Am I crazy?

Options

Here's my timeline:

April-mamogram

May-!st lumpectomy(bad margins)

June-2nd lumpectomy(bad margins)

July-mastectomy

August-January-chemo(A/C & Taxol)

February-March-radiation

I have also gotten lymphedema, went into menopause with heavy duty hot flashes, have neuropathy in my hands and feet, gained 25 pounds while on chemo and couldn't teach school this year.  I still gasp when I see my bald ,breastless, scarred body in the mirror when I get out of the shower.  I cry almost every day. 

I told my oncologist (who I love, by the way) and asked him if he would prescribe an anti depressant.  He said he would prefer that I talk to someone.  I am not a group girl and even feel uncomfortable sometimes here.  Well there's no annonymity at the shrink's office.  20 people all checking each other out.  Oh, and a psych referral binder at checkin.  And a questionair about why you're there.  Under psychiatric you check depression.

I don't think it's fair to say I've got psychiatric issues when I can't control that I got cancer and that my body looks like it got hit by a train and that it makes me mad and sad.

Turns out I have "adjustment disorder".  I guess when I adjust I'll feel better.

AAARRRRRGGGGGGHHHHHHH!!!!!!!!!!

Thank you for letting me get this off my chest.

Comments

  • klp1
    klp1 Member Posts: 56
    edited February 2010

    You are absolutely NOT crazy!  Your body, mind, and spirit have been through an extreme ordeal.  You do not have to approach this the way your oncologist suggests.  Take charge and tell him/her you do not want to go to therapy and you want to try an antidepressant.  If he won't prescribe it, get an appointment with your primary care doctor.  Actually, a primary care doctor probably has more experience with antidepressants than your oncologist does.  This is your life and you should be making decisions that are best for you!  Go seek out the help you need.  We're all pulling for you! 

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited February 2010

    Absolutely you are NOT crazy...and the antidepressant can change things dramatically for you - I was dx'd with mets in September and cried my way into December until I finally went to a private shrink - I don't do groups - I walked out with an amazing feeling and two presciptions - within 2 1/2 weeks, I wasn't crying all the time - still don't like what I see in the mirror but I can face the day much better.  See if you can find someone who specializes in bc patients - the woman I see has taken to specializing in mets bc patients.  She is fabulous!  I wish you all the best!

  • Padiddle
    Padiddle Member Posts: 853
    edited February 2010

    I don't think your crazy at all.  Your body has been through so much.  I kind of like the fact that your oncologist doesn't feel comfortable prescribing psyche meds.  He's looking out for you and that's what you want.  Lowrider is right, your primary care provider probably has more experience with antidepressants.  Some antidepressants help hotflashes too (tricyclic ones, I think).  Just wanted to encourage.....things will balance out.  Hoping for you!  Jean

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited February 2010

    Funny how different we all are. My onc was PUSHING anti depressants on me and I was resisting and saying I didn't want them. As a compromise I said I'd go talk to someone.  I'm not much on therapy either, but I saw the cancer psychologist monthly and it really helped.  She ONLY deals with cancer patients and she TOTALLY got it. (It was also enjoyable to hear her talk about how unable the oncs are to deal with the emotions of the patient.)  I don't know if just any therapist would have helped but someone was totally experienced with the cancer world and completely UNDERSTOOD that I was a happy strong well adjusted person UNTIL this cancer train hit me - and had some tools and tricks and strategies for me to cope with all the changes and stressors - it was a really positive experience.

    I never felt that I had 'psychiatric issues' and never even used the word depression. I just said I needed some support in coping with all i was going through. Maybe they use those terms to get insurance reimbursement - I don't know and don't care. I know what is true. ANY SANE PERSON would struggle with all this stuff.  I stopped going at the end of rads but we left it with an open-door policy and she said that many patients will want to stop in as they proceed past treatment just to talk about any rough spots along the way. And maybe I will. It is nice to know she is there.

