What to Expect at Rads Office
I am going to meet with my RADS doctor. I am meeting with 2 of them. I want my tamoxofin while on RADS so I am looking for a doc that does that.
Anyway-what should I expect. What happens at the consult appt. Will he want some sort of scans himself. Does he do an exam.
I am scared that it will be one of those appts that are doom and Gloom.
Help:)
Comments
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I'm sure there's a lot of variance between clinics and rad oncs, but here's what happened at my first appt. I met with the radiation onc, she went over the plan she created for me and why she was recommending what she did; we talked about my general health, skin care, diet, and what to expect from treatment (i.e., possible side effects); she examined my surgical sites and told me everything looked good. She told me I would meet with her weekly, and she answered the questions I had at that time.
Scans - yes, they do some sort of low-level CT scan so they can get your positioning tattoos correct (probably for other reasons too; doesn't involve drinking anything nasty or getting an injection). During the first five or so treatments, they did xrays (I guess to see if they were hitting their marks).
For me, it wasn't a bad experience. My rad onc was very nice and professional, and I don't remember her saying anything discouraging. The techs were great and fun to joke with.
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My 1st appt. was an intro sorta meet & greet ...he then went into "The Plan"telling me risks they have to tell you everything, he checked my incisions,felt node area ,reflexes,etc. then I had to sign to say "Go Ahead".
He met with me twice during rads... Friday is my last treatment ...so yesterday was a question and answer visit...checked how I was...cooking...I had 25 with a bolus, I am quite red peeling( bad sunburn)discoloured under my arm..not to fatigued ...nuttin compared to AC.
ml
C
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I started armidex in Jan last chemo dec 7th...have to agree with CS...the techs were great !
ml C
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My appointment wasn't doom and gloom, but it wasn't exactly a party either. It was just kinda cut and dry, this is what the plan is. The nurse went over side effects, skin care, tips on eating and excercise, etc. The doc came in and I asked her all my questions, she looked at my scars and told me the treatment plan. Then I went to have the CT scans. I was supposed to leave after that but they brought me back in for mapping and tattoos because I have a hard time finding babysitters and that way I wouldn't have to come back. About a week and a half later I went in for the simulation and the next day I started tx. I only see the doc once a week to check on my skin and it's really quick.
My onc didn't want me on the Tam until after rads. She said if there are side effects they want to be sure if it's the rads or the Tam. But there's people doing both at the same time too, so I guess it depends on the doc.
Don't know if that helps, but like I said, pretty boring stuff!
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I loved my Rad Onc, he was from Hong Kong, so we used to actually sit and chat about the awful Canadian weather, etc more than talking about Cancer! Not at all doom and gloom at all.
I had an initial consult soon after I started Chemo, then I went in for mapping a week or two after finishing Chemo. It was not awful at all - two women did it, they were very discreet and respectful - there was a CT and photos and tattoos.
The techs were the same, very professional. I went at the same time most days, so had the same techs, you see the same people waiting as well, it really wasn't unpleasant.The kids would come sometimes - they showed them the machine, and the room, they would have breakfast while I got zapped.
I saw my Rad Onc every week, he would ask how i was doing, if i had burns (no), mostly he didn't even look at me! I had a follow-up 3 months after finishing, and now I don't see him anymore. Easy peasy!
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You will most likely have a CT scan before starting rads...to help map out things. And yes, the tatoos....they were the same appointment for me. I also met my rad onc the same day. They talk about what to expect with rads and skin care. they will give it all to you in writing too.
When rads started....I met with my rad onc once a week. It was very quick...just "hi, how are you, how are you doing/feeling?" Stuff like that. I saw my rad onc only 5 times. I was suppose to see her 3 months post rads, but cancelled because my anxiety was too much going back down to the BIG cancer centre.
Rads by far easier than chemo for me. It was harder mentally though (for me). Like I said, I had to go to the big centre....I saw so many cancer patients and I was always the youngest. My hair was short, and all the ladies in the waiting area had hair, and their breasts and were at least twice my age. I would over hear them complaining about there DCIS diagnosis...* I hope no DCIS ladies rant on me..lol* I wanted to scream. I left almost daily with tears in my eyes. Thats just my experience though
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My first appt with the rad onc was pretty much to give me the basics, then I did the mapping and CT scan - same day. First day of radiation really wasn't radiation, but to get the settings right, line me up, etc. Then radiation. I meet with the rad onc once a week during radiation, not sure what type of follow up plan - still doing radiation.
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They will probably do mapping with itsy bitsy tats,that was nothing,but I do remember the dry run(the day before,my actual Rads)I felt so overwhelmed,laying on the table,bald,and feeling so vulnurable,couldn't stop crying.The techs were great,so understanding.After that it was not bad at all.It felt like a had a job to do everyday(which I did).Had 33 rads.
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The thing that helped me: I brought my ipod with me and played a few songs while I was getting radiated. It gave me some sense of control.
