~* The Waiting Room *~

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  • Alyad
    Alyad Member Posts: 817
    edited February 2010

    Ok, I'm good - she showed what had shown up on the original- a denser looking area- as I'm 36 I still have pretty dense breasts anyway. my original tumor showed up clear as day on the mammo tho. So before we started she said there was a note saying it was probably a compression issue- like an area got folded or something- wish they'd told me that on the phone yesterday!  so we took new films and that was it- I'm fine. Yay!! no ultrasound, no biopsy!

    tricia, I am sorry about your kitty. I have three and they are wonderful to have around- my oldest is 13 and I dread the day anything happens to her.

    JPS- I hope your biopsy is B9!! If you don't mind me asking- how come you are followed up with MRI/Ultrasound every 6 months? I've only been told once a year- there doesn't seem to be any consistency in how we are followed up. I am friends with two local women I met here- we all go to oncs in the same practice and we all have different follow ups as far as what scans we had pre and post chemo, there just doens't seem to be any protocol or rhyme or reason.

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010

    Alyad - I don't mind at all, and thanks for the good thoughts...SO HAPPY FOR YOUR NEWS.    I had cancer in both breasts, DCIS with a micro invastion in the left, and a more extenstive and serious (in the nodes) Invasive Lobular in the right.  The ILC was found by accident after mammography and u/s biopsy found the left cancer, because my breast surgeon ordered a breast MRI.  ILC is very sneaky - doesn't show up on mammography for a long time, if ever - thus the vigilance.  I was having mammograms every 6 months and MRI once a year, but now she alternates MRI and mammogram/ultrasound.  She was able to do lumpectomies so part of the result of keeping the girls is all this looking.  This is the first time since July 06 (just after I finished chemo) that anything has been seen.  That one was B9; hoping for same.  Surgeon thinks very low likelihood, but they don't do watch and wait when you already have "history".

    It does seem to be true that the follow up protocols are all over the map.  I don't do any tumor markers, for example, though in my area and in my oncologist's practice they are 'standard'.  She and I agreed not to.  I guess there is so much 'mix and match' in bc it can be difficult to standardize.

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  • justpayton1
    justpayton1 Member Posts: 786
    edited February 2010

    Alyad- so happy for u!!

    Jps-Hoping your resuklts are B9..I agree w/ you on the fact that protocols are all over the map.

    I just finished rads in Oct...and have been waiting to see what they have lined up for me. I have a family history and they consider me young 38 at dx. So far they have hit me w/ everything that they can. I had a mx in July and still had to do 33 rads plus the booster after dose dense. It seems my onc will not give me a direction just see you in 8 weeks or now 3 months and of course the scan....how often??? who knows...I am thinking maybe yearly?? I am trip neg so they cant give me hormones..this is his way of keeping an eye on me.

    its been making me crazy in my free moments..i try not to go there but your life can change so quickly...

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  • TriciaK
    TriciaK Member Posts: 362
    edited February 2010

    Ladies, my appt was 4pm so only just arrived home thanks to rush hour traffic:(

    Crack open the bubbly and lets get this party started....B9!   B9! B9!!!!!!!!  I still can't believe it and felt like going back to her office to have it repeated lol...the spot has vanished and mri negative.  I don't need to see her until Dec for my usual check up:)      I'm going to pour a chilled glass of wine and breathe for the first time in months , and raise it to all of you:)      

    Thank you again for all your support through this, could'nt have stayed sane without you all.

    PARTY!!!!!!

    Jps,  I'm so sorry to post my good news when you're still concerned about your own, we'll all be thinking of you tomorrow and sending the same B9 wishes for you that worked for me.  xx

    Alyad, so glad to hear your good news too and it seems to be a lucky week for all here in the waiting room so take heart JPS!!!

    Shirley/Lori, and Goldeneyes, huge hugs to you for being there for me.  

    Now, where's that cake lol????

    Tricia xx

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  • prayrv
    prayrv Member Posts: 941
    edited February 2010

    Tricia,

    GRATS!!!!!!!!!!!!!!!!!!!!!

    Wonderful news.

    Hugs,

    Trish

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  • mmm5
    mmm5 Member Posts: 1,470
    edited February 2010

    Oh praise God Tricia.....I think I told you I had a very good feeling for you!

    I am just reveling in your good news!!!!!!!!!!!!!!!!!!! I am feeling how happy and relieved you are and just sinking in to good news Please do some celebrating!!!

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  • GoldenEyes
    GoldenEyes Member Posts: 180
    edited February 2010

    Tricia..