    There are SEs and problems with antidepressants too, which is why I didnt' want to take them until I had no other option. (Never did get to that point.)  I know lots of women take them and that's great. But I didnt' want to. I was concerned with more weight gain, loss of libido and trouble getting off them when it was time.  So (as usual) there is no easy answer. But my onc was literally pushing the RX into my hand. How different they all are!  Maybe the Primary Care person is the way to go.

    I wish you a peaceful heart whatever you decide.

    Edited because apparently I am not so good with the cut/paste function!Tongue out

  • jteach
    jteach Member Posts: 199
    edited February 2010

    Thank you all for your care and your input.  I just wanted to say that prior to this cancer thing I was really very happy.  Also, I'm not much of a drinker( except for a white zin or two on Friday date nights) and take very little medication.  After all of my surgeries I had painkillers thrust upon me and took only a few because I like to be in control.  It took all of the courage that I had to ask for anti depressants once.  I saw the therapist (which by the way was extremely humiliating) and asked again.  Now she would like for me to meet with a doctor ( because she's not a doc-she's a SOCIAL WORKER!!!!!!) but she'd like to meet with me weekly for therapy.

    The more I think about it the angrier I get.  Is that how therapy works?  You replace sadness with anger?  IT'S WORKING!!!!! 

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited February 2010

    My onc is very concerned with the emotional health of her patients and she gives anti depressants if we need them. There is no harm or shame in using these drugs to help us thru. I have taken Prozac for 7 yrs and it really does help.

    Oh and I luv ur attitude LOL.. 

    Hugs Mazy

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited February 2010

    Oh and you're not crazy...but I beleive its much like post traumatic stress syndrome.

  • jteach
    jteach Member Posts: 199
    edited February 2010

    Thanks Mazy!

    Shame is the perfect word.  Humiliation, too.  Don't these people know how hard it is for some of us to even ask for help?  I don't want to be a sheep.  I don't want to do as I'm told.  I do't want to sit and talk."How did it make you feel when you got your diagnosis? How did it make you feel when you had to have the mastectomy?"  I don't want to beg for help.  I'm 51 years old and I don't want to be reduced to tears by fools that think they know me.  II just want to feel okay.  Just okay.

    Okay, it's morning and I'm still pretty mad. I really have to figure out what to do.

  • leaf
    leaf Member Posts: 8,188
    edited February 2010

    No one wants to be shamed.  I have (something like) PTSD, shortly after I was only diagnosed with LCIS and nothing worse.  Of course, I had lots of earlier trauma in my life, so my experience is not the same as yours.

    I agree with the others, that if talking is not the way to go for you, then there are other methods find techniques to help you feel better.  My GP prescribes my antidepressant.  I took some behavioral therapy (biofeedback) sessions.  Some people find meditation or religion helps.  There are other techniques too. Some people find vigorous exercise helps (if you don't have physical issues.)

    If someone does choose talk therapy, its Very Important to choose someone that 'clicks' with you.  Since we all have different lives and experiences, it can be hard to find someone that relates to your situation.  After I had a traumatic needle insertion, a person I felt 'got it' was a male co-worker of a different racial group.  He said 'it must have felt like you were on display'.  I'm not trying to compare my experience with yours, but some people can empathize with other people who have not had the same experience.  It may be very hard or impossible to find them, and even so, talk therapy may be totally wrong for you.

    You need to follow the path that seems right for YOU, because you know yourself the best.

  • Padiddle
    Padiddle Member Posts: 853
    edited February 2010

    Last week, my oncologist asked me to try an antidepressant because I am having trouble sleeping.  He explained that certain antidepressants would help the side effects of surgical menopause and felt my lack of sleep was related to that.  I agreed to try and he gave me a prescription for trazadone.  I don't feel depressed, but I do have anxiety...especially surrounding appointments and tests.  The instructions were take at bedtime.  The first night, I slept a little bit better (not much though).  The 2nd night, I didn't sleep at all.  I had shortness of breath, bad taste in my mouth, rapid heartbeat.  Not fun.  It was a Saturday, so I called the pharmacy to see if I should take it the 3rd day.  They adivsed me to not take it.  My oncologist is on vacation, so I'm waiting for his return to see what's next.  I would love to have my good sleep pattern back.  I tried antidepressants twice before my recurrence when I was first diagnosed and had trouble.  I would love to find a solution for me.......any ideas?  Am I crazy?  Jean

  • klp1
    klp1 Member Posts: 56
    edited February 2010

    No, you're certainly not crazy!  Hormones or the lack of them have some pretty drastic effects on all aspects of our lives!

