Pleomorphic LCIS

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    cornellalum congratulations on the preliminary negative on SNB and so happy to hear from you. It truly is so good to be on the other side of this, isn't it. 

    I took the percocet once which made me feel too loopy and then switched to extra strength tylenol and that seemed to work fine.  We will be waiting with you until next Thursday when you get the final pathology.  Keep us posted.

    Take Care

    Cathy

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  • macksix6
    macksix6 Member Posts: 201
    edited February 2010

    Cornellalum welcome  to the other side. Good news on the SNB and hope your path reports all come back OK and and you can now put all of this behind you. Rest up and take care of yourself.

    Stephanie

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  • leaf
    leaf Member Posts: 8,188
    edited February 2010

    Best wishes Cornellalum.  As the others have said, hope you can now put this behind you.

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  • Minnesota
    Minnesota Member Posts: 923
    edited February 2010

    Cornellalum - Add me to your list of relieved friends! And gee, I kinda like to feel loopy!

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  • balsie
    balsie Member Posts: 391
    edited February 2010

    Cornellalum, so happy you are on the otherside of this now...just get your rest and take extra care of yourself......eat healthy and drink lots of water....I am sure you already new this. Just hoping all goes really well for you. 

    warmly,

    Balsie~

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    cornellalum---negative nodes--awesome news!!!!! Take care of yourself and heal up soon.

    anne

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    Eve - I'm with you on the "like to be loopy" but me on percocet is more like "non-functional."  I only like to be loopy when I can enjoy it!  Wink  The extra acetominephen I took this morning was much better. 

    And yes, this side of things is awesomely awesome.

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  • OG56
    OG56 Member Posts: 897
    edited February 2010

    Cornellalum, just wanted to see how your doing and if your recovery is coming along smoothly. I assume you have been snowed in like the rest of us on the east coast. Hope this finds you warm and doing well.

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    Linda - I am doing pretty well.  Every day gets a little easier.  These drains are a pain, and I have four of them, so they are many pains.  We actually aren't snowed in.  Since we live in the very southeastern corner of VA, the snow all melted pretty fast.  It has been very cold, though, so it has been freezing every night. 

    Have you heard from your doctor yet?  I remember you said that she was going to present your case to a board.  I am anxious to get my results, although that won't be until next Thursday. In the meantime, I am trying to find things to do to keep from going crazy from boredom.  (crazier?? hmmmmm)

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  • Minnesota
    Minnesota Member Posts: 923
    edited February 2010
    Guys,

    I just got back from my oncologist appointment - I've been kind of drifting without an oncologist since mine left almost a year ago - seeing nurse practitioners or fill-in oncs. Each time needing to tell them my "story," because it's pretty involved and highly unusual - as all of ours are! And then the part about contemplating a PM on the non-cancer side always got mixed reviews... Anyway, I went in this morning, not looking forward to it (but who of us EVER looks forward to our onc visits), with my folder full of PLCIS articles. I was pretty much expecting another doctor looking at me like I was nuts and thinking I was over-reacting. But no! He was great! Very, very supportive. And then he said that after a PM, there was really no reason I couldn't just be followed up by my regular doc, wouldn't need to come in for onc visits anymore!!!!! It felt like the sun had burst thru the clouds! I went out to my car and cried - such a huge, huge relief! So my decision has again been reinforced. Now I just wait and hope my insurance company sees this the way I do! Thank God for all you gals! Such a support system!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Cornellalum, hope you are continue to heal from surgery.  My thoughts are with you while you wait for your pathology.  Always seems like we are waiting for something, isn't it?

    Minnesota I am so happy for you that you finally feel like you have the support you need.  That is great news.

    Cathy

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  • OG56
    OG56 Member Posts: 897
    edited February 2010

    Let's see boredom, for me the solution is my kindle, I love to read so I just add a new book. I also love to watch movies, maybe something funny. If you want to read a funny book  "I Love Everyone and other Attrocious Lies" by Lauri Notoro it made me laugh out loud many times.

    I had a drain for 10 days that was for my Mamosite radiation and it had a big heavy balloon in it and it hurt like hell, so I feel sorry for you honey!

    Eve, have you ever cried so much over all this BS? I cry all the time and it is getting annoying. But I am happy that your Onc. was supportive and I am sure that although you have made your decision I am sure it is all very emotional for you. Luckily we all have each other. I just had one of my dd's friends Mom call me because she was just diagnoised and I told her I would be her BC sponser and when she was ready she could come here for her meetings LOL

    Have a good weekend girls

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    Eve - I am so glad you are feeling good about your decision. I totally understand! Amazing how much difference it makes when you find a doctor that sees where you're coming from?  I would be shocked if your insurance didn't cover it - they covered mine with no questions. 

    OmahaGirl - Books and movies - sounds good.  But I keep falling asleep.  Frown  It's a real b*tch getting old, ladies.  I will have to get the book you recommended.  Maybe if I'm laughing, I'll be able to stay awake!  What a sorry state of affairs! 

    Talk to you all later!

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  • balsie
    balsie Member Posts: 391
    edited February 2010

    I love to read and I am going to pick up Attrocious lies....sounds fun.  I thought about a kindle but I just love having a book in my hands.....My niece always says "a room without books in it is like a room without a soul"  Kids say cute things...

    I am also going to the movie Valentines Day...it looks good.

    Enjoy everyday

    Balsie~

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  • Minnesota
    Minnesota Member Posts: 923
    edited February 2010

    I've been trying to get the "pleomorphic" part onto my diagnosis at the bottom of my posts, but can't figure out how to add anything besides their limited range of diagnoses. Can anyone walk me thru how they amended this? Like OmahaGirl or Formykids?

