I Get "Wigged Out"
Ok, I'm going to start sounding like I'm repeating myself here, because I know I've expressed these concerns here before, but sometimes it's nice to get some reassurance from someone else going through it. Yesterday, we had a long day at the house. Both boys had playdates over all day, I was trying to multi-task, I feel inadequate to the task of being a caregiver to DH, and we went to a Valentine's Day fundraiser for my church last night. Honestly, by the time we got home I literally felt like I was falling apart. I had to get to bed ASAP or I was gonna kill someone. Suddenly, I just felt like I knew something wrong was going on inside me. My back didn't feel right (it wasn't aching) and I just felt like something was wrong. Fast forward to this morning, and I feel fine again, except for being overwhelmed and not up to the task of life right now. Seriously, am I the only one who goes through this from time to time, where you feel like you just can't take it anymore?????? And then the next day you wake up after a good night's sleep and it doesn't seem so bad? Intellectually, I think it's just that I can't give myself breaks as often as I'd like. I am getting some support from Hospice aids and via private care that I pay for the mornings I work. I guess, and many of you will laugh at this, that for the very first time in my life I have a "bad attitude" and I'm trying to figure out how to cope with it. One thing I don't miss is the daily workout, and that does help.
Waaaaaah!!!!!!!
Love
Bobbie
Comments
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I am kinda there too, trying to positive but sometimes just feel like crap and can't be. IIt would be nice to just snap our fingers and have the uncertainty go away. have been back to the gym the last three days riding the bike for 20 minutes. I too am stage three and have 5 taxols left, then surgery and radiation.
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(((((Bobbie)))))
I think you need a few hugs!
You know, I think all of us get those moments when we think we are at the end of our ropes. But I have a husband who comes home at the end of the day who I can vent to, and who can give me a cuddle, and make everything right with my world. Not only do you not have that, but you have all the extra worries and stresses of being a Caregiver. No wonder that sometimes it all feels like it is too much.
I really hope you can get some extra help in. Do you get any time off just for yourself? Even an afternoon off to get your hair done or something?? It is amazing what a few hours to yourself can do.
It is good that you are exercising - it is amazing how I can be full of woe, and go for a good walk, and totally feel better.
I wish I could do something more concrete to help out. Remember anytime you need to vent, you know where we are!
And here are some more ((((hugs)))) in case you need them!
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I'm just about 3 years out from diagnosis and I have this experience pretty regularly. These episodes happened frequently during the first two years, and now are becoming somewhat less frequent. Also, I've noticed some things that trigger "meltdown days" as I call them--any day that has a doctor's appointment in it, any day that i get poked with a needle, and the days just before such 'adventures' are prime times. The day after 2 nights of particularly bad (or none-existent) sleep is another time. Waiting for a phone call from a doc's office for whatever reason, but especially waiting for lab or mammogram results, is another time.
I've developed a routine that helps me "fix" my attitude: shutting off the phone, putting in a favorite movie, take a xanax and chill once I get home. When the movie's over I take xanax #2 and go to bed, turn on a metronome and get as much sleep as I can before I have to get up the next morning. I finish off my "cure" with an extra cup of what ever flavor coffee appeals to me that morning (I keep several flavors in the house, it's my weakness).
I've spoken to my PCP and therapist about this happening. They both said the same thing--it's a reaction to the stress, a form of Post Truamatic Stress Disorder that most women with breast cancer experience. Hopefully it will continue to fade out over time.
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I get the same way-I feel terrible and go to sleep and feel better.
Give yourself a break-your stressed and have a lot on your plate. Don't underestimate what might be happening to you subconsiously as well.
Your strength is an inspiration to us all and we are here for you.
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Thanks girls. You're always there for me. I guess I forgot to mention that we're right in the middle of this season's snow belt (and I did all the shoveling) and the kids were out of school two days last week and today for the holiday. We're also supposed to get 4-6 tonight, which pretty much guarantees a two-hour delay tomorrow. I guess I've underestimated how important the downtime is to me, and I haven't gotten as much lately. I'll be okay. Thanks for being there for me!
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Honestly I don't know how you do it all........you are just plain awesome.