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Good point christine.
I suggest bringing something for distraction purpose. I always had something to read.....even if it was cupon flyers. When you look like your engaged in something.....people are less likely to talk to you in the waiting area. I you like to chit chat...thats fine. But I did not. I have had enough breast cancer talk at that point...I just wanted to get in and out.
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Wow! What a difference in locations and physicians!
The first thing they did for me was hand me a beautiful white Teddy Bear with a beautiful poem wrritten on a colorful gift card! Then, I met with the nurse who went over many things and took a history, and finally the radiation oncologist who told me the plan, and the only thing I would have to worry about really was possible lymphedema. He told me rads would cut "my" chance of recurrence by 50% and he thought it was a no brainer. I was already on Femara, and vitamin E. He just suggested not to do mega doses of any supplements, but had no problem with general use of supplements.
My skin did fabulously, I got like a mild sunburn, and had a special cream specifically for radiation patients to use. One of the physicians on the team also was in favor of alternative/complimentary therapies and said he had seen miracles when he had nothing more to offer some patients!
My oncology center also had a spa which offered Reiki on site, and also since it was a Catholic Hospital, we had Nuns who would come and pray with you. They also had a guitar player play occassionally!
P.S. No tattoos! They just drew on me with markers.
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Wow Carol,
Does your rad hospital have last minute deals?
Sounds great....lol.
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Jacksonville, FL, St. Vincents Hospital!
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I started AI's the same time that I started Rads....I saw the rad onc for the first time while still doing chemo....since this was 3 1/2 years ago, I don't really remember the details...but the first visit was to talk about Tx plan, what radiation was etc....then there was a visit to measure, tattoo the boarders for the rads (these were just little dots like the size of a pin dot) and to figure out how much radiation...then the day before rads started there was a "dry run". During rads, I saw the rad onc weekly. My last visit with rad onc was 6 weeks post rads....my med onc follows me and keeps her posted (I think thats what he said)....I had 25 rad Tx....5 days/week for 5 weeks....2 or 3 different fields. I probably wasn't at the rads clinic more than 1/2 hour/day....luckily it was close to home/work...And it wasn't doom and gloom...the techs who did the rads were great and so friendly...Hugs...
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Thanks for the thread, Pure, I've been wondering what to expect as well. Also, how did you pick your rad onc? I'm not even sure where to start. I assumed my regular onc would just tell me who to see. Is there a particular reason to get more than one opinion, assuming I'm comfortable with the first one and he/she okay tamox as soon as I finish chemo (because I really want it asap, too).
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No teddy bears for me, hahah. The experience was totally fine though. Friendly, cheery rad onc, professional techs. It all went well. It's easy. Getting there every day gives you something to do and to focus on, like a job. The appointments are short which is nice. I had no burning with 25. After chemo, it's a breeze.
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ooh, and I started tamoxifen before rads. When I asked why some people wait, my rad onc. told me that some people find the s/e overwhelming and they don't want to overload them with radiation and tamoxifen.
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kimber...my med onc suggested my rad onc....I really liked her, so that was good.....
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For me I want someone who gives me a good feeling and starts me on tamox asap. Other then that I am use to going to DUKE so seeing sick people is part of the game.
I had a ct and mri before-is this a different type of CT-like of a certain area?
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My rad onc told me that it was a ct scan to set up rads not look for tumors. That made me feel better :-)
I started tamox with radiation - it was my reg onc who prescribed it and told me to go ahead.
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My Med Onc prescribed it for me too, started the same day as i started rads.
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I started tamoxifen the week before rads. I saw my rad onc weekly, and it was nice having her to bounce questions off or check symptoms with. She's the one who suggested I split up the dosage to minimize side effects, i.e., take one pill in the am and the other pm, as I was getting bad bone aches and hot flashes.
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Kerry did you ahve the metabolizer test done?
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I was told no Tamox during rads....I started the day after rads. My oncs recommendations, so different opinion.
Regarding the CT scan, I didn't go into details about what area they are mapping ect...I would asume they would scan your uper torso region ( waist - neck/head). Again, the purpose is to help map out for the rads. The techs are not looking for anything unusual......BUT....if...remember...if..... something was to show up? It would be seen. Thats what was told to me.
You will do good.
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It really is interesting, the difference in treatment, attitude and opinion throughout the country!
I did love the Teddy Bear, though and still have it!
It had a poem something about to hug when you were scared, to cry on, etc. And it is washable, but very good quality!
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don't expect the rad technicians to smile.
must be too much effort. my doc was great
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Jen - no i didn't. My Onc wanted me on Arimidex after having my ooph.
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I know everyone's insurance is different (and thank God I have it) but do you have to pay your deductible every day with rads?
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I don't have any deductibles with radiation, nor did I have to pay for anything with chemo except the dr visits every two weeks.
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billynda....I didn;t have to pay copay for each rad appt....don't remember what I paid, but I think the cost was based the total cost...
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