    Antidepressants can help with sleep problems, but that's not the only solution, particularly if you're not depressed to begin with.  There are a number of sleep medications available - from relatively new and heavily marketed Ambien and Lunesta all the way down to generic medications in the valium family.   I took Temazepam 15mg (generic Restoril)  for several weeks nine years ago after my lumpectomy.  It worked very well, wasn't overly sedating, and I didn't wake up feeling groggy.  I just had Stage 2 DIEP and a hysterectomy and hadn't been sleeping well, so I asked my PS for something to help.  He suggested Ambien, but I was reluctant because I've heard some pretty wild stories about it, although I do know people who take it with no problems.  I just wanted something mild that I knew would work for me. He agreed to prescribe temazepam.   I'm going to try this for a couple of weeks and see if I can get back to normal sleeping on my own.  This menopause thing is new to me and I hope the sleep problems that come with it are temporary.  If not, I'll have to figure out a Plan B because I don't want to rely on sleeping meds for too long.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited February 2010

    teach,

     When I was diagnosed with stage 2b ILC I just decided to do what my oncologist told me to do. He looked out for me so well. My mindset was to do what I had to do and get on with life. I had a lumpectomy that took half my breast but my breasts were small to begin with. That didnt really bother me..I just wanted to get treatment over. I had AC chemo x6 dose dense and 33 rads. My old onc moved and I got a new one who was just as good.

    When I was diagnosed with stage 4 mets to bone...at first I thought I'd be dead in a couple years. But my onc and rad onc told me that as long as we can keep it in bone..I could live a near normal lifespan. I have alot of pain that is alot better than at first but still I fight it. My tumor is no longer visible and I have a pretty good quality of life. My depression came when I realized I could no longer run, lift very much, etc. I had worked 65 hrs a week and then suddenly could do nothing. But now I can babysit my grandkids, I can do alot of my own housework etc...so I am okay. The Prozac takes the edge off ya know? I have never been super depressed over this. Its in Gods hands I am okay for now. I beleive that I never got super depressed because my oncs took care of that at the first signs by giving me drug to help me thru.

    I am so glad you found this site. There is a wealth of info here and many super ladies and some men. Have you tried the chat room yet? I go in kinda late but I will try to go earlier this weekend. My sleep has been really messed up lately. Hugs, Mazy

  • Jan244
    Jan244 Member Posts: 96
    edited February 2010

    If you're crazy, I guess most of us are too!!  No, you're not crazy.  Do you have a PCP who you can call.  When I was diagnosed with mets (23-1/2 years after my initial diagnosis - sneaky damn cancer cells), I signed paperwork giving permission for my ONC's office to forward copies of my treatment, scans, etc. to my PCP so he was well aware of my status and he didn't hesitate to prescribe an antidepressant when I dragged myself into his office.  I am currently on both the generic forms of Wellbutrin and Prozac.  I also went to talk with a therapist, but quite frankly, I didn't feel it was helping me so I no longer do that.  If I have to depend on meds to keep me on an even keel, so be it.  It's a heck of a lot better than sitting around weeping for hours at a time - better than avoiding interaction with family and friends - better than feeling like my world has crashed down around me.  What has happened to you is a challenge for both body and mind - do what it takes to make yourself feel better and if meds can help, that could be the answer for you.

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited February 2010

    Seeing someone who is very tuned into bc patients is key and for medication, it needs to be the dr - not the clinician.  It was experiment with different medications and different doses and combinations until a low dose anti anxiety and lower dose of effexsor with the pain meds - I am now sleeping at night most of the time and the crying constantly has ceased to exist.  Don't give up after a failed drug - what works for one, may not for another.  And I am with Jan244 - it takes a lot to get to that office but once you hit on a workable combination - life is better and coping becomes more matter of fact than so intensely emotional. 

