Pleomorphic LCIS diagnosis...question

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kitkit
kitkit Member Posts: 80
Pleomorphic LCIS diagnosis...question

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  • kitkit
    kitkit Member Posts: 80
    edited February 2010

    Hello to all my new sisters!

    I have been reading for the past couple days since my diagnosis after stereotactic needle biopsy, and meeting with breast surgeon at major BC center in LA.  I'd like to verify my reasoning for my course of action with all of you smart ladies. 

    Background:

    Small cluster of calcifications on left breast after mammogram and special view.

    Needle biopsy originally came back DCIS.  Then panel of radiologists all agreed that it was pleomorphic LCIS. At this med center (St. John's in Santa Monica), the doctor (Guliano) said they see only around 2 a year.  He assures me he is in contact with the leading lights on the subject around the country and his advice is:

    Get results of genetic testing for BC gene (I am pure Ashkenazic Jew).  They took my blood yesterday.  It takes 2 weeks for results.

    After I get results schedule lumpectomy....or...consider bi-lateral mastectomy if result for gene is positive.

    Upon reflection, and after extensive reading on boards and med journals my inclination is to get lumpectomy first and soon, and try to get clean margins and nothing invasive regardless of the result of the genetic test.  If clean margins and non-invasive, proceed with high risk monitoring for a period, see if any other calcifications appear and proceed from there.

    Am I missing something?  I understand that some women proceed with bi-lateral mastec as a prophelactic measure but I'm not ready to go down that path yet.  Especially if the cluster can be removed now with good results.  By the way, I am 61, in excellent health, and expecting first grandchild in July.

    Thank you all for your thoughts, 

  • sweatyspice
    sweatyspice Member Posts: 922
    edited February 2010

    I think you might be better served by posting your question in the LCIS area rather than DCIS.  That said, I'd wait for the BRCA results.  Two weeks shouldn't make a difference.  Or, go ahead and schedule the lumpectomy, but for a date after you've gotten the results back.  That way, if the results do cause you to change your mind, you'll have a chance to do so. 

    Unless you have a strong family history, my guess is that you'll be BRCA negative - but it can be good to check anyway.

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