    Hugsss tight.. Wonderful News ! I am so happy for you hon.. Bring on the DRINKS lol

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010

    Tricia - THIS is exactly what the waiting room is all about!  We wait with each other, and we celebrate or commiserate as needed.  I am DELIGHTED to be celebrating.  And so glad to have you lovely women to wait with - who better?  Bring on the bubbly!  Leigh

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Tricia, what can I say but.....Smiley Woohoo   And, I'm dancing all around my room   Dancing Wookiee

    And, having a rootbeer (LOL)...Cheers 

    I am sooooooooooooo happy for you.  It's GONE!  WOW!  Now for that piece of cake.  Oh, and one little funny cartoon....hoping to make someone smile.  This is what I would do if I were a snake..

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Oops!  Forgot the cake.

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  • TriciaK
    TriciaK Member Posts: 362
    edited February 2010

    Oh thank you girls for sharing my news and celebrating with me!:)

     Mmm5, I forgot to add your name earlier and I'm sorry, I was so excited I was'nt thinking straight!

    You all told me so lol, I should have believed you all rather than the Dr's lol....

    Shirley the cake looks delicious and very like the one my son in law bought me yesterday for my B'day, god, so many calories but who cares?   Love your emoticans too, brilliant!   

    Goldeneys, thanks for raising a glass with me sista:)

    Jps,I know you're going to get the same good results and we'll hold back a little of this gorgous cake to share and celebrate with you when you do:)    xxxx

    Good luck tomorrow!

    Tricia xx

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  • lorieg
    lorieg Member Posts: 802
    edited February 2010

    Wohoooooo, Tricia!!! I am SO HAPPY to her your good news!! Awesome awesome awesome!!! You have been waiting in limbo entirely too long.  I hope you are having a great celebration tonight!!! 

    Hugs, Lori

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  • kathimdgd
    kathimdgd Member Posts: 268
    edited February 2010

    Tricia,that's wonderful,and i'm sooooo happy for you!!

    Shirley,sorry i didn't get back here sooner,but the brace i wear isjust a wrist brace.My wrist is painful,and swollen,they say it's not lymphadema and have ruled out blood clots.It goes to sleep all the time,so they're thinking it's the nerves.The one dr wanted to do nerve testing,but that means needles,in that arm,and i'm afraid to go there.So i declined that offer.

    Kathi

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010

    Just a quick note to say the biopsy went fine, very quick; doctor who did it also thinks very low likelihood that this one is "anything"...let's hope the microscope agrees!  Feeling pretty good.  Leigh

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2010

    Leigh...saw your name on the outside of this thread so I thought I would check to see what is going on....sending my prayers for only good news...B9, B9, B9....... yesterday marked my 4 years since Dx.  Hugs.  Karen

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010

    Hi Karen - Thanks!  I remember - my dx was stretched out over several weeks in January, so it's hard for me to pinpoint a one-day anniversary.  I have a pretty good feeling that this is nothing - but I'll be happier when I KNOW.  Happy anniversary!!  Many, many more to come!  Leigh

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  • Alyad
    Alyad Member Posts: 817
    edited February 2010

    jps, be sure and let us know. That cake looked awesome! my DH and I got some frozen custard last night to celebrate the clear mammo! I like to believe that everything happens for a reason and that to a certain degree we create our own reality- but WTH? that callback just gave me a bunch of unneeded anxiety for nothing!

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  • TriciaK
    TriciaK Member Posts: 362
    edited February 2010

    Hi Ladies, I've been going crazy as my internet was down since yesterday so could'nt log into see the news.

    Jps, I know you're still waiting but hoping so much the initial thoughts are right and this is nothing:)

    There's a huge piece of that cake left especially for YOU!!!!!!

     Tricia xx

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010

    Hey, the fact that I "had" to be in Florida to see the surgeon, have the biopsy, and wait for the results, means that I'M NOT IN CHESTER, MARYLYAND, on the CHESPEAKE BAY, getting TWO FEET PLUS of snow...there has to be a bright side, no?  Leigh

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    jps, I'm feeling REAL good about your B9 results.  Ask Tricia.  I KNOW!  Snow?  Did you say SNOW?  Can you imagine...two feet of snow or more?!?  Dreadful!

    Alyad, you deserved that frozen yogurt. 

    Tricia, I know what you mean by not being able to access the internet.  When my family is here or we're with them (at their house), I don't seem to have time to get on the computer...OR, I feel guilty if I do.  It drives me nuts!

    Still will be waiting for the good news, jps.