    Now, I am not saying there is never again going to be anxiety...I have scans coming up in just over 2 weeks...this is a test - how well do my meds work????  So far, no scanxiety.  I don't think there is any doubt that the time between the scan and the results reading is going to be intense. 

    The point is - we are not crazy...we each do what makes us feel better - it may be the same, it may be different...we are here to help each other with this awful, evil, take-no-prisioners crud.  We cannot control it - but we can let it not control us.  For me - better living through pharmaceuticals is working very well.  Asking is not begging and there is no shame or humilitation - if it gives me back me, how I used to be only 6 months ago - and so, my new morning mantra....

    'One to keep it contained, one to keep me sane, then another for the pain, and me on a level plane'

    Hugs

    Sharon 

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited February 2010

    My primary physician is the one I talked to about anxiety management medication. He was all on board for that. In fact, years ago, when my company dismantled my department (I had worked there over 18 years), he helped me through that with a similar protocol. But I only took them for about 2 or 3 weeks. Just enough to gain my own momentum and get my center back.

    I'm not sure if I'll use them now or not. 

    But you are not crazy. Just human.

  • jteach
    jteach Member Posts: 199
    edited February 2010

    Thank you all.  I made an appt. with my PCP Fri. morning.  It was hard to even say what the appt was for when I was asked. The receptionist heard how nevous I was and asked (really coldly) what do you think triggered this? LIKE ITS ANY OF HER BUSINESS!  I said well, I have cancer.  She actually stuttered while she booked the appt.  Fool.

    Question:  Should I be up front and tell him about my onc saying no and my horrific therapy session, or just pretend that he's the 1st person I asked?  Why does this whole ordeal have to make me feel this  way???!!!

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2010

    Just tell him what's been going on.  Psychiatrists are not just for "crazy" people, either.  Most doctors who don't specialize in prescribing psychotropics prefer to leave that to an expert - there are about a billion different anti-depressants out there.

    I've been seeing a psychiatrist since the 90s and I can assure you I am not "crazy."

  • septembersong
    septembersong Member Posts: 287
    edited February 2010

    I agree--just tell your dr. what's going on. I'd tell him about the awful appointment as well. As I learned when I asked for INFORMATION about post-treatment services, there are many left-footed professionals out there, some of them practicing at excellent hospitals. I was referred to a social worker who insisted I come in to talk to her in person (this after not responding to my request for info for more than a week.) I refused because she made me uncomfortable. After all you've been through, run, do not walk, away from any mental health provider who makes you feel that way. My husband is a psychologist in private practice, and I'm speaking from his experience as well as my own.

    I hope you can find a med that takes the edge off while you heal. Your hair will grow back, you'll lose the weight when you're ready (I've lost 20+ pounds post-treatment), and you'll come to terms with your scars. You're so strong--sometime soon you'll feel that, and in a good way!

  • grammaatdaycare
    grammaatdaycare Member Posts: 11
    edited February 2010

    I've been dealing with clinical depression for over forty years.  As a teenager, I was labled rebellious and lazy.  If I had it all to do over again, I would have kept a detailed journal of all the medications, all the side effects, which ones worked then didn't.  Now, dealing with cancer, and taking an antidepressant consistantly for 8 years, I couldn't say if I am in better shape for them or not. I do know, I don't want to stop taking it, because it's how I manage even a small amount of control.

    I don't think even the medical professionals fully understand depression.  I've seen psychologists, psychiatrists , MD's, NP's, RN's, naturopaths, chiropractors..Everyone has answers, and some even work, for a while, some don't and then the professionals shrug, scratch their heads and say, "let's try this!"

    Desdemona is right - the shrinks aren't just for "crazy" people - we're all little crazy in one way or another, anyway.  What IS "normal"?! Besides, once we're told we have cancer we have the right to be "crazy"!!

     wish I could honestly tell you to hang in there and it will get better - it will get different though and maybe that's a good thing.