Jacqueline
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Dear BobbieakaSpunky Girl,
I am sending you hugs and prayers. Bless you, BB
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Bobbie -
Read your post as if someone else wrote it - you would shaking your head and saying "Girl, I don't know how you do it?!" You are under a crazy amount of pressure amongst the normal drama of kids and dogs and pta and snow storms.
ps - I rolled over last night before I went to sleep and my rib hurt, like barely, I of course thought it was cancer. This am I can laugh at that.
See you soon - really!
Mary
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You all always make me laugh and make me feel better
. I've been thinking a lot about what NativeMainer said about PTSD, and I swear that's what's going on here. Unfortunately, my triggers are pretty frequent right now and the situation isn't going to change anytime soon. My poor DH mostly sits and sleeps every day, and I do everything for him. This morning, he woke up about 45 minutes before a doctor's appointment (I had went in and told him earlier to get up), and wanted bacon and eggs. No problem, but I hadn't showered yet. Honestly, I can't even trust him to finish making the meal while I showered, so we were almost late. Even being his wife and knowing the situation, I get frustrated sometimes at his lack of activity and helplessness. He looks more functional than he is. When one of my GFs stops over and remarks about how great he's doing, I feel like I could lose it. We also found out he has Type 2 diabetes a few weeks ago, and I'm very frustrated at his lack of attention to his diet and getting physical activity. Honestly, he has to be on his own there because my plate is flowing over. In our 19 years together, he has never listened to me on diet and exercise, and I don't expect that to change now. We have an elliptical and treadmill in the basement, and he hasn't touched either one even though he gets regularly lectured to at the Diabetes office. Argh. Ok, I'm done venting. Thanks for listening.
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REally need to go back and read all these posts, but realize that I've had one too many glasses of red wine, yet want to go have another!!!! its been on of those days (actually few days).
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I just wish I could come over to your place and give you a break...
All the things you're doing and you can still step back and recognize that you have times when you've hit the wall. Some women don't realize they've had too much -- they just react and let emotions take over.
What you're doing and how you're handling it are just amazing. I feel helpless though because I can't offer any advice, just my warmest thoughts.
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Bobbie,
Grab those kiddos. Get your hugging time and do something for yourself. I know exacly how you feel and have those dooms days as well. I have started my student teaching and that has done wonders to get me back into the real world and amazingly has really taken my mind off the bad things. I love waking up and worrying about curriculum instead of cancer!
I know you are probably pretty housebound as a full-time caregiver, but if you can find something else to focus your mind on outside of the home it has done wonders for me. Sometimes it is just too sad to stay at home.
I so wish this was different for all of us, but you have an added crap on your plate that I am sure none of us can even comprehend. You are such an inspiration to so many of us here...let us be yours!
Susan
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i think it's the February blues for me..
so many clouds and not enough sunshine..
hang in there Bobby
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SpunkyGirl, Big warm cyber hugs going out to you tonight. You are an experienced campaigner, so I'm sure I'm not telling you stuff you don't already know. However, I'll say it anyway. You absolutely must take time away from your responsibilities to reconnect with yourself. Put yourself first, Bobbie, and don't feel you are being selfish when you do it. You can't keep on keeping on at the rate you are going. I know that's easy to say and very hard to do. I wish there were concrete ways we could help out. Just remember, we are here and we care.
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Thanks Gitane (and everyone else). You all always make me feel better about whatever is going on. And, yes, Apple, the weather has a lot to do with it. Too much snow, and I'm sick of it! On the first nice (above 60 degree) day that comes along, I'm going to be ecstatic.
Peace All!
LoveBobbie
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i find it interesting how many people 'wig out' in February.
As a Catholic, I always welcome Lent.. the time to sacrifice, do good works and reflect. The seasons march on and it's time to get ready for Spring!!!!!!!!!
It's been such a hard winter, so very dreary this year. Weeks without sunshine and such a mess... coupled with all the stress in your life - I hope things perk up for you and you gain some strength to face your challenges. My prayers for you Bobby.
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I'm just catching this.......... a few days late, but here are some extra (((HUGS))))
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Got em! Thanks Jenn and everyone. You rock!
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Hi Bobbie! Hope you are doing better today. {{hugs}}
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