Just diagnosed DCIS

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KC71579
KC71579 Member Posts: 73

Hi Ladies

 My name is Krissy and I am 30 years old.  I had bloody nipple discharge, so I just had a single major duct excision and an excision of a density.  My surgeon just called me with the news that I have DCIS.  The tumor in the duct measured 4mm, and the other portion was .15cm and was possibly microinvasive.  I understand that this was a microscopic finding, that took all of us by surprise.  I have to go in for an MRI of the breast ASAP to see what my treatment option is and will be.  I am scared, and need to hear from those of you who have had similar diagnoses.  I am getting married this July, and am worried about my future.  If you can offer me any words of advice, or hint to me as to what I have coming, please respond.  Doctor says that this has not spread into my lymph nodes.

Thanks!
Krissy

Comments

  • mom3band1g
    mom3band1g Member Posts: 817
    edited February 2010

    Hi,

    I know you are scared and this is a great place to come.  It seems like a million years ago that I found I had DCIS but it was really only about 4 weeks ago!  No lymph nodes is very good news.  I know everyone's treatment is different so I can only tell you mine.  I had my mri before my surgery.  I am now waiting on my path report from the lumpectomy.  I was told to expect 6 weeks of radiation.  I found I cried about once a day in the beginning but not so much anymore.  It is hard and you are young.  I thought I was too young and I'm 39!  Just take each day as it comes and come here to ask questions and read.  Read as much as you can.  Knowledge helps give you some sense of control.  There are others on here who can tell you about microinvasion (Beesie is amazing).  I know it's scary but you will get there.  Having a wedding in July will be so wonderful!  Hope this helps a little.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited February 2010

    Another newly diagnosed DCIS here. I found out about 4 weeks ago as well, and am scheduled for my lumpectomy for Thursday, Feb 25th. This is a great place to come for information, and I've found that sharing my story and reading about others' treatments and diagnoses has helped me tremendously.  Surround yourself with people who love you, and cherish each and every moment of every day. It is scary news, but DCIS can be very treatable.

    Best to you,

    MaryAnn

  • jkz
    jkz Member Posts: 355
    edited February 2010

    Hello, I am new to this site and find it very informative.  I am 41 years old and a mother of 3.  I just was diagnosed with DCIS. I had a sterotactic biopsy done last week and just received my report from the pathologist. There were 2 clusters biopsied both in the lower quadrant anterior and posterior. The diagnosis were high grade (3) with comedo nercosis( also noted as solid?). I am scheduled for am MRI next week. I have noticed in the last mammogram that I had there were also many scattered calcifications noted. These were not biopsied and I am very concerned that they may also be DCIS. Breast cancer is very hereditary in my family. My mother, aunt and grandmother all had masectomys. I see the breast surgeon the 2nd week in February. Will I have a choice on what procedure I choose to have done? Masectomy or lumpectomy? In my opinion I would just rather have the masectomy and know that this cannot recur.

  • Scarlett40
    Scarlett40 Member Posts: 6
    edited February 2010

    Hi Krissy,

    It's a terrifying situation, I know. Try to stay calm if you can. It sounds like yours will be an excellent outcome.

    I was dx 5 months ago with DCIS. I had a microinvasion also. I am assuming all yours is DCIS, but with a microinvasion?

    I have read until my eyes hurt, had emails back in forth with several experts (Ask an Expert on John's Hopkins website- Lillian Shockney is wonderful).

     I went forward with a bilateral mastectomy- I was 40 when diagnosed- and have 2 children under 4. It was the best decision for me. It was not easy the first couple of weeks- but after that, it was not bad at all. I had immediate reconstruction with a tissue expander. I had to have no further treatment.

    Statistically (for reoccurance) you will probably read that lumpectomy and radiation will work for you and maybe not have a reoccurance. Myself- being a mom of young children- I did not think twice about it- when I heard cancer I told my surgeon I wanted a mastectomy.

    Just take a deep breath and look at it this way- people have skin cancers removed all the time. If they didn't- yes, it can go on to grow and become life-threatening. It's the same with breast cancer- your's is at it's EARLIEST point of formation. If it is DCIS- it's curable. Mine was DCIS-MI (with microinvasion- which means it was just beginning to leave the duct). Therefore I was put into Stage 1 diagnosis, but a mastectomy and sentinal node biopsy were all that I needed. I could have gone further with Tamoxifin to fight estrogen production- but I opted out of that.

    I would thank the Good Lord for the nipple discharge. This means that by the time of your first mammogram- it could have been a much more advanced situation.

     Krissy- 5 months ago- I was where you are today. Just know that you'll get through it! Trust your doctors- but read up on it yourself also. Write to Lillian on Ask an Expert. She's an angel!

    Best of

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited February 2010

    I was 47 when I was diagnosed, so some of our issues are different, but I was in the process of a divorce and had just started dating a gentleman.  Its a shock to the system, but you will get through this.  I had a lumpectomy and radiation and am just finishing up my five years on tamoxifen.  You will want to ask for copies of your pathology reports.  I keep a file with all of my test results, mammo films, MRI disks etc.

    You are in the early stages of the process right now, and I think it is the worst time with all of the testing, waiting for test results, and waiting to know your treatment plan.  It does get better.  Knowledge is power and it is so much better to educate yourself so that you can make informed decisions with your medical team.  The MRI may give additional information to help you decide. If chemo is mentioned because of the micro-invasion, get a consult with a fertility specialist before any treatment begins.  My daughter's 30 year old friend was diagnosed last year and had eggs harvested before any treatment began.  As a young woman, you have different choices to make than I did.  There are sites available that are specific to your age group, and it will help to share your experiences.

    I was afraid when I was first diagnosed and genuinely tried to chase my boyfriend off as I felt like "damaged goods", a cancer diagnosis was not something either of us had signed up for.  He refused to be chased off and was with me every step of the way through treatment.  We were married the year after and he has been the most wonderful co-survivor.  I can't imagine going through life without his hand to hold.  So continue planning that wedding and look forward to your future.  God bless you.

  • KC71579
    KC71579 Member Posts: 73
    edited February 2010

    Hi Scarlett40

    Thank you soo much for your kind words!  I heard the c word, and am already leaning towards mastectomy.  I'm such a worrier (it's in my nature), and I never want this to come back or live in fear of it.  My doctor says it is DCIS with an invasion, but he did say my invasion is very small and that he is not even certain it broke all the way through.  The closest edge of my nipple dissection were clean.  We thank God that my Siamese cat jumped up on my chest one day and caused my nipple to squirt the tiny bit of blood.  I realize I am very lucky, but it's not making life any easier.  I will feel better after I have the MRI on Wednesday. The ultrasound and mammogram that I initially had, though it did not show this area as cancer, showed just this one area of concern, which we completely removed.  We only removed it because we went with the rather safe than sorry approach, nothing pointed to cancer.  But the measurement on my tumor inside the duct was 4mm (or .4cm) and the invasive part was .15cm.  I may opt for the mastectomy and no further treatment if that is presented to me.  I am only 30, I want to heal and get married in Jamaica this summer as we plan, and I want to have babies.  I'm trying to get a grip on myself cause I've been crying for days.  :'(

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