    I spent a lot of time trying to hide my problems, never told anyone what was going on, and that just made it worse.  Be open with yourself, your doctor, your loved ones, yourself!! (that second yourself is intentional)  Don't feel ashamed, humiliated, or embarrassed.  You are helping yourself take care in an impossible situation and if someone doesn't want to recognize that, then be done with that person and move on.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited February 2010

    Hey teach,

    If it were me I would go in tell him what you want, and answer any questions he has. I am only assuming that he may have your complete record in front of him. Is this at a clinic where they all work? Or perhaps he only gets test results etc...not sure. I wouldnt lie to him but if he doesnt ask if you have talked to your onc about it...I see no reason to tell..LOL. I personally think your onc is doing a great diservice by withholdiing meds to help you emotionally. I hope you get somewhere with the PCP.

     I used to work at a medical office. I was allowed to ask general appointment type questions, such as "and what is this appt for?" The patient would say " I just need to see the doc" ...........that is where it ended. I could ask no further because I was not a nurse, doc etc...if I felt the patient was maybe suicidal I was instructed to ask the patient to hold for a nurse..I would say something like " just one moment, would you hold for the nurse because I want to make sure I am allowing enought time for your appt." That receptionist was out of line.  Hugs, Mazy

  • jteach
    jteach Member Posts: 199
    edited March 2010

    I started this thread a while ago and thought I'd give an update.  My PCP prescribed citalopram(20mg).  That was about 4 weeks ago.

     I will be seeing him again on Monday.  I intend to bring him cookies.  I will never forget his kindness while I sat there and sobbed.  Since beginning this medication I've become almost like myself again.  I am relatively peaceful again. 

     I urge any of you that are afraid to take medication for anxiety/depression to please tell your doctors what you need.  If you don't advocate for yourself no one else will.  Also, I teach first grade and was scared to death that my personality would be altered in some way by this drug.  Not at all!  Thank God, not at all!  It just helps me to be me again.

    Thank you to all of you that supported me when I needed it most.  No one I know understands, not even the wonderful people who love me most.  Thank you, again.

  • moogie
    moogie Member Posts: 499
    edited March 2010

    Good for you! I found it odd that any dr would not support medication if one has had loads of medical treatment in  a short time and no chance to process it all. I am a big fan of talk therapy, but when you are in crisis, actively dealing with really tough breaks coming your way....you donlt have time to wait for those lightbulb moments. I resisted the Ativan my PCP  recommended until one day I was so nervous my hands were shaking. I rarely took one, but just knowing it was there in the cabinet and could help me was the best trick.

    Moogie 

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited April 2010

    jteach, SO glad to read through this thread and see you've gotten the help you needed and are doing better.  Good for you for sticking to your guns!  I'm really happy you're feeling more like you.  I know what a great place that is to get back to!! 

    You aren't not sane if you're depressed.  Depression is a normal part of getting a cancer dx, going through treatment, etc.  It doesn't mean anything "bad" about you, you aren't crazy -- it's NORMAL (whatever "normal" is!).

    There is so much misinformation out there about drugs and what they do... a lot of it carry over from some of the early meds.  Most drugs don't significantly alter your personality in any way (they aren't "happy" pills), but rather, put you on a more even keel so you can cope.  If one drug doesn't work well for you it's OK to ask to try something else (keeping in mind that some drugs take 2-4 weeks to really "kick in.").

    Same thing applies for a therapist: if one doesn't work, but you want to go that route, find another! 

    I was/am seeing the staff therapist in my oncologist's office.  I also, for awhile, saw another therapist (yes, two at once!), but he wasn't helping and I finally quit going to him. I also found myself getting more and more depressed (for me, talking wasn't enough to stop that snowball), and finally asked about anti-depressants or whatever I might need.  The staff therapist was immediately responsive and helped me get on something that worked for me.

    I've realized before how lucky I am to have the oncologist and staff that I've had -- they're all empathic, care about the whole me, and have never done anything to make me feel undervalued, frustrated, cut off, whatever.  It's made a horrible experience a lot more bearable.

    Hugs to you all!

