3 ring binder that I bought when I started this BC journey that I have used to collect things.  I bought tabbed dividers and labeled them:  bloodwork reports, mammogram results, ultrasound results, pathology reports, doctor's notes (a section for each of my doctors instead of all lumped into one tab), PET/CT reports, MRI reports, ECHO reports, etc.  You may need different labels on your tabs so just label them as you need them.  I have everything right at my fingertips which has been helpful --- especially when I was referred to MD Anderson Cancer Center a year into this ordeal.  It was all right there and it was easy to make copies of everything to give to my oncologist there.  Also, any time you have a mammogram, ultrasound,any type of scan, ask them to make a copy for you to keep in your records.  Most places will give you a CD with the images on it. 

    This was a good suggestion chalex!  It will be easier to start collecting now especially for those of you who are at the beginning of all this than if you wait until later and try and do it.  I would suggest buying a good quality 3-ring binder instead of the cheapest one they have.  You will be surprised how many pages will ultimately end up  in there.  In almost 2 years, my binder is pretty full and has been opened and closed a zillion times.  I'm a teacher and I know that the cheaper binders end up falling apart.  Better to spend a couple extra dollars and buy a sturdy one.

  • chalex
    chalex Member Posts: 131
    edited February 2010

    Faith and Olivia,

    I mentioned that tip about getting records b/c I work a big hospital in London, Canada. I realize that we, the patient must also have some "owvnership" over our own care. I know that we should not have to because we have the cancer however,  I want to ensure I get the best care I can. Some people may not feel comfortable asking lots of questions and researching stuff but I wanted to let the ladies know (becasue I work in that department) that you have the right to full access to your own health records. Some ladies may prefer to get their own records and then do their own research.....

    I am going to find out tomorrow what I can put on my skin. Thanks Faith for the suggestion on the vaseline. My skin is very red and leathering from the rads b/f surgery. I will let you know what the surgeon says tomorrow.

    Chalex

  • dangergirl
    dangergirl Member Posts: 30
    edited February 2010

    Yahoo!  My surgery was two weeks ago today and I walked out of the PS office with no drains!  I'm free!!!  I feel better already  . . .  my 2nd expander injection as well today, I feel it but the first one spasmed more later than immediately so I'm braced for tonight as he did put more in than the first time.

    Lillies4Laurie-

    Pulling the drains was more weird than painful.  Feels almost like they are pulling them out of your neck, guess I didn't realize how deep in there they really are . . .   

  • Jen112263
    Jen112263 Member Posts: 7
    edited February 2010

    Not sure if I am doing this correct? 

  • Jen112263
    Jen112263 Member Posts: 7
    edited February 2010

    OK.  So I wasn't doing it correctly.  Oops.  May be the meds.  I just came home today from having bi lateral mastectomy with sentinel node biopsy, with immed reconstruction.  I feel so lucky to be home and alive! 

  • ReginaR
    ReginaR Member Posts: 287
    edited February 2010

    Hey Gals, Welcome Jennifer! Hope your feeling stronger everyday!

    • Congrats Lillie, I wish I had your Surgeon. I still have 1 of my drains & he won't do 1st filler til all drains out.Iam so Bummed! It going on 4 weeks post-op!

    • Wanted to share this with youall, My husband found this article.

    • Now I just got  to find some in USA!  Hugs to all Gina R

     Search The Web Magnify Glass

    Odd Vegetable Kills Breast Cancer Cells

    PrintEmail More

    bitter melon Getty Images

    By Marrecca Fiore

    A vegetable used in Chinese and Indian medicine to treat diabetes may also destroy breast cancer cells, according to a study published in the March 1 issue of "Cancer Research," a journal of the American Association for Cancer Research.

    Lead researcher Ratna Ray, Ph.D., a professor in the department of pathology at Saint Louis University, uses bitter melon in her stir fries but was surprised to find the vegetable's extract also appears to "kill" breast cancer cells and prevent them from multiplying.

    "To our knowledge, this is the first report describing the effect of bitter melon extract on cancer cells," Ray said in a statement. "Our result was encouraging. We have shown that bitter melon extract significantly induced death in breast cancer cells and decreased their growth and spread."

