will life ever be normal after a bilateral w/reconstrucion

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Dublin4
Dublin4 Member Posts: 158

Hello girls,

I am having my surgery a week from this Monday.  First, I am at peace with my choice but overwhelmed....will my life ever go back to normal. I know it will be a new normal but will I be able to run, golf, play tennis.  Will I be able to lift things above my head?  Any words of wisdom.

Let me know what life is like on the other side. WONDERING!!!!

Dublin4

Comments

  • Beverly11
    Beverly11 Member Posts: 443
    edited February 2010

    Hi Dublin 4 - I had bilat mast with immediate reconst Dec 23/08. (implants & latismis dorsi)  Also had aux lymph node surgery.  At first, I was not able to lift my hands above my head, put a necklace on, close a car door etc.  It took several months and daily stretching to regain my mobility.  It is not completely back and I have to keep up the stretching.  Still working on the strength. 

    But, yes I am able to run and do everything I need to do on a daily basis.  Golf & tennis should be manageable if you get back into them slowly.  Recommend you see a physiotherapist after surgery.

    Wish you well

    Bev

  • badmamajama
    badmamajama Member Posts: 52
    edited February 2010

     Dublin,

    I had my bmx surgery 9/18/09 and was playing tennis by Dec. I just had my exchange surgery on 2/8/10 and will be able to play spring tennis which begins mid-March. Life can get back to normal.  You will have restrictions after each surgery (more with the mx than the exchange). Make sure you get a good physical therapist after your mx to help you recover more quickly.

  • PT63
    PT63 Member Posts: 329
    edited February 2010

    Hi Dublin

    I had my bmx 12/06 - first reconstruction 5/07 and second reconstruction 5/08. 

    Post bmx had the most restrictions - and you really won't feel like doing much anyway.  I had lifting restrictions after both exchange surgeries.  The second exchange surgery had more restrictions because they had to fix the pocket with lots of tiny little stitches and they didn't want it to tear. 

    I love to work out and I was fairly annoyed with life until I could resume all activities. I would say that my life was completely back to "normal" within a year after reconstruction was finished including cardio kick boxing, lifting weights, body pump etc.  The only things that feel really weird and I don't really like to do are chest presses and pull ups.  I also work with severely disabled children and adults and I have no lifting restrictions with them.

    Good luck and Take care

    It really does get better

  • mom3band1g
    mom3band1g Member Posts: 817
    edited February 2010

    Dublin4 - thanks for posting this as I was wondering the same.  How long is recovery?  This whole thing seems so scary.

  • NancyD
    NancyD Member Posts: 3,562
    edited February 2010

    I had a bilat mx 07/08 and had no range of motion problems at all. As badmamajama said, there are restrictions placed on you by your surgeons so that the incisions can heal, but many will give you simple exercises to do to keep you limber.

    I had recon surgery three weeks ago (bilat DIEP flap), and still no range of motion problems. It's only the lifting restrictions and the need to get back to pre-surgery stamina that's holding me back from my regular routine.

  • PT63
    PT63 Member Posts: 329
    edited February 2010

    Nancy D

    I love your signature line.... that cracked me up!

  • badmamajama
    badmamajama Member Posts: 52
    edited February 2010

    mom3band1g,

    I think your recovery has alot to do with how active you are before surgery.  I had chemo first and tried to continue my activities as much as possible. After my bmx, had restrictions with lifting,restrictions with arm usage(these were lifted with PT ). . I took about 6 weeks off of tennis and then practiced with some friends for a few weeks before playing in a match. I felt like playing well before I was given permission to play. As I mentioned, I just had my exchange Feb. 8th and feel great and ready to get back on the courts but can't for 2 to 3 more weeks.

    Just curious, I live in Alpharetta. I see you are from Atlanta. Are you in or out of the perimeter? Also wondering who is your BS and PS? I loved both of mine.

  • AnneW
    AnneW Member Posts: 4,050
    edited February 2010

    I am more active now than I was before my bilaterals, and I was darn active then. In fact, I've had implants removed and replaced by flaps (a monster surgery!) and I keep coming back stronger. And happier. It takes patience, time, determination, and someone to help coach you through it.

    Anne

  • mom_of_2
    mom_of_2 Member Posts: 347
    edited February 2010

    Life will be so normal you won't even believe it. I had a bilat w/ expanders Dec 17, 2008, exchange March 17th, 2009, nipple and port out June 15th 2009, 3D tattoos in September. It took me until October 1 to feel like I was ready to tackle gym again and now 15 months post chemo, 8 months post final surgery and final herceptin...I feel great! Sometime I actually catch myself saying out loud "really...I had cancer" then I look at my port scar and remember. I compare cancer to childbirth...IF...we remembered the pain of childbirth no one would ever have a second child. The brain has an amazing way of healing us.

    Give it time...you'll get there!