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    Maybe they put it in their signature on their profile?

    How ya doin'?

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  • OG56
    OG56 Member Posts: 897
    edited February 2010

    Eve, I put it in my signature line, the only way I could get it in there. I am waiting to hear back from Sloan I am so curious as to what they will find in my 2008 slides, was there pleomorphic in there and god forbid was my IDC a misdiagnosis! I doubt it but I need to be sure.

    I feel old too and tired my DH took me out for dinner last night and wanted to do something after but I was to tired ugggggggg. Thanks goodness he works alot and is usually tired to.

    I have so many books now that is why I got the kindle because I have run out of space LOL.. I didn't know if I would like it but I travel alot for work and love just downloading a new book when I am done reading one, it saves me from having to find a book store. I also belong to simplyaudio book club because I listen to alot of books when I drive. I figure I don't go out on the town anymore and I am now overweight so I spend minimally on clothes, but if I ever loose it look out NY I will shop again like crazy! 

    Have a good week.

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  • Minnesota
    Minnesota Member Posts: 923
    edited February 2010

    Cornellalum - OK, I tried putting it in my signature line - we'll see if I succeeded. I'm doing pretty good. Glad I made my decision. I'm sure I'll panic and second-guess some more, however, before this is over.

    Omaha Girl - Did you have chemo or radiation for your IDC? Looks like it was very small and no nodes, so I hope not. I did have an "invasive" diagnosis right thru my mastectomy and for a couple weeks after. Had all the pre-chemo tests, too. I might have been quite unhappy, had it turned out it was "only" LCIS. I wouldn't want to think about that. As it was, the doc kept referring to it, then, as DCIS, because it was to be treated like DCIS, I think. Since it was PLCIS, really, tho, I'm confident the mastectomy was the right thing to do. If I'd gone thru chemo, however, I would have been pissed! If it were to turn out you didn't have IDC, however, you could rest easier, knowing there was never anything "invasive" in your body... Just trying to put a positive spin on it, in case.

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  • OG56
    OG56 Member Posts: 897
    edited February 2010

    Yes Eve you are right about the invasive part my cancerous area was small .5cm and the invasive component was 2-3mm. I did have radiation so I would be pissed about that! But we will see....Hopefully pathology here in NY and Omaha didn't misread my slides back in 2008. 

    Just think ladies Spring is just around the corner (:

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  • OG56
    OG56 Member Posts: 897
    edited February 2010

    Just found out that Sloan concurs that I did indeed have IDC and there was LCIS found in the tissue but classical not pleomorphic..

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    Hey ladies, just got back from my bs with the path report:  Good news - nothing in the nodes. Lots of PLCIS and LCIS on the left side, with extension into ducts, and fibrocystic changes including apocrine metaplasia. .  Nothing invasive.  On the prophylactic right side: atypical lobular hyperplasia, flat epithelial atypia, and fibrocystic changes including cysts, apocrine metaplasia and columnar cell change.  Nothing invasive.

    So the right side already had ALH, and everything I've read about flat epithelial atypia and columnar cell change (which they also found in the left breast during lumpectomy) says that it is a potential precursor to low grade DCIS, and needs to be further explored by excision if it's found in a needle biopsy.

    So there was lots of stuff going on in those breasts.  I definitely did the right thing. 

    I am feeling much better since he also removed 3 of 4 drains. Hooray!

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  • Minnesota
    Minnesota Member Posts: 923
    edited February 2010

    Omaha Girl - Well now you know the radiation was necessary. You can have some peace of mind about that!

    Cornellalum - You trusted your instincts and you were right! And you got that bad tissue out of you in time. Yeah!!!!!

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  • leaf
    leaf Member Posts: 8,188
    edited February 2010

    Congrats, cornellalum! I'm so glad you made the right choice.  Hoping you are having a speedy recovery!

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  • macksix6
    macksix6 Member Posts: 201
    edited February 2010

    Cornellalum great news. Best wishes for a speedy recovery this is now all behind you.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Cornellalum, that is such good news.  You must be so relieved.  Glad to hear he also removed at least some of your drains, it makes things a little easier doesn't it?

    Take Care, Cathy

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    Thanks for all the good thoughts.  Yes, it is good to be past this surgery.  And to know that having it was absolutely the right thing to do.

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  • kitkit
    kitkit Member Posts: 80
    edited February 2010

    A ridiculous question...or not?

    Is there any relationship between breast ache/pain with PLCIS or invasive PCLIS?

    One year ago I started feeling ache/tingle in area of left breast near armpit where they just discovered PLCIS together with non-pleomorphic LCIS.  I went to doctor about 6 mo ago and had negative ultrasound, so this is not a recent complaint.  I had needle biopsy a week ago and am having a lumpectomy in a couple of weeks.  I've also had 3 biopsies many years ago in the same area so there is some scar tissue.

    I am not paranoid.  I have the pain on and off all day.  Have any of you ladies with PCLIS had breast pain before your diagnosis?

    Thanks,

    Kitkit 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    I did not have any pain.

    Cathy

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  • balsie
    balsie Member Posts: 391
    edited February 2010

    cornellalum~congrats...you did the right thing, doesn't that feel good! super happy for you.

    Kitkit~ I did not have any pain at all...but I think it is different for everyone...so that could have been you warning

    Enjoy today girls!!!

    Warmly,

    Balsie~

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  • cornellalum
    cornellalum Member Posts: 191
    edited February 2010

    kitkit - I did not have any pain.  But, as Balsie said, it is different for everyone.  I don't think any two of us here had exactly the same experiences.  Have you asked your breast surgeon about it?

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