Early stage sadness

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  • baywatcher
    baywatcher Member Posts: 532
    edited February 2010

    Day-

    I have seen your photos on the photo forum and I know that you are going thru your own private hell! I am sorry that things didn't go as well as you had hoped regarding your recon. Maybe the next stage will be an improvement.

    I don't recognize myself in the mirror anymore either.

    I didn't even feel a lump or a sore spot or anything! If I had felt something at least it would seem real. My disease was found on a mammogram film!  I just had a routine mammogram and Bam! the mammogram found calcifications and I jumped on the breast cancer train.

    I hate that this has happened to any of you ladies but knowing that you have been thru what I have makes me feel less alone and a bit less insane.

  • kcshreve
    kcshreve Member Posts: 1,148
    edited February 2010

    i didn't have any symptoms either, which is why I delayed scheduling a recommended MRI, since my younger sister had breast cancer.  I just didn't want to be bothered, since my mammo's have always been fine, no lumps, no tenderness, great health.  A clear mammo again. The MRI showed an unusual spot, which was biopsied and I was told had unusual tissue, but not cancerous.  Again, no lumps or bumps, so not big deal to me.  BS suggested a surgical biopsy to get a good look at it.  I put it off since there were no symptoms and I was told this unusual type of tissue is rarely cancer.  By the time I finally got around to doing the surgery, I was absolutely shocked when I was told the area showed cancer with unclean margins.  It's just too weird to think everything is fine one day, yet not the next.  No symptoms, still a clear mammo.  Only the MRI was able to find this spot.

    I chose to have a bilateral mx, even though the other breast seemed fine.  In the path report, the non-cancerous breast showed "unusual tissue", but no cancer (yet).  For my safety, I'm glad I had both removed, but sad for the loss of my breasts and natural sensations.  

    I can say that a reconstruction (DIEP) has really made a difference for me as far as my perspective goes.  That's just me.  Instead of feeling like I got royally ripped off, I do have breasts and they do seem like mine.  Without my bra, I look almost like my old self - same size, very similar shape.  I was worried that I'd forever feel very "different", and in some ways that is still there, but honestly, after having this procedure, I'm very surprised that the sense of loss is much less than I had anticipated.  

    Until I settled on the diep procedure, I had determined that I would not reconstruct and had let that sink in for awhile.  I thought I could manage that, yet knew I'd have to adjust to feeling ripped off.  Again, that's just me.  Then, I decided I wanted to give reconstruction a try, at the least, to see how it would go for me.  The results have been good.

    Feeling like the mammograms themselves have caused your cancer is a separate issue on it's own.  Sometimes it is harder to process the various aspects when they are all bundled together.  Identifying the specific issues can help to makes sense of it all. 

    I'm reading The China Study, which has been an interesting assessment of differences between countries and cultures with high breast cancer rates and low breast cancer rates.  There are distinctively different eating styles, which we are usually not trained in (vegan/vegetarian).  The research is irrefutable and astonishing to me.  My new project is to make sure I never get a cancer dx again in my life.  I'm hoping the info I glean from this book, and others like it, will help me face the future with strength and focus.

    Best wishes to you, - KC 

  • robinlbe
    robinlbe Member Posts: 585
    edited February 2010

    Baywatcher, I'm like you.....no lumps, no bumps, no signs of anything.  Just a plain, ole routine yearly mammogram.....just being the good girl, following the guidelines....getting my yearly exams, my pap, my mammo.......

    I think somehow, in my state of mind right now, it would be easier to justify if I HAD felt a lump.....or had some other signs or symptoms, but I guess if there had been something to feel, it would have been further along, and my treatment wouldnt' have been so "simple" (tongue in cheek).

    catch 22, if you ask me..

  • cookie2009
    cookie2009 Member Posts: 36
    edited February 2010

    Hi, I will be having another surgery next month for my reconstruction. I see oncolist and mammo next month. It will be a terrible month. Right now, I take alot of medicine for anxiety. I am so scared, bei ng her2 and no treatment makes me crazy at times. Anyone not receive treatment for her2 breast cancer?

    Hugs,

    cookie

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