    Kris 

  • Dublin4
    Dublin4 Member Posts: 158
    edited February 2010

    mom_of_2,  AnneW,  badmaajama and everyone else who has responded...

    THANK YOU!   You have all given what I need to hear.  I think I am more scared of not being active and doing for myself then anything else.  I am normally the one who takes care of others and I am not so good and accepting help.  But boy am I going to accept the help with this one.  I have a wonderful group of people surrounding me...they are organizing my life from meal delivery's to someone to clean my house and carpool my very active kids.  I know this sounds strange, but I truly feel blessed. 

    This website has been such a wonderful place for me to talk with you, ask questions and learn.  I am so glad the nurse suggested it.  Keep the info coming.

     Thanks again to all....Much love!  

  • shadow2356
    shadow2356 Member Posts: 393
    edited February 2010

    I was able to run around after a two year old and lift her all day within weeks of my BMX. I don't think there is anything it would keep me from doing right now. I was worried about being able to go to the bathroom unassisted, it was never a problem. I think you will be surprised how quickly you  recover.

    Good luck!

  • Dublin4
    Dublin4 Member Posts: 158
    edited February 2010

    All of you are my inspiration and hero's!   Thanks you.   Next Monday can't get here soon enough and it can take its time...It would be easy for me to live dwell in denial and fear, but instead you have all helped me to dwell in appreciation and hope!

    Keep your fingers crossed next Monday for me!

    Thanks again,

    Dublin4

  • AnneW
    AnneW Member Posts: 4,050
    edited February 2010

    We'll keep everythng crossed for you, Dublin!

    My biggest piece of advice is to get into physical therapy a few weeks after surgery, to help get back range of motion, then strength. I didn't do it with my first surgery 8 years ago--I was foolish enough to think I knew it all then! But with my last four surgeries, I was right there with an awesome therapy group, and I came roaring back!

    It is a very scary time. We get robbed of our innocence and our body. We are vulnerable. We have to accept help. So, we can't change what happens, but we CAN change how we react to what's going on. Be proactive. You can still be afraid--that's normal--but just keep moving ahead. baby steps, and soon you'll be running!

    Anne

  • Dublin4
    Dublin4 Member Posts: 158
    edited February 2010

    AnneW,

    I am in a good place...my mind is at peace and my body is strong (except for the unwanted guest).  I know that I will have to accept help and I will.  I have been overwhelmed by the outpouring of support from my family, friends and neighbors.  They have held me up and lifted my spirits.  Just as many of the women on this chat board have!  Since my families needs will be taken care of, I can focus on getting better as soon as I can.  Baby steps and then running.

     Thanks for the info.  It is SO appreciated.  This time next week....hopefully all will have gone well:)

  • Mantra
    Mantra Member Posts: 968
    edited February 2010

    I had my mastectomy and TE in mid September. By December I was golfing, working out, biking, walking two large dogs, and doing everything I was doing before. The only thing I haven't tried yet is canoeing and upper body weight training. I'm only holding off on trying them because I'm out of the country and don't want to have problems while I'm away. I love canoeing and do miss it but I'd rather be safe than sorry.

  • kajan75
    kajan75 Member Posts: 21
    edited April 2010

    How lucky you all were, guess no one has experienced Florida Hell Care and MRSA/VRSA, which I contracted during my initial surgery in January 2008.  Life will never be the same and thanks to our wonderful non-working government, I won't be able to change jobs for years.  Nine surgeries later, I am still in pain.  Not one of you have experienced T1-2 nerve regeneration pain? Yes, you are lucky.  Wow, I guess you all have your cognitive skills and can sleep too.  I was in great shape at the time of diagnosis, however, seven months on a couch and an additional eight surgeries (five due to MRSA/VRSA) with recovery time, I figure I spent over a year propped up in the corner of the couch.  No one had problems with chemo brain and your employers must be great, that is, assuming anyone works.  There is a reason everyone writes a book; prepare yourself for the worst and when the best happens, euphoria.  I do hope your surgery went well and you have federal employee health insurance.  Good luck with your recovery.

  • janincanada
    janincanada Member Posts: 258
    edited April 2010

    I didn't have my mast's at the same time but yes you will be able to be active.  I had my origianl mast in April 08 followed by chemo, rads and herceptin.  Finished in July 09 and went on vacation to climb a mountain and hike.  In Dec. 09 I had the other breast removed and started recon.  I had TE's placed with a LD flap done on the radiated side.  During chemo I started yoga and walked.  I was lifting my arms over my head after 2 weeks.  I didn't do physio then.  I went to the gym and was active.  After my second mast and recon I was back playing racketports and doing yoga after a month.  Now I play racketposrts 8 hours a week, yoga 4 and walk and ride my bike.  I did do Physio after this surgery to help me get the range of motion back.

     You need to keep stretching and moving as I notice that if I skip a couple of days I notice a difference.

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