  • WordDoctor
    WordDoctor Member Posts: 15
    edited April 2010

    I want to share my experience with panic attacks during my second chemo treatment. I had panic attacks near the begining of my doctoral work in 2003. I finally started taking Zoloft, and found the equalibrium I needed to handle the stress of the next six years, when I finally finished my dissertation. I got off of the Zoloft last July and felt no adverve effects from being off of it. In fact I loved not having sexual drive side effects anymore. After my first chemo treatment I noticed that I was having mood swings and anxiety, but no panic attacks. I talked to my onc. about getting back on Zoloft, and she agreed, saying that about 10-15% of her patients were on antidepressants. Then after my second chemo, when I had been on the Zoloft for over two weeks, the panic attacks started. It was the most horrific three weeks I've ever experienced. All I can say is that I didn't feel like I was me. I had irrational thoughts, didn't want to leave the house, especially by myself, felt panicky about EVERYTHING, etc. I didn't figure out the problem until I started doing research on the Internet about anxiety and chemo. I found out that Decadron, the corticosteroid they gave me as one of the premeds for my TCH chemo regimen can cause panic attacks, especially in people who have a history of them. Then I found out from my surgeon that the symptoms lined up with "steroid psychosis." I looked that up and found out that the Decadron was probably responsible for most of my anxiety/panic issues. I could see that the symptoms got better as the three weeks of my chemo cycle passed, and then jumped in intensity the next round. SO, before my third round of chemo I asked my onc. to eliminate the steroid, or at least cut it down. She wasn't comfortable eliminating it, so she cut it in half. I still have some of the mood swings and not feeling myself, but the panic attacks have stopped, and most of the irrational thoughts have subsided. I couldn't find anything on this site about it, so I'm posting now in case someone else can benefit from my problem and solution. I know this is a long post, but it feels so good to talk about it with people who might understand. Thanks.

  • frankenboob
    frankenboob Member Posts: 14
    edited May 2010

    This is a long process, a long journey. From the day I was diagnosed, everything in my life changed, somethings quickly, some slowly. For me change is not comfortable. I chose to have a bilateral mastectomy and reconstruction because two of my friends died from re-occurance. I wanted it out of my body completely and I did not want chemo or radiation and was told that I would only have to do the hormone therapy after the mast. But I did not know how gruesome the hormone therapy would be, or how painful the mast w/reconstruct would be. I did not know that I would undergo 7 surgeries to try to get my new breasts on the same line. I did not know that I would be in pain, depression, chronic fatique and gain all this weight.

    But mostly what I did not know is how this horrible thing could change my life in such beautiful ways. My relationships are more important to me and hold much more value and have improved. My personality has become more caring, compassionate and somehow softer from the hard-ass I used to be. I feel with so much more depth. I have developed a relationship with this Universal Power, Creator, God, Orenda....does not matter what I call it, it exists in my life today and I have come to depend more on it, than on myself and others. Best of all, I have an excuse today for being a bit crazy and I use it!!!!!!!! It gets different, it gets better, it gets worse, it gets different, it gets better and it gets better again.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2010

    jteach:  I'm a teacher too.  I have not had a chance to read the other ladies' responses, but I'd like to make a few comments:

    You should be able to get antidepressants from your primary care doctor.  He/she will ask you a bunch of questions first, talk to you, and then prescribe.

    A trip to the psychiatrist's office should be private!  It should not include other people, unless you are going to a support group, which is very different from psychotherapy.

    You have been through a whole lot.  Hang in there!

    Brenda

  • jteach
    jteach Member Posts: 199
    edited May 2010

    Hi Brenda (and everyone!)

    I haven't checked here in a while and am happy (genuinely happy) to report that I am out of those scary places my head was taking me every day.  My dose of citalopram has been increased to 40 mgs daily, but my PCP has assured me that that is a low dose and that if I feel shakey I can up it again.  I feel like me again and I'm so grateful to those of you who responded to my desperation.  You really do feel so alone and the words of encouragement from those who have walked the walk came from here.  So for those of you who are ready to jump out of your own skin over this horrible path we've been forced upon, there really is light at the end of the tunnel!Smile

    Janice 

    PS Brenda- What grade do you teach?

Categories