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010
    Shirley and JO - thanks for the good thoughts.  Will post as soon as I can tomorrow afternoon.  I really have that "nothing" feeling about thisTongue out  Leigh
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  • TriciaK
    TriciaK Member Posts: 362
    edited February 2010

    Holding good thoughts for results tomorrow Leigh and I also have a "good" feeling for you:)

    Jo, thanks so much for your congrats and I can still hardly believe it myself:)      I think we all get the jitter's as test times come but here's hoping yours will be uneventful except to celebrate the good news:)

    Tricia xx

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  • maltomlin
    maltomlin Member Posts: 343
    edited February 2010

    Hi Girls

    I was doing so well & getting on with life 18 months out from dx. Last week a large lump appeared over night. Went to the clinic had ultrasound and biopsy on Friday and just waiting for the results.

    Scared stiff.

    Mal

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  • nene2059
    nene2059 Member Posts: 270
    edited February 2010

    Hi all.  I need to ask for some assistance from this group.  Last year I had IDC in both breasts so has neo DD chemo ACT, bilateral mx with expanders, Tamox, hysterectomy, Femara, implant exchange and now Zometa and Boniva for bone loss.  Well, last week I felt what feels "lump like" to me in a few spots.  One is on the scar in the right breast and the other is on the side of the left breast.  I called my BS and I see him on Wednesday.  I know that I am freaking because this time last year my lump was definitely something to worry about.  I have been told that it is most likey scar tissue, maybe a seroma, I don't know.  I do know that it is WAY too soon to have to deal with this again if they turn out to be something.  Anyone that had a mx with or without recon feel similar "lumpiness" and it was nothing? I was doing great mentally until this.  I don't know if I could have been anymore aggressive in my treatment.  The only thing I did not do was rads.

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  • lexislove
    lexislove Member Posts: 2,645
    edited February 2010

    nene,

    I just had my exchange surgery, so Im not aware of the lumps or bumps that come with it. Im sorry. I had a bump along my scar line with my expander for 2 yrs. Onc said it was the expander and it never changed shape or size...

    I dont think there is anything that I can say to help with this anxiety. Im glad you are going Wednesday to check it out. Ive read that recurrences can happen soon after treatment and if there is a mastectomy it will usually present itself along the scar line. Ive read that it usually "pea sized".  I have yet to come across photos of what a recurrence looks like or feels like. BUT...you say that there is another lump in the opposite breast...so maybe its just that ....lumps.

    what a pain in the you know what!!!!

    Just when your feeling good emotionally...some other crap happens. I felt like this last month after my cyp2d6 test.

    I hope someone else can help answer your question...or better yet...someone who has had a recurrence after mastectomy can offer some insight!

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  • TriciaK
    TriciaK Member Posts: 362
    edited February 2010

    Hi Mal and Nene,

    I had a lumpectomy rather than a mast but like Jo, still feel a hard lump there which is scar tissue.

    Wishing you both benign results and please keep us posted:)

    Tricia xx

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  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited February 2010

    Mal and Nene - thinking good thoughts for you both.

    All my waiting room sisters - BENIGN!!  Surgeon and I did happy dance, very small fibroadenoma, no need to remove, next check in routine breast MRI and (right side) ultrasound in August.  

    Thank you all SO much!  Leigh

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2010

    Leigh....came to check to see if you  had heard anything yet and so thrilled for you for B9 results...I can just see you doing the happy dance....happy dance for B9 and happy dance not to be buried in snow....it is unbelievable how much snow the east coast is getting, especially places that aren't used to snow like DC, VA, MD etc.....Hugs, Karen

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  • nene2059
    nene2059 Member Posts: 270
    edited February 2010

    Well ladies all of the good thoughts and wishes worked!  My BS did an ultrasound and it is SCAR TISSUE (or possibly fat necrosis as well)!!!!! He said it is nothing to worry about and this is a man that pulls no punches.  The first thing that he said to me when he met me was, not hello how are you, but "I am 99.9% sure this is cancer and I will be shocked if it comes back as anything else".  Needless to say he was not shocked last year.  I have grown to adore him and, obviously, trust him with my life.  Anyway I am also doing the happy dance and sending out the best of wishes for anyone finding themselves in "The Waiting Room".  This BC journey can be absolute torture and just when you think you have it back together something like this comes around to remind you that there is still quicksand underneath. Enough of the negativity.....I have happy dancing to do!

    Jenn

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  • lexislove
    lexislove Member Posts: 2,645
    edited February 2010
    Great news Jenn! Smile
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