    Bitter melon gets its name because it's among the most bitter of all vegetables, although it's also called African cucumber, balsam pear and bitter gourd. It is widely grown and used in India, Southeast Asia, China, Africa, and the Caribbean. It resembles a shriveled cucumber or gourd and the texture of the vegetable is described as being similar to both a cucumber and bell pepper. It's high in fiber and vitamin C. It also contains the B vitamins, riboflavin, thiamine, niacin and B6, as well as magnesium, potassium and zinc.

    In the East, bitter melon is often used in stir fries, soups, and stews, as well as for pickling.

    In the U.S., bitter melon can purchased at specialty grocery stores, especially Asian and Indian grocers.

    Ray told AOL Health she purchases the vegetable in either Asian or Indian grocery stores and cautioned that the taste may take some getting used to.

    It's very bitter," she joked. "I don't mind because I like the taste, but some people might need to get used to it."

    Supplements have become very popular with Americans due to the vegetable's widely touted blood sugar benefits and can be purchased in both health food and health supplement stores such as GNC, as well as in drugstores. It can also be purchased as a tea. To date, Ray's research has not included the use of supplements and teas.

    "We've only used the extract straight from the vegetable," she said.

    Ray decided to test bitter melon's ability to fight breast cancer because it has been used for diabetes management and to lower cholesterol, .

    She used human breast cancer cells in a controlled laboratory setting to conduct her experiments. She said the next step would be to test the extract in animals, which she plans to do within the next several months.

    "Cancer prevention by the use of naturally occurring dietary substances is considered a practical approach to reduce the ever-increasing incidence of cancer. Studying a high-risk breast cancer population where bitter melon is taken as a dietary product will be an important area of future research," Ray said.

    Ray said bitter melon will probably not prove to be a miracle drug as women in places such as Asia where the vegetable is widely eaten still get breast cancer.

    In the meantime, she said eating bitter melon does have many health benefits and certainly wouldn't harm anyone who wants to start adding it to their diets.

    Regina Robinson
    Diagnosis: 12/16/2009, DCIS, 5cm, Grade 3, 0/6 nodes

  • cakeisgreat
    cakeisgreat Member Posts: 660
    edited February 2010

    Checking in guys!  Cake sounds GREAT!  I'll still be in the hospital on Mar 6, but that's okay!  I'll eat my cake EARLY Wink

    My friendlys ice cream was AWESOME!  Hbowser...yep you're right...there is a Jim Dandy!  I always eat the Reeses PB cup sundae.  OMGsh it was so great!!!!!

  • badger
    badger Member Posts: 34,614
    edited February 2010

    In solidarity, I am willing to eat cake (and ice cream) on 3/6 AND EVERY DAY THEREAFTER until our sister cakeisgreat gets out of the hospital.  :-)

  • olivia218
    olivia218 Member Posts: 257
    edited February 2010

    Cakeisgreat  

    I am not sure about the hospital where you will be but where I was they had a menu and I could choose what I wanted to eat. I had no idea that hospital food was turning more into room service.  I had assumed all the patients on "normal diet" received the same meal.  WOW I was shocked, I could order cookies, ice cream, cake!! So maybe you can join us from the hospital! I hope so!!!!

    If not I am willing to wait - I think solidarity is a good thing!!

    Olivia 

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    cakeisgreat --- when will you be out of the hospital and ready to eat cake?  I think our celebration should wait until the day that EVERYBODY is home and can share in it.  I'm sure everybody else would agree --- we postpone a few days and ALL CELEBRATE THE SAME DAY!!  Right, sisters??

  • dickisonmomma
    dickisonmomma Member Posts: 11
    edited February 2010

    Cake sounds great!

    This time tomorrow I will be in the operating room. Yes i have a horibble surgery time of 3 pm. Sooooo nervous right now.  Know I am doing the right thing but geez how many times can I second guess my decision.

    Thanks for everyones support and hope everyone is healing quickly.  

     God Bless,

    Karen

  • Faith316
    Faith316 Member Posts: 2,431
    edited February 2010

    Karen --- we'll be thinking about you tomorrow.  You'll do fine and we will be anxious to hear from you after